BeneficiariesNational Board MeetingApril 26-27th, Atlanta GA

Cancer Research support

Who supports medical research?

Where does SAA fits in the mix of funders?

How SAA selects beneficiaries?

Who has SAA selected as beneficiaries

Research

Government

For ProfitNongovernmenta

lNonprofit

IndividualDonors

slide compliment of B Myers: DDCF

Research Support Along the Continuum of Biomedical Research

Industry Adapted from Sung & Hulbert , Chap 17Clin Trans Science, 2009

Philanthropy

NIH

Clinical PracticeDelivery of Care

Implementation Studies

Human Clinical Studies

Translational Research

Basic Research

NSF

slide compliments of B Myers: DDCF

Funding of Biomedical Research in US

Source: Dorsey et al., Table 1, JAMA 2010

0

20

40

60

80

100

2003 2004 2005 2006 2007

Fund

ing,

US

$ in

Bill

ions

Med device

Biotech

Pharma

Philanthropy

State/local govt

Other federal

NIH

slide compliments of B Myers: DDCF

• Private foundations: • Private (endowed) funds

– Fund raising not a central activity• Board as central control• Live vs. dead money

– Donor control Boards vs. wills, trusts, institutions control Board

• Public charities (such as SAA)• Public funds

– Fund raising critical, stewardship of donors dollars• Donors, local committees (boards), central board

– Control less centralized • Year to year budget

Philanthropic Funding

Private Foundation Investment in Medical Research

*Source: The Foundation Center

2010 total estimated to be $1.1 Billion*

Public Charities Funding Cancer Research

Organization Type of Support (source) Expenditures

American Cancer Society

Research & other program awards (annual report – FY2010)

$212.5M

Susan Komen Race for the Cure

Research (annual report – FY 2010)

$75.4M research$140.8M education

Multiple Myeloma Research Foundation

Research grants (annual report – FY2010)

$12.8M

2010 total estimated to be $0.9 Billion*

EXAMPLES

*Source: Research!America

What defines SAA?Local funds for local beneficiaries

• Public foundation– Donor based, event-centric

• About 3 million in awards– On the National map, when seen as an aggregate

• Focused on “Cancer”– Focused on cancer, but not a specific cancer

• Event dependent– Yearly cycle of funding, linkage to event.

• If we raise it , we spend it. If we don’t raise it……

Responsibilities of National Beneficiary Committee

Establishing New Beneficiaries

support local programs with screening of “potential beneficiaries” support local programs with review of proposals from potential recommend to National and local boards beneficiaries for approval

Current beneficiaries

Review progress reports for past year Comment on progress to local and National Boards Recommend for approval/disapproval substantial changes in program,

including new investigators, projects.

Event income in 2011*Nashville; $30,000.00 Rhode Island; $60,000.00

Chicago; $115,000.00

Seattle ; $125,000.00

San Francisco; $170,000.00

Boston Harbor; $210,000.00

Stamford; $235,000.00

Baltimore; $325,000.00

Nassau Suffolk; $452,000.00

Long Island; $600,000.00

* Rough estimates for discussion only, not final numbers

Beneficiary awards in 2011*Glen Cove Cares

0%Caring for Carcinoid

0%Nashville Beneficiary

1%Cold Spring Harbor Lab

2% Fighting Chance2% Women and Infants

3%Children's Montefiore

3%Mercy Medical Center

3%

Children's Oakland, CA4%

UCSF Children's4%

Columbia Presbyterian4%

Cardinal Bernadin Cancer 5%

Seattle Cancer Care Alliance5%

Dana Farber Cancer Institute9%

ACGT10%

Cancer Support Team13%

Johns Hopkins14%

Memorial Sloan Kettering (LIS)9%

Memorial Sloan Kettering (NSS)9%

* rough estimates for discusssion only, not final numbers

Progress Report 2011: JHU

High impact publication in Science vol 331, March 2011

Progress Report 2011: CHORI

Categories of support: 2011

Translational Research, $885,000

Survivorship, $200,000

Basic Research, $320,000

Patient Services, $352,000

Clinical Research, $375,000

Bricks/Mortar, $75,000

Making a National Impact: $40m