Bermuda Triangle

Magic Triangles………

Rules of procedures

European Congress ECE

Regional Organisation

Education

Quality - Availability of Care / AEDs

Scientific cooperation / Research

Communication

Finances

Commission on European AffairsReport on Activities (July 2006)

European Congresses on Epileptology ECE

• Oporto 1994• Den Hague 1996• Warsaw 1998• Florence 2000• Madrid 2002• Vienna 2004

• Helsinki 2006

• Berlin 2008

• ?? 2010• ?????? 2012

Post Congress Satellite in St Petersburg

Co-organisation Germany / Israel in Berlin 2008

0 5 10 15 20

AustriaBelarusBelgium

Czech RepublicEstoniaFinlandFrance

GeorgiaGermanyHungary

IsraelItaly

LithuaniaMacedonia

MoldovaNetherlands

PolandPortugal Romania

RussiaSerbia & Montenegro 

SpainSwedenTurkey

UKUkraine

Yugoslavia

Travel Bursaries for ECE: 2002-2004-2006

# 50 Travel bursaries per ECECriteria: • Working in a European Institution• Under 40 years • First author of an accepted abstractIncludes:

-Complimentary Registration-3 Nights Accommodation-€250 towards travel

CEA

Residential CoursesTeaching Courses

Education: CEA Action Plan

Distant EducationTrainer’s coursesLusophone eduFrancophone eduEdu for PAMsEtc…..

Year 2006 2007 2008 2009 2010 ?

Residential Course

Eilat

Migrating

CourseSerbia Lithuania

San Servolo

International ILAE

CEA Co-financing

CEA Co-financing

CEA Co-financing

CEA Co-financing

?

CEA

Residential CoursesTeaching Courses

Education: CEA Action Plan

• Discussion group with the European Medecine Agency

• Status Epilepticus: – Workshop on European Guidelines for the treatment of SE

(London, April 2007 )– EFNS Main Session in Brussels (August 2007)

• Rare Diseases Task Force in liaison

with the EU Commission / Orphan Drug Programmes

In Liaison with the ILAE Commission on Therapeutic Strategies

Quality / Availability of Care / AEDs

• Collaboration with the Rare Diseases Task Force in liaison with the EU Commission– Identifying the epileptic disorders that fulfill the definition of

rare diseases• Ex: epileptic encephalopathies, PME, Rasmussen, etc

– Developing the concept of Centres of Reference – Communication actions (website, database ORPHANET,

Journal or Rare diseases)– Optimizing the continuity of care between paediatrics and

adult neurology units– Promoting innovative therapies / Orphan drugs

Tuesday July 4th 07.30-09.00 Orphan Drug Symposium

• The concept of rare or orphan diseases in epilepsy Baulac, M (France)

• Review of the EU orphan drug program - applicability to epileptic diseasesS. del Signore (EMEA Representative)

• Overview of brivaracetam for progressive myoclonus epilepsies (UCB)von Rosenstiel, P (Belgium)

• Overview of stiripentol for SMEI (Biocodex)Chiron, C (France)

+ Kyrg• Stimulate Integration

• Support collaborative projects, regional or sub-regional initiatives

• Taking into account the local economical realities and the needs of the countries with limited resources

Regional Organisation

+ Kyrg

• Supportive role in large scale collaborative studies– EURAP (pregnancy registry)– EU calls for Research (FP 6th, FP 7th)

• Participation to the FONDE study (EUCARE)• AEDs Trials?• Genetics, Epidemiology, Tissue banks

• Fellowships?

Scientific Cooperation / Research

• ILAE website

• EUCARE (Action at the EU Parliament)

• Global Campaign

• Societies (EFNS, EPNS)

• IBE

Communication

Communication with the Chapters

Reinforce the role of: the European Advisory Concil (EAC)the Chapter Convention

CEA Bursaries for Chapter Conventions

• Initiated in Vienna in 2004 to ensure participation of Chapter Delegates in the European Chapter Convention

• 16 people from Kazakhstan, Croatia, Turkey, Ukraine, Macedonia, Hungary, Yugoslavia, Russia, Azerbaijan, Armenia, Georgia, Bulgaria, Moldova, Slovenia, Latvia, Lithuania, Estonia assisted

• Programme expanded to assist Chapters on 2 levels for the 7th ECE in Helsinki:

• Special bursary offered to one representative of 22 Central & Eastern European Chapters (based on GNP figures of the World Bank) – comprising registration, accommodation & travel support

• One other registered delegate was offered accommodation support for 1 night in order to facilitate attendance at the Chapter Convention

• Milda Endziniene (Lithuania)• Alla Guekht, EAC Chair,(Russia)• Cigdem Ozkara, CEA Secretary, (Turkey)• Bettina Schmitz (Germany)• Michel Baulac, CEA Chair, (France)• Meir Bialer, CEA Treasurer, (Israel)• Peter Halasz (Hungary)• Svein Johannessen, EAC secretary, (Norway)• Frederico Vigevano (Italy)

Working Groups• Education: M Endziniene, M Bialer, B Schmitz, A Guekht, P Halasz, P Wolf

• Rules: F Vigevano, M Bialer, S Johannessen

• Relationships with European Organisations, EMEA,..: M Baulac, M Bialer, A Guekht

• Cooperation / Regional initiatives: A Guekht, S Johannessen, M Endziniene, M Bialer

• Scientific collaboration / Research: P Halasz, C Ozkara, F Vigevano

• Communication, Global Campaign: C Ozkara, S Johannessen

Peter Wolf

EC Members

Commission on European Affairs

Chapters

Sub regional organisation ?

EAC ProposalsEvaluations of needsMotivation of Chapters

CEABUDGET

Education Quality care

Regional

Inter reg.

initiatives

Congress Scientific

cooperation

Research Communication

Liaison

Written rules, statutesEvaluation (Bursaries, fellowships) CentralizedScientific cooperationEducation (liaison ILAE commission) Edu coursesEMEA / CEA

Regional Inter reg.initiatives……..

ConventionsSurveysOthers…

Newsletter

BUDGET

IOC / SAC