2018 ANNUAL REPORT

Dear Friends,

On Saturday, November 4, 2017, at the Eighth Annual Epilepsy Consumer Conference, I was officially introduced to the Epilepsy Foundation of Greater Chicago community. It was my first day on the job, and it is something I will never forget. I was amazed by the passion and knowledge that our clients, staff, and the professional community had about epilepsy. I left feeling very motivated and also very aware that there was so much for me to learn.

Looking back today, I am moved by all that I have learned, not only about epilepsy, but by the impact it has on individuals, their families, and the entire community. I am dedicated more than ever to providing programs and services that will fulfill the needs of the nearly 140,000 people living with epilepsy in the Chicagoland area. I am encouraged by what was accomplished in the 2018 fiscal year, including our advocacy efforts to support the passage of Illinois House Bill 4146. Now that it is signed into law, insurance companies are prohibited from changing a person’s coverage mid-year. This is vital to individuals with epilepsy.

Moving forward, I am excited as we reinforce our three main pillars: Advocacy, Case Management, and Education. By increasing our number of clients and expanding our outreach efforts to the 43 counties we serve, I believe we can successully achieve the goals of these pillars and “Seize the Narrative” back from epilepsy.

Thank you,

Bryan S. AndersonPresident & CEO

THE EPILEPSY FOUNDATION OF GREATER CHICAGOCreated in 1946 as a grassroots effort in Illinois to help people with epilepsy, the Epilepsy Foundation of Greater Chicago is an Illinois not-for-profit organization serving 43 counties, offering advocacy, case management, and educational services to people with epilepsy, their families, and the communities in which they live.

MISSION STATEMENTThe mission of the Epilepsy Foundation of Greater Chicago is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

WHAT IS EPILEPSY?Epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It’s also called a seizure disorder. When a person has two or more unprovoked seizures, they are considered to have epilepsy. A seizure happens when a brief, strong surge of electrical activity affects part or all of the brain. One in 10 adults will have a seizure sometime during their life.

Seizures can last from a few seconds to a few minutes. They can have many symptoms, from convulsions and loss of consciousness to some that are not always recognized as seizures by the person experiencing them or by health care professionals: blank staring, lip smacking, or jerking movements of arms and legs. The frequency of seizures varies greatly, from once in a while to several per day.

Epilepsy is one of the world’s oldest known medical conditions, and yet too many people do not understand it. In too many cases, this misunderstanding has led to fear, discrimination and social stigma.

IMPORTANT FACTS

65 MILLION: People around the world who have epilepsy.

3.4 MILLION: People in the United States who have epilepsy.

1 IN 26: People in the United States that will develop epilepsy at some point in their lifetime.

Nearly 140,000: People in the Chicagoland area that have epilepsy.

150,000: New cases of epilepsy in the United States every year.

ONE-THIRD: People with epilepsy who live with uncontrollable seizures because no available treatment works for them.

6 OUT OF 10: People with epilepsy where the cause is unknown.

50,000: People who die from epilepsy-related causes in the United States every year.

More people live with epilepsy than with autism spectrum disorders, Parkinson’s disease, multiple sclerosis and cerebral palsy – combined.

Howard Zwirn CHAIRPeter M. Babilla VICE CHAIR

Patrick Callaghan VICE CHAIRNancy Iida VICE CHAIR

Andrea Murphy VICE CHAIRSteven P. Corda TREASURER

Roxane DeVos Tyssen SECRETARYMike Adamle

Jason Wendt PRESIDENTAdam Mizner VICE PRESIDENT

Benji Liener TREASURERTatiana Hernandez-Press SECRETARY

Sammi Gassel

Adriana Bermeo-Ovalle, M.D CHAIR Saba Ahmad, M.D.

Jorge Asconapé, M.D. Antoneta Balabanov, M.D.

Katie Bandt, M.D.Lawence Bernstein, M.D.

Amar BhattAlma Bicknese, M.D.

Richard W. Byrne, M.D. Siresha Chaluvadi, M.D.

Steven Clingerman, Ph.D.James Fischer, Pharm.D.

Patricia Fischer, R.N.Marlis Frey, B.S.N., M.S.N. Elizabeth E. Gerard, M.D. Mitra Habibi, Pharm.D.

Takijah Heard, M.D. Julia Henry, M.D.

Naoum Issa, M.D., Ph.D. Yevgenya Kaydanova, M.D., Ph.D.

Marianne Larsen, M.D. Linda Laux, M.D.

Jeffery A. Loeb, M.D., Ph.D.Beth Lyons

Michael P. Macken, M.D., M.R.C.P.I. Charles Marcuccilli, M.D., Ph.D.

Bruno Maton, M.D. Abdul-Hassein Mazin, M.D., M.P.H.

Maggie McNulty, M.D.

Sarah CarlsonDennis DeCaroDan Kotowski

Jeffery A. Loeb, M.D,, Ph.D.Matt McInerney

Maxwell Rovner, M.D., J.D.Stephan U. Schuele, M.D., M.P.H.

Ashley HaglundJulia Kissel

Jay LuttermanKaty McGeeJolie Nieto

John Millichap, M.D.Srisshti Nangia, M.D.

Jaishree Narayanan, M.D. Rebecca O’Dwyer, M.D.

Patricia Ogden, A.P.N., F.N.P., NP-C Michele Packard, L.C.S.W.

Esmerelda Llanas Park, M.D.Serge J.C. Pierre-Louis, M.D., M.P.H.

Sigita Plioplys, M.D. Luba Romantseva, M.D.

Sandra Rose, M.D. Joshua M. Rosenow, M.D.

Marvin A. Rossi, M.D., Ph.D.Maxwell Rovner, M.D., J.D.

Sepehr Sani, M.D. Michael Schrift, D.O., M.A.

Stephan U. Schuele, M.D., M.P.H. Anna Serafini, M.D.

Michael C. Smith, M.D. Travis R. Stoub, Ph.D. Roy Sucholeiki, M.D.

James Tao, M.D., Ph.D. Jessica Templer, M.D.

Stephen VanHaerents, M.D. Peter Warnke, M.D., F.R.C.S.

Martha Weber, R.N. Sasha Wu, M.D., Ph.D. Deborah Zielinski, R.N.

BOARD OF DIRECTORS

ASSOCIATE BOARD

PROFESSIONAL ADVISORY BOARD

2018 IMPACT

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2018 STATEMENT OF ACTIVITIES REVENUESPublic support and revenue: Clubs and organizations Corporate gifts Foundations and trusts Individual gifts

TOTAL PUBLIC SUPPORT AND REVENUE

OTHER REVENUES Grants: Department of Human ServicesClothing donation incomeSpecial events (net of direct costs)Investment income

TOTAL OTHER REVENUES

TOTAL REVENUES, GAINS AND OTHER SUPPORT

EXPENSES Program services: Patient services Community services Professional education and training Public health education

TOTAL PROGRAM SERVICES

OTHER EXPENSESManagement and generalFundraising

TOTAL EXPENSES

CHANGE IN NET ASSETS

TOTAL

$ 46,860 114,096 71,986

168,965

401,907

1,182,041 540,000 287,006 10,525

2,019,572

2,421,479

$ 908,119 432,530 147,355 264,521

1,752,525

146,771 173,192

2,072,488

348,991

2018 STATEMENT OF POSITION ASSETSCURRENT ASSETSCashAccounts receivable:Contributions and feesPrepaid expensesSecurity depositInvestments

TOTAL CURRENT ASSETS

PROPERTY AND EQUIPMENTFurniture and fixtures Leasehold improvementsEquipment

Less accumulated depreciation

TOTAL PROPERTY AND EQUIPMENT

TOTAL ASSETS

$ 1,231,125

200,458 17,669 9,916 2,000,000

3,459,168

16,927 16,567 60,063

(63,480)

30,077

3,489,245

LIABILITIES AND NET ASSETSLIABILITIESAccrued expenseDeferred rent

TOTAL LIABILITIES

NET ASSETSUnrestricted Temporarily restricted

TOTAL NET ASSETS

TOTAL LIABILITIES AND NET ASSETS

$ 47,682 102,462

150,144

3,336,251 2,850

3,339,101

3,489,245

TOTAL

2018 DONORS THE FOLLOWING CONTRIBUTIONS TO THE EPILEPSY FOUNDATION OF GREATER

CHICAGO WERE RECEIVED DURING THE FISCAL YEAR BEGINNING JULY 1, 2017

AND ENDING JUNE 30, 2018. WE THANK YOU FOR YOUR GENEROUS SUPPORT.

$25,000 + Lundbeck Inc.The McInerney Family Charitable Fund

$10,000 - $24,999 Paul Bechtner FoundationChicago Wolves CharitiesEisai CorporationBrian GladdenLoeffel Epilepsy FoundationPfizer Inc.Supernus Pharmaceuticals, Inc.UCB Inc.

$5,000 - $9,999 David and Theresa BagleyPatrick and Karen CallaghanKurt and Linda FlorianGreenwich BiosciencesHenry’s Heroes Foundation Inc.Richard HorwichTim and Nancy IidaThe Richard James McCann FoundationAndrea MurphyNorthshore University Health SystemNorthwestern MedicineNorthwestern Memorial HospitalJohn and Beth RuarkScott StantisSunovion Pharmaceuticals Inc.Judith Zwirn

$2,500 - $4,999 Peter and Sue BabillaKatie Bandt, MDConagra BrandsMargaret ClarkScott and Deborah EarlyRonald EspositoKelly & Ignoff Law GroupJeffrey Loeb, MDLiva NovaSusan MichaelsMiller Resource GroupMolly MurphyRichard Newman

Tom PetersonPublic Affairs CompanyChristopher ReedyIlana RovnerMichael St. ClairThe University of Chicago Medical Center

$1,000 - $2,499 A-C Central High SchoolAileen S. Andrew FoundationRobert and Joan AlleyAnn & Robert H. Lurie Children’s Hospital of ChicagoCeleste AnsleyAon FoundationAstraZeneca Pharmaceuticals LPPhil BareckBob BeanShawn BlondBill BoykMichael BryanPam BryantCarpenters Local 54Linda and Mario ChristopherPeter CieslakCitibank-CostcoCouncil For Physcially Challenged ChildrenCrisis Intervention Team (CIT) International, Inc.Shalee CunneenJim DoyleWilliam EsserDan and Carolyn FortinScott FreresJoseph and Elizabeth GalbraithJames and Pamela GasselJack and Barbara GreensteinHighland Management Associates, Inc.Hinsdale Bank & TrustHMD TruckingIrene Hogstrom and Mark BragenMike HurleyJewish Communal FundMichael KesslerDan KlemencicPamela LallanillaVicki Landeck

Captain Kevin C. Landeck Memorial FoundationPeter LanteroPatrick LivneyJay LuttermanMichael MageeThe Lynn McCann TrustKatie McCarthyDJ McCulloughMatt and Amy McInerneyRyan MersmanMike, Krysia and Madeline MillerJohn MisasiNancy MonicaMorgan Stanley FoundationMotorola Solutions FoundationJoe and Sue MurphyRobert Murphy, MDDorothy NarancichNatures Care Company LLCNeuroPace, Inc.Jolie NietoDaniel NietoSai and Heather NimmagaddaRonald NunesPatricia Ogden, APN, FNP, NP-CMichael OlsonOWP PharmaceuticalsGary and Nancy Penisten Family FoundationDavid PerkinsJack and Manjula PfingstonPhRMAJenny PotanosRobert PowellJared RafteryInez RinglandRegina RobinsonDavid RodgersRichard RoseRust-Oleum CorporationGarrett SchulzMark and Cynthia SmetanaSmithfield FoodsJean-Pierre SommadossiMike St. ClairStephanie TeschkeThe Greenhouse Theater CenterThe Rich FoundationDan and Denise UgasteCecilia Van HandelGary and Amy VicariCouncil For Physcially Challenged Children

Michael and Diane WachelSteve and Elaine WadeSamuel Weinstein Family FoundationChristopher WhiteJudy WilsonWintrust Financial Corp.Frank and MaryAnn YananBrad ZwirnVindicated Vixens Roller Derby

$250 - 999ABM Industries IncorporatedSamuel AbrahamMarilynn AcebeyAlan AdamsJane AdlerSteven AlletagAmazonAbdul AnsariLucy ArceBrian James Avery Charitable FundChuck BabillaRobin BaileyDrs. Roumen and Antoaneta BalabanovBank of America Charitable FoundationDavid BarberMaria BaroneRichard BarrieAlan BeanKaren BearHerbert BeckChristine BellGary BernardVeronica BernsCarol and William BlockerThe Robert Thomas Bobins FoundationNathan BrinzaRalph and Rona BrownRobert BuffordMichael BullionAngela M. CastilloMiguel and Kelly CervantesCharles Schwab FoundationChicago Tribune FoundationDanielle ChienChrist Evangelical Lutheran ChurchCircle Of Service FoundationGinny ClarkKathy ClarkCoal City Middle SchoolKelly CofoidWilliam CookGreg and Amy Corda

Jake CowardHeather CristPatrick and Valerie CronerDaniel CroninJames and Patti Jo CunneenSusanne CyranoskiDave DanlyJoanne DayJames and Linda DaySara DecosteDanny Did FoundationJudi DuffyMark DupontWilliam and Kathleen DykeJoan EagleNancy EberhardtPeggy EdgeBill EllingtonElmwood Park C.U.S.D #401Elmwood Park Firefighters AssociationWilliam and Debra EricksonExelon FoundationDominick FedeleGary and Marla FelstenGeoffrey and Shirley FishwickRebekah FleischmanCheri FranciscoFrankfort Wildcats Wrestling Corp.Recia FrennArvin Kash and Jane GardnerTom GarritanoAl GeeryMichael and MaryKay GerardiRobert GirolamoAlan GoldbergAnna GordonSydney GraybealJohn GreenwellMichelle GurgoneSara HarrisRoger and Jane HarrisCatherine HaskinsTakijah Heard, MDTom HoeppnerGerald and Katherine HoustonIBM Employee Services CenterJim IngleRobert JacobCathy JacobsonJohn JaegerMeson SabikaRich and Jane JanderKimberly Janssen

David JarasGary JensenDeborah JohnsonGeorge JohnsonKenneth Johnston and Ramona Schwartz-JohnstonThomas KadlecStacy KahatapitiyaLaura KeelerKendra ScottLuke KhouriYolanda KimTony KnepperShaun and Padma KondamuriElli KoulosPaul and Tracy KozielZachary KozubSteven KrollRandy KrosznerDonald and Margaret KruseKati KuberJohn LambertsDerek LandisIan LarkinLarkin Family FoundationSonya LatimerLinda Laux, MDDeborah LeibowThomas LeydenStephen LhotkaJenny LiRobert LienerMark and Celine LillieTyler LisenbyMarie LoewenAlan and Barbara LondonDavid and Susanne ManningCharles MarcuccilliNancy MarlinBecky MarquardtJoe MartinEdward & Fadua MaslakMichelle McconvilleMike McGrawBetty McNultyMaggie McNultySteve MeierMerchants and Manufacturers BankTimothy MizutowichMJ Fans For CharityJohn ModranskyJeffrey MooreJohn Muldoon

Eric MuntingScott MurphyNandos Restaurant Group, Inc.David NelsonPaul NelsonNeurotech, LLCNorthwest NeurologyMichelle NovakJohn O’ReillyRebecca O’DwyerRichard and Maria OppermanP3Logic, Inc.Cheryl PagarBob PalutisMichael ParillaRichard PepperFrank PetralitoSerge JC Pierre-Louis, MDTracy PonesThomas Puccinelli and Connie McCormickLaw Office of Jeffrey A. Rabin & Associates, LtdYolanda RahmanJim RandazzoVladamir RasinRedeemer Lutheran Church WomenMartin RhombergChristine RiccaMaureen RiordanCatherine RobertsJoseph and Cynthia RockGreg RomanoRussell W.and Priscilla H. Rose FundGary RosenbergSean and Lynne RossErik RoweWilliam RudolphMichael and Lisa RybaPatt and Carol SchiewitzVito and Kristin SchiroRobert SchommerJennifer SchroederJerry SheltonEmily ShukiDiana SieciechowiczChristine SiskJoseph SkinnerScott SloanStan and Jodi SlovinAnthony SpinaDaniel SrokaSt. Catherine Of Alexandria School

Matt SussmanMarianne SutcliffeNick SuttonBob and Kim SuttonThe Northern Trust CompanyMaChelle and Alona ThomasCharles ThompsonTornado’s, Inc.Bob TullochRoxane Tyssen and James WolfgramUpsher-Smith Laboratories, Inc.Ruth ValentineLisa Van ScoyocRichard VeileBrent VicknairBecky VinehoutMelissa VossPatricia WadzinskiJonathan WalshDee WeikumJason WendtAudrey WessmanGlen WheelerMichael and Sarah WhelanJoann WilcoxRichard and Laurel Ann WilkRichard WilsonMark and Kathy WinterhalterWilliam and Mary Jo WitnikJoel WoodwardGale WrightJohn WubboldingRobert Zacher, Jr.Cosmas ZachosLisa ZaklanJohn ZimmermannTom ZimmermannHoward and Jeannine ZwirnChristopher and Madhuri Zyla

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Suite 650Chicago, IL 60602

Phone: (312) 939-8622Toll-free: (800) 273-6027Fax: (312) 939-0391Email: info@epilepsychicago.org