Asthma Case Management

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    Asthma Alliance of Indianapolis 1

    Asthma Case Management:Asthma Case Management:

    A Unique Asthma Referral ServiceA Unique Asthma Referral Service

    Presented by Robin Costley, CRT

    Asthma Educator

    Marion County Health Department

    Asthma Alliance of Indianapolis

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    Asthma Alliance of Indianapolis 2

    Who is theWho is the

    Asthma Alliance of Indianapolis?Asthma Alliance of Indianapolis? Formed in 1997

    3 year grant from NHLBI Multi disciplinary approach to

    asthma education, prevention, &treatment

    Developed as a result of acomprehensive health assessment

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    Asthma Alliance of Indianapolis 3

    Mission Statement:

    The mission of the Asthma Alliance ofIndianapolis is to arm individuals

    affected by asthma with the knowledgeand skills to improve health & qualityof life.

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    Asthma Alliance of Indianapolis 4

    Coalition GoalsCoalition Goals

    Decrease # of emergency room visits forasthma

    Decrease school absenteeism & missed work

    days due to asthmaIncrease the use of NHLBI guidelines amonghealthcare professionals

    Plan, conduct, & evaluate educationcampaign on the impact of the environmentand asthma management

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    Asthma Alliance of Indianapolis 5

    Coalition ServicesCoalition Services

    Education programs targeting school staff,students, parents

    Advocating for public policies that aid inincreasing the quality of life for those affectedby asthma

    Partnering with other community groups to

    increase public awareness of asthma

    UniqueAsthma Referral Service

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    Asthma Alliance of Indianapolis 6

    Asthma a Key Health ProblemAsthma a Key Health Problem 51,000 adults & 25,000 children

    are diagnosed with asthma inIndiana

    Affects 22.2 Million Americans, 5million are children

    Estimated 12.8 million lostschool days & 14.5 million lost

    work days Top 10 of prevalent conditions

    causing limitation of activity &costs US $19.7 billion inhealthcare costs.

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    Asthma Alliance of Indianapolis 7

    Top Chronic Health ConditionsTop Chronic Health Conditions

    in Indiana Schoolsin Indiana Schools

    Surveys were receivedfrom 35 schoolcorporations, ranging

    in size from 496-32,000students.

    Two private schoolsincluded representing

    1,112Making a combined total

    of 255,818 students.0

    2000

    4000

    6000

    8000

    10000

    12000

    14000

    Type IDiabetesType IIDiabetesAsthma

    Seizures

    Allergies

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    Asthma Alliance of Indianapolis 8

    Five Key Elements of ProgramEffective Care for People with Asthma

    1.

    Tailored EnvironmentalInterventions

    In-home assessments

    School and workplaceassessments

    Environmental triggereducation and remediation

    Indoor Air Specialist

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    Asthma Alliance of Indianapolis 9

    2.

    Integrated Health Care Services Unique asthma referral service

    Home visit database with environmental outcomes

    School health coordinator database to trackschools and participants.

    Contract to carry asthma medications at school

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    Asthma Alliance of Indianapolis 10

    3.

    High-Performing Collaborations & Partnerships Annual World Asthma Day poster contest

    Head Start

    Corporate sponsors Neighborhood clinics

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    Asthma Alliance of Indianapolis 11

    4.

    Committed Program Champions County health department administers AAI

    Governance Board

    Website sponsor

    Serves as consultant

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    Asthma Alliance of Indianapolis 12

    5.

    Strong Community TiesLocal university respiratory therapy program

    Tailored community outreach activities

    Education and resource binder to local libraries

    School workshops

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    Asthma Alliance of Indianapolis 13

    Goals of Asthma ManagementGoals of Asthma Management Maintain normal activity

    levels ( including exercise)

    Maintain (near) normallung function

    Prevent chronic &troublesome symptomssuch as coughing,

    shortness of breath atnight, early morning, orafter exertion.

    Avoid adverse effects fromasthma medications.

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    Asthma Alliance of Indianapolis 14

    COMPONENTS ofCOMPONENTS of

    ASTHMA MANAGEMENTASTHMA MANAGEMENT

    1. Objective measure of lung function toassess & monitor

    2. Environmental Control efforts to reduce

    or eliminate exposure to allergens,irritants & other triggers that induceairway inflammation & precipitate acuteasthma episodes.

    3. Pharmacologic therapy to prevent,reverse, & control airway inflammation &

    obstruction.4. Education to help clients prepare & follow

    their daily mgt. plan and their plan fordealing with symptoms.

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    Asthma Alliance of Indianapolis 15

    Asthma Referral ServiceAsthma Referral Service To provide an extension of resources

    and free services to residents in

    Marion County with a diagnosis ofasthma or allergies

    Integration of health care services

    Improve & coordinate care Initiated in 2001

    To instill healthy habits for life

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    Asthma Alliance of Indianapolis 16

    Common ReferralsCommon ReferralsPublic

    Health

    Nurse

    Indoor

    Air

    Specialist

    Asthma

    Educator

    Social

    Worker

    Insurance

    CoverageSpecialist

    SmokingCessation

    Specialist

    Other

    Identifiedresources

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    Asthma Alliance of Indianapolis 17

    Development of theDevelopment of the

    Asthma Referral SystemAsthma Referral System Took a strong stand in the benefits of

    managing the indoor environment vs.

    prescribing medications as the firstline of defense.

    Found most clients in need of

    additional services and referralsoutside of asthma education

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    Asthma Alliance of Indianapolis 18

    Where Do Referrals Come From?Where Do Referrals Come From?

    Hospitals

    MCHD Programs

    Schools

    Self referrals Head Start Centers

    Other daycares

    HCP offices

    Neighborhood clinics

    Health Centers

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    Asthma Alliance of Indianapolis 19

    Reporting InformationReporting Information Parent or Guardian Primary Care Physician

    Allergy/ Asthma Specialist

    Source of referral

    Health Insurance Portability & Accountability Act of1996 (HIPAA)

    Acknowledgement of receipt of notice of privacypractice

    Authorization for release of information

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    Asthma Alliance of Indianapolis 20

    Barriers & ChallengesBarriers & Challenges

    Transient clients Family not ready to initiate education and

    management

    Other STUFF is priority

    Not an earlyintervention Too many caretakers

    New asthma guidelines

    Addictions Language barriers

    Cultural behaviors

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    Asthma Alliance of Indianapolis 21

    Services Noted Outside ofServices Noted Outside of

    Asthma CareAsthma Care Medical equipment & providers

    Education & Information

    Support

    Resources

    Disease management Crisis management

    Life care planning

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    Asthma Alliance of Indianapolis 22

    Services continuedServices continued Pharmaceutical companies

    Rx for Indiana

    Rodent control

    Family services

    Child development services

    Sources to obtain needed managementitems

    Dietician

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    Asthma Alliance of Indianapolis 23

    Real Life ExampleReal Life Example

    OLDER ADULT ARTISTOLDER ADULT ARTIST

    Referral from neighborhood clinicProblems identified:

    1. Second Hand Smoke in apartment complex

    2. Dust no upholstered furniture, washes bedding 1X/Wk,dust mite protectors in place. Home appeared clean but

    cluttered with books, papers, etc.3. Paint supplies- works with acrylic paints & cleaning

    solutions. Feels like this may be contributing to herexacerbations

    4. Suggested mask, consulted Indoor Air Specialist forrecommendation. Sent her a listing of local distributorsfor an appropriate mask.

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    Asthma Alliance of Indianapolis 24

    Real Life ExampleReal Life Example

    DESPERATE CAREGIVERDESPERATE CAREGIVER

    Self Referral- Grandmother, Great Grandmother, 2 smallGrandchildren, and 1 teenage Daughter

    Problems identified:

    1. Deplorable living conditions ;

    Standing water in all of the bedrooms, closets,with visible mold throughout the house.

    2. Windows not placed properly. Heat at 95 degreesin winter to overcome cold temperatures in the

    home. Bugs in home, fly paper placed in allrooms.

    3. Toilet not seated properly with human wastecoming up on the floor with each use.

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    Asthma Alliance of Indianapolis 25

    Real Life ExampleReal Life Example

    MULTIPLE ISSUESMULTIPLE ISSUES

    Referral from Head Start-Mother, 2 children with asthma, 4 childrentotal, unemployed father.1. Father not involved with care, playing video games at each visit.

    Also smokes.

    2. Mother not able to hold job due to childrens uncontrolled asthma.

    3. Home very cluttered and dirty. Dirty dishes & food laying about.Cockroaches visible all over.

    4. Vacuum is broken.

    5. Pet cat

    6. Plumbing and ceiling leaks. Mold & mildew developed.

    7. Landlord & client sited

    8. 3 ER visits in 5 months

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    Asthma Alliance of Indianapolis 26

    Real Life ExampleReal Life Example

    CHILD WITH AUTISMCHILD WITH AUTISM

    MOTHER DISABLEDMOTHER DISABLEDSelf Referral

    Problems identified:

    1. Single Mother desperate for help. Has CP with a

    severe speech impediment.2. Two sons; a 6 y.o. with asthma & newly

    diagnosed autism, & a 10 y.o.

    3. No medical home- numerous medications that

    she didnt know what to do with4. Collaborated with school nurse to develop a

    more effective management plan for the schoolenvironment.

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    Asthma Alliance of Indianapolis 27

    AUTISM Case continuedAUTISM Case continued

    Services utilized:

    1. About Special Kids (ASK)

    2. Inadequate equipment-DME donated portable

    neb.3. Provided neb machine for

    before school care.

    4. Staff education at school

    and before care.5. Allergy testing finally

    completed with new MD.

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    Asthma Alliance of Indianapolis 28

    Real Life ExampleReal Life Example

    CHILD WITH LEARNING DISABILITYCHILD WITH LEARNING DISABILITY

    Referral from SchoolProblems identified:

    1. Mother not comfortable letting son carry his inhaler. Previouseducation & instruction have failed to improve his technique.

    2. Son was instructed in the home with Mother present using a

    picture format containing pictures for each step to take his inhalerwith spacer.

    3. Follow up phone call 3 months later revealed that Son had a flare-up since the instruction & is doing a great job with his inhaler &spacer. He now takes his rescue medicine with him and feelscomfortable using it.

    4. Mother doing a great job of managing sons asthma & was alreadyeducated on common triggers & has already taken measure toreduce them in the home.

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    Asthma Alliance of Indianapolis 29

    Real Life ExampleReal Life Example

    CHILD WITH DOWNS SYNDROMECHILD WITH DOWNS SYNDROME

    Referral from co- workerProblems identified:

    1. Child currently on ventilator due to severe asthma exacerbation.Parents wanted home environmental assessment before she wasdischarged from the hospital.

    2. Concern over carpets. Have a HEPA vacuum but family structure isso hectic that they do not vacuum regularly.

    3. Questions regarding furnace filters. Consulted Indoor AirSpecialist for recommendations on most effective filters available.Also suggested running fan continuously versus automatic so that

    it continually filters the air.4. For furnace humidifiers it was suggested that they have a humidity

    gage to keep it no more than 40% humidity level. Stressedimportance of keeping unit clean.

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    Asthma Alliance of Indianapolis 30

    Real Life ExampleReal Life Example

    MULTIPLE FAMILY MEMBERS LIVINGMULTIPLE FAMILY MEMBERS LIVING

    AT RESIDENCEAT RESIDENCEReferral from Health Clinic

    Problems identified:

    1. Non compliant with medications. Son 7 y.o. ,3 y.o. & 2 y.o.daughters with severe asthma.

    2. Very transient3. Home not kept clean. Many people in & out of home.

    4. Equipment in bad condition, dirty.

    5. Concerns over child development. Son is restricted to an airconditioned room all summer. Referred to programs for parents &

    children / Childrens Bureau6. Loosing materials that were provided. Not filling prescriptions

    7. When do you call it quits?!

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    Asthma Alliance of Indianapolis 31

    Real Life ExampleReal Life Example

    LIFE WITHOUT SLEEPLIFE WITHOUT SLEEP

    Referral from Sickle Cell ProgramProblems identified:

    1. Single Mom states that 2 y.o. Son has symptoms daily.Mostly at night. Not sure of triggers.

    2. Son only sleeps 2 hours/ night. Not sure if it is themedications he is on or irritation from his severe eczema.

    3. Roaches present in home. ( Dbl. Occupancy)

    4. Educated on dust mite reduction. Removed large stuffed

    animal from room. Dust mite pillow protector provided.5. Mom stressed from his care. No one will help her care

    for him because of his of his lack of sleep and he getsinto things in the home when Mom falls asleep.

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    Asthma Alliance of Indianapolis 32

    Real Life ExampleReal Life Example

    NONNON--COMPLIANT TEENCOMPLIANT TEEN

    Referral from Neighborhood ClinicProblems identified:

    1. Freshman HS student. Filled quick relief meds 10Xs &controller 2 Xs in 6 months

    2. Admits she does not take her controller meds. Shedoesnt like the taste & she forgets

    3. Discussed the damage to her lungs with long standinginflammation

    4. Running out of Medicaid. Trying to re- instate.5. Committed to keep appointments

    6. Provided Spanish materials for Mother

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    Asthma Alliance of Indianapolis 33

    Real Life ExampleReal Life Example

    NEED FOR INTERVENTIONNEED FOR INTERVENTION

    Self referralProblems identified:1. 10 y.o. Son with severe asthma, Mother lost job 2nd to

    repeated calls from work to pick Son up at school with

    asthma symptoms

    2. No food in home. Ran out of food stamp support, notransportation

    3. Referred to appropriate DHO for basic needs resources.

    Social Worker intervened

    4. Presently goes to school daily to give Son his asthmatreatment

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    Asthma Alliance of Indianapolis 34

    ContinuedContinued

    5. Needed direction in job search. Inquired about a job ather sons school/ may be aide position available in thenear future. Continues to seek employment/ hassubmitted several applications.

    6. Son had sleep study, cab was involved in accident on theway home. Needed direction to report incident.

    7. Walmart card given for household goods , toiletries, andeye drops for her son. Bus vouchers also provided for

    transportation.E

    ncouraged to go to Trustees office toobtain assistance with her utility bill and school clothesfor her Son.

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    Asthma Alliance of Indianapolis 35

    ContinuedContinued5. Paid all but $7 of her electric bill obtaining $ by

    doing odd jobs. Needed direction in contactingthe power company so that her electricity

    wasnt turned off in 2 days. Need for utilityassistance.

    6. Son doing much better. No furtherhospitalizations since initial asthma referral.

    7. Continued visits to support ongoing needs offamily.

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    Asthma Alliance of Indianapolis 36

    Closing the GapsClosing the Gaps

    Home

    WorkSchool

    HCP Office

    Hospital discharge follow up

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    Asthma Alliance of Indianapolis 38

    RewardsRewards Improvement of

    symptoms is often

    directly related tothe degree clientsfollowenvironmentalrecommendations

    Greatly affected bythe partnershipwith the educator.

    Buildingpartnerships with

    clients & theirfamilies ensuringthat support ,consistent

    messages, &coordinated careare provided.

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    Asthma Alliance of Indianapolis 39

    RESULTSRESULTS CONTROLLED

    ASTHMA, FEWER

    SICK DAYS, &BETTERFUNCTIONALLIVES OF

    CLIENTS.

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    Asthma Alliance of Indianapolis 40

    Numbers served each yearNumbers served each year2006

    Total referrals = 72

    Unable to reach=14 Common referrals to

    other services wereasthma educator,indoor air specialist &public health nurse.

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    Asthma Alliance of Indianapolis 41

    Related StrategiesRelated Strategies

    Marketing plan

    Word of mouth

    Alliance members & sponsors

    World Asthma Day

    Annual golf outing and fundraiser

    Community outreach engagements

    .

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    Asthma Alliance of Indianapolis 42

    Related StrategiesRelated Strategies

    Budget

    Administered by the Marion County Health

    Department Donations of management items

    Use of all profits back to the community viaroach baits/ gel, dust mite pillow protectors,

    equipment needed to administer medications

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    Asthma Alliance of Indianapolis 43

    Final CommentFinal CommentA unique way to join forces with

    clinics, physician offices &

    managed care organizations thathave implemented asthma-management programs. Sharing

    our strategies and success.

    FOR MORE INFO...

    Asthma Alliance of Indianapolis

    #317-221-2473 www.asthmaindy.org

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    Asthma Alliance of Indianapolis 44

    Thank you for your time & attention.

    Any questions?

    To learn more about becoming a member orsponsor of the Asthma Alliance log onto

    our website or give us a call. We arealways looking to expand our coalition tohelp benefit those with asthma in ourcommunity.