Dealing with a Loved One with CJD

October 15, 20114th Annual CJD Conference

Melbourne, Australia

Brian S. Appleby, M.D.

BEREAVEMENT

Is CJD Different?

Stages of Grief

Kübler-Ross E. On Death and Dying 1973

Assumptive World

“…the strength of the emotional impact of an unsettling experience

seems to be related to the extent of change it requires in a person’s

assumptive world.”

Frank JD & Frank JB. Persuasion & Healing 1961

Resources

• CJD Support Network Group (AUS)• CJD Foundation (USA)• CJD Insight (USA)• CJD Support Network (UK)• A.I.En.P. (ITA)• CJD Support (JAP)• CJD Foundation (ISR)• MCJ-HCC (FRA)

BRIEF SUMMARY OF TODAY

Things aren’t always what they seem…

Perception accounts for a lot

Dealing with healthcare can be frustrating

We are in your corner!