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The 2009 issue of the annual magazine from CHASE hospice care for children
Citation preview
Supporting familieswith life-limitedchildren andteenagers throughoutSW London, Surreyand Sussex.
magazinewww.chasecare.org.uk
Jess spent the summer holidays cycling across China and teaching children...
... she went on to achieve 3 A’s at A level
Creative thinking, creative learning.
To fi nd out more about Guildford High School and our Visitors’ Mornings please call us on 01483 543853; alternatively contact Mrs Sally Fowler, Registrar, [email protected] or visit www.guildfordhigh.surrey.sch.uk
THE RED HOUSECare Home
24 hour nursing care • Long term and respite stay
Full programme of activities • Day care
Commission for Social Care Inspection - Excellent 3* Rating
For further details please contact the manager on 01372 274552Email: [email protected] • Website www.redhouseashtead.co.uk
43 Skinners Lane, Ashtead, Surrey KT21 2NN
REGISTERED WITH THE COMMISSION FOR SOCIAL CARE INSPECTION
33CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
ContentsP5 WelcomeP6-7 A Year in PicturesP10-11 Meet two members of
the CHASE CommunityCare Team
P14 Millie-May’s Family –From Redhill
P15 Tuckwell CHASE LotteryP16 Donation FormP17 Sponsorship FormP20-21 Rhea’s Family – From
CroydonP22-23 Christopher’s, the CHASE
children’s hospice
P24 Friends of CHASE Groups,Volunteering & Schools
P25 CHASE Challenges & Events
P26 Businesses and otherways of supportingCHASE
Gemma from the CHASE Community Care Team with Henah and her mum Deepa at the family’s home in Crawley.
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CHASE Fundraising Office:Loseley Park, Guildford, Surrey GU3 1HSTel: 01483 454213Fax: 01483 454214
Christopher’s children’s hospice:Old Portsmouth Road,Artlington, Guildford,Surrey GU3 1LPTel: 01483 230960Fax 01483 230961
Registered Charity No. 1042495 A company limited by guarantee No. 2927688 - England
Registered Office: The Oriel,Sydenham Road, Guildford, Surrey.GU1 3SR
Publishers: Community Appeal Media Ltd www.camcentral.co.ukDesigned by Grapevine Design and Print Tel: 01903 531531
Contact Details
FOR FURTHER DETAILS, PLEASE CONTACT:Cosmo Jackson • Hurtwood House • Holmbury St Mary • Dorking • Surrey • RH5 6NUT: 01483 279000 • E: [email protected]
Hurtwood House has thebiggest and best Drama andMedia Departments inEngland, with superbprofessional facilities. It is alsohugely successful academicallyand has been top of theleague table for two of thelast four years as theBEST CO-EDUCATIONALBOARDING SCHOOL INTHE UNITED KINGDOM.
Uniquely, our 300 boardingstudents join us after GCSE,when they are ready for thefresh challenge of a sixth-formwhere life is as exciting andstimulating as it is atuniversity. Structured andsecure, innovative anddynamic, Hurtwood House isone of England’s mostsuccessful and excitingschools.
THE SCHOOLWITH THE BESTPERFORMANCE
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CHASE has to raise £4 million a year to
ensure its vital service is able to continue
and the vast majority of this funding
comes from charitable donations and
fundraising. There are more families who
need our support and we need to ensure
none of these families are ever let down.
In these uncertain economic times it is
more important than ever for people to get
involved and help us to fundraise. We are
therefore calling on members of the
community to help us in any way they can.
Thank you.
David King
Chief Executive
You can get involved in a number of ways:
• Raise money through a sponsored race
or event (see page 25)
• Set up a CHASE Friends Group (see
page 24)
• Get your workplace involved (see page 26)
• Get your school involved (see page 24)
• Other ways of Supporting CHASE (see
page 26)
To keep up to date with the latestCHASE news, sign up for updates atwww.chasecare.org.uk/newsletter
and communities. At CHASE we believe it
is the families who know best when it
comes to the care of their child and our
aim is to support them, in whatever way is
needed.
Christopher’s, our children’s hospice is
based just outside Guildford and families
from across the whole CHASE area come
to Christopher’s for a break.
Christopher’s provides a home-from-
home environment in a warm and friendly
atmosphere – so parents can be parents
for a while – not just carers. CHASE takes
away the strain of 24 hour care to give
families the time to create special
memories which can be so valuable for
them in the future.
Since CHASE was established it has
touched the lives of over 700 families –
and every year this involves offering
support to more than 1200 family
members.
to the new magazinefrom CHASE hospicecare for children.
We hope, through the pages ofthis magazine, to give readersan insight into the vital work
that CHASE does in the communitythroughout South West London, Surreyand Sussex and at its children’s hospice.
CHASE hospice care for children gives
help and support to families with children
and young people who are life-limited –
these young people are not expected to
live to reach adulthood.
CHASE supports the whole family not
just the life-limited children and our service
is flexible, practical and holistic, with the
focus on making every day count.
Members of the CHASE community
care team are out on the road throughout
the year supporting families in their homes
Welcome
55CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
Henah being supported at home in Crawley by
Gemma from the CHASE Community Care Team.Jack – who was delighted to be mascot for the day at Surrey County Cricket club
6
a minor heart attack in training. He
recovered well though and was still
determined to take part so he did the ride
on his rather ancient motorized scooter!
Find out more about challenges on p25
or visit www.chasecare.org.uk/challenges
The 42-strong group was joined by Sky
News broadcaster and Eggheads quiz host
Dermot Murnaghan. Also on the ride was
main sponsor and headhunter Jonty Watt of
Watt Search and Selection, a City
recruitment firm, who had recently suffered
January – CHASE takes families iceskating
Agroup of children from CHASE
hospice care for children enjoyed
some ice skating at Hampton Court
courtesy of CHASE supporters, Foresters
Insurance.
CHASE care team member Kylie
Quincey went along to take photographs of
the event for family scrapbooks. She said:
“The families really enjoyed it – even some
of the children in wheelchairs went on the
ice. It was a lovely day out that the whole
family could participate in together and we
all had a wonderful time.”
Find out more about CHASE families on
pages 14 and 20, or visit
www.chasecare.org.uk/familystories
Joy goes ice-skating with her dad Stephen
March - Weight Watchers Easter EggAmnesty benefits CHASEIn a bid to avoid the temptation of too many
calories over Easter, a local Weight
Watchers group held an Easter Egg
Amnesty to encourage members to hand
over those tempting chocolate treats.
Find out more about fundraising on p24 or
visit www.chasecare.org.uk/fundraising
May – 42 Cyclists arrive in ParisFor the third year running Iain Armitage,
whose family is supported by CHASE,
cycled from London to Paris with a band of
plucky riders, raising a total of £230,000.
A year in pictures...
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 4542136
Anne Marie Rosoman from Weight Watchers (right) with CHASE Fundraising Manager Melanie Hill
December – Sensory Garden atChristopher’s gets a make-overLeatherhead construction company
Alterspace project-managed a complete
makeover of the sensory courtyard at
Christopher’s, our children’s hospice,
free-of-charge.
August – Dunsfold Wings and WheelsCHASE had a stall at the Wings and
Wheels Airshow and was one of six
charities to receive funds from ticket sales,
raising £3,500. To find out about the latest
events raising funds for CHASE visit
www.chasecare.org.uk/events
September – Old School friends cycleevery county in England to raise fundsThree friends cycled around all 48 counties
of England in just over three weeks.
They took pictures of the signs as they
entered each new county as proof of
their achievement for when they returned
to collect sponsorship from friends and
family members!
Read the latest CHASE news at
www.chasecare.org.uk/news
Eric Clapton guards the wicket. Photo by
Russel West (photojournalist)
June - Eric Clapton XI v The Bunburys CHASE Patron Eric Clapton fielded a team
of celebrities to play in a celebrity cricket
match against The Bunburys, the country’s
best known touring team of celebrities,
former players and cricket professionals.
Eric's team provided much
entertainment and action and a huge
surprise to spectators when former Rolling
Stone Bill Wyman sent Surrey and England
player Mark Ramprakash's stumps flying!
However, The Bunburys won the day.
Find out more about CHASE patrons at
www.chasecare.org.uk/patrons
7CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
The Red Arrows display at the Wings and Wheels Airshow
Thomas Hunt, Joe Egerton and James Frankis raised £1,500 from their challenge
Building contractors Alterspace getting into the
Christmas Spirit
Specialised equipment for the courtyard,
such as fibreoptic lighting, outdoor musical
instruments including drums and chimes,
and tactile seating cubes, was purchased
with funds raised by the Armitage family
and the London to Paris cyclists.
Find out more about how your business
can get involved with CHASE on p26 or go
to www.chasecare.org.uk/corporate
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CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 4542131010
Meet Two Members of the CHASE
Marina – Supporting Families inSurreyCaring for the complex needs of a
seriously sick child, chatting to a
bereaved parent or listening to the
anxieties of a sibling are all in a day’s
work for Marina Crail (29).
Marina supports families in and around
Dorking, Leatherhead, Ashtead and
Bookham, and is out on the road most
working days. She says the challenge of
the job is enormous, but she loves the
work and knows that what she does
makes a real difference to the lives of
these families.
Marina said the role of nurses at
CHASE has become more medically
focused over the past few years, as
opposed to being purely a caring role.
“There is a high proportion of children
who require a specialist, skilled nursing
role, for instance requiring a system of
feeding through a tube direct into a
vein. There are also a number of
children with cancer who have complex
medical needs.”
The job is incredibly rewarding – giving
families the opportunity to spend some
quality time together by taking away some
of the strain. But this can put strain on the
Care Team Members themselves, so how
does Marina deal with it?
“Yes of course I get upset – we all do
and yes you will cry with the family but
you have to distance yourself as much as
you can – without distancing yourself
completely. It is difficult to explain but we
all have our own ways of protecting
ourselves from getting too entrenched in
the family’s grief. We have to be there to
support and help them – and be strong
for them.”
“CHASE also offers great support to all
of us in terms of helping us to deal with
the most difficult and challenging times
that we face in helping these families. All
staff members have clinical supervision
and we work in a very caring
environment. If someone is upset then
there is always someone here to listen.”
Janis – Supporting Families inCroydon and SW LondonJanis Wakefield lives and works in
the Croydon area supporting families
for CHASE.
She currently looks after 26 families in
this area, visiting them regularly at home
to help with day-to-day needs. Janis
explains: “Support for families in their own
homes and communities is vital, and it is
important for someone to be close at
hand if there is an urgent call.”
She has always worked in the field of
care and has a wealth of experience
caring for young people in the NHS and
private sector. After a spell as “nanny” to
her granddaughter, she joined CHASE
five years ago.
However, there is no typical day for
Janis. “I will check my diary to see what I
have planned for the following day but
CHASE Community Care Team Member Marina Crail
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213 1111
when I get to the family I might find I am
doing something completely different.
“It might be a hospital visit – I will sit
with children who are in hospital to give
their parents a break. I might find when I
get to their home that Mum might need to
go out to the shops so I will look after the
sick child while she is away. Sometimes I
will take the siblings out somewhere as
trips for them are a rare treat.
“No two days are the same, but we
always give families just a little bit of free
time. Mum may not have been outside the
door since my last visit, because of the
intensive 24-hour care that her child
needs at home.”
Janis will sometimes give the children
a massage if they are stressed – as this is
very comforting for them. She is currently
taking a comprehensive course in
massage and once fully qualified, she will
be able to offer massage therapy to the
Mums as well.
“We have massage therapists at our
children’s hospice but it would be good to
be able to take this out into the
community as well.”
Janis has a relaxing and artistic hobby
which she loves and which also benefits
the young people she cares for: she
makes them special greetings cards for
birthdays and other occasions.
Janis says working for CHASE is
wonderfully rewarding because she knows
how much people really appreciate her
support and they always look forward to
her visits. She cannot imagine working
anywhere else.
Community Care Team
Find out more at www.chasecare.org.uk/howCHASEhelps
Janis in the Garden room at Christopher’s
children’s hospice
Massage is very beneficial for babies and children with life-limiting conditions
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CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 4542131414
Millie-May’s family – from Redhill
Millie-May is always laughing, reallynosey and a real hit with everyone.Emma and Dave – Mum and Dad –
describe her as a real treasure and Ruby, hernine year old sister, loves her to pieces.
But life for the four year old has been
a round of doctors, hospital, surgery
and struggle.
Millie-May’s life has been dominated by
illness and challenge. She was born with
the rare Costello Syndrome in 2003 – a
debilitating syndrome with only about 300
cases worldwide. She has heart and kidney
complications and has had a cardiac and
respiratory arrest. On top of this, she has
had bronchiolitis twice and suffered
agonising pain caused by kidney stones
that went undiagnosed for many months.
She cannot feed orally, fully support her
head, roll over, crawl or walk. She lives with
constant breathing difficulties, which means
being supported by a ventilator every night
as she sleeps. Until she reaches the age of
eight she has a high risk of developing
tumours: hospital appointments are a
regular routine.
Millie and her family were first
introduced to CHASE by their health visitor
when Millie was not yet a year old. They
were going through some of the most
testing times. They now get invaluable and
incredible support, both at Christopher’s
and at home, without which life would have
been much worse.
Having previously worked in publishing,
Emma is now Millie’s full time carer. Emma
says: “I have to watch and entertain Millie
all the time when she is at home, as well as
providing for 100% of her needs. Despite
all these challenges she has enriched our
lives hugely.“
The family try to live as normal a life as
possible, given the restrictions that Millie-
May’s condition imposes, and they make an
effort to go away on holiday which is
important, particularly for Ruby. They went
to Suffolk last year but Emma said it wasn’t
easy – they had to take two cars because
of all the equipment they needed to support
their young daughter during their break.
As such they really appreciate any
breaks they are able to take at the CHASE
children’s hospice, Christopher’s. “We get
15 nights from CHASE as well as the
ongoing community help at home. They are
brilliant. We drive up there and when you
walk in you feel you are going home. You
know everyone there has an issue so when
I am plugging Millie-May into her feeding
tubes, no one stares.
“We really appreciate the support
CHASE gives us as a family. They have
brilliant siblings days and Ruby thinks it is
wonderful. There are splash sessions for
families as well, and when I take Millie-May
to the ‘Little CHASERS toddlers group’ I
can go and have a therapy session, either
an Indian head massage, reflexology or
aromatherapy, it’s fantastic.
“They do music therapy for the children
as well; Millie-May got so excited one time
there when she was able to ring a bell.”
Millie-May has now put on weight and is
improving – so much so that she was able
to start at Brooklands special school at
Reigate. Emma says: “There are a million
things to think about, plan for and
communicate to others just to ensure that
Millie is packed up for school every day. I
still have to watch her all the time when she
is here so I really appreciate the ‘time-out
opportunities’ that CHASE gives us as a
family. Every day brings something different
and I cannot imagine life without her.”
To read more CHASE family stories please visit www.chasecare.org.uk/familystories
CHASE Care Team Member Gemma and Millie-May smiling for the camera!
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213 1515
Tuckwell CHASE Lottery – Give it a Chance!
The Tuckwell CHASE Lottery hasrecently celebrated its TenthAnniversary Draw.
The Lottery is really easy to play and
gives you a chance to win £1,000, plus 70
smaller prizes, every week!
Entry is £1 per chance and members
can buy as many chances as they want.
The lottery raises over £170,000 a year for
each of the charities it supports, CHASE
hospice care for children and Phyllis
Tuckwell adult hospice.
The lottery donation is one of the
few regular, sustainable sources of
income that the two hospices can rely on
each month.
Its annual donation to CHASE hospice
care for children provides support in the
home and at Christopher’s for sixteen
families for a year.
Former BBC Southern Counties Radiobreakfast presenter Fred Marden draws thewinning ticket for the 10th Anniversary Draw atthe CHASE Fundraising Office
Tuckwell CHASE Lottery Application Form
Title.................... Initials........................ Surname................................................................................................................................
Address.................................................................................................................................................................................................
..............................................................................................................................................................................................................
Post Code......................................... Telephone...................................................................................................................................
NOTE: YOU MUST BE OVER 16 YRS OLD TO PLAYCheque Payment
I wish to buy ■■ chance(s) each week for 13/26/52 weeks and remit a cheque for £ ■■made payable to 'TC Lottery Ltd'
Standing Order Payment To ........................................................................ Bank plc
Branch ...............................................................
Sort Code ■■■■ ■■■■ ■■■■ Account Number ■■■■■■■■ ■■■■■■■■ ■■■■■■■■ ■■■■■■■■Account Name ....................................................
PLEASE DEBIT MY ACCOUNT AS PER THE FOLLOWING DETAILS : Ref no: Office use only
Nat West Bank plc, Farnham
Payee: TC Lottery Ltd Account Number 59020024
Sort Code 60 08 15
Commencing (date)............................................................. the sum of:
■■ chance(s) @ £4.34 = £ ......& thereafter monthly
■■ chance(s) @ £13 = £ ........ & thereafter every 13 weeks
■■ chance(s) @ £26 = £ ........ & thereafter every 26 weeks
■■ chance(s) @ £52 = £ ........ & thereafter every 52 weeks until further notice.
Signed.................................................................................................... Dated..................................
Tuckwell CHASE Lottery is registered with the Gambling Commission under the Gaming Act 2005.
www.gamblingcommission.gov.uk. Lottery Manager: Susan Wade
Please fill in your details together with your preferred payment option, then simply send it toTuckwell CHASE Lottery Ltd, Freepost (SCE 6595), Waverley Lane, Farnham, Surrey, GU9 8BL.
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 4542131616
Donation form
I would like to donate to 1) YOUR DETAILS
Title Forenames (in full)
Surname
Address
Postcode (required for Gift Aid) Telephone
2) PLEASE TICK THE APPROPRIATE BOX
I WOULD LIKE TO GIVE A REGULAR GIFT, PLEASE SEND ME FURTHER DETAILS
I WOULD LIKE TO GIVE A SINGLE DONATION (DETAILS BELOW)
3) CHEQUE DETAILS
I enclose a cheque for £ payable to CHASE
4)
I confirm that I pay an amount of income tax and/or capital gains tax at least equal to the tax that CHASE reclaims on my donations in the tax year. Please tell us if your donations no longer qualify for Gift Aid.
I want the charity to treat all donations I have made for the six years prior to this year
(but no earlier than 6/4/2002) and all donations I make from the date of this declaration until I notify you otherwise, as Gift Aid donations.
Gift Aid increases
the value of your donation at no extra cost to you! Please tick OR: I do not pay tax. Please update your records.
5) DATA PROTECTION CHASE hospice care for children (and CHASE Hospice Trading Ltd) would like to hold your details in order to keep you up to date with our news, events and fundraising activities. We will not sell your details to any third parties, however in the future we
may share details with other trusted organisations in the hospice movement. In order to carry out our work we may need to pass your details to service companies who are authorised to act on our behalf. If you would prefer us not to use your details in these ways please tick here
If you would prefer not to receive thank you letters from CHASE for any donation that you may make please tick here
6) CREDIT CARD DETAILS
Please charge £ to my credit/debit card
Visa Master card Switch* Other (please state)
Card no. / / / /
Start date / Expiry date / Issue number (switch only)
Name as printed on card
Signature Card Security No.
7) PLEASE RETURN FORM TO THE ADDRESS BELOW
CHASE hospice care for children, Loseley Park, Guildford GU3 1HS.
Tel 01483 454213, Fax 01483 454214, [email protected]. Reg. Charity no: 1042495
www.chasecare.org.uk/donate
CHASE supports families with children and teenagers who have life-limiting or significant life-threatening conditions.
Specialist practical and emotional care is provided free-of-charge in their own homes and communities throughout
SW London, Surrey and Sussex, and at Christopher’s, our children’s hospice.
CHASE only receives minimal, short-term government funding so we rely on you.
Donation form
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213 1717
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CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 4542132020
Rhea’s family – from Croydon
From the day she was born Purabi,
from central Croydon, believed that
there was something wrong with
her baby, and after a cranial ultrasound at
two months old they realised that little
Rhea had major brain damage.
Rhea has cerebral palsy with many
complications, which include scoliosis,
sleep disturbances, breathing problems
and constipation. She has a
developmental disorder resulting in the
two sides of her brain having abnormal
structures, and cortical blindness, which
means her eyes work but her brain doesn’t
carry the message to enable her to see.
She also has severe epilepsy, and has
to be tube fed a special diet for her
epilepsy - all of which means she is a
very sick child. She is under the care of
eight different consultants at Great
Ormond Street Hospital as well as several
local professionals, and she needs 24
hour care.
Purabi’s husband left her with the
baby to care for but she is fortunate to
live with her father Vithal, now a
widower. They share Rhea’s care
between them, but life has proved to be
more complicated than they could ever
have imagined. Their kitchen looks like
a laboratory with all Rhea’s feeding
equipment and other apparatus that
is needed.
Life is a catalogue of hospitals,
paediatricians and consultants and Rhea
has had three major operations. Initially
they struggled on their own and found it
very difficult to cope, until a care worker
suggested they contact CHASE.
Purabi had never thought of Rhea as
being life-limited – and the idea of using
a hospice service was very frightening.
But they decided to approach CHASE
and it proved to be a turning point in
their lives.
Purabi, Rhea and Vithal now receive
regular visits from Care Team Member,
Val O’Donnell, who has been going to
their home on community visits for four
years so she knows the family really well.
Val cares for Rhea’s medical needs
and has a really calming effect, giving
Purabi with Rhea on the London Eye
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213 2121
Purabi and Vithal an opportunity to be
Mum and Grandad for a while, instead of
just carers. Christopher’s, the CHASE
children’s hospice, is also a wonderful
haven for Rhea and gives Purabi and
Vithal an opportunity to take a break from
their exhaustive carer’s routine.
Vithal always goes to the
grandparents’ days run by CHASE, which
provide grandparents with an opportunity
to meet others in the same situation, to
share their feelings and experiences.
Purabi and Rhea used to visit
Christopher’s every fortnight when Rhea
was younger, to attend Little CHASERS,
a pre-school group where there were
some excellent activities for her to enjoy
and where Purabi made friends with
other mothers.
They like to take the short breaks that
CHASE offers in big chunks. Purabi says:
“You just pack your bags, take Rhea to
Christopher’s and fly away – it’s
wonderful! It gives us something special
to look forward to. We are so grateful to
CHASE because without a break
sometimes we would never be able
to cope.”
“It is incredibly difficult and heartbreaking to look after your life-limited child 24 hours a day putting in 100% effort, love and care into what you do for them,knowing all along that one day they will be prematurely snatched from you andyou will be left with nothing, but a shattered heart and a massive void in your life.CHASE helps you to care for your child during their life, whilst helping youprepare for a future without them.” – Purabi, Rhea’s mother
“Christopher’s is an amazing place. If I phonearound midday Rhea hasprobably already been inthe pool, the sensoryroom and the art room.Vicky does music therapywith her and there is a ballet school coming soonto entertain the children.There are so many thingsat Christopher’s that shecan do that we cannot dofor her at home.”Purabi, Rhea’s mother
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 4542132222
Christopher’s, the CHASEchildren’s hospice
In addition to the care they receive intheir own homes and communitiesthroughout the year, all families
are welcomed for short breaks atChristopher’s, the CHASE children’s hospice.
At Christopher’s the CHASE Care
Team takes over the child’s care routine
completely. This can be complex and
many children require constant care and
attention 24 hours a day. Without support,
it can be exhausting for family members
who care for the child, which also has
a strong effect on siblings and the
extended family.
This is why Christopher’s provides
opportunities for the whole family to relax
and recharge their batteries. It is a
welcome break that gives them the
precious time and space they need to
make the most of every moment together
with their life-limited child.
There are four family flats, as well as
nine bedrooms for children or teenagers
who can also spend time at Christopher’s
independently while the rest of the family
takes a break elsewhere.
Christopher’s has a friendly ‘home-
from-home’ atmosphere with many
wonderful therapeutic facilities for children
and families to enjoy. The fun times
enjoyed here today become happy
memories for the future that will
last forever.
In a safe and secure environment, the
hospice also provides emergency, end-of-
life and specialist palliative care (palliative
care relieves or soothes the symptoms
of a disease or disorder without effecting
a cure).
Therapeutic FacilitiesThe wide range of therapeutic facilities
provide opportunities for families and
children to do things that might be taken
for granted by others.
For instance, swimming in the
hydrotherapy pool with the CHASE Care
Team at hand and a special harness for
children who need it can be a wonderful
experience for the whole family. Families
even get together at the regular SPLASH!
sessions, which allows them to get to
know others in similar situations.
Isobel with CHASE Care Team member Jo, at
the Music Workshops with the Royal
Philharmonic Orchestra at Christopher’s.
“Sophie has experienced so much during her time at
Christopher’s and we have many lovely memories; we
were able to take her swimming, for trips out and she
even met Mickey and Minnie mouse!” – A CHASE family.
FUNtastic with Indigo at Christopher’s
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213 2323
At Christopher’s, life-limited children,
teenagers and their families can use
special accessible computers, interact
with sounds, lights and vibrations in the
Sensory Room, de-stress with an
aromatherapy massage, play with musical
instruments during a music therapy
session, and much, much more.
Special eventsThroughout the year there are lots of
fun events designed to put smiles on
faces and create special memories
for tomorrow.
At Christmas FUNtastic, a sensational
pop-band for children, visited
Christopher’s to sing their own versions of
Christmas carols to children who receive
care and support from CHASE.
CHASE Royal Patron, HRH The
Countess of Wessex, recently made a trip
to meet families at Christopher’s and to
see the developments that had been
made there since she performed the
official opening in 2002.
The Countess saw the hobbies room,
teenage den and therapies room, as well
as the lounge and recently built garden
room which she had not seen before.
Evie and Maddie with mum Carrie and aunty
Mandy, and Indigo with mum Emma, at the
CHASE hydrotherapy pool.
HRH The Countess of Wessex with Madeline
and her parents Katherine and John, from
West Ewell, Surrey.
Find out more at www.chasecare.org.uk/aboutCHASE
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 4542132424
Volunteering
CHASE hospice care for children isfortunate to have a team of 200committed volunteers who give uparound 1100 hours of their time everymonth to help the charity. If paid a salary,this would cost CHASE around £12,000 amonth or £145,000 a year – proving thatthey are worth their weight in gold!
Volunteers undertake a wide variety oftasks at our Fundraising Office and atChristopher’s, our children’s hospice.
Their help at fundraising eventsthroughout SW London, Surrey andSussex is vital, and they form an integralpart of the CHASE team.
Meet new people and make newfriends while helping life-limited childrenand their families: Volunteer work canprovide some of the most rewardingexperiences of your life. To find out more visitwww.chasecare.org.uk/volunteers
Tim Hope volunteering at Christopher’s, the
CHASE children’s hospice
Friends of CHASE Groups“It doesn’t matter how much time you have or whatyou can do – every little helps.” – Sarah Johnson,Epsom Friends of CHASE Group
“I do get a great sense of having done somethingworthwhile. Being able to give up my time and notexpect anything back in return is very rewarding and Ienjoy the sense of cameraderie and support atCHASE. Everyone is always looking out for everyoneelse.” – Tim Hope, CHASE Volunteer
Fundraising at SchoolFundraising can be a great way for everyone to get involved in a fun, teamproject that will make a real difference to the children and families CHASEsupports.
For example, all three classes of Year 2 students from Brooklands College inWeybridge brainstormed and planned their own fundraising themes, and thencombined their events with a ‘Fancy Dress Day’ that raised £1,500 for CHASE.
Be on our team – start with an A-team!Why not set up an A team? Like a charity committee, A-Teams hold meetings,decide on events, learn how to budget and plan an event or activity – with theultimate satisfaction of raising money for a much-needed cause.
Our Fundraising Team can help you with your fundraising whatever yourplans - from Christmas fairs to fancy-dress days, we can give you all the helpand advice you need.Find out more at www.chasecare.org.uk/schools Fundraising students from Brooklands College
Map showing all 19
Friends of CHASE groups.
The first ‘Friends of CHASE Group’ was set up in Richmond and Kingston in1995. CHASE now has 19 Friends Groups and hundreds of supporters whoare the cornerstone of CHASE, not only raising fantastic amounts of moneybut spreading the word and encouraging others to raise funds for us too.
We need our supporters to help set up more Friends Groups or getinvolved with our existing Groups. Fundraising is a really beneficial way ofhaving fun and meeting new people, as all your efforts make an amazingdifference to the lives of local families with life-limited children andteenagers. To find out more, visitwww.chasecare.org.uk/friendsgroups.
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213 2525
CHASE Challenges & EventsChallengesMany people take part in sponsored
challenges for CHASE, doing amazing
things to raise vital funds to keep the
CHASE service running.
Just a few of the challenges that could
raise funds for CHASE include fire-walks,
parachute jumps, running events, car
rallies, bike rides, white water rafting,
head-shaves, silences... anything that is a
challenge can be an inspiring fundraising
opportunity!
To take part in a challenge for CHASE
please contact the Fundraising Office on
01483 454213 or visit
www.chasecare.org.uk/challengesYou can also use the sponsorship form
on the centre page of this magazine. There
will always be a challenge for everyone!
Lands End to John O’GroatsThe intrepid Race for CHASE team made it
all the way to John O’Groats in Scotland from
Lands End in Cornwall in an incredible five
days – cycling an average of 180 miles a day
on the gruelling 900 mile journey. Organised
by Jules and Iain Russell from Guildford,
whose family is supported by CHASE, the
team raised over £50,000 for CHASE.
Find out more at
www.chasecare.org.uk/raceforchase
EventsOur dedicated supporters and Friends
Groups organise hundreds of fundraising
events each year. From wine tasting to
antique trading, and from art shows to
discos, these events raise vital funds to
sustain the CHASE service.
CHASE also organises a Fun Run at
Loseley Park in Guildford, a sponsored
‘bridges’ walk in London, and has a team
of Marathon Runners whose members
have collectively raised over £1 million in
the past ten years.
To see a full list of CHASE events just
go to www.chasecare.org.uk/events
Loseley 10K & 4k Fun RunEach year the Loseley 10k and 4k Fun
Run in November attracts about 1,000
runners, who hit the trails around Loseley
Park for CHASE. Last year they raised
£38,000 to help the families with life-limited
children and teenagers CHASE supports.
Both routes loop over road, track and
field in the beautiful grounds of Loseley
Park, near Guildford, starting and ending
in front of the magnificent Loseley House.
Everyone agrees that the hilly 10K course
is a great opportunity to test their fitness
levels, while the 4k route is enjoyable
whether you race, jog, or stroll at a
leisurely pace with the whole family.
To find out more go to
www.chasecare.org.uk/loseleyRun
Let’s LunchThe CHASE Let’s Lunch campaign aims to
get as many as people as possible to
organise lunch with their friends, families
or colleagues in the month of March and
raise money for CHASE at the same time.
CHASE Patron and GMTV Presenter
Andrew Castle recently pledged his support
for the campaign, saying: “We are planning
to get some of our friends and family round
for a special lunch for CHASE. This will be
a great opportunity to get everyone
together, have a catch up, and enjoy great
food whilst raising money for CHASE.”
To find out more please visit
www.chasecare.org.uk/letslunch
Andrew Castle with CHASE staff members and supporter Ben Feist (with medal) after the Loseley
10K and 4K Run.
Canada to MexicoOne of the most extreme challenges
undertaken by a CHASE supporter was
Andy West from Guildford, walking from
Canada to Mexico in 2008.
Andy followed the Continental Divide
Trail down the Rockies and ended up
hiking around 2,700 miles in five months.
Find out more at
www.chasecare.org.uk/andywest
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 4542132626
Businesses supporting CHASESupporting CHASE can enhance your
organisation’s image with staff, suppliers,
customers, and the local community, and
generate some great PR coverage. You
can enjoy a rewarding experience and
make a real impact, whatever the size of
your organisation. We would be delighted
to work with you and find a way to get
involved that suits your organisation.
“With the help of PR coverage we
doubled our expectations in terms of the
money we raised for CHASE and
increased our profile with local
businesses.” Daniel Beck, Daniel
Alexander Consulting.
To find out more please visit
www.chasecare.org.uk/corporate oremail [email protected] The CHASE Care Team accept gifts from Philips
employees for the children CHASE supports.
When Ann and Robert Warne from Billingshurst held their Golden Wedding celebrations in 2008
they raised over £1,000 for CHASE by requesting donations instead of gifts. They also held a
raffle on the night for CHASE, and all 100 guests were pleased to be able to support the charity.
If you are celebrating a birthday, wedding or another special occasion and would like to request
gifts to CHASE, our Fundraising Team can set up a unique Fund for you, so we can let you know
the total raised and provide a list of donors (without detailing individual amounts).
If you would like to make a one-off donation on behalf of a friend, family member or colleague,
CHASE also has a range of gift cards as well as ‘e-cards’ for emailing – to find out more visit
www.chasecare.org.uk/gifts
Gifts as presents
Legacies
An anniversary card showing a
donation has been made to CHASE
Requesting or making donations in memory
of friends or loved ones can be a very
special way of celebrating their life and
honouring the values and beliefs that were
important to them.
For instance, one supporter from Alton
was able to realise the last wish of her
husband by raising around £14,000 for
CHASE in his memory. Sheila Betts’ husband
Roy wanted to celebrate the 25th anniversary
of their flower shop in Alton High Street with a
flower festival. Plans got underway, but when
the couple saw an episode of Challenge
Anneka which was filmed at CHASE and
highlighted the work of children’s hospices,
they decided that evening that the flower
festival should be in aid of CHASE. Sadly, the
very next day Roy died.
Sheila bravely decided to continue with
his dream and added a memorial concert
to the celebration which featured the Welsh
Ynysowen Male Choir from Aberfan -
which was formed in 1968 after the
Aberfan disaster when 116 children died.
Sheila requested donations in memory of
Roy instead of flowers, and a collection at
Roy’s funeral raised £640. The remaining
money, totalling £7,000 was raised at the
flower festival and concert.
It became clear to Sheila that the audience
had their own special people to remember, so
she decided to hold another concert this year.
She explained: “I decided to call the concert
‘A Night To Remember’, in memory of all
those we love but see no longer.” The event
was compered by her friend and regular
customer at her flower shop in Alton, Alan
Titchmarsh, and raised a further £6,500 in
memory of her late husband Roy.
To find out more about gifts in memory
please visit
www.chasecare.org.uk/giftsinmemory
One of the best ways you can help local families with life-limited children and teenagers to
make the most of their precious time together is by remembering CHASE in your Will. This
helps to ensure that families who come to us for help and support in the future can live as full
lives as possible, creating special memories and making every single day count.
To find out more call the CHASE Fundraising Office on 01483 454213, [email protected] or visit www.chasecare.org.uk/legacies
Henah and CHASE Care
Team Member Gemma
Gifts in memory
Lauren McKrell entertains at the memorial concert
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