AGENDA

9:30AM-LUNG CANCER TREATMENT UPDATES

10:15AM – BREAK/SURVIVOR GROUP PHOTO

10:30AM-IMMUNOTHEAPY: WATER OR HOLY WATER

11:15AM-OPPORTUNITIES TO ENGAGE IN NEW RESEARCH

11:45AM-LUNCH & KEYNOTE ADDRESS

12:45PM-BREAK/EXHIBITS

1:00PM-BREAKOUT SESSIONS

2:00PM-LEGISLATIVE UPDATE

2:30PM-HOW YOU CAN MAKE A DIFFERENCE

3:00PM-DOORPRIZES/ADJOURN

OF NOTE:

• Raffle Prizes (must be present to win!):• $200 to Ruth’s Chris• Starbucks• Seasons 52

• Post-it Notes:• Name, email address and/or phone• Place on the volunteer opportunities you are most

interested in

#2017AdvocacySummitNC

Lung Cancer Initiative Update

Build Hope. Take Action. End Lung Cancer.

Mission

Save lives and provide support to those affected by lung cancer through research,

awareness, education and access programs across North Carolina

Who We Are

• 501(c)(3)

• State’s leading non-profit organization supporting lung cancer research and education

• Specializing in connecting patients, survivors and loved ones with the medical and research community

• Dedicated to increasing lung cancer awareness and research funding

• Responsible stewards: In 2016, 78% spent on research, education, awareness and access

Paige Humble Executive Director

Our Staff

Lynne Hicks

Director of Finance

Khaki Stelten Director of Events

Jenni Danai Director of Programs

Parker ShieldsDevelopment Coordinator

Courtney Freeman Programs Coordinator

Megan Snowdowne,

Manager of Marketing

Our Board of Directors

Amy Cipau, MBA,

President

Advocate

Jennifer Garst, MD, Board

Chairman

Duke Cancer Institute at

Duke Raleigh Cancer Center

Jeremy Holden, Advocate

Chief Strategy Officer,

Clean Design

Liz Hynson, Advocate

Edward S. Kim, MD

Levine Cancer Institute

Carolinas Healthcare System

Hiren Mehta, MD

UNC REX Pulmonary

Specialists

Justin Brian Nicholson,

Survivor

Sterling Capital

Emily Parks, Advocate

Organize for Success,

LLC

Jared Weiss, MD

UNC Lineberger

Comprehensive

Cancer Center

Shirley Sulick,

Survivor

Jim Sheegog, Advocate

Rowhill Consulting

Group

Chris Rallis, JD

Pappas Ventures

Jennifer Garst, MDDuke Cancer Institute at

Duke Raleigh Cancer Center

Jared Weiss, MDUNC Lineberger Comprehensive Cancer Center

Ed Kim, MDLevine Cancer Institute

Jeff Petty, MDWake Forest Baptist Comprehensive

Cancer Center

Paul Walker, MDBrody School of Medicine at

East Carolina University

Amy Cipau, MBAPresident & Founder, LCI

Geoff Stroud, PharmD, BCOP, CPPBrody School of Medicine at East Carolina University

Patti Pozella, PhDPursuit-Solutions

Liling Warren, PhDOmicSoft Corporation and Acclarogen

Kathryn Mileham, MDLevine Cancer Institute

Jimmy Ruiz, MDWake Forest Baptist

Chad Pecot, MDUNC Lineberger Comprehensive Cancer Center

Jon GormanSurvivor

Scientific Advisory Committee

Lung Cancer: A Snapshot

American Cancer Society. Cancer Facts and Figures 2017. Atlanta:

American Cancer Society; 2017.

99%

90%

18%

0%

20%

40%

60%

80%

100%

ProstateCancer

Breast Cancer Lung Cancer

Five-Year Survival Rates

Prostate Cancer

Breast Cancer

Lung Cancer

US Cancer Deaths vs. Federal Funding

Source: https://report.nih.gov/categorical_spending.aspx

Not Just For Smokers!

20-25,000

people in the

U.S. get lung

cancer each

year, despite

never smoking.

Those who have

quit smoking

remain at risk.

Faces of Lung Cancer

• Research

• Awareness

• Education

• Access

What We Do

Research:

Fueling Medical Discovery

Our support has jump-started the careers of researchers who have gone on to receive further funding from the National Institute of Health, Department of

Defense and the American Cancer Society

The amount secured in lung cancer research for North Carolina in 2016.

The number of researchers being funded at five leading cancer centers across the state.

The total amount we have raised in lung cancer research.

$525,000 11 $1.1 Million

2017-18 Research Fellows

Jeffrey Clarke, MD at Duke Cancer Institute

Identification of Genetic Determinants for Disparities in African American Patients with Non-Small Cell Lung Cancer

V Foundation, Co-Funded Research

Chad Pecot, MD at the University of North Carolina at Chapel Hill

Targeting the Immune Microenvironment to Treat Squamous Cancers

We are committed to increasing public awareness about lung cancer, through:

• Events

• Education & Outreach Initiatives

• And other grassroots opportunities

Education & Awareness

Education:

Changing the Conversation

The number of providers and oncologists educated around the state

The number of free patient education materials given out around the state in 2016.

The number of people educated at our 2016 Expert Speaker Series with six cancer centers.

3,000+ 1,600 + 200+

Access:

Easing the Burden

Since we began the gas card program, we have funded $50,000 in transportation assistance to NC patients

Number of gas cards that have been given out to patients in treatment across NC since 2014.

$50,000 1,000

The goal is to lessen the financial burden for patients to receive appropriate lung cancer treatment

Patient Access to Care Gas Card Program:

Access Grants

Community Health Coalition, IncThe Relationship of Lung Cancer Information to Improved Access to Lung Cancer Screenings in African Americans

Vidant Medical CenterLow-Dose Screening Initiative

Cancer Services, IncCancer Treatment Support for Lung Cancer Patients

How You Can Help

• Become a sponsor

• Create a Corporate Team

• Participate in an event

• Make an in-kind tax deductible contribution

• Matching Gift Program

• Join our Advocate Speaker Program

• Host a fundraiser

• Volunteer at an event

• Join a planning team

• Publicity/Media Assistance

Together, there is always something we

can do.

Who is here?

16Survivors

22Cities

4States

61Participants

Build a Movement! Why?

• Too many affected cannot speak for themselves

• We cannot make progress without research, education and awareness about this disease

We need EVERYONE advocating for more research dollars and researchers in the field

• We cannot do it without you!

• There is strength in numbers!

• This has worked for other diseases!

• This is the first step…

Why are we here?

Lung Cancer Initiative Summit:

• Attend all sessions

• Listen effectively

• Contribute – your questions, ideas, perspective

• Respect others who may have different viewpoints from your own

What we expect of you