660 N. First Bank DrivePalatine, IL 60067

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SuperSibs!

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SuperSibs!

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T h e N e e d

O u r M i s s i o n

B o a r d o fD i r e c t o r s

A d v i s o r yB o a r d

H o n o r a r y B o a r d

S u p e r S i b s !S t a f f

ChairpersonGary Berger ● ISCO International

Vice-ChairStacey Empson ● Epiphany Healthcare Advisors

Michael Rubenstein ● Alcan Packaging

Treasurer John Starr ● EMMI Solutions

SecretaryDiana Verrilli ● McKesson Corporation

William Adams ● Maxcomm, Inc.

John Cruikshank ● Northwestern Mutual Life (retired)

Melanie Goldish ● SuperSibs!

Darren Nauss ● RAZR Marketing

Stephen Pyke ● Grainger

Andrew Walsh ● Educerus Health Solutions

Suzanne Skala ● SuperSibs!

Nancy Ostrowski ● Eli Lilly and Company

Joe McClanathan ● Energizer

Steve Pazol ● nPhase

Sara Ratner ● Prime Therapeutics

Nancy Hess ● Computer Sciences Corporation

Melissa Alderfer, PhDThe Children’s Hospital of Pennsylvania

Mike Amylon, MDCamp Okizu Deborah Bond Berk, MSW, LICSWDana Farber Cancer Institute

Elizabeth Davies, FAAN, RN, PhDUniversity of San Francisco School of Nursing

Joan Fedota, PhD National-Louis University

Melissa Hicks, MS, CCLSCamp Sunshine

Nancy Kernan, MDMemorial Sloan-Kettering Cancer Center

Rick Kessler R.D. Kessler Consultants, Inc.

Donald Meyer, PhDSibling Support Project

Istina Morariu, MD

Jill Perrone, RN, MSN, CPNP

Karla Wilson, RN, MSN, FNP, CPONCity of Hope National Med Center

Mia Hamm Olympic & World Cup Soccer Champion

Dan JansenOlympic & World Speed Skating Champion

Melanie GoldishFounder

Suzanne Skala Executive Director

Sandra K. Ring, MS, CCLSDirector of Outreach and Education

Amanda GoetzCommunications Program Manager

Beth GauthierProgram and Volunteer Coordinator

Jennifer KrizmanichRelationship Marketing Manager

Patti WeickerAdministrative Assistant

A M e s s a g e F r o m O u r L e a d e r s

PROGRAMMING: January of this year, 31 hospitals across the United States became SuperSibs! Certified Sibling STAR Partners for their commitment to changing the culture of oncology care to include total-family-healing and implementing sibling support programs. SuperSibs! also recognized six additional professionals/hospitals for their dedication to sibling support.

We are proud to announce that the SuperSibs! Parent ToolKit received a National Health Information Award! Out of more than 1,000 entries, SuperSibs! Parent ToolKit was acknowledged for its quality and creative ideas. The new SuperSibs! Parent ToolKit provides insights, tips and resources to help the entire family communicate and connect more effectively. While illustrating the research on the effects of cancer on the whole family, we show parents why total-family-healing is important during this difficult time.

SuperSibs! has been selected by LIVESTRONG as one of their Model Programs for 2010-2011. As a Model Program, we will be able to further integratesupport at hospitals and community based organizations for the “shadow survivors” of pediatric cancer - the siblings. Programs selected have been long time partners of LIVESTRONG who have worked with them to create sustainable programs with evaluated results.

To ensure that children, whose brothers and sisters have cancer, are honored, supported and recognized – so they

may face the future with strength, courage and hope.

Above: SuperSib! Selena helps her brother with his catheter.

As the only national organization solely focused on sibling survivors, SuperSibs! serves over 25,000 children (ages 4-18) and their families battling pediatric cancer in the United States and Canada.

Established in 2003, SuperSibs! is an industry leader in showing medical professionals and families that by including the sibling voice, the total-family-healing model is strengthened. This outcome allows for more effectiverecovery and survivorship of all family members during and after childhood cancer.

When a child is diagnosed with cancer, everyone in the family needs healing, including the siblings. Each year in the United States, the lives of 18,000 children and teens are impacted in a new and tragic way when their brother or sister is diagnosed with cancer.

From that very moment, the spotlight of parental,medical, social and public support is focused on the child with cancer. In the background, stand these brave children and teens who feel confused, angry, afraid and insignificant. These are the underserved and often unrecognized sibling survivors of pediatric cancer.

While these sibling survivors do not have the physical ailments of a cancer diagnosis or treatment regiment, their lives are forever altered in devastating ways during their formative years. At a tender age, these children and teens are introduced to a world where fear and isolation can be the norm.

SuperSibs! does what overwhelmed parents cannot – focus on the siblings of children with cancer.

“Your first fear is that you might lose a child to cancer, your second fear is that your other child

will slip between the cracks.” SuperSib Mom

Key Accomplishments

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EVENTS: In April, we awarded fifteen SuperSibs! Scholarships to graduating high school seniors.

On Saturday, May 8th, SuperSibs! hosted its third annual “A Tribute to Our Quiet Heroes” luncheon and benefit with over 200 Quiet Hero mothers, special guests and SuperSibs! supporters in attendance. Sunday, August 1, 2010, 43 Team SuperSibs! members participated in the Rock ‘n’ Roll Chicago Half Marathon.

Dear SuperSibs! Friends,

As SuperSibs! founder, I am pleased to have a new leadership role on our team, to focus on sharing this important cancer survivorship mission through speeches and presentations, developing and expanding SuperSibs! relationships that are so vital to changing the culture of oncology care.

Please join me in welcoming Suzanne Skala as our new Executive Director at SuperSibs! Suzanne brings invaluable insight from her role as our former Director of Development, and her outstanding leadership experience having served in an Executive Director role for 20 years prior to joining our staff. Suzanne and I, together with our dedicated team, are proud of this phase for SuperSibs!, and we feel confident that this change further strengthens our ability to ensure sustainable quality programs, services and vital outcomes - to help siblings and families heal.

We look forward to continuing to share this meaningful journey with each of you!

Melanie GoldishFounder, SuperSibs!

Dear SuperSibs! Friends,

I am delighted to continue working with Melanie and our dedicated staff to support vulnerable children as their siblings and families battle pediatric cancer. 2010 has been a year of change for SuperSibs! We have a change in leadership as well as our address, moving into new SuperSibs! headquarters in Palatine. No matter where we are housed, our commitment is to help SuperSibs! children and teens cope and grow through their sibling journey with strength, courage and hope.

SuperSibs! was honored to be selected as one of three national Model Programs in 2010 chosen by LIVESTRONG Foundation to be replicated at hospitals throughout the country. In 2011, we will provide training and resources to hospitals and national cancer organizations, so they can provide integrated onsite support to siblings, supporting their family-centered care models.

Also, we continued in our programming with the Centers for Disease Control and Prevention in providing tools and resources to families battling pediatric cancer. Through that programming, SuperSibs! was acknowledged with a National Health Information Award for our Parent ToolKit, addressing sibling issues and helping parents to talk to their children about cancer.

We are proud of all of our partnerships, as we work together to change the culture of pediatric oncology care and bring hope to over 25,000 siblings of children with cancer.

As SuperSibs! founder, Melanie Goldish, is known to say, “We have to solve the problem, but we don’t have to do it alone.” Thanks to help from all of you, we are not alone in our efforts to help siblings and families heal.

Suzanne SkalaExecutive Director, SuperSibs!

Suzanne Skala and Melanie Goldish

SuperSib Samantha G. loving her trophy from our Comfort and Care Program.

On Saturday, May 8th, SuperSibs! hosted its third annual “A Tribute to Our Quiet Heroes” luncheon and benefit at the Westin O’Hare in Rosemont, Illinois. It was a great success with over 200 individuals in attendance including Quiet Hero mothers, special guests and SuperSibs! supporters. Over $50,000 was raised for SuperSibs! programs and services at this event.

The event featured inspirational programming from Special Guest Speaker Rudy Pauls, a SuperSib himself and season 8 runner up from NBC’s The Biggest Loser. NBC5’s Zoraida Sambolin repeated her role as emcee in support of SuperSibs!

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Sib!CARES was created as an inspirational, grassroots fundraising program to Create Awareness and Raise Essential Support for sibling survivors of pediatric cancer. Please visit www.supersibs.org/sibcares for ideas on how to create your own Sib!CARES fundraiser.

We enjoyed support from 26 individuals and groups who raised $14,077 in support of our SuperSib children and teens.

Allstate and Ben & Jerry’s Team up for SuperSibs! on Free Cone Day.

What We Do 2010 Statement of Operating Activities

2010 Outreach, Growth & Impact

C o m f o r t & C a r e

S c h o l a r s h i p P r o g r a m

O u t r e a c h & E d u c a t i o n

Sibling Research Advisory Board (SRAB)

O u r V o l u n t e e r s

SuperSibs! helps children redefine the “cancer sibling” experience by providing needed support services andhelping to draw out the greater and important lessons that may benefit these children later in their own lives. As part of these efforts, SuperSibs! awards a number of scholarships in recognition of sibling survivor high school seniors.

Part of the selection criteria is the ability of applicants to articulate how they have taken a devastating life experience and turned it into a positive, strength-building experience for themselves, as well as to create good in the lives of others.

Through their guided essays and creative expressions, these SuperSib applicants have provided us with valuable insight that is beneficial in helping other SuperSib children and teens heal. In addition, the scholars themselves have given us feedback that the application process is a therapeutic experience for them.

SuperSibs! continues to help promote leadership and development of these future SuperSibs! role models. Scholarship applications are posted on SuperSibs! website in November of each year.

www.supersibs.org

SuperSibs!

Individual Donations $ 85,951 Corporations $ 21,583Foundations & Grants $135,656Federal Government $352,301Special Events $ 67,244Interest Income $ 388 Total Revenue $663,123

Programs & Services Outreach & Education $243,565Direct Program Services $309,148Total Program & Services $552,713

Supporting Services Fundraising $ 43,451Management $113,441Total Supporting Services $156,892

Total Expenses $709,605

In-Kind & Pro Bono Services $126,055Total Donated Support $126,055

Note: SuperSibs! received a clean, unqualified 2010 audit from the certified public accounting firm of Tighe, Kress & Orr. Complete copies are available from SuperSibs! upon request.

Ethnicity of Siblings Supported

African American...........10%Asian/Pacific Islander.......3%Caucasian.........................66%Hispanic............................17%Native American................1%Other...................................3%

SuperSibs! Annual GrowthSuperSibs! provided direct support to 25,112 siblings and their families.

Siblings reside across all 50 United States, 9 Canadian Provinces, Puerto Rico and Saipan.

SuperSibs! supports 1,782 teen and young siblings who are bereaved.

SuperSibs! received referrals from over 300 partner hospitals and organizations.

1,239 psychosocial and medical professionals referred siblings into SuperSibs!

www.supersibs.org received 35,060 unique visits from 117 countries and territories.

Because of their passion to help at-risk children, seven respected research scientists have met with SuperSibs! consistently since 2006 to address the need for high quality, reliable and valid research on the effects of a pediatric cancer diagnosis on the brothers and sisters of a patient.

This committed volunteer team has brought new focus on the need for quality research involving a more appropriate theoretical framework enabling accurate and sensitive assessment of sibling issues and enhancing interventions to support positive outcomes. They have also had their research findings published in journals like Psycho-Oncology Journal.

As the only national organization solely focused on sibling survivors, SuperSibs! has served over 25,000 children and their families battling pediatric cancer in the United States and Canada. We receive over 350 new sibling referrals each month from our network of over 300 pediatric hospitals and cancer organizations across the United States and Canada.

We work together with many industry leaders including LIVESTRONG Foundation, Mia Hamm Foundation, Dana Farber Cancer Institute, Ronald McDonald House Charities, Mayo Clinic, National Institute of Health, Johns HopkinsHospital and the Centers for Disease Control and Prevention.

On Sunday, August 1, 2010, 43 Team SuperSibs! members from all over the United States met the challenge of walking or running the Rock ‘n’ Roll Chicago Half Marathon and making a positive difference in the lives of at-risk children. Currently, Team SuperSibs! has raised over $38,100 to support children and teens whose brother or sister has or has had cancer.

Team SuperSibs! members enjoy the camaraderie of working toward a goal with other Team members, receive help in their fundraising efforts from SuperSibs! staff members and havepersonalized marathon training to help them complete this popular lakefront half-marathon.

SuperSibs! Comfort and Care Program supports siblings by providing resources and tools to help them cope and manage through the tumultuous time of their family’s pediatric cancer fight. Our unique support materials are specially designed with input from families, oncology staff and psychosocial professionals to support children and teens whose brother or sister is currently in treatment or has survived cancer, and for those who are bereaved.

This evidence-based intervention program provides age-appropriate, customized and targeted materials that are delivered to each child/teen and their parents on a carefully developed schedule throughout the year.

Delivering the coping tools and materials to these vulnerable children at home helps to ensure barrier free support.

After receiving our targeted support, these children and teens learn coping skills, improve their socialization skills, manage their feelings of fear and isolation and understand they are not alone on this pediatric cancer journey. This type of psychosocial support helps to prevent manifestation of ongoing emotional challenges as these children mature in adulthood.

One way SuperSibs! provides support to these at-risk children and their families is by ensuring integrated sibling support is incorporated into pediatric oncology care at hospitals, cancer organizations and other social support organizations.

We ensure sibling support is implemented during pediatric oncology care by training hospital professionals with our SuperSibs! tools and resources. These items are developed with input from siblings, parents, child-life specialists, pediatric oncology social workers and oncology nurses.

Accompanying this training is our SuperSibs! SMART (Sibling Materials And Resource Tools) Box, an efficient and cost-effective way to equip hospital personnel with knowledge and resources about the sibling experience, promote and encourage family-centered-care and change the culture of pediatric oncology care.

The SuperSibs! SMART Box contains strategies and materials for flexible and customizable activities, programs, information and support elements, supplemented

with individualized training from our staff on best practices when using the materials.

Conference Leadership

Our efforts to raise awareness and stimulate sibling support capability have taken hold, with sibling issues now sharing the focus at pediatric oncology and psycho-oncology conferences nation and worldwide.

Featured speaker at:-UICC World Cancer Congress, China-Survivorship Research Conference-Centers for Disease Control and Prevention Comprehensive Cancer Program Leadership Institute-Association of Pediatric Oncology Social Workers-Child Life Council-American Academy of Pediatrics-National Institute on Family Centered Care-Society of Behavioral Medicine -American Psychological Association-National Association of Children’s Hospitals and Related Institutions-CureSearch

O u r D o n o r s

We could never serve thousands of vulnerable children and teens without the tremendous volunteer support of so many wonderful individuals, groups and corporations.

In 2010, over 150 caring volunteers donated more than 1,481 hours of service to SuperSibs!

R e v e n u e

D o n a t e d S u p p o r t

E x p e n s e s

Milestones in 2010...

It takes a caring community to bring light and joy to thousands of children as their families battle pediatric cancer. We squeeze dollars of value from every penny received, so your contributions have a tremendous impact! SuperSibs! appreciates each gift and every donor as we all work to help families heal together.

T H A N K Y O U !

Cancer does not discriminate based on ethnicity and neither does SuperSibs!

The ethnic diversity of children and teens we support is consistent with U.S. childhood

cancer incidence rates by ethnicity.

These percentages were taken from an independent evaluation study

conducted by Impact Research.

Special Events

“During the SuperSibs! Scholarship process, I had to put my emotions down on paper, black and white, and really think about them for the first t ime. I think the biggest effect for me was showing my parents and my sister my essay.

I didn’t realize how good I had been at hiding my emotions from them for the six years since my sister was first diagnosed. It was really the first t ime that I had ever really been fully honest with them. That is something I don’t know if I ever would have done without applying for this scholarship.” SuperSibs! Scholar, Spencer

Research shows that 53% of siblings of children with cancer experience moderate to severe Post Traumatic Stress Disorder

symptoms due to the stress level a pediatric cancer diagnosis brings to a family.

(ALDERFER 2007)

Partners

Community Support

Referral Hospitals and Cancer Organizat i o n s

% Managing Extremely/Very Well/Well By Age Group

76%

79%

80%

86%

32%

28%

24%

40%

15+

12-14

8-11

1-7

Age

of C

hild

Just Before SuperSibs! SupportNow

SuperSibs! Programming Impact on Children

Sib!CARES - Grassroots fundrais ing

SuperSibs! SMART Box

High levels of social support play a protective role in the psychological

adjustment of siblings of pediatric cancer patients.

(BARRERA 2004)

Roosevelt University Students McDonald’s Corporate Local Brownie Troop 1263

Allocation of Expenses

78.4%

21.6%

Supporting Services = 21.6%

Programs & Services = 78.4%