Carers Research Partnership Carers Research Partnership Building on Success

Carers ResearchPartnership

Carers Research Partnership

Building on Success


Milestones for the Carers Research Partnership

Feb 1999 : 1st Meeting

Dec 2000 : Application to Lloyds TSB Foundation

April 2001 : Funding from Lloyds TSB Foundation

Oct 2001 : Appointment of P/T Administrator

(Peter Blackledge)

Getting started



Feb 2002 : Grant from GUHT Endowments(Carer involvement orthopaedic patients)

Sept 2002 : Scottish NHS Research Day(Involving patients and carers in research

design)

March 2002 : MS Carers’ Research FeedbackOct 2002 : Start orthopaedic research projectNov 2002 : Funding from Carers Strategy Monies

Consolidating



March 2003 : Application to PPP on Carers Health

March 2003 : Proposal to MacMillan (Carers Project)

The Future?


The Context

1999 Strategy for Carers in Scotland

2000 Joint Futures for Carers Project(Coalition of Carers in Scotland/Carers Scotland)

2001 Patient Focus & Public Involvement

(Scottish Executive)

2002 Community Care and Health (Scotland) Act- Carer’s assessment in own right- Carer information strategies


Main aims of the Carers Research Partnership

To provide a forum to:

share ideas and informationcollate and disseminate relevant research findingsidentify gaps in research and set priorities for new workseek funding to profess new research to meet needsensure relevant and appropriate information


Objectives for Lloyds TSB1 Timely dissemination of relevant research to carers

and carer organisations

2 Systematic methods for engaging with carers to determine research priorities

3 Obtain funding for at least one jointly developed research project

4 Ensure research findings available to inform health & social care strategies for carers

5 Facilitate communication through . . . .

- website: www.rgu.ac.uk/carers- bulletins- annual report


Steering Group

Aberdeen City Council Social Work Department

Age Concern

VSA Carers Centre

Carer and cared for

Grampian University Hospitals NHS Trust

Grampian Primary Care NHS Trust

The Robert Gordon University


PPP Application

PPP Older People Programme

(defer entry to hospital or long term care)

Title: Carers Count : Identifying carers’ health needs, involving them in health and social care decision making and improving support services


to identify appropriate methods of maintaining the health of carers

to make recommendations on how infrastructures, processes and practices within health and social care can be designed to best meet the health needs of carers

Aims


If carers of older people can be supported so as to maintain their own health, they are more likely to be able to support the person they care for and so avoid or delay hospitalisation or admission to long term care

Premise


Carry out survey of carers support workers

Set up network of all organisations with an interest in carers’ health & carers’ involvement in healthcare decision making

Survey of health living centres/networks in Scotland (42) initiatives with focus on carers

Investigate use of helplines by carers, eg NHS 24, The Samaritans, MS Society

50 one-to-one interviews with carers

Focus groups with health & social care professionals

Main Activities


Action - Research

data collection, analysis and interpretation

Guiding principles

increase knowledge and understanding

achieve improvements in practice

Approach


The Future

5th Anniversary : February 2004

Documents

Carers Research Partnership Carers Research Partnership Building on Success