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A.I.C. introducingA.I.C. introducingNapoli 16 settembre 2010Napoli 16 settembre 2010
Prof. Cleto Corposanto
AIC - Italy
2
Our first thirty yearsOur first thirty years11
Thirty years in numbersThirty years in numbers22
RulesRules33
““5 per mille” contribution 5 per mille” contribution from tax income declarationfrom tax income declaration44
1979
What is this disease about?What can be eaten?
Where to find products?
Which are the needs?
2010
• The right “eating out” • “Demedicalication” of coeliac disease• “Get back” to family life• The “ready to eat” gluten-free meal• Gluten-free holiday• Gluten-free “Sociality”• Early diagnosis
TODAY
needs
• Free foodstuff allocation (from 1982)• Safeguard rare / chronic disease • Having granted the right to gluten-free meal in public
structures• More than 2.000 products in RNA (Registro Nazionale
Alimenti: Food National Register)• More than 10.000 products in the Food and Drinks
Directory, so called “Prontuario”• More than 2.000 venues to eat and sleep out• More effective labels, the trademark • 19 local AIC societies
TODAY
On what does the coeliac person can count on?
AIC FEDERATION
General Assembly
19 local Association
Chair
Board of Directors
Chief Operating Officer
Food
Trademark Fund Raising
Events’ management
Public Financing Projects
External Relations
International Relations
Companies’ relations
Education
Medical Scientific Education
Local Activites’ Development
No Food
“Celiachia Notizie” House Organ
Editing
Scientific editing
National Scientific
Committee
Ethic and Disciplinary Committee
External Auditors’
Board
Staff
Treasurer
Management control
Aoecs representative
Food Manager
Alimentazione Fuori Casa/ Eating out Project
Restaurants, Pizzeria and Ice-cream parlours
Catering for those whose travel
Public Catering
Bed & Breakfast
Special Projects
Foodstuff
Product certification and Food and Drinks Directory
Food Technology Research
Food Education
AIC BOARD OF DIRECTORS
SBS CHAIR SBS Board of Directors
CHIEF OPERATING OFFICER
DIET PROJECTS:
•Food and Drinks Directory
•Trademark
•“Alimentazione Fuori Casa” Eat Out project
General Secretariat Administration
OTHER PROJECTS:
•“Celiachia Notizie” four-monthly review
•Publishing activities
•Convention organization
AIC – FUNCTIONAL RESPONSABILITY
FOOD MANAGER
SBS – Spiga Barrata Service limited company
AIC GENERAL ASSEMBLY
Board of Directors
VICE- CHAIR
VICE- CHAIR
TREASURER AND SECRETARY
C.S.R.RESEARCH SCIENTIFIC
COMMITTEE
10
Our first thirty years
Thirty years in numbers
The RulesThe Rules33
““5 per mille” contribution from tax income 5 per mille” contribution from tax income
declarationdeclaration 44
11
22
20052006
20072008
2009
members' quantity
38.31043.137 48.690
53.642 56.895
0
10.000
20.000
30.000
40.000
50.000
60.000
members' quantity
Data updating
Members : 56.895 on Dec. 31° 2009, with an increase of 6% increase to year 2008
Data updating
Coeliac population in Italy: more than 100 thousand people
- as per advanced information from the “Relazione annuale al Parlamento sulla Celiachia – anno 2009” (annual Coeliac Parliament Relation – 2009 edition),
to be shortly presented by Health Ministry-
Food and Drink Directory year
2005
2006
2007 2008 2009 2010
Quantity of products
5829 6660 8612 10.211 12.320 *
Food and Drinks Directory, the Food and Drinks Directory, the “Prontuario”“Prontuario”
* Plus 20% compared to 2009, with a 15% increase in terms of companies
0
2000
4000
6000
8000
10000
12000
14000
2005-2006
2007 2008 2009 2010
2005-20062007200820092010
Trade Mark Updating Trade Mark Updating Food and Drinks Directory
year2005
2006 2007
2008 2009 2010
Quantity of products 343 434 720 744 1014
19 29 41100 100
343
434
720 744
1014
0
200
400
600
800
1000
1200
Anno2000
Anno2001
Anno2002
Anno2003
Anno2004
Anno2005-2006
Anno2007
Anno2008
Anno2009
Anno2010
“Registro Nazionale degli Alimenti”* (Italian Foodstuff National Register) Updating
2001: 281 products2010: more than 2500 products and 143 companies
*Introduced by Veronesi’s Decree in 2001
0
500
1000
1500
2000
2500
3000
2001 2010
Nr ofproducts
WHERE TO GET GLUTEN-FREE FOODSTUFF
GLUTEN-FREE PRODUCTS
Retail purchasing
Consortiums
DRUGSTORES
SPECIALIZED SHOPS
AIC’s Projects
AFC Eating Out Project 2010:
more than 2000 venues
- Precise guidelines for: • Provisioning
• Storage
• Production
• Food supply
- Educational and refresher courses
- monitoring system with recurrent visits
ALIMENTAZIONE FUORI CASA
THE “EATING OUT PROJECT”
GENRE TOTAL NUMBER
“AUTOGRILL” HIGHWAY SHOPS 22
B&B 110
BAR 36
SAILING BOATS 2
“FINI GRILL” HIGHWAY SHOPS 24
ICE-CREAM PARLOUS 324
“MY CHEF” RESTAURANTS’ CHAIN 22
RESTAURANTS / HOTELS 1.521
SUMMER CAMP 1
VENDING 10
TOTAL 2.072
AFC’s Venues 2010
Il sito www.celiachia.it
Visitors’ number www.celiachia.itEach visitor is counted per session (in a month period)
21.000
73.350
206.283
237.681
0
50.000
100.000
150.000
200.000
250.000
gen-03gen-07gen-09gen-10
Geografic origin (January 2009)
“In fuga dal glutine/“Running away from gluten”’s Project
Inform and increase COMMUNITY awareness on:
- what Coeliac disease is - the problems referring to this disease - the therapy = the requirement to follow a strict diet- peculiarities of the diet itself
OBJECTIVESInform and Educate
“SENSITIVE” people on:- coeliac disease
- gluten-free nourishment
To encourage- amongst STUDENTS a strong relationship foundation
- within the SCHOOLS the safeguard of different needs, striving in order to reduce and avoid any discomfort arising from this diversity
“In fuga dal glutine”/”Running away from gluten”’ Project
Eurispes*: AIC is amongst Eurispes*: AIC is amongst the 100 Italian excellences the 100 Italian excellences
On October 2° 2008, the third “Rapporto di Eccellenza” (Excellence Report) was
presented: 100 successful episodes in Italy
*Political, economical and social studies Institute
26
Our first thirty yearsOur first thirty years
Thirty years in numbersThirty years in numbers
The RulesThe Rules
““5 per mille” 5 per mille” contribution from contribution from tax income declarationtax income declaration44
11
33
22
CURRENT STATUS ON CURRENT STATUS ON REGULATIONSREGULATIONS
1982: Ministerial Decree dated July 1°, 1982
Introduction of Free Foodstuff Allocation
1992: Decree 111, dated January 27°, 1992
Particular Nourishment
2001: Decree 279, dated May 18°, 2001
Rare Diseases
2001: Decree, dated July 5°, 2001, so called Veronesi
Free Allocation and Products Register
2003: Community Directive n. 89, indication of allergens in labelling
2005: Law 123, dated July 4°, 2005
Coeliac population’s prophylaxis regulation
2008: Prime Minister Decree 23/04/08
“LEA” Minimum level of service in Health provision – Rare and Chronic Disease’s listing
28
Law nr. 123/05 and the right for GF Law nr. 123/05 and the right for GF mealmealSummary:
Coeliac disease, social disease, art 1
Confirmation of free foodstuff allocation, art 4
Objectives: early diagnosis and prevention: medical professional trainings and refresher courses, centers and network structures’ confirmation, diagnosis’ protocols, prevention of complication and monitoring of linked diseases, test definition, art 3
Gluten free meal in schools and hospitals’ restaurants as well as in public offices, art 4
Coeliac disease information at professional training and refresher courses for restaurateurs and hotelkeepers, art 5
Parliament report on new scientific outcome referring to early diagnosis and complication monitoring, art 6
“Legge bianca”,which is a law with no provision in case of clauses’ lack of implementation, and its application:
Medical professional training Professional training for catering operators (report on art. 5)
Complication Interpretation (art.4’s emendment)
29
Law nr. 123/05, art 4Law nr. 123/05, art 4
Art. 4.1. (…..)2. (…..)
3. Gluten free shall be given out, upon anticipated request by the interested people, in school and hospital premises, as well as in public offices’
refectories.
4. The burden outcoming from the implementation of paragraph 3 is evaluated in 3.150.000 euros per
year as of 2005.Non official article translation
30
Law nr.123/05, art 5Law nr.123/05, art 5
Art. 5.1. (…)
2. Regions and self-governing districts of Trento and Bolzano to provide ad hoc coeliac disease information
pamphlets at professional trainings and refresher courses for restaurateurs and hotelkeepers.
3. The burden outcoming from the implementation of paragraph 2 is evaluated in 610.000 euros per year as of
2005.
Non official article translation
31
I nostri primi trent’anniI nostri primi trent’anni
Trent’anni in cifreTrent’anni in cifre
Le normeLe norme
The first communication The first communication campaigncampaign
11
44
22
33
Coeliac diseaseAIC
AIC SPOT COMPETING AT “GRANDPRIX DELLA PUBBLICITA’” 2010 EDITION
Thanks!
For queries and information:
xxxxxxxxxxxxxxxxxxxxxxxxxxx
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Town
www.celiachia.it