2016 Annual Report Allergy & Asthma Network...2016 AnnuAl RepoRt • Allergy & Asthma Network 3 MeMBeRship The Network has more than 2 million members, including patients, families

2016 ANNUAL REPORT•Allergy&AsthmaNetwork1

2016Annual Report

MISSION: Toendneedlessdeathandsufferingduetoasthma,allergiesandrelatedconditionsthroughoutreach,education,advocacyandresearch.

2 Allergy&AsthmaNetwork•2016 ANNUAL REPORT

Allergy&AsthmaNetworkistheleadingnationalpatient-centerednonprofitorganizationadvocatingonbehalfofthe50millionAmericanswithallergies,asthmaandrelatedconditions.FoundedbyNancySanderin1985,itsmissionremainsthesame:Toendneedlessdeathandsufferingduetoasthma,allergiesandrelatedconditionsthroughoutreach,education,advocacyandresearch.

Allergy&AsthmaNetwork(TheNetwork)takesaproactiveandcollaborativeapproachtodevelopingqualityasthmaand allergy education,advocacy andcommunityoutreachprograms,providingpatientsandfamiliescompleteaccesstopractical,timely,accurate,relevant,emotionallysupportiveandactionablepublications,materialsandservices.

Theorganization’s patient-centeredphilosophymakes an empoweringdifference for individualsdesiringasthmamanagementadviceinconsumer-friendlylanguage.Fromnewsletters,magazines,websites,andasupporttoll-freehelpline,theNetworkspeakstopatients’needsinawaythatachievesquantitativeandqualitativeresults.Throughtheseservices,theNetworkgetsdirectinputaboutspecificcommunityneeds.

ThegoaloftheNetwork’sstrategicplanistofulfillitsmissionbyworkingwithleadingexpertsandbuildingpatient-centeredcollaborativecareteamstoachieveoptimalhealthoutcomes.TheNetworkalignsallprogramsandactivitybasedonfourmissionareas:education,advocacy,outreachandresearch.

STAFF

PresidentandCEO:TonyaWindersDirectorofAdvocacy:CharmayneAndersonDirectorofEducation:SallySchoesslerDirectorofOutreachandMulticulturalAffairs:MarcelaGieminianiCreativeDirector:PaulTuryManagingEditor:GaryFitzgeraldOutreachServiceCoordinator:SueLockwoodAccountant:JitasaTreasurer:RandolphTaylor,CPA

BOARD OF DIRECTORS

JohnScottTucker,ChairMichaelAmatoRandallW.Brown,MD,MPHCristinBuckleyMichaelCorjulo,APRN,CPNP,AE-CBrookeCurranA.L.“Tony”DeWitt,RRT,CRT,JD,FAARCGayleN.Higgins,FNPTomKallstrom,MBA,RRTPremK.Menon,MDNatalieNapolitano,MPH,RRT-NPSBruceKalmanRubin,MDJodieStabinski,RN,MSN,CPNP,AE-CRandolphTaylor,CPADennisWilliams,PharmD,BCPS,AE-CTonyaWinders,MBA

ADDRESS

8229BooneBlvd.Suite260Vienna,VA22182703.641.9595800.878.4403

AllergyAsthmaNetwork.org

facebook.com/AllergyAsthmaHQ

twitter.com/AllergyAsthmaHQ

http://www.AllergyAsthmaNetwork.org

http://www.facebook.com/AllergyAsthmaHQ

https://twitter.com/AllergyAsthmaHQ


MEMBERSHIPTheNetworkhasmorethan2millionmembers,includingpatients,familiesandhealthcareproviders.Becomingamemberiseasy:individualscanjoinforfreeorpayanannualfee.Allmembershaveaccesstoourtoll-freehelpline,monthlyE-newsletterandalltheNetwork’seducationalmaterials,includingprintanddigitalversions.In2016,morethan7,000newmembersjoinedtheorganization.

PUBLIC RELATIONSAllergy&AsthmaNetworkworkswith5W,aPRcompanylocatedinNewYork,toraiseawarenessoftheNetworkandthediseases.Toaccomplishthisgoal,5Wusesmediaplatformsincludingnationalandregionalbroadcast,print(longandshortleads)andtoponlineoutletsontopicssuchasMay’sWorldAsthmaDayandFoodAllergyAwarenessWeek,amongothers.Inaddition,5Wconnectswithvariousregionalandnationalallergists/immunologistsregardingsecuredandpotentialopportunitiesandinterviews.

MISSION AREA:

OUTREACHAllergy&AsthmaNetworkreachesouttopatients,families,caregivers,healthcareprovidersandindustryprofessionalsacrossthecountrytoeducateandexpandawarenessaboutallergies,asthmaandrelatedconditions.During2016,theNetworkparticipatedin30outreachactivitiesforpatienteducation,attended18medicalmeetingsandrecruitedmorethan7,000newmembers.

7,000

new members


In2016,theNetworkwasfeaturedin275mediaplacements,reaching1,410,281,464impressions.Thecompletereportisavailableperrequest.

TheNetwork’scommunicationsteamwritesandsendspressreleaseseverymonthtoinformpatientsandfamiliesaboutdiseasepreventionpoliciesandaccess,outreachandscreeningevents,foodandlatexallergysafetytipsandnewmobileappsanddigitaltoolstohelpimproveasthmamanagement,amongothers.TheNetworkusesPRNewswireservicesandalsopostsonwww.allergyasthmanetwork.org/category/press-page/

In2016theNetworkproducedanddisseminated13 press

releases.

PATIENT OUTREACH

Toincreaseoutreachandengagementwithpatients,familiesandcaregivers,theNetwork:• Goesintolocalcommunitiestoconductoutreachand

screeningactivities• Provideseducationalmaterialstoschools,hospitals,

communitycentersandasthmacamps• Engagesinsocialmediaactivities• Offerstoll-freeline(English&Spanish)• Partnerswithdifferentorganizationstoexpandpatient

outreach• Offersresourcestohelppatientsbettercontroltheirdisease

Social Media

TheNetworkusessocialmedia(FacebookandTwitter)toincreaseoutreachandengagement,informingpatients,familiesand

caregiversonthelatestasthmaandallergynews,researchstudiesandperspectives.SocialmediaalsoallowstheNetworktoreceivevaluablefeedbackonwhatpatientsandfamiliesareexperiencingastheymanagetheircondition.

In2016,theNetworkincreased>4,000Facebookfollowersand

>2000Twitterfollowers

Contact Us & Helpline

TheNetworkoffersadirectlineofcommunicationforpatientsandfamilies.Thisservicehastwocomponents:toll-freelineandonlinecontactusform.BotharemanagedbyNetworkstaffprovidinganswersandassistancetoanyonewithnonemergencyquestionsaboutasthma,allergies,COPD,anaphylaxis,medications,testsandtreatments.In2016theNetworkreceivedmorethan2,800 calls

andmorethan400 e-mails.

Outreach Activities

In2016,theNetworkparticipatedinmorethan30 outreach

activities.Examplesinclude:

•EshelmanSchoolofPharmacyruraloutreachprogram(Asthma101andeducationalmaterialsto80 families).

•WVUMedicineKid’sHealthFair(asthma101andeducationalmaterialto75families)

•PartneredwithBreatheDCtoprovidematerialfortheir2016AsthmaCampBreatheHappy(UpperMarlboro,MD).Reached60childrenfromages8to12

•MCPHSUniversityinWorcester,GirlsInc.program(AsthmaandAllergies101andeducationalmaterialsfor50 students)


•Live,Laugh,Breathe.TheAsthmaActionFair.AsthmaEducationalseminar,freespacers,peakflowmeters,giveaways,asthmascreenings,medicalprofessionalsonsite.Reachedoutto310families

•3healthfairsand2communityeventsinDenver,CO.Reached350 people

•HealthfairorganizedbytheCenterforMulticulturalWellness.Reached220patients,includingHispanic/Latinofamilies

•JeromeAlstonMemorialFoundationinNorfolkfamilyevent.Reached150families.

•Boice-WillisClinic(NC)outreachevent.Reached150families•MortonEastHighSchoolhealthfair(IL).Reached203

families•TheSeedChapterPublicSchool(WDC).Asthmaand

allergies101andeducationalmaterial.Reached80students•SupporttheNewMexicoDepartmentofHealthwith

educationalmaterialfortheircommunityhealthworkers’spilotprogramtargetingtribesandHispanic/latinocommunities.Reached155families,includingNativeAmericansandHispanics/Latinos

•Healthfairandasthmascreenings,FloridaAllergyClinic,Dr.SamiNallamshetty.Reached75families

•EmbarcaderoStreetFestival(CA)Healthfairandoutreachevent.Providedasthmascreeningsandeducationalmaterial to60 families.

•LutherMachenElementarySchool(Hampton,VA) AsthmaMonthcelebration.Asthma101,educationalmaterialto55

families.Donationof25spacersforlow-incomefamilies

“The parents and the children are so very grateful for your support. We just cannot express how wonderful it is to have a helping hand in the Allergy & Asthma Network.”

–LesiaSylcott,President,LutherW.MachenPTA

“Thank you so much for these materials. I felt that it was Christmas when the package came, I have so much excitement about sharing the information. The population of children I work with are very low income and sometimes low literacy so adapting education style to what they can relate to is necessary. The materials that you provided will go a long way and be much appreciated by the patient as well. “If you ever have extra’s please send them to me, I do not have a budget for various education materials for the families to go home with so I am always looking for things. I appreciate all of your hard work and perseverance in fighting for asthma and awareness. I can feel that this is a passion of yours just like myself, I always say my paycheck is a bonus!”

—AnnmarieThomas,RRT,AE-C, AsthmaCoordinator,EskenaziHealth,Indianapolis,IN

HealthUnlocked

TheNetworkpartneredwithHealthUnlocked,apeer-to-peersupportnetworkinwhichpatients,caregiversandhealthadvocatesconnectsafelyonlinewithguidancefromcredibleorganizationsandinstitutions.TheNetworkestablishedfouronlinecommunitiestoallowpeoplewithasthmaandallergiestoengageandsupporteachotherwhilealsolearningevidence-basedinformationabouttheirdisease.Withmorethan500patientadvocacyorganizationsonboard,HealthUnlockedisthebiggestnetworkforadvocatesintheworld.

Asthma

http://www.healthunlocked.com/USAsthma

Allergies

http://www.healthunlocked.com/USAllergies

Anaphylaxis

http://www.healthunlocked.com/USAnaphylaxis

Spanish Language

https://healthunlocked.com/red-alergia-asma

http://www.healthunlocked.com/USAsthma

http://www.healthunlocked.com/USAllergies

http://www.healthunlocked.com/USAnaphylaxis

https://healthunlocked.com/red-alergia-asma


Resources for patients

During2016,theNetwork’sonlineresourcesforpatienteducationincluded:

•FREEPrescriptionAssistanceProgram.•$0CopayforEpinephrineAuto-Injectors•Allergy-FriendlyHotelRoomsfromPURERooms•FindanAllergist:ACAAI•iPhoneAppsforAdolescentsfromtheAmerican

AcademyofPediatrics•FREEApp:AsthmaStorylines–Aself-caretoolfor

managingasthma•AllergyBedding–15%discountonAllergyGuardian

dust-miteencasings•DoctorOnDemand–freetelehealthvisitsforallergy

andasthmapatients

HEALTHCARE PROVIDERS OUTREACH

Allergy&AsthmaNetworkreachesouttohealthcareprovidersacrossthecountrytoidentifiedunmetasthmaeducationneedsfortheirpatientsandtomakeavailableeducationaltoolsandresources.In2016,theNetworkexhibitedat18 professional

meetings.Morethan7,500 resources weredistributed.

•March-AAAAIAnnualMeeting(LosAngeles,CA);NAPNAP(Atlanta,GA);APHA(Baltimore,MD)

•April-VirginiaHeadStart(Fredericksburg,VA);TexasAllergySociety(SanAntonio,TX)

•May-NationwideChildrenHospital(Columbus,OH);ATS(SanFrancisco,CA)

•June-AANP(SanAntonio,TX)•July-SpinaBifidaAssociation(Minneapolis,MN);School

BasedHealthAlliance(Arlington,VA);NationalAssociationofSchoolNurses(Indianapolis,IN);ConvenientHealthCare(Orlando,FL)

•August-AAE(Jacksonville,FL);AAPA-AAI(SanAntonio,TX)

•September-EuropeanRespiratorySociety(London,UK);EmergencyNursing(LosAngeles,CA)

•October-AARC(SanAntonio,TX);AAP(SanFrancisco,CA);CHEST(LosAngeles,CA)

•November–ACAAIAnnualScientificMeeting(SanFrancisco,CA)


2016 NATIONAL ASTHMA SUMMIT

OnNovember11,2016,Allergy&AsthmaNetworkandtheAmericanCollegeofAllergy,Asthma&Immunology(ACAAI)successfullyhostedthe2016NationalAsthmaSummit(SanFrancisco,CA).Thisone-dayeventbroughttogether100people(representativesoflocalasthmaprograms,asthmacoalitions,federalagencies)from27states.Participantsheardfromnationallyrecognizedexpertsaboutcurrenttrendsinasthmacareandadvocacyissues,andbrainstormedstrategiestoadvancetheimplementationofGuidelines-basedasthmacarethroughouttheU.S.

ThismeetingwashostedwithpartialsupportfromtheCentersforDiseaseControlandPrevention(CDC)NationalAsthmaControlProgram.

Amongthetopics:•Disparitiesinasthmacare:Whereyoulivematters•StatelegislativeandMedicaidpolicychangesaccelerate

asthmaimprovement•Albuterolforall:Advancingstockalbuterolinschools•Innovativeapproachestofundingcomprehensiveasthma

management:Leveragingtechnologyinasthmacare•School-basedasthmamanagement:Standardizedcarefor

childrenwithasthma.

PARTNERSHIPS

In2016,theNetworkpartneredwiththefollowingorganizationstoraiseawarenessandunderstandingofguideline-basedcareforpeoplewithallergies,asthmaandrelatedconditions:

•AmericanCollegeofAllergy,Asthma&Immunology(ACAAI)

•AmericanCollegeofCHESTPhysicians(CHEST)•AmericanAcademyofAllergy,Asthma&Immunology

(AAAAI)•AmericanThoracicSociety(ATS)•AmericanAcademyofPhysicianAssistantsinAllergy,

Asthma&Immunology(AAPA-AAI)•NationalAssociationofPediatricNursePractitioners

(NAPNAP)•AmericanAcademyofPediatrics(AAP)•AmericanAssociationofRespiratoryCare(AARC)•AssociationofAsthmaEducators(AAE)•NationalAssociationofSchoolNurses(NASN)•NationalEducationAssociation(NEA)•CentersforDiseaseControlandPrevention(CDC)•FoodandDrugAdministration(FDA)•EnvironmentalProtectionAgency(EPA)


PROGRAMS

Advances in Allergy & Asthma MonthlyWebinarSeries

MonthlywebinarseriesdesignedtobringthelatestGuidelines-basedinformationtoourwiderangeofstakeholders,includingphysicians,specialists,schoolnurses,respiratorytherapists,familiesandpatients.Weinvitenationallyrespectedspeakerstosharetheirexperienceandexpertiseonawiderangeofsubjects.

March–“InhalerConfusion”byDr.RandallBrown 769Registrants–113Participants–659archivedviews

April–“YellowZoneStrategies:HomeManagementofAsthmaExacerbations”byDr.ChitraDinakar 674Registrants–318Participants–170archivedviews

May–“WhyisThistheWorstSeasonEverforSeasonalAllergies?”byDr.MaeveO’Connor 438Registrants–153Participants–107archivedviews

June–“PatientCenteredCareatitsBest:SharedDecisionMaking”byTonyaWinders 332Registrants–141Participants–89archivedviews

July–“InsectStingAllergy:ToWorryorNottoWorryandWhattoDoAboutIt”–Dr.DavidB.K.Golden

458Registrants–171Participants–224archivedviews

August–“TheSeptemberAsthmaPeak:ClinicalTrendsandPracticalStrategies”byDr.BryanMartin


September–“Websidevs.BedsideManner:TelehealthforAllergies&Asthma”byDr.TaniaElliott 404Registrants–186Participants–103archivedviews

October–“LatexAllergy-AddressingBarrierstoEmergencyAnaphylaxisCare”byDr.WesSublett 168Registrants–50Participants–58archivedviews

October–“OvercomingBarriersintheRealWorld–ALookatClinicalIssues,SchoolConcernsandLivingwithLatexAllergy”byDr.SandraGawchik,Dr.PatriciaBeierwaltes&SallySchoessler,RN


November–“SevereAsthma:Evaluation,ManagementandNewAdvances”byDr.BradleyChipps 813Registrants–409Participants–86archivedviews

December–“SmokingandAsthma”byDr.MichaelBlaiss 537 Registrants–243Participants–50archivedviews

MISSION AREA:

EDUCATIONDuring2016,theEducationteamprovideddiverse,evidence-basedprogramsandresourcesusingdifferentchannelstoempowerpeoplewithallergies,asthmaandrelatedconditionstoimprovetheirhealthoutcomes.Wedothisthroughatwo-prongapproachofprovidingqualityprogrammingandmeaningfulGuidelines-basedresources.


Anaphylaxis Community Experts

TheAnaphylaxisCommunityExperts(ACE)programistheforemostcomprehensiveanaphylaxiseducationprogramintheUnitedStates.Itsgoalistosavelivesbyraisingawarenessoflife-threateningallergies,equippingpatients,parents,schoolstaff,emergencyrespondersandotherswiththeskillstorecognizeandrespondimmediatelytosymptoms.

Theprogramiscomprisedofvolunteers,includinghealthcareproviders(board-certifiedallergists,schoolnurses,pediatricians,nursepractitioners,respiratorytherapistsandasthmaeducators)andlayindividuals,suchasparents,schoolstaffandmarketingprofessionals.

ACE achievements:

372 teamsacross46 states.

Volunteersconducted13,538trainingandpresentationsduringACEworkshopsandcommunityoutreachTheNetworkdistributed22,473copiesofAllergy&

AsthmaNetwork’saward-winningandmedicallyreviewedresources3nationalpressreleases,1,134totalpickup1,512mediainterviews938,400 familiesandcommunitiesreached

SUMMIT 2016

USAnaphylaxis™ Summits

TheUSAnaphylaxisSummitsbringtogethernationallyandinternationallyknownexpertsinthefieldofallergyandanaphylaxiswithstakeholders,includingallergists,pediatricians,schoolnurses,patients,patientadvocacyorganizationsandmore.Expertspresentonhighleveltopics,whichprovidethefoundationfordiscussion.Thesummitswereheld:September23inSt.Louis,MO;September30inOrlando,FL;andOctober7inHenderson,NV.

147participantsfrom20statesandToronto,Canada,includingboard-certifiedallergistsandpediatricians;allergy-relatedpatientadvocateorganizations;schoolnurses;foodallergybloggers;supportgroupleaders;parentsoffood-allergicchildren;psychologistsandsocialworkers;asthmaeducators;nursepractitionersandschoolteachers.

Topics:

–Developanaphylaxisawarenessbestpracticestosharewitheveryoneaftertheconference

–Helpparticipantsbuildstrongerconnectionswithintheirstateorregion

–PreventiveDrugLists:CounteractingUnintentionalConsequencesofHigh–DeductibleHealthPlansAnaphylaxisLegislationandForecast

–AnaphylaxisResearchUpdate–ImplementingStrategiesforEmergencyAnaphylaxisCare–AnaphylaxisRoundtableExpertPanelonAddressing

BarrierstoEmergencyAnaphylaxisCare–ImplementingaNationalFoodAllergyManagement&

Education(FAME)Program–SchoolFoodAllergyandAnaphylaxisManagement

forthePediatrician:ExtendingtheMedicalHomewithCriticalCollaboration

–FarmtoTable:FoodandLatexAllergies

American Academy of Pediatrics Champions Program in Allergy, Asthma and Anaphylaxis

ThisprogramwasdevelopedandimplementedwiththesupportoftheAmericanAcademyofPediatrics.TheMedicalHomeChapterChampionsProgramonAsthma,AllergyandAnaphylaxisservestomeetanidentifiedneedforthedevelopmentofahigh-impact,nationalinitiativefocusedonimprovedqualitycareofpediatricpatientswithasthma,allergyand/oranaphylaxisissueswithinmedicalhomes.Thegoalistopromotethedeliveryofhigh-qualityasthma,allergyandanaphylaxiscarethroughteam-based,family-centeredcarecoordinationandco-managementamongpatientsandtheirfamilies,primarycarepediatricians,andpediatricasthmaandallergyspecialists,whileimprovinghealthoutcomesforallchildren.

Achievements:

•Increasedfrom40.2% to 78.4% useofasthmaactionplans

•Increasedfrom56.6% to 95.7%confirmationofdiagnosisusingappropriatetesting

•Increasedfrom47.4% to 88.0%appropriateepinephrineprescription

•Increasedfrom23.4% to 57.0% offoodallergy/anaphylaxisactionplans

•Increasedfrom14.3% to 53.0%self-injectableepinephrinetechnique

Also,thisprogrampresentedawebinarseriesasfollows:–FoodAllergy:Epidemiology,DiagnosisandManagement

intheMedicalHome


–YellowZonePracticeParametersforManagementofAcuteLossofAsthmaControl

–EffectiveEngagement:HowMotivationalInterviewingcanbeusedtoImproveAsthmaManagementwithPatientsandtheirFamilies

–GroundbreakingAsthmaandAllergyArticlesfrom2015:ImplicationsforCareandPracticeintheMedicalHome

–PreparingAdolescentswithAsthmaandAllergiesforTransitiontoIndependentLiving

Severe Asthma Campaign

Nationalawarenesscampaignwithamultichannelapproachbasedonprintedandonlinepublications,socialmediaandPRefforts.Goal:Provideeducationtopatients,caregivers,familiesandcommunitymembersaboutthemostcurrenttreatmentoptionsforasthma,highlightingtheimportanceofreferraltospecialiststoimprovepatientoutcomes;andincreaseawarenessandeducationonthedifferencebetweentrueimpairmentvs.perceivedimpairment,ensuringthatbothpatientsandprovidersareworkingbettertogethertoalleviatesymptomsandimprovehealthoutcomes.

Achievements:

•233 placementsresultingin739,503,464mediaimpressionsviaprint,digital,online,TV,andradio.

•5 pitcheseachmonthtoraiseawarenessofsevereasthma•18articlesinAllergy&Asthmatodaymagazineinthe

threeissuesbetweenJuly-December2016withanestimatedreadershipis2.1Mperarticleforatotalreachof>37M.

•30E-newsarticlesonasthmabetweenJuly-December2016with2,662clickthrusonthesestoriesandanestimatedreadershipof120,000perarticleforatotalreachof4.2M.

TobaccoCampaign

TheNetworksupportedtheCDCTIPSinitiativewithcampaignresourcesaimedatspreadingthemessagethatsmokingisharmfultopeoplewithasthma.

Achievements:

•2articlesone-newsletter(>18,000subscribers)•1dedicatedwebpage•1dedicatedemailblast•1webinar“SmokingandAsthma”byMichaelBlaiss,MD.•1infographic•FacebookandTwitterposts

PURE Rooms Travel Tips

Theprogramisdesignedtoprovidepatientsandprovidersaccesstotraveltipsandresourcesdesignedforallergyandasthmasufferers.

Achievements:Developedandpublishedthefollowingarticlesonwebsite:

•SpringBreakAllergyandAsthmaTravelTips•SendingKidstoCampwithAsthmaorAllergies•PortableNebulizerscanHelpMakeTravelEasier•BestTravelAppsforPeoplewithAllergiesandAsthma•ConsideringaHomestay?HereareSomeAllergy-

FriendlyTipsMoreinformation:www.allergyasthmanetwork.org/

category/travel-tips/

School Asthma Management Program

Goal:Toincreasepercentageofstudentswithasthmaactionplansandaccesstoemergencyasthmamedicationatschool,andenhanceschoolpersonnelunderstandingofNAEPPstandards.

Achievements:

•Introducestandardizedasthmaactionplanviaprofessionalmedicalsocieties(AAP,AAAAI,ACAAI,AAFP,others)andraiseawarenessviaPRcampaign.

•Craftstrategytoworkalongsidepatientandphysicianadvocatesandeducatestatelegislatorsontheneedforstockalbuterol.

–IntroductionofHR4662inMarch2016tocreateincentiveforstatestostockalbuterolandstandardizeasthmaactionplans.

–MetwithmembersoftheAllergy & Asthma

Caucus to support HR 4662(SAMPRO). –ConductedAllergy&AsthmaDayCapitolHill

visitsandbriefingonthistopicandencouragedsupportofHR4662.Reached over 200 federal

decision makersandover2Mfamilieswithkeymessagesregardingtheimportanceofasthmaactionplans.

http://www.allergyasthmanetwork.org/category/travel-tips/

http://www.allergyasthmanetwork.org/category/travel-tips/


•CrafteducationaltoolkitandonlinelearningmoduletoenhanceunderstandingofNAEPPguidelinesamongschoolpersonnel

–DevelopedSchoolNurseToolkitthatwasdisseminatedatNASNNationalmeetinginJune2016anddistributedtoallschoolnursesinAugust.Reachedmorethan16,000schoolnursesandmorethan2,000participantsthroughwebinars

–Resourcespromotedacrossmultichannelplatformandamplifiedbypartneringorganizations.

Chronic Idiopathic Urticaria (CIU) AwarenessCampaign

Ongoingcampaigndesignedtoraiseawarenessofthischallengingmedicalconditionandtohelppatientsrecognizesymptoms,knowwheretoturnforhelpandbetterunderstandtreatmentoptions.Thiscampaignincludesamultichannelapproachviasocialmedia,print,traditionalandsocialmedia.

Achievements:

•Leverageamultichannelapproachviasocialmedia,print,traditionalmediaanddigitalmediatoraiseawarenessofCIU:

–SocialMedia:2,543 clicks; 366 shares; organic

reach 83,712

–Print–AAT–2articles–reach4Mreaders –TraditionalMedia–1,275,000

–DigitalMedia–8,660,000

•ProvidesupportviaHelpLinetopatientsandcaregiversandguidethemtocredible,reliablesources.Morethan2,500

calls.•SatelliteMediaTourtodriveawareness:42,207,500reached

Patient Engagement in Asthma Research

Nationaleducationinitiativebasedonquarterlywebinars,traditionalmediaandsocialmediatoaddresscommonmythsandmisperceptionsregardingparticipationinclinicaltrials.

Activities include:

•EnhanceunderstandingoftheclinicaltrialR&Dprocess•Addresscommonmythsandmisperceptionsregarding

participationinresearch

•Increaseawarenessofclinicaltrialsamongpeoplediagnosedwithallergies,asthmaandCIU

•Launch“EverydayHeroes”campaigntorecognizecontributionofthosewhochoosetoparticipateinclinicaltrials

Achievements:

•Webinars:3,841attendees•Print:10Mreachedin4 issuesofAllergy & Asthma Today

magazine•TraditionalMedia:28placementswithover1,400,000

media impressions

•SocialMedia:136 posts; 59 shares; 52,963 organic reach

•Actualnumberofpatientsservedbytheprogram,aspartofthetotal(estimatedreachxA&Iprevalenceof20%=patientsreached):

–Webinars:3,841 attendeesx20%(prevalenceofA&I)=768

–Print:10M reached in 4issuesofAllergy & Asthma

Todaymagazinex20%=2M

–TraditionalMedia:28 placementswithover1,400,000mediaimpressionsx20%=280,000

–SocialMedia:136 posts; 59 shares;

52,963 organic reach x 20% = 10,592

AsthmaCampsAwareness

Toincreaseawarenessofasthmacampsviaamultichannelapproach(print,digital,monthlyemailblast,e-newsletter)

Achievements

•Asthma Camp Tool Kit(AlKeith’s“AsthmaBluesCDC,60-pageguidewithsectionsforsongs,lessonsandactivities,demoholdingchambersandstressballsforcampersatasthmacamp)

•66 asthmacampswithareachof3,980campers.•239 pageviewsanddownloadofthetoolkitonour

website.

GetSmartAboutAsthma

TopromoteaccesstoqualityofcareaccordingtoNAEPPguidelinesandtoincreaseawarenessofasthmacamps,itsbenefitstoimprovetheoverallwell-being,qualityoflife,schoolachievementsandlifeopportunitiesforchildrenwithasthmabyimprovingtheirskillsinasthmamanagementandcontrol.


Back to School Campaign

TodeliverGuidelines-basedresourcestothehandsofpracticingschoolnursestopromotetheuseofevidenceineverydaypractice.Pediatricpatientsaffectedwithasthmaandallergiesspendthemajorityoftheirweekdaywakinghoursatschoolandtheirchronichealthneedsmustbeaddressedintheschoolsetting.Schoolnurseshistoricallyworkwithminimalresourcesandbyprovidingthemwithup-to-date,meaningfulpostersandinformation,thechildrenandyouthacrossthecountrywillbemorelikelytonotjustsurvive,butthriveandexperiencebetterhealthoutcomes.

Achievements:

•Morethan500kitswithinformationandeducationaltoolsforasthmamanagementdeliveredtoschoolsnursesacrossthecountry.

Building Blocks for Better Breathing: A Comprehensive Approach to Promote Quality Care for Asthma According to NAEPP Guidelines

Thisisa5-yearcooperativeagreementwiththeCentersforDiseaseControlandPrevention(CDC)withthegoalofimplementingnationalcommunicationandeducationstrategiestostrengthenthedemandforGuidelines-basedasthmacareandasthma-friendlyenvironmentsintheUnitedStatesandamongchildrenwithasthma,theirparentsandcaregiversincludingtheHispanic/Latinocommunity.ThefocusisexpandingtheuseofasthmaactionplansamongtheHispaniccommunity.

InSeptember2016,weenteredY02ofthisprogramwiththegoaltoexpandournetworkofpartnersandorganizationsworkingwithHispanic/LatinofamiliestopromotetheuseofanasthmaactionplanamongSpanishspeakingparentssotheycanbettersupporttheirchildintheirnativelanguage.

EDUCATIONAL PRESENTATIONSTheNetworkpresentedat16nationalandstatewideconferencestoavarietyofaudiences:

— CentersforDiseaseControlandPrevention–EnvironmentalHazardsandHealthEffectsConference–“AsthmaandAirQuality:Clean Air @ Home, School

& Work”— NorthCarolinaAllergy&AsthmaSociety–“Effective

Patient Education”

— VirginiaHeadStart–“Creating a Culture of Health in

Partnership with Families”— PennsylvaniaAssociationofSchoolNurses&

Practitioners–“Bullying and Food Allergies – What

Can the School Nurse Do?”— KentuckyAsthmaSymposium–“Effective Patient

Education”— SchoolBasedHealthAlliance–“Shared Decision

Making in Allergy & Anaphylaxis Care”— NationalAssociationofSchoolNurses–“Asthma Care

Coordination: Developing Collaborative Care Teams”— AmericanAssociationforRespiratoryCarePulmonary

DiseaseEducatorsCourse–“Effective Patient

Education”— SoutheasternAllergySociety-“Effective Patient

Education”— AmericanAssociationforRespiratoryCare–“What

Patients Want and Need from their Asthma Provider”— AmericanAcademyofAllergy,Asthmaand

ImmunologyPracticeManagementSymposium–“Asthma Education Reimbursement”

— AssociationofAsthmaEducators–“Shared Decision

Making and Asthma Education Reimbursement

— Patient-CenteredOutcomesResearchInstitutePREPARE–“What Patients Want and Need from their

Asthma Provider”— KentuckyAsthmaCoalitions–“Taking Asthma to

School - Evidence-Based Care & Resources”

— WorldCongressforPatientAdvocacy–“Increasing

Patient Advocacy through the Use of Volunteers in a

Community-Based Program”— NewYorkStateAssociationofSchoolNurses–

“Advancing Your Practice with a Professional &

Personal Approach” and“Epinephrine Policies and

Protocols”


RESOURCES

Allergy & Asthma Today Magazine

TheNetwork’sawardwinningmagazineisdistributedquarterlytopatients,families,communityhealthworkers,decisionmakersandhealthcareprovidersacrossthecountry.Morethan500,000copiesofthemagazineweredistributedin2016,withanestimated1.2 millionreadersperissue.Ourarticlesspanthebreadthofallergyandasthmatopics.Ourcoverstoriesin2016were:

— Does Where You Live Matter? How Environment

Impacts Asthma and Allergy Health

— Making Healthcare Work for You: How to Manage

Asthma and Allergies on a Budget and Maximize Your

Resources

— Sarah Jessica Parker: How the Popular TV and Film

Actress and Producer Taught Her Son To Self-Manage

Food Allergies

— The Allergic March: Is it Possible to Prevent Allergies and

Asthma?

eNewsletter

TheNetwork’smonthlyelectronicnewsletterdeliverstomembersthelatestnews,researchandperspectivesinthefieldofasthmaandallergies.ItalsoincludesanAsktheAllergistfeature.TheformatallowstheNetworktoupdatemembersonchangingclinicalinformationandimportantissuesinthemedia.

20,000stakeholdersreachedperissuewithanopenrateofover20%.

Special Edition Magazines

UnderstandingAsthma(EnglishandSpanish)–Morethan20,000 distributed

Sections include:

–WhatisAsthma? –Diagnosis –TreatmentandMedications –ManagingYourCondition –AdditionalResources

UnderstandingAnaphylaxis(EnglishandSpanish)–Morethan40,000 distributed

Sections include:

–WhatisAnaphylaxis? –FoodAllergy –InsectVenomAllergy –Idiopathic –LatexAllergy –Medication –Exercise –Treatment –Education&Advocacy –AdditionalResources

UnderstandingAllergies(EnglishandSpanish)–More than

6,000distributedSections include:

–AllergyDefined –Symptoms&Diagnosis –Treatment&Medications –ManagingYourAllergies –AdditionalResources

Infographics

Graphicaldepictionsofimportanthealthissuesrelatedtoallergiesandasthmahaveanimpactonawarenessandeducation.TheNetworkdevelopedseveralInfographicsduring2016,includingthefollowing:

— AsthmaandSmoking— AllergicAsthmaandWhatYouCanDoAboutIt— AsthmaanEconomicBurden— OPENAsthmaSurvey


Posters

Oneofourmostuniqueandrequestedtoolsfromhealthcareprovidersforpatienteducation:

— Respiratory Inhalers at a Glance (English and

Spanish):Morethan385,000Englishversionpostersandmorethan16,000Spanishversionpostersdistributed.Updatedperiodically,providesavisualdescriptionofinhalersorganizedbycategory(short-actingbeta2-agonistbronchodilators,long-actingbeta2-agonistbronchodilators,inhaledcorticosteroids,combinationmedicationsandmuscarinicantagonist)

— Anaphylaxis at a Glance:Morethan5,000postersdistributed.Helpspatientsandparentsidentifyallergensthatcansetoffalife-threateningallergicreaction,anaphylaxissymptoms,andwhattodoincaseofanemergency.Medicallyaccurateandengaging,thiscolorfulposterisalsogreatforschoolclinicsandemergencyroomsforeasyreferenceandpatienteducation.

— Nasal Sprays: Morethan5,000postersdistributed.Side-by-sideguidetoantihistamine,anticholinergicandcorticosteroidnasalspraysforthetreatmentofallergicandnon-allergicrhinitis,includingnewnon-aqueousaerosolsandOTCcorticosteroids.Helpspatientsidentifytheirmedicationsandunderstandpriminganduseinstructions.

— RespiratoryInhalersSidebySide:Morethan20,000distributed.Offersmedicalprofessionalsfactualinformationat-a-glanceforclinicalstaffreferenceandpatienteducation,coveringactiveandinactiveingredients,ageindication,priming,shaking,cleaningandmore.

TelehealthandMobileApplications(CollaborationwithDoctorsonDemand)

In2016,theNetworkpartneredwithDoctorOnDemandtoexpandaccesstoallergyandasthmacareprovidingvideovisitswithboard-certifiedphysicians.Forpeoplewithallergiesand

asthma,thisserviceoffersimmediateaccesstoboard-certifiedallergistsviavideovisitsandotherservices,suchasallergyhomeinspectionsthathelppatientsidentifyandremoveallergensandasthmatriggersfromtheirhomes.PatientsdownloadtheDoctorOnDemandapporvisitwww.doctorondemand.com,answerquestionsaboutwhytheyareseeingadoctor,andgetconnectedforavideovisit.

Asthma Storylines App

PoweredbyHealthStorylines™,AsthmaStorylinesisaself-careappformanagingasthma.Itprovidesanaccurate,shareablerecordoftheasthmaexperiencebetweenphysicianvisits,andhelpspatientsandtheircareteamtocollaborateontreatmentstrategies.

Takecontrolofasthmawithapowerfulhealthtoolthatenablesyouto:— TRACKsymptoms,vitals,moods,anddailyasthmacontrol— RECORDquestionsyouhaveforyourhealthcareprovider— REMEMBERappointmentsandtotakemedicationson

time— JOURNALaboutasthmaandotheraspectsofdailyliving— LEARNmoreaboutyourselfasyouseeyourhealthstory

unfold— CONNECTwithyourcircleofsupport,sharewith

themyourhealthstory,andreceivemessagesofencouragementfromthem

VivacareCollaboration

Allergy&AsthmaNetworkpartneredwithVivacaretoprovidequality,Guidelines-basedresourcesinanonlineformatforhealthcareproviderstoutilizeinpatienteducation.TheAllergy&AsthmaEducationKitcontainsalibraryof75+patienteducationtitlesfromtheNetworkthatproviderscanprint,displayontheirwebsite,anddistributeviaamobileapp.Currently,morethan500practicesareutilizingthesetools.

http://www.doctorondemand.com/

http://www.allergyasthmanetwork.org/


ArticlestoNationalPublications

Wevalueourpartnershipsandprovidearticlestokeypublicationsuponrequest.Twoexamples:

USNewsandWorldReportTheNetworkprovidedamonthlycolumnforpublicationonline,authoredPurviParikh,MD.Topicsfor2016were:

SmartSinusCarePregnancyandAsthmaTop10ThingsYouNeedtoKnowAboutAsthmaSummerTravelTipsforAsthma/FoodAllergiesOlympicandNFLAthletesandAsthmaWhatShouldbeinanAsthmaActionPlanand

theSeptemberAsthmaPeakWhattoExpectonyourFirstAllergistVisitHalloweenandtheImportanceofCarrying

Epinephrinevs.BenadrylLatexAllergyWhenExpertsandPatientsComeTogether:

USAnaphylaxisSummitRecapKittensforChristmas?PetAllergy:It’sNotAbout

theFur

NASN School Nurse

EnhancingAsthmaMedicationDelivery:SpacersandValvedHoldingChambersSchoolNurseAlert:NewEpinephrineAuto-

InjectorInstructionsAsthmaandVocalChordDysfunction:CanYou

TelltheDifference?ToGiveEpinephrineorNottoGiveEpinephrine–

THATis(NoLonger)theQuestion!

Resources Targeted to Conference Attendees

In2016,theNetworkprovidedresourcestopartnersandstakeholders,including:

•AmericanCollegeofAllergy,AsthmaandImmunology:3,939 resourcepacketsdistributedwithafullcomplementofNetworkresources

•NationalAssociationofSchoolNurses: 420resourcepacketsdistributedtoschoolnurseswithtargetedresources.Includednewresourcesdevelopedforschoolnurses:Signs&SymptomsofAsthma&AnaphylaxisforSchoolStaffandCredible,TrustedResourcesforSchoolNurses

•AmericanAssociationofRespiratoryCare: 400 resourcepacketsdistributedtorespiratorytherapistswithtargetedresourcesIncludednewresourcesdevelopedforrespiratorytherapists:AsthmaEducation:AnOutlineforaModelPatientEducationProgram,ParentInformationforManagingAsthmaatDaycareorSchoolandCredible,TrustedResourcesforRespiratoryTherapists


AMPLIFY PATIENT VOICE

Allergy & Asthma Day Capitol Hill (AADCH)

AADCHisanannualeventinthemonthofMaythatbringstogetherpatientsandtheirfamiliesalongwithhealthcareprofessionals,industrypartnersandstakeholdergroupstoraiseawarenessofasthmaandallergies.AADCHgivesourattendeesachancetomeetwiththeirmembersofCongresstotakepartinfederaladvocacy–acriticalcomponentinourworktoendneedlesssufferinganddeathduetoallergiesandasthma.

AADCH2016wasagreatsuccesswithover80participantsvisitingwithmorethan100membersofCongressortheirlegislativestaff.Alsoinattendanceweresinger-songwriterNatalieGrantandherdaughterGracie–whohasasthma–andformerNFLplayerIckeyWoodswhosesonJovantediedfromasthma.OurAADCHeventalsowelcomedtheparticipationofmembersfromtheCongressionalAsthma&AllergyCaucus,aswellaskeystafffromtheU.S.DepartmentofHealthandHumanServices(HHS)andtheEnvironmentalProtectionAgency(EPA).Legislativeprioritiesfocusedtheyear’sadvocacyeffortsonaccesstohighqualityandaffordablehealthcare,safeandeffectivemedicines,mitigatingenvironmentalhealthhazards,andinnovativetherapiesandtechnologies.

POLICY AND OUTREACH

FEDERAL

TheNetworkaggressivelyworkedtoachieveitsfederaladvocacygoalsandobjectivesthroughmeetingsonCapitolHill,grassrootscampaignsvialetterwriting/emails/phonecalls,socialmediaoutreach,deliveryofcomprehensiveinformationtokeydecision-makers,andcollaborationswithotherstakeholdergroups.Duringthe114thCongress,theNetworkweighedinonlegislativemeasuresandregulatoryproposalsintheinterestofpatientsandfamilieslivingwithasthmaandallergies,including:

•MedicareTelehealthParityAct(H.R.2948)–ProvidedforanincrementalexpansionoftelehealthcoverageundertheMedicareprogramthatincludesrespiratorytherapists(RT)amongothermedicalspecialists,asqualifiedtelehealthproviders.RespiratorycareserviceswouldalsobecoveredandremotepatientmonitoringforpatientswithcertainchronicconditionsthatincludeCOPD.

MISSION AREA:

ADVOCACYAllergy&AsthmaNetworkraisespublicawarenessandeducatespolicymakersabouttheimportanceofsmartandeffectivepoliciesandprogramstoendtheneedlessdeathandsufferingofthemillionsofAmericanslivingwithasthma,allergiesandotherrelatedconditions.Togetherwithpatients,families,healthcareprofessionalsandindustrypartners,theNetworkmadesubstantialprogressin2016towardouradvocacygoalsbyamplifyingthepatientvoice,buildingcapacityandmakingconnectionsinWashington,D.C.andincommunitiesaroundthecountry.


•School-BasedAsthmaManagementProgramAct(H.R.4662)–Addedprovisionstothecriteriaforthefederalasthmagrantpreferencesuchthatstateswouldbeincentivizedtoensurethatschoolsstockasthma-relatedquick-reliefmedications,asthma-relateddevicesandeducationalmaterials;implementedanasthmaactionplanforstudentswithasthmadiagnosis;andprovidedasthmaeducationforschoolstaff.

•SchoolAsthmaManagementPlanAct(S.1065)–Helpedschoolsandfamiliesaffordthenewinhalerstheyneedbyprovidingover$100millioninfundingtoschoolsinlow-income,high-incidenceareastopurchaseinhalersandholdingchamberssochildrenwithasthmawillhaveaccesstothetreatmenttheyneed.Schoolswerealsorequiredtodevelopandimplementasthmamanagementplans.Thebillprovidedforadditionalfundingforasthmaresearchandimprovedcollaborationamongfederalagenciesforbetterasthmasurveillanceanddatacollection.

•CreatingOpportunitiesNowforNecessaryandEffectiveCareTechnologies(CONNECT)forHealthAct(H.R.4442/S.2484)–PromotedcostsavingsandqualitycareundertheMedicareprogramthroughtheuseoftelehealthandremotepatientmonitoringservices.Italsowouldallowneworiginatingsites–dialysisfacilities,telestrokeevaluationandmanagementsitesandNativeAmericanhealthservicefacilities–andpermitfurthertelehealthandremotepatientmonitoringincommunityhealthcentersandruralhealthclinics.

•FederalAviationAdministration(FAA)ReauthorizationAct(H.R.636)–TheSenateFAAReauthorizationbill,H.R.636,authorizedfundsfortheFAAthroughSeptember30,2017.ThebillincludedprovisionsdirectingtheFAAto:1)evaluatethemedicalequipmentandsuppliesrequiredonairlineflights,and2)ensurethattherequireditemsmeettheemergencymedicalneedsofchildren.TheSenatebillspecificallymentionedepinephrineauto-injectors.TheHousebill,H.R.4441,didnotincludethislanguage.

•AirlineAccesstoEmergencyEpinephrineAct(S.1972)– Requiredairlinesto1)clarifythat1:1,000epinephrineampulesincludedinemergencymedicalkitscarriedonairportareintendedtobeusedforthetreatmentofanaphylaxis;and2)carrynotfewerthan2packsofepinephrineauto-injectors(oneforindividualsweighinglessthan66poundsandoneforuseonindividualsweighingmorethan66pounds)asaninitialtreatmentforanaphylaxis.Aircarriersarealsorequiredtoprovidecrewmembertrainingbasedontheadviceofexpertsandtoknowhowtorecognizeanacuteallergicreactionandhowtoadministertheauto-injectableepinephrine.

•NursesforUnder-ResourcedSchoolsEverywhere(NURSE)Act(S.2572)-Providedgrantstoincreasethenumberofschoolnursesinpublicelementaryschoolsandsecondaryschools.

•FederalAsthmaProgramFunding.Continuedfundingforfederalprogramsthatsupportasthmaeducation,outreachandresearchattheCentersforDiseaseControlandPrevention,EnvironmentalProtectionAgencyandtheNationalInstitutesofHealth.

Whilelegislationwesupportedcontinuedtogainincreasedbipartisansupportandcommitteeengagementin2016,themeasureswerenotfinalizedpriortotheendofthe114th

Congress.However,weareoptimisticmeasureswillbereintroducedinthe115thCongress.

Inthe114thCongress,theNetworkcontinuedtobepositionedasakeyexpertonasthmaandallergyissues,resultinginmoredirectinteractionwithmembersofCongressandstaffandadvancenoticeofnewinitiatives.TheNetworkwasoftencalledupontoprovideguidancetolawmakersintheireffortstodraftlegislationandsolidifysupport.Forexample,theNetworkengagedwithCongressmanDonBeyer(VA)inhiseffortstodraftafederalpublicentitybillthatwouldauthorizethepossessionofepinephrineauto-injectorsforusebyatrainedemployee,volunteeroragentforemergencytreatmentofapersonexperiencinganaphylacticsymptoms;CongressmanGreggHarper(MS)onproposedtelehealthpoliciesforrespiratorycareservicesunderMedicare;andCongressmanEliotEngel(NY)onalegislativeproposalregardingfoodestablishmentsdisplayinginformationonthemajorfoodallergens.

REGULATORY

TheNetworkactivelyengagedonregulatorymattersatthefederallevel,including:

•WrittencommentssubmittedtotheFoodandDrugAdministration(FDA)onaproposaltobanpowderedsurgeon’sgloves,powderedpatientexaminationgloves,andabsorbablepowderforlubricatingasurgeon’sglove.


•OralcommentsdeliveredattheOfficeofManagementandBudget(OMB)onEPA’sproposedruletoimplementthegreenhousegasemissionguidelinesforexistingfossilfuel-firedelectricgeneratingunitsundertheCleanAirAct.

•OralcommentsdeliveredatFDAonproposedchangestoU.S.Pharmacopeia’s(USP)PharmaceuticalCompounding:SterilePreparationGuidelines–Chapter797.

•WrittencommentssubmittedtotheCentersforMedicare&MedicaidServices(CMS)onaproposaltoimplementanationwidedemonstrationimpactingallMedicarePartBmedicines.

•ParticipatedinthedevelopmentanddisseminationofPeanutPreventionGuidelinesincoordinationwithNIH/NIAID

Stock epinephrine laws/regulations

Sponsored by

USAnaphylaxis™

State Laws and Legislation: As of June 9, 2016

Pending stock epinephrine bills

Without stock epinephrine bills

©2016 Allergy & Asthma Network

STATES

TheNetworkadvocatedforpoliciesatthestatelevelthatsupportedindividualslivingwithallergiesandasthma.WecommunicatedNetworkpolicypositionsviaemailsandletterstostatelegislatures,andmobilizedNetworkmembersandAnaphylaxisCommunityExperts(ACE)volunteersthroughouremailedActionAlertstocontacttheirstaterepresentatives.Wealsoengagedstateandlocalentitiestoincreasetheirunderstandingofpoliciesenactedintolaw(e.g.,schoolstockepinephrineandpublicaccess)andwaystoimplementsuchpolicies.

In2016,weadvocatedforallergy-anaphylaxispoliciesinCalifornia,Illinois,NewHampshire,NewYorkandOhio,eachofwhichbecamelaw.Currently,49statesallowforstockepinephrineauto-injectorsinschoolsand30stateshavepublicentitylawsthatpermitvenues(e.g.,recreationcamps,youthsportsleagues,restaurants,amusementparks,sportsarenasanddaycarefacilities)tomaintainanepinephrineauto-injectoronsite,withtheintentionofreducingthetimeittakestogetlife-savingepinephrinetoapersonhavingasuddenanaphylacticreaction.

TheNetworkcontinuedtoadvocateforstatestoapproveschoolstockemergencysuppliesofalbuterol,themedicationinquick-reliefinhalersthattreatsasthmaflares.Therearecurrently10stateswithlawsorguidelinesthatpermitschoolstostockalbuterolwithaprescriptionandadministertoastudentbelievedtobeinrespiratorydistress.

COMMUNICATIONSNetworkstaffandmemberscarriedoutadvocacymessagesthroughcontactwithmembersofCongressandstatelegislaturesandvariousmediaoutlets.TheNetworkprovidedbothoralandwrittentestimony.

FEDERAL AND STATE

Networkmembersandvolunteersacrossthecountryconnectwiththeirfederalandstaterepresentativesonkeypolicyissues.

Forexample,priortoavoteintheHouseofRepresentativesonafundingbill(H.R.5538,fiscalyear2017InteriorandEnvironmentAppropriations)thatcontainedprovisionstoblock,weaken,anddelaycriticalcleanairprotections,NetworkmembersandvolunteerscontactedtheirHousememberstovoteNOinordertoprotectpublichealthfromairpollution.ThebilldidnotpassinitscurrentformandCongressapprovedaContinuingResolution(CR;H.R.2028)tocontinuepolicyandfundingprovisionsoffiscalyear2016AppropriationslegislationuntilApril2017.TheCRdidnotincludecontroversialriders,ormajorchangesinexistingfederalpolicy.

InthestateofLouisiana,theNetworkreachedouttoallmembersoftheHealthandWelfareCommitteeandthefullHouseofRepresentativestosupportatelemedicinepolicyproposal(HB570)thatwouldenableLouisianaresidentstosecurehigh-qualitycarethroughtheuseofmoderntechnologies.ThebillpassedtheHouseandtheSenateandwassignedintolaw(No.630)onJune17,2016.

http://www.allergyasthmanetwork.org/outreach/anaphylaxis-community-experts-aces/

http://www.allergyasthmanetwork.org/advocacy/current-issues/stock-epinephrine/

http://www.allergyasthmanetwork.org/advocacy/current-issues/stock-epinephrine-entity-laws/

http://www.allergyasthmanetwork.org/advocacy/current-issues/school-stock-albuterol-laws/


SOCIAL MEDIA

TheNetwork’sgrowingpresenceonTwitter(twitter.

com/AllergyAsthmaHQ)andFacebook(facebook.com/

AllergyAsthmaHQ)extendedourpolicyoutreach.In2016,theNetwork’ssocialmediaadvocacycampaignsincluded:

•Allergy&AsthmaDayCapitolHill2016–usedhashtag#AADCH2016onFacebookandTwittertoraiseawarenessofkeypolicypriorities,engageparticipants,andconnectwithmembersofCongress.

•ClimateChangeandtheCleanAirAct

www.facebook.com/AllergyAsthmaHQ/

posts/10154235301982419


posts/10154222860392419


posts/10154217397257419


posts/10154162670442419

PRINT MEDIA

“Stock Albuterol in Schools is Critical For Asthma

Emergencies” writtenbyDirectorofAdvocacyCharmayneAndersonabouttheneedforimmediateaccesstoemergencymedicationsinschoolsforchildrenwithasthma.(Distributedon PR Newswire, a national newswire, it was picked up by

182 media outlets for a total potential audience of 12+

million).

EVENTS

In2016,theNetworkparticipatedinthefollowingevents:

•ecoAmerica’s AmericanClimateLeadershipSummit–Collaboratedwithadiversegroupofmorethan200leadersfrombusiness,health,faith,highereducation,communities,government,culture,philanthropyandclimateonclimatesolutionsbysharinginformation,exchangingideasandbestpractices,andplanningtobuildcapacityforeffectiveaction.

•Children’sEnvironmentalHealthNetwork –

Collaboratedwithchildrenenvironmentalhealthadvocates(e.g.,nonprofit,government,industry)toraiseawarenessandunderstandingoncriticalissuesregardingchildren’shealthandtheenvironment;andmobilizeaction.

https://www.facebook.com/AllergyAsthmaHQ/posts/10154235301982419?match=Y2xpbWF0ZSBjaGFuZ2U%3D

https://www.facebook.com/AllergyAsthmaHQ/posts/10154235301982419?match=Y2xpbWF0ZSBjaGFuZ2U%3D

https://www.facebook.com/AllergyAsthmaHQ/posts/10154222860392419







•World Congress Summit on Patient Advocacy

–Presentedonpanel“IncreasingPatientAdvocacyThroughtheUseofVolunteersinACommunity-BasedProgram”toshareinformationonNetwork’sACEvolunteerprogramandadvocacyparticipation.

INTERVIEWS/TESTIMONY

•LivetelevisionbroadcastinterviewbyNetworkDirectorofAdvocacywithMoms Clean Air ForceonClimate

Change and AsthmaduringthehealthsegmentonVoice of America TV(aradioandtelevisionbroadcasterwithanestimatedglobalaudienceof236.6

millionpeople).

•TestimonybeforetheWashingtonD.C.CityCouncil’sCommitteeonHealth&HumanServicesonbillB21-883,“AccesstoTreatmentforAnaphylaxisAmendmentActof2016”.

•ResearchAmericaCongressionalBriefing,PatientVoiceinR&D

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Asthma & Allergy

Congressional Asthma & Allergy Caucus

TheCongressionalAsthma&AllergyCaucus(Caucus)isabipartisangroupintheHouseofRepresentativesthatworksinpartnershipwithpatientadvocacygroups,healthcareprofessionalsandindustrypartnerstoensurethatpubliclaws,policies,regulationsandresourcessupporttheachievementofoptimalhealthoutcomesforthemillionsofAmericanswithallergiesandlivingwithasthma.

TheNetworkencourageslawmakerstojointheCaucusandcommunicateswithourmembers/volunteersthroughemailedActionAlertsandatAADCHtourgethemtocontacttheirrepresentativestojointheCaucus.TheCaucusmembershipcontinuedtogrowin2016andbyyear’send,41lawmakers

hadjoined.TofurtherengagemembersofCongressandtheirstaffonallergyandasthmaissues,theNetworkwillpartnerwiththeCaucusin2017toconductcongressionalbriefingsandotherpublichealthevents.

Coalitions

TheNetworkactivelyparticipatedincoalitionswithstakeholdergroupsincludingtheAmerican Lung

Association(HealthyAirCampaign,AsthmaCareCoverageProject),theAmerican Telehealth Association and

ACT | The App Association(telehealthandremotepatientmonitoring),andResearch!America(medicalresearchandinnovation).TheNetworkparticipatedinregularmeetingsto

http://www.allergyasthmanetwork.org/advocacy/congressional-allergy-asthma-caucus/


discusskeyissues,sharedinformationthroughtheNetwork’ssocialmediachannels,educatedmembersofCongressandfederalagenciesonissues,andadvocatedforsoundpoliciesinCongress.

MAKE CONNECTIONSTheNetworkengagedwithnonprofit,healthcareandgovernmentalpartnerstomaximizeouroutreachandtoprotectandimprovethehealthofpeoplewithasthma,allergiesandrelatedconditions.Examplesinclude:

•ParticipatedinAmerican Association for Respiratory

CareHillDayeventstoadvocateforrespiratorycareforpatients.

•AttendedNovartis Pharmaceuticals’ “PowerofPartneringSummit”increasingtheNetwork’svisibilityandlearnedbestpracticesforpublicinterestcommunicationsandadvocacy.

•Engagedandparticipatedinadvocacyeffortswithindustrypartners–Mylan (epinephrineandanaphylaxis)andGlaxoSmithKline,AstraZenecaandTEVA(asthmaandotherchronicrespiratorydiseases).

•PartneredwithU.S. Department of Health and

Human Services’ Office of Minority Healthtoshareasthmaresourcestobroaderaudiencesandengagewithotherstakeholdersintheareaofpublichealth.

•ParticipatedinmeetingswiththeEnvironmental

Protection Agencyonchildren’senvironmentalhealthissues.

•ParticipatedinAlliance for Patient Access

Respiratory WorkgroupwhichproducedawhitepaperonAccesstoRespiratoryCareandImmunotherapy

CORPORATE COUNCIL

Since2012,Allergy&AsthmaNetworkhasinvitedindustrypartnerstobepartofitsCorporateCouncil.TheCouncilsupportstheNetwork’smissionby:

•Collaboratingwithothergroupmembersandleadersinallergyandasthmaadvocacyandpatientcaretosupportinitiativesrelatedtoeducation,advocacyandoutreachthroughouttheyear.

•Discussingthechallengesandbarriersthatpreventpatientaccesstotheservices,careandtechnologiesthatimprovetheirhealthoutcomesandqualityoflife.

•Exploringimportantpatienteducationandadvocacyissues,learningwhatalreadyisbeingdone,andconsideringopportunitiesforinitiativesandcollaborations.

•Studying,analyzingandseekingopportunitiesforeducationandadvocacyprogramsonbehalfofallergyandasthmapatients.

The2016CorporateCouncilmettodiscusstheevolvinglandscapeoftheallergyandasthmaspace.Twelveorganizationsparticipatedandtopicsdiscussedincluded:

•OnlineCommunities•LeveragingTelehealthinA&I•AccesstoTreatments•NeedtoBuildAdvocacyAmongPatients&HCP’s•“Value”Definition•UncertaintyreConsolidationinSpace•Pharma•Payers•ACO’s•OportunitiesforEducation,Advocacy,Outreachand

Research•ChallengesthatMayAffectPatients

Corporate Council


MISSION AREA:

RESEARCHTheNetworkconductsfocusgroupsandsurveyspatientsandfamilies.Armedwithdata,theNetworkservesasthevoiceofthosewithallergies,asthmaandrelatedconditions,andisabletoarticulateneedsinaninfluentialwaywithdoctors,decisionmakersandindustryprofessionals.

OPEN Asthma Survey:

TheObservationsofPatientExperienceintheNation(OPEN)AsthmaSurveywascommissionedbyAllergy&AsthmaNetworktoexplorecurrentattitudesofpatientsandhealthcareprovidersaboutasthmacontrolwiththegoalofidentifyinggapsinperceptionofthepatient’scondition.TheNetworksurveyed2,900peoplelivingwithasthmawhoweretreatedwithdailyprescriptionmedicine,aswellas850

healthcareproviderswhotreatpatientswithasthma.More:allergyasthmanetwork.org/research/open-asthma-survey.

Decision Mapping:

Since1985,Allergy&AsthmaNetworkhassurveyedcountlessindividuals,familiesandhealthcareprofessionalsaboutallergyandasthmacare–howtheymakedailydecisionsaboutalltypesofallergyandasthmarelatedconditions—andhowpoliciesbenefitorsometimescreatebarrierstocare.In2016,theNetworkworkedtoanalyzethisdata.Thegoalistopaintapictureofbeliefs,behaviorsandtrends.We’llpublishwhatwe’velearned,sharetheknowledgewithdecisionmakersandhopefullyleavetheworldbreathingaloteasierintheprocess.


FINANCIAL STANDINGAllergy&AsthmaNetworkisa501(c)(3)charitableorganization.Theorganizationconductsitsmission-drivenworkduetoindividualdonations,corporatecontributions,resourcesalesandgovernmentgrantfunds.

2016sponsorsinclude:AmericanCollegeofAllergy,AsthmaandImmunology(ACAAI),AstraZeneca,BoehringerIngelheim,BostonScientific,CentersforDiseaseControlandPrevention(CDC),CHESTFoundation,Circassia,GenentechInc.,GlaxoSmithKline,Homelab,InspiRX,LupinPharmaceuticals,Inc.,MEDA,MylanSpecialtyL.P.,Novartis,PureRoom,SanofiUS,Reid,McNally&SavageandTEVARespiratory.

LEADERSHIPAllergy&AsthmaNetworkisgovernedbyamultidisciplinaryBoardofDirectors.TheNetworkalsoreceivesguidancefromitsmedicaladvisoryboard,whoreviewsandapprovesallcontentandprovidesinsightintothelatestresearchinallergyandasthmacare.

0

0.5 million

1.0 million

1.5 million

2.0 million

2.5 million

2016 Expenses

$2.3M

Programs 74%

Administration 24%

Fundraising 2%

2016 Revenue

$2.5M


Documents

2016 Annual Report Allergy & Asthma Network...2016 AnnuAl RepoRt • Allergy & Asthma Network 3 MeMBeRship The Network has more than 2 million members, including patients, families