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Patient and Family e-Newsletter AADP EAST BAY AREA June 26, 2011 (Sun): St. Anne’s Catholic Church 32223 Cabello Street Union City, CA 94587 8am 12:30pm 6:30pm 7:30pm NORTH BAY AREA June 18, 2011 (Sat)  Mission Cultural Center 2868 Mission Street San Francisco, CA 94110 12pm3pm SOUTH BAY AREA June 25, 2011 (Sat):  Dia de San Juan Festival 1650 Senter Road San Jose, CA 95112 10am-4pm June 25, 2011 (Sat):  Festival in the Park 985 Hellyer Ave. San Jose, CA 95111 11am4pm Upcoming Drives and Volunteer Opportunities: more drive listings www.aadp.org/drive June 2011 Are you interested in volunteering at drives or in our office? Visit www.aadp.org or email: [email protected]  PUT YOUR KIDS TO WORK THIS SUMMER! Young Palo Alto resident encourages more Pacific Islanders to join the Be the Match Registry June 2011  PACIFIC ISLANDERS, TEVITA NEEDS YOU! When Tevita was diagnosed with Aplastic Anemia in February, he and his family could not have been more surprised. An enthusiastic athlete, the 8-year-old is now looking for a marrow donor. His best chance of finding a match will come from someone of Tongan, Samoan, or Chinese descent. At 0.1%, Pacific Islanders are the least represented racial group on the National Registry, making Tevita’s search all the more difficult . AADP and Team Tevita have held several drives around the Bay Area and Sacramento, including drives at games for Tevita’s football team. Please continue to spread the word, reach out to Samoan and Tongan communities nationwide, and encourage others to register as potential donors; they may be the match Tevita needs! NICO TO RECEIVE TRANSPLANT Nico Poux was first diagnosed with leukemia while living with his family in France. The then six-year-old underwent several rounds of chemotherapy and a cord blood transplant, eventually leading to remission. However, this remission was not to last. In 2011, shortly after Nico and his family relocated to California, he relapsed. Family and friends immediately set up marrow registration drives, hoping to find a match for Nico. Like so many patients though, his mixed racial background meant he was far less likely to find a match. A match was eventually found and Nico is preparing for Patient prepares for his bone marrow transplant after second relapse. . June 2011  Tevita at a marrow drive. Nico (middle) at a marrow drive in Palo Alto.

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Patient and Family e-Newsletter 

AADP

EAST BAY AREAJune 26, 2011 (Sun): St. Anne’s Catholic Church 

32223 Cabello StreetUnion City, CA 945878am — 12:30pm

6:30pm — 7:30pm

NORTH BAY AREAJune 18, 2011 (Sat)  Mission Cultural Center

2868 Mission Street

San Francisco, CA 9411012pm— 3pm

SOUTH BAY AREAJune 25, 2011 (Sat):  Dia de San Juan Festival

1650 Senter Road

San Jose, CA 95112

10am-4pm

June 25, 2011 (Sat):  Festival in the Park

985 Hellyer Ave.

San Jose, CA 9511111am— 4pm

Upcoming Drives andVolunteer Opportunities:more drive listingswww.aadp.org/drive 

June 2011 

MAYA’S MILESTONE Transplant recipient reaches her 365

thday post-transplant

May 2011  

The Chamberlin family is

celebrating! Maya Chamberlinhad been diagnosed with a rareblood disease, hemophagocyticlymphocytosis in 2009, and oneyear ago, received a bonemarrow transplant from anunrelated donor. We are happyto report that Maya has showntremendous progress since then,and she and her family continueto adjust to the changes as her health improves. Maya and her donor are making plans to meet in the near future. In the

meantime, keep up with Maya’s journey at her CaringBridge, here. 

 Maya (left), pictured with her Mom

and Grandma.

Are you interested involunteering at drivesor in our office? Visitwww.aadp.org oremail: [email protected] 

PATIENT SPOTLIGHT

Josiah is 7-

years-old. He

was

diagnosed

with Wiskott-

Aldrich

Syndrome at 3

months of age

and had a stem cell transplant at

18 months. He is doing well with

his new immune system and

goes for check-ups once a year.

His teachers always report that

he is a very thoughtful and

helpful classmate and has a

great heart.

P U T Y O U RK I D S T O W O R KT H I S S U M M E R !

AADP | 2169 Harbor Bay Parkway | Alameda, CA 94502Tel: 510-568-3700 | Fax: 510-568-2700www.aadp.org | [email protected] 

Find us on:

Part of  

Join our AADP Corporate CommunityChallenge

AADP is initiating a Corporate Challenge

Will your company be up for the challenge?AADP is signing up corporations for these 4 awardcategories:

Most registered donors Most volunteer support Most monetary donations Most creative pre-drive publicity or best use of social media

Time:  1st round: October 1, 2011 to

March 31, 2012 2nd round: April 1, 2012 to

September 31, 2012

How AADP will give back:AADP will host press conferences in Apriland October to acknowledge outstandingcorporations.

If interested, please contact:Ruby at: 510-568-3700 

AADP college drivesand events areproudly sponsored by

Georgina,Hispanic

Sézary's disease

Mihaela,Mixed European

Leukemia

KristinaMixed RaceLeukemia

SEARCHING PATIENTS

Chris Ishida Japanese/Caucasian

Severe Aplastic  Anemia

Young Palo Alto resident encourages more PacificIslanders to join the Be the Match RegistryJune 2011  

PACIFIC ISLANDERS, TEVITANEEDS YOU!

When Tevita was diagnosed with AplasticAnemia in February, he and his family

could not have been more surprised. Anenthusiastic athlete, the 8-year-old is nowlooking for a marrow donor.His best chance of finding a match willcome from someone of Tongan, Samoan,or Chinese descent. At 0.1%, PacificIslanders are the least represented racialgroup on the National Registry, makingTevita’s search all the more difficult.

AADP and Team Tevita have held several

drives around the Bay Area and Sacramento, including drives atgames for Tevita’s football team. Please continue to spread theword, reach out to Samoan and Tongan communities nationwide,and encourage others to register as potential donors; they maybe the match Tevita needs!

Give the Gift of Hope TODAY!

The total cost to add a member to theregistry is $100.00.

If you would like to help AADP continue itsmission, please consider making a financialdonation.

Online donations can be made, HERE. 

Checks should be made payable to:AADP and can be mailed to:2169 Harbor Bay Pkwy,Alameda, CA 94502.

All donations are tax deductible and 100% of your donation will go towards the recruitmentof more donors.

Together we can help save lives! 

NICO TO RECEIVE TRANSPLANT

Nico Poux was first diagnosed withleukemia while living with his family inFrance. The then six-year-oldunderwent several rounds of chemotherapy and a cord bloodtransplant, eventually leading to

remission. However, this remission wasnot to last. In 2011, shortly after Nicoand his family relocated to California, herelapsed. Family and friendsimmediately set up marrow registrationdrives, hoping to find a match for Nico. Like so many patients though, hismixed racial background meant he was far less likely to find amatch. A match was eventually found and Nico is preparing for a transplant. AADP sends him wishes for a speedyrecovery. Follow Nico’s story at his CaringBridge journal, here. 

Patient prepares for his bone marrow transplant after second relapse. .June 2011  

Tevita at a marrow drive.

Nico (middle) at a marrow

drive in Palo Alto.

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