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Selected Findings From The 2010 Survey of Independent Living For New Mexicans With Disabilities. _________. Anthony Cahill, Ph.D. Heidi Fredine, MPH Barbara Ibanez, MA Luciana Zilberman, MA. Institutional Review Board. _________. - PowerPoint PPT Presentation
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Anthony Cahill, Ph.D.Heidi Fredine, MPHBarbara Ibanez, MA
Luciana Zilberman, MA
Selected Findings From The 2010 Survey of Independent Living For New Mexicans
With Disabilities
This project, including project design, protocols and instruments used, was reviewed by the Human Research Review Committee (HRRC) of the Health Sciences Center of the University of New Mexico. The HRRC determined that the research is exempt from the requirements of Department of Health and Human Services (DHHS) regulations for the protection of human subjects as defined in 45CFR46.101(b) under category 2. The HRRC application number is 10-250.
Institutional Review Board
Funding for this study was provided by the New Mexico Human Services Department through the Behavioral Health Services Division.
Funding
Disclaimer
The opinions in this presentation are those of the authors, and do not represent the official positions of the Center for Development and Disability of the University of New Mexico, the New Mexico Human Services Department or the Behavioral Health Services Division.
Development of the Survey
Inter-agency working group: DDSD, HSD, Optum Health NM, DVR, ALTSD
Review of the literature Multiple iterations of instrument Institutional Review Board approval On-line, hard copy and electronic versions of the
instrument in English and Spanish were disseminated statewide through snowball sampling
Web site with instructions for facilitators in one-on-one and group settings
Overall ‘N”: 739
Domains Influencing Independent Living
Findings: Comparing Survey Respondents toAll New MexicansOn Key Characteristics
The survey used snowball, not random, sampling: overall “N” of 739.
Thus, the results cannot be statistically generalized to the unknown population of New Mexicans with disabilities.
Survey respondents are generally representative of the population of the state on key demographic characteristics including gender, race and Hispanic identity.
This means the results are not from a skewed distribution unlike the state as a whole.
48.8%
51.2%
48.5%
50.5%
47.0%
47.5%
48.0%
48.5%
49.0%
49.5%
50.0%
50.5%
51.0%
51.5%
Male Female
SurveyNew Mexico
Gender
N = 694Figures for New Mexico are taken from the 2009 American Community Survey, Census Bureau,
United States Department of Commerce
Hispanic Identity
43.7%
56.3%
45.6%
54.4%
0.0%
10.0%
20.0%
30.0%
40.0%
50.0%
60.0%
Yes No
SurveyNew Mexico
N = 673Figures for New Mexico are taken from the 2009 American Community Survey, Census Bureau,
United States Department of Commerce
Race
77.3%
9.3%
3.6%0.8% 1.6%
7.4%
83.6%
9.7%
3.1% 1.5% 0.2% 1.9%
0.0%
10.0%
20.0%
30.0%
40.0%
50.0%
60.0%
70.0%
80.0%
90.0%
White/Caucasian American Indian Black/African American Asian Native Hawaiian/pacificIslander
Other
SampleNM
N = 611Figures for New Mexico are taken from the 2009 American Community Survey, Census Bureau,
United States Department of Commerce
Age Category
5.4%
8.7%
15.8%
27.7%
16.0%
14.0%
35.7%
13.6%12.2%
13.7%
11.5%13.1%
0.0%
5.0%
10.0%
15.0%
20.0%
25.0%
30.0%
35.0%
40.0%
<24 25-34 35-44 45-54 55-64 65+
SurveyNew Mexico
N = 689Figures for New Mexico are taken from the 2009 American Community Survey, Census Bureau,
United States Department of Commerce
Respondents by Geographic Region
13.4%
16.4%
30.1%
23.2%
16.9%
N = 611
Findings: Disability,ServicesAnd Supports
Type of Disability
41.3%
20.7%19.1%
12.6%10.7%
6.6%
11.2%
0.0%
5.0%
10.0%
15.0%
20.0%
25.0%
30.0%
35.0%
40.0%
45.0%
Behavioral Health Physical Chronic HealthCondition
Learning Sensory Cognitive Other
What type of disability or health condition do you have?
N (Disability/Condition) = 961
Services and Financial Supports
Are you currently receiving services or financial support from any of these programs or organizations?
52.7%
36.3%
29.5%
20.6%
11.6%9.4% 8.4% 8.1% 8.0% 7.8% 6.1% 4.7% 3.4% 2.8% 1.7% 1.7%
0.0%
10.0%
20.0%
30.0%
40.0%
50.0%
60.0%
Social
Securit
y or D
isabilit
y Inco
me (SSI/S
SDI)
Medica
id
Medica
re
SNAP (food st
amps
)
Private
Hea
lth In
suran
ce
Public
Hous
ing Ass
istan
ce (S
ectio
n 8/ P
ublic H
ousin
g)
Person
al Care
Optio
n (PCO)
DD Waiv
er (D
evelo
pmental
Disabil
ities W
aiver)
Commiss
ion for th
e Blin
d
Othe
r
Genera
l Ass
istan
ce fo
r the D
isable
d
Coordina
ted Lo
ng-Term C
are Serv
ices (
CoLTS)
Optum H
ealth
NM (Tran
sition
al Livi
ng Service
s)
Divisio
n of Voca
tional
Rehab
ilitati
on (DVR)
Medica
lly Frag
ile W
aiver
Mi Via
Waiver
N (Services): 1,263
Most Frequent Combinations of Services and Financial Supports
SSI/SSDI Medicaid Medicare SNAP
SSI/SSDI 217 176 95
Medicaid 217 133 105
Medicare 176 133 55
SNAP 95 105 55
Findings: Independence in Choosing Where to Live
Choice in Deciding Where to Live
Which best describes who chose where you live now?
N = 684
I Chose Where I Live Independently
50%I Chose Where I Live With Others Being
Involved35%
Someone Else Chose; I Wasn't Involved
15%
Satisfaction with Decision Making in Choosing Where to Live
How satisfied were you with the amount of decision-making you had in choosing where you live?
N = 419
I Had Just The Right Amount Of
Involvement70%
I Wish I Had Been More Involved And Had More
Say26%
I Didn't Want To Be As Involved As I Was
4%
Who Was Involved in the Decision of Where To Live?
You said that someone else was involved in choosing the place where you live. Who else was involved?
N = 411
45.3%
23.8%
19.1%
9.9%
20.3%
0.0%
5.0%
10.0%
15.0%
20.0%
25.0%
30.0%
35.0%
40.0%
45.0%
50.0%
Family Member Someone From An AgencyThat Provides Services To
Me
My Guardian or LegalRepresentative
A Friend or Friends Other
Findings: What’s ImportantIn DecidingWhere To Live?
What’s Important in Deciding Where To Live?
How Important Is This in Deciding Where To Live?
N = 655
95.1% 93.1% 91.9% 91.4%87.5% 87.1%
83.8%76.6% 76.2% 73.2%
65.5% 64.6% 64.4%
0.0%
10.0%
20.0%
30.0%
40.0%
50.0%
60.0%
70.0%
80.0%
90.0%
100.0%
Feelin
g Safe
Privac
y
Affordab
ility o
f Hou
sing
Beling Close
to Stor
es
Acces
s to S
ervice
s
Having a
Backy
ard or N
earby P
lace t
o be Outs
ide
Being C
lose to
Friend
s
Being C
lose to
Recrea
tional
Activit
ies
Being C
lose to
Work
Being C
lose to
Public T
ransp
ortatio
n
Partici
pate in
Neighborhoo
d Events
Physic
al Acc
essib
ility
Close to
a Plac
e of W
orship
Gaps In Importance and Satisfaction
How Important Is This in Deciding Where To Live?
How Satisfied Are You With This Where You Live Now?
95.1% 93.1% 91.9% 91.4%87.5% 87.1%
83.8%80.2%82.1%82.0%80.9% 83.0%
68.8%
80.9%
0.0%
10.0%
20.0%
30.0%
40.0%
50.0%
60.0%
70.0%
80.0%
90.0%
100.0%
Feeling Safe Privacy Affordability ofHousing
Beling Closeto Stores
Access toServices
Having aBackyard orNearby Placeto be Outside
Being Close toFriends
(Percent saying "Very Importantor "A Little Important""(Percent Saying "Satisfied" or"Very Satisfied")
14.2% 23.1%10.1% 10.5%
Findings: Current andPreferredLiving Situations
Current Living Situations
Which of the following best describes your current living situation?
N = 684
38.4%37.1%
13.2%
7.5%
3.7%
0.0%
5.0%
10.0%
15.0%
20.0%
25.0%
30.0%
35.0%
40.0%
45.0%
Live W/ One or MoreBiological Family Members
Live Alone Group or Congregate Home Friends/Roommates Family Living Situation
Satisfaction With Current Living Situation
Overall, how satisfied are you with your current living situation?
N=705
Very Satisfied50%
Satisfied30%
Dissastified12%
Very Dissatisfied8%
Gaps: Current and Ideal Living Situations
Which of the following best describes your current living situation?
Regardless of your current living situation, what would your ideal living situation be?
N= 684
38.4%37.1%
13.2%
7.5%
3.7%
24.9%
45.3%
20.2%
5.1% 4.5%
0.0%
5.0%
10.0%
15.0%
20.0%
25.0%
30.0%
35.0%
40.0%
45.0%
50.0%
Live W/ One or MoreBiological Family
Members
Live Alone Group or CongregateHome
Friends/Roommates Family Living Situation
Current Living SituationPreferred Living Situation
Living With Biological Family as Preferred Living Situation by Type of Disability
Regardless of your current living situation, what would your ideal living situation be? Ideally, I would like to live with one or members of my own
family… N (Disability Type) = 155
Cognitive Disability 11 (7%)
Sensory Disability 29 (19%)
Learning Disability 17 (11%)
Chronic Health Condition/Disability 31 (20%)
Physical Disability 20 (13%)
Behavioral Disability 47 (30%)
Living Alone as Preferred Living Situation by Type of Disability
Regardless of your current living situation, what would your ideal living situation be? Ideally, I would like to live alone…
N (Disability Type) = 393
Sensory Disability 33 (8%)
Learning Disability 43 (11%)
Chronic Health Condition/Disability 71 (18%)
Physical Disability 73 (19%)
Behavioral Disability 148 (38%)
Cognitive Disability 25 (6%)
Congregate Housing as Preferred Living Situation by Type of Disability
Regardless of your current living situation, what would your ideal living situation be? Ideally, I would like to live in a group or congregate home…
Sensory Disability 13 (7%)
Learning Disability 17 (9%)
Chronic Health Condition/Disability 38
(20%)
Physical Disability 41 (21%)
Behavioral Disability 76 (38%)
Cognitive Disability 9 (5%)
N (Disability Type) = 194
Next Steps
Additional analysis: question 6 (current and desired levels of assistance with activities of daily living) and statistical significance on key demographic variables
Full report Executive Policy Summary ?
Dr. Anthony CahillDirector, Division of Disability and
Health PolicyCenter for Development and
Disability2300 Menaul Boulevard NE
Albuquerque, NM 87107(505) 272-2990
For More Information
To review or download a copy of this report, or to see other reports as they become available, please visit
http://cdd.unm.edu/dhpd/index.asp
Click on “Programs and Projects” and then on “Survey of Independent Living”