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“The Eye of Exclusion”By: José Ramirez Jr., LCSW• USA Coordinator for IDEA• Member, International Working
Group for Human Rights • Managing Editor, The STAR
VOICES OF PEOPLE AFFECTED BY LEPROSY8TH CONFERENCE OF STATES PARTIES
UNITED NATIONS, NEW YORKWEDNESDAY, JUNE 10, 2015
Supported By: UNDESAThe Nippon Foundation The Permanent Mission of EthiopiaThe Permanent Mission of Japan
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Article I – U.N.Declaration of Human
Rights…”All human beings are born free and equal in dignity and
human rights”
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UNITED NATIONS EXHIBIT
FIGHTING SPIRIT AWARD
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Personal Losses
MYTHYS X HISTORY =
LOSSES
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Blinded By Myths
Blindness Lost Sight
Disappearing Horizon Darkness
Stars
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Law of Silence
Law of Silence – the practice of silently refusing to take a stand against stigma, and it’s accompanying pain created by inaction.
Ramirez
Origins of Stigma I
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History of Stigma
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United States
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Aerial Photo of the U.S. National Leprosarium
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Guru of Stigma
Erving Goffman, 1963
Defined stigma as “the process by which the reaction of others spoils normal identity.”Goffman suggested that stigma is comprised of two major components: public (reaction of general public) and self (prejudice that people tend to turn towards themselves).
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STIGMA
AN ACT OF LABELING, REJECTION OR UNEXPLAINED
FEAR OF A PERSON
Ramirez
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Pyramid of Stigma
FearLa
belin
gReje
ctio
n
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Map of Home Town and U.S. National LeprosariumTEXAS LOUISIANA
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Stigma Across CulturesSTIGMA ACROSS CULTURES
Punishment from God Support Systems Use of or Lack of alternative medicine Culture of recipient of services may clash with the culture of the provider of
service.
CONSEQUENCES OF STIGMA Delay in seeking treatment for fear of rejection. Withholding information from family or others who may be able to help. Impaired quality of life.
EFFECTS OF STIGMA Forced institutionalization Loss of rights and dignity Loss of identity-burials Lifetime of labels
- “Leper”- Patient
16By: José Ramirez, Jr., LCSW
The Eye of Exclusion
17By: José Ramirez, Jr., LCSW
The Eye of Inclusion
18
Summary of Presentation
KNOWLEDGE ABOUT LEPORSY IS POWERFULWe are all human beings
IGNORANCE ABOUT LEPROSY IS MORE POWERFUL
Images lead to stigma
LEPROSY CAN CAUSE BLINDNESSInability to blink darkens sight
SOCIETY IS BLINDED BY MYTHS AND FEAR OF LEPROSY
Creates “Eye of Exclusion”
PERSONS AFFECTED AND IMPACTED ARE STARTING TO BOND
Creates “Eye of Inclusion”