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www.england.nhs.uk
Chair: Dr Rod Kersh Consultant in Medicine for Older People Doncaster and Bassetlaw NHS Foundation Trust
Accessing Peer Support Workshop
www.england.nhs.uk
A sociable approach to professional development
Vanessa Garrity Director, Sociable Angels Ltd Alex Irvine Advanced Nurse Practioner, Leeds & York Partnership NHS FT Presentation
Sheffield Dementia Involvement Group
SHINDIG
Beverly Graham Dementia Support Worker
Alzheimer’s society Sheffield
SHINDIG is a place where: People living with dementia (and family carers) can
share their experiences of memory problems and of local services
Organisations in Sheffield can come and listen to the
views of people living with dementia (and family carers)
Current funding support from DEEP
Essential Ingredients • City centre location • Lunch on arrival • Facilitators – skilled and novice • Small break out rooms • Preference of activity group • Topic questions don’t rely on reflection • Focus on valuing people’s contributions over
the outcome – having fun • The people who give up their time and
attend
Respect
• Not asking people to attend something at the very last minute.
• Following up with written information/feedback on the result of the discusssions.
• Helping people to feel that their contributions are valued and worthwhile.
• Be prepared to consider topics/issues that are raised by people with dementia-often there are unexpected outcomes.
Making Allowances for Dementia
•Active involvement rather than lots of presentations and listening •Topics not too conceptual or reliant on reflecting on the past •Prompts can be helpful as well as writing discussion points on a flip chart as a reminder •Allowing enough time so people don’t feel rushed and have enough opportunity to contribute
• Atmosphere to be friendly- not too stuffy.
• Staff to be prepared to step out from their professional/academic self.
• Being able to have a laugh-sometimes about memory and forgetting things.
• Being able to listen and respond to upset sometimes.
• Small groups work best.
Atmosphere
Supportive
• Friendly • The choice of whether to remain with family
carer or be in group with other people with dementia.
• Lunch and refreshments • Enabling people to tell their stories-being allowed
to go off topic. • Facilitators who know the person can help remind
the person of things they have said in the past.
SHINDIG Programme
12.45 Arrival, registration and group choice 13.00 Lunch 13.30 Large group welcome 13.40 Small group activities 14.45 Small group evaluation 15.00 Large group feedback and thank you 15.15 End
Topics • Experience of GP
services • Hints and tips on
living with dementia • Experience of
memory services • Dementia Friendly
Communities • Engaging with iPads • Choosing topics for
future SHINDIGs
Feedback/evaluation
• Informal evaluation takes place after each Shindig.
• Thumbs up/ Thumbs down used whilst people are still in small groups
• Written reports made available to the group at Shindig .
• Reports also available on the Shindig website: • http://shsc.nhs.uk/about-us/get-
involved/sheffield-dementia-involvement-group-shindig/
Peer Support opportunities for people with dementia. 25 June 2015
@HINSouthLondon
• Health Innovation Network is the Academic Health Science Network (AHSN) for South London
• The Government has established 15 AHSNs nationally
• AHSNs have 4 key objectives:
About Academic Health Science Networks
Focus on the needs of
patients and local
populations
Speed up the adoption of
innovation into practice to
improve clinical outcomes and
patient experience
Build a culture of
partnership and
collaboration
Create wealth through co-
development, testing, evaluation, early adoption and
spread of new products and
services
Shaped through Clinical Programmes and Cross-Cutting themes across South London:
Our work at Health Innovation Network
Diabetes
Dementia
MSK
Alcohol
Cancer
CLINCAL PROGRAMMES
Industry Partnerships
Patient Safety Collaboratives
Informatics
Patient Experience
Education & Training
CROSS-CUTTING THEMES
Patient & Public Involvement
Working across South London
Dementia Programme Who we are
Senior Responsible Officer David Bradley, Chief Executive, SWLSTG
Clinical Director Hugo de Waal, Consultant Psychiatrist
Associate Clinical Directors Aileen Jackson – Commissioning Manager Catherine Gamble – Head of Nursing Academic Dev SWLSTG
Programme Manager Rebecca Jarvis
Project Managers Amy Semple & Linda Briant
Darzi Fellow Laurence Cowderoy
Innovation Fellow Amanda Buttery
Innovations in Dementia Nada Savitch
Dementia Peer Support Project
Background to the project Born out of engagement exercise at launch Routinely advocated in policy and strategies across the UK Supports the Government’s Detection Agenda: Post-diagnostic support Need reinforced by mapping exercise: variation across South London
• provision, access, specific groups (BAME, younger people etc), exit plan
Not all want a structured approach to peer support – just opportunities to meet others in a similar situation Most want to continue taking part in social groups & activities - but dementia can lead to social isolation Lots of resources but spread across multiple organisations Challenge: Funding and weak economic evidence
Dementia Peer Support Project
Our whole system approach to peer support Specialist & structured peer support (usually time limited)
Dementia cafes or informal clubs where people can drop in to meet others in a similar situation
Community groups, clubs & societies which are able to accommodate people with dementia
Up-to-date information for people & carers about local services and supports – how to access them
Dementia advisors / navigators who are able to support people through the ‘system’ – connecting them to their communities.
Community organisations and specialist peer support groups both have an important role to play in supporting people with dementia to live well.
Dementia Peer Support Project
Introducing our Resource Pack
Who is it for?
Statutory, voluntary, and community sectors
Those involved in setting up, running or involved in peer support groups or social /activity groups which include people with dementia
Older people groups, clubs etc. that want to support people with dementia better
People who commission or fund services for people with dementia
Dementia Peer Support Project
What is in it?
Evidenced based guidance
Statistics
Relevant Policy & Research
Case studies Films
Feedback and Spread
European’s Foundation Initiative on Dementia
South London
2330 Downloads
Dementia Peer Support Project
Summer 2015 updates to the resource pack
Watch our films on peer support
Views from people with dementia and their families https://vimeo.com/123402358
Views from facilitators and volunteers https://vimeo.com/123098508
Contact
Amy Semple Project Manager – Dementia 020 7188 7188 x 55405 [email protected] View the Resource Pack: http://www.hin-southlondon.org/resources/peersupportpack
Innovations in Dementia
Rachael Litherland Director, Innovations in Dementia
• 50 involvement groups across the UK
• National groups in Scotland and Northern Ireland
• Groups are all shapes and sizes
• Local, regional and national influence
• People with dementia as contributors, participants and citizens
• Developing a national dementia movement
• Clear Voices • Face it Together • EDUCATE • Lancashire Dementia Voices • Friends Together • Hope • Forget Me Not • Over the Rainbow • Positive Dementia Group • SHINDIG • Camden Minds
“What it says on the tin…”
DEEP offers groups…
• Building connections between groups, mapping interests and skills • Brokering national opportunities • Collating and developing good practice • Being a central repository of the work, ideas and solutions of groups and
keeping groups updated about each others work • Funding local groups and initiatives who have ideas about increasing the
involvement of people with dementia • Setting expectations about how others will engage with and involve people
with dementia effectively and supportively
Sign up to the Call to Action at http://www.dementiaaction.org.uk/dementia
words https://vimeo.com/122528299
Impact of collective engagement
“Being part of a network gave our members the confidence that they have a right to have their voices heard.”
• Tangible chances on national policy and guidance e.g. British Psychological Society, House of Lords
• Changes in culture at national meetings and events about dementia
• DEEP resources and guidance (via www.dementiavoices.org.uk) are
being used in practice
• Voices of people with dementia are louder and include a wider range of perspectives
• And hundreds of local, regional and nationwide impacts from the day to
day work of the groups
Mechanisms for continuing involvement
• Relevant and interesting opportunities, shaped by people with dementia
• Accessible (and peaceful) buildings, agendas, frameworks, values • Willingness of other organisations to adjust their methods and
approaches • Peer support, building of confidences • Shared roles, collectivism • One to one support - e.g. ‘buddies’
http://dementia.onourradar.org
www.england.nhs.uk
• Thank you to all our speakers • Presentations will be available on the SCN website – the
link will be emailed to you along with a link to the evaluation survey
• Lunch is available in the main conference room from 12:30 • Please visit our stalls and poster presentations • And learn to tweet at the Twitter Café in the Presidents
Suite!
Close and reflections