The Epilepsy Association 2014 Annual Report

“Beyond the Storm”

2014

Dear Friends,The Epilepsy Association embarked on an initiative a few years ago directed at the ongoing challenge of raising awareness of epilepsy—our Mural Project. The idea behind the project was to generate community dialogue about epilepsy and create a piece of art for the community at large that would provide a glimpse into the life experiences of those affected by epilepsy. In 2014, our beautiful 8’ high by 48’ wide public mural (Beyond the Storm) by artist Katherine Chilcote, was completed and hung on the exterior wall of the agency office building located on Prospect Avenue. The mural represents many voices of those in the community who came together to describe and develop images that could portray the journey of epilepsy. The imagery for the mural was crafted around the themes of healing, overcoming difficulty, and hope.

2014 concluded the agency’s 2012-14 strategic plan. We served more people and raised more funds for services but the challenge of raising awareness of epilepsy within the greater community continues for us. There was an overwhelming interest from agency staff and the Board of Trustees as we discussed our 2015–17 plans to use the mural as an important tool to help achieve this end. It is our desire to elevate the utility of the mural and use its imagery as a vehicle that combines art with education, facilitates dialogue about epilepsy and builds a greater awareness and understanding of the disorder.

2014 was also the first full year for our Kids and Family program. This service brought us back to our roots by re-establishing direct services to support parents and kids managing an epilepsy diagnosis. Our P.I.K.E.S. group, which stands for Parents Inspiring Kids with Epilepsy & Seizure Disorders, is a monthly parent support group that was established to allow parents to meet others dealing with similar issues—to share hopes, dreams and struggles and to get and give support to each other. We look forward to seeing this program grow.

The Epilepsy Association is the only community-based provider of social services for adults who have epilepsy and a mental health diagnosis nationally. In 2014 we recommitted our efforts to providing care to our adult population in need of specialized case management services. We increased the number of new clients to this service by 25% over 2013.

Raising awareness and building community is not an easy task to accomplish. Our dedicated and loyal volunteers were up to the task and through their on-going efforts to help people with seizure disorders; the Association was able to grow agency programs. We could not be where we are today without the epilepsy community assisting the agency and each other.

The Epilepsy Association was established more than 40 years ago. Throughout these years we have witnessed numerous clients and families, exhibit tremendous courage and perseverance in dealing with what epilepsy has brought to them. We look forward to more years of service in the community as our job is far from complete. Thank you for your continued support of the agency and our services. We look forward to another exciting year and we hope you will join us for the next chapter!

Regards,

Peter A. Nelson Kelley S. Needham

1Epilepsy Association Annual Report

128 Parents and Families Served

What we’ve done

2014 Highlights

341 Individuals received case management and other adult social services

3,000 social service treatment hours provided

9,566 Individuals reached through community programs and education

$435,577 Donated through private contributions, grants, and special events

94 Information and referral calls fielded

About the Epilepsy AssociationThe Association was started in the mid-1950s by parents of children with epilepsy, under the name Parents Crusade Against Epilepsy. It later became the Committee of Epilepsy of the Family Health Association. In 1972, the Committee on Epilepsy became an independent agency supported by funding from the Cuyahoga County United Way Services.

The agency is licensed by the Ohio Department of Mental Health, is a funded agency of United Way Services, and is accredited by the Commission of Accreditation of Rehabilitation Facilities (CARF). CARF is an international, independent, nonprofit accreditor of human service providers, and CARF-accredited service providers meet the highest national and international standards of quality. The agency has held this CARF distinction for 29 years.

The staff of 8 professionals, along with many volunteers, provide the numerous services of the Epilepsy Association.

Our Mission and PurposeMission: For children, adults and families in Northeast Ohio impacted by epilepsy we will raise awareness in the community, provide education, advocacy and direct services that lead to an increased understanding of the disorder and to better management of the condition, resilience, personal fulfillment, independence and the ability to contribute meaningfully to the community.

Purpose Statement: We believe education and awareness are imperative to treatment, acceptance, equitable division of resources and the inherent right of every individual impacted by epilepsy to lead a happy, healthy and productive life.

20142

The Epilepsy Association is not affiliated with any national organizations. The agency is a designated 501(c)(3) not-for-profit corporation. As a cost savings measure, the Epilepsy Association shares its office space with the Kidney Foundation of Ohio. All funds raised by the association stay here in Northeast Ohio providing service in 11 counties which include: Cuyahoga, Geauga, Lake, Lorain, and parts of Ashland, Ashtabula, Erie, Huron, Medina, Richland, and Trumbull.

3Epilepsy Association Annual Report

Agency Services Include:

Kids and Family Services

One-on-one Resources—Case Manager meets with families in their homes or in the community to assess needs of all family members and connect with community resources that support the entire family. Case Manager also provides general support, epilepsy education, and advocacy.

Epilepsy Education

• Kids on the Block puppet shows for children preschools: 4th grade

• Youth education: 4th grade–12th grade

• Be Smart Manual: An Epilepsy education manual designed for school personnel

Support Group for Parents (PIKES)—Parents Inspiring Kids with Epilepsy and Seizure Disorders- monthly support group that meets at rotating locations for parents of children with epilepsy.

Adult Social Services:

Mental Health Case Management—mental health case management for adults who have epilepsy as well as a mental health condition. Provides individualized care to best promote health and quality of life for those served.

Support Groups

• Lake West: Support group that meets monthly for adults who have epilepsy and their caregivers

• Networking Group: Group that meets twice a year to facilitate social networking connections for adults who have epilepsy

Community Service

Information and Referral—Information requests answered by a licensed social worker to promote epilepsy education, advocacy, and connections to appropriate services.

Seminar Series—The Seminar Series is a 4-part consumer-focused event that addresses issues and concerns voiced by the agency’s clients and other individuals affected by epilepsy and their families. These seminars feature presentations by neurologists on relevant epilepsy related topics.

Public Awareness & Events

• Winter Walk for Epilepsy: Our community event is held annually at the SouthPark Mall in Strongsville and gathers over 500 community members, parents of children with epilepsy, and individuals affected by epilepsy. The Winter Walk is an indoor, 2-mile Walk where participants form teams and collect pledges that support our programs and community services. Each year, the Winter Walk committee selects a featured family and highlights their story as a way to increase awareness about epilepsy throughout the community.

• Purple Day® March 26: Purple Day® is celebrated in 80 countries; the Global Epilepsy Awareness Day, or Purple Day®, focuses the world’s attention on epilepsy. We celebrate Purple Day on March 26 and raise awareness in NEO by organizing a grass-roots campaign and supporters host mini-fundraisers throughout the city with a call to action being wear purple to show support and help raise epilepsy awareness.

• eRACE 5K and 1 Mile Race & Family Fun Day: The eRACE is a family-oriented 5K and one mile run/walk to benefit the Epilepsy Association. In conjunction with the road race is our Family Fun Day. The Family Fun Day is attended by parents of children with epilepsy and adults with epilepsy and consists of family-friendly activities allowing individuals and families to come together for support, networking, and fun!

• e-racer Charity Running Team: Our e-racer Charity Running Team is a virtual competition that runners join and participate in their choice of organized road-races during our 4-month competition period. Runners dedicate their racing season to helping erase the historic stigma related to epilepsy while soliciting donations to support the Epilepsy Association. Races can be held anywhere in the world and are not limited to those in the Cleveland, Ohio area.

• Reverse Raffle: This is a casual, after-work event with the opportunity to win a main board prize and other side board prizes. This event helps raise money to fund agency programs.

• Annual Gala: This annual event is held in November as part of the National Epilepsy Awareness month. The formal evening has over 250 people in attendance and our Legacy Award is presented to recognize a person/medical professional and corporation who make outstanding contributions in the field of epilepsy.

4 2014

In June 2014, Robert Burtin received the client achievement award at the Association’s Annual Meeting. Robert came to the Epilepsy Association in January 2013 through our Information and Referral program and soon became a client in our Case Management program. Robert’s epilepsy and mental health symptoms were creating barriers and increased challenges in his life and he needed support.

Robert struggled keeping eye contact, finishing thoughts, and had significant memory difficulties. His anxiety kept him from doing daily tasks and having interactions with other people. He lost the motivation to do things that he previously loved. His symptoms were so extreme it caused him to be unable to work.

Despite all his struggles Robert continued to diligently work with his Epilepsy Association case manager and quickly began making process. He was put on appropriate medication and later was approved to return to work. Robert was able to obtain and maintain medical benefits and social security disability benefits. He has shown great strides in independence by taking control of his life despite living with epilepsy and mental health diagnosis.

Robert has blossomed in the short time he has been with the Epilepsy Association. He is an inspiration and a magnificent example of what results can come from our Case Management program.

Client Achievement Award—Robert Burtin

(l to r) Kathleen Sanniti, 2013 Board President, Robert Burtin, Kelley Needham CEO

5Epilepsy Association Annual Report

Keenan Lawrence Memorial Fund

The Epilepsy Association thanks the donors who supported this memorial fund.

Natalie Beckwith Rhonda Calloway Jonnell Carpenter Ms. Kathryn Cooper Ms. Marilyn Johns Mr. Quinton Jones

R.L. Jones Jason Koci Mr. & Mrs. Kenneth & Romena Lawrence Mr. Milton Lawrence Julliette Saunders

“We’re not sure how we will ever get over losing Keenan so early in his life to epilepsy. He worked hard, overcame so much, and showed great promise. To make sense of everything we started the Keenan Lawrence Memorial Fund to help the Epilepsy Association serve other families like ours cope with a child’s epilepsy diagnoses.”

Our Family Picture—The Lawrences

Bottom row: Kenneth and Romena LawrenceTop row left to right: Kenneth Lawrence, II and Keenan Lawrence

In Memory of Keenan Lawrence August 13, 1990—January 6, 2014

6 2014

Corporate gifts

The Epilepsy Association wishes to thank our corporate sponsors and grant makers for their gifts and event sponsorships.

$5,000 and up

University Hospitals Lundbeck LLC Daily Legal News Cyberonics Inc. Dollar Bank Baker & Hostetler, LLP Rainbow Babies & Children’s

Hospital 

$1,000 to $4,999

Our Children Making Change U.S. Bank Fairmount Santrol Huntington National Bank Forest City Enterprises AnonymousZinner & Co. LLP Technical Consumer Products, Inc. Nordson Corporation The Adcom Group CCS Medical, Inc. Skoda, Minotti & Co. Alere Health, LLC Western Reverse SystemsGrant Thornton, LLPSunovion Pharmaceuticals Inc. Aero Fluid Products UCB Inc.Hahn Loeser & Parks LLP Ulmer & Berne LLP Thacker Martinsek, LPA The Lubrizol Corporation DigiTrace a Division of

SleepMed Inc. Akron Children’s Hospital The Cleveland Browns Nurenberg Paris Heller &

McCarthy Co. LPA Studiothink Fidelity Charitable American Greetings Corporation

$999 and under

HW&Co. Kidney Foundation of Ohio Simplified Logistics, LLC Jay Auto Group Progressive Insurance FoundationAssociates in Neurology Inc. Sherwin-Williams CompanyBrownstone Day School Ancora Advisors Automobile Dealers’ Educational

AssistanceJohnson & Johnson Progressive Chevrolet CompanyRand Group, LLC The Reminger FoundationSunnyside Automotive Group Truist UPS United Way Chipotle Mexican Grill Painesville City Local Schools Hyster-Yale Materials Handling Nestle USA Case Western Reserve UniversityUnited Way of Greater Stark County Henkel Corporation The Lubrizol Foundation Northern Ohio Medical Specialists TRUIST PWC United Way of Lake County The Bay Ladies Montague Wells Fargo Community Support

Campaign 

YourCause, LLC Trustee for Price WaterhouseCoopers LLP 

Luchita’s Mexican RestaurantThe Benevity Community Impact Fund Ohio State, Cleveland HeadquartersASI International, Ltd.Ladies Auxiliary Veterans of

Foreign Wars Miller Bearing Company IncOrder of the Eastern Star West Park

Chapter #427 Frantz Ward LLP American Legion Post 91 Riverside Gables Bed & Breakfast Truist Marriott Hamlet Village in Chagrin Falls The Federal Reserve Bank of ClevelandEaton Corporation NAFSC Community

Action Team Nail World Buehler’s Food Markets Inc. St. Augustine Manor Child Enrichment

Center AT&T Foundation Employee Giving

CampaignBillow Chapter #483 Citizens Bank Foundation Woman of the Moose chapter 642 Worldcom Inc Silicon Valley Community Foundation

JCPenney Corporation Inc. Employees Engagement Fund

Donations

Thanks to Jyll Presley for the layout and design of the annual report and to Daily Legal News for its printing.

Every effort is made to ensure the accuracy of our donor listings. If a mistake has been made, please call our development office so we many correct our records.

7Epilepsy Association Annual Report

The Leo Tolstoy Society ($100 to $249)Mr. & Mrs. Mike Abbamonte Mr. Albert Adams Ms. Lilly Anitas Mr. Roger Avakian Ms. Denice R. Baldanza Mr. Ben Barnes Mr. & Mrs. James BellMark Bej, MD Mr. Brad Bellomo Mr. Brian Bellomo Mr. Domenic Bellomo Mr. & Mrs. Stephen Bergman Mr. Jerry Bird Mr. & Mrs. Marc Bloch Mr. & Mrs. Alan and Therese Blumenthal Ms. Mary Jane BordenMs. Allison Botros Christina Brown Teresa Buckley Mr. & Mrs. Ken Burns Paul Butrey Mr. & Mrs. Daniel and Tricia CallowayHarold Cash Anne Chambers Dr. & Mrs. Krishan Chandar Charlton-Shirer Family Mr. Ronald Chidsey Mr. & Mrs. Homer and Gertrude Chisholm Mr. & Mrs. Charles Ciuni Tiffany Coffman Dr. Bruce CohenDr. Marcia ColumbroAmy Dan Mr. & Mrs. John F. Day Mr. & Mrs. Brad Demsey Mr. & Mrs. Zvonko Devcic Mr. Rolland Dillon Ms. Carrie Domonkos Ms. Ann S. Dowdell Cheryl Drake Mr. Brian Durdle Jonathan Elsner Ms. Kathy Fenix Ms. Ashley Fisher V. Foster

Brian Gardener Laurie Gentz Lori Geyer Mr. & Mrs. Paul Giammarco M. Colette Gibbons Mr. & Mrs. Jeremy and Aimee GilmanMr. & Mrs. Paul Glammarco Mark Hamm Dan Harb Mr. & Mrs. Jeffery Hastings Ms. Katie Hastings Frank and Jean Hejl Mr. Michael Hennenberg, EsqMr. & Mrs. Richard Herrin Susan Hirz Ms. Judith Horn Joseph Horvath Mr. Steve Hronek Kelly Hudson Mrs. Helen Ingram Suzanne Jambe Mr. Bryan & Jeanne James Ms. Carol Johnson Mr. & Mrs. Tj Johnson Rachel Kabb-Effron Mr. & Mrs. Lucien Karlovec Ms. June Kasidonis Ms. Erica Kathryn Roland Kato Ms. Fran Kaufman Greg and Nancy Castrigano Mr. & Mrs. Robert Klaus Mrs. Christine Kloss Jack Kluznik Richard Koblentz James and Abby Koehler Ms. Mindy Kosmin Nancy Kosmin Mr. Steven Kost Mr. Gerrit C. Kuechle Connie Kupferschmidt George Landon Mr. Bruce Lang Mr. Angelo Laperna Mr. & Mrs. Kenneth & Romena Lawrence Mike Lee Natalie Lichtman Dana Lusardo

Diane Mackin Mr. Kevin & Becky Mackrell Ms. Barbara Madigan Ms. Lisa Mamone Julie Mangini David Marino Diana Marsich Ms. Kathryn Martin Ms. Lindsay Massau Debra McClave Ms. Vera McGlone Ms. Mary McPolin Grandma and Papa MeyersMr. Kenneth Moore Joan Mullen Ms. Beth Ann Myers Ms. Jessica Myers Hal Nathan Ms. Karen Nelsen Wooster Noon Lions Club Dr. Chinasa NwankwoGerald Oflanagan Ms. Nikki Pankow Trudy and Patrick Pauken Mr. Jeremy Peyton Mr. Jason PriceMr. Joe Puchan Devon and Mark Racz Mr. Mark Rasnick Mr. David Roche Mr. John Rogers, ESQ Mr. Ed Rogowski Gary Roll Mr. Jeff Rosengard Ms. Cortney Ruggeri Kathleen Ryan Dr. Amila SahramDr. Martha SajatovicMs. Allegra Sanders Mr. Craig Sanders Charlie and Cathy Savage Ms. Ruth Scholtz Mr. Jason Schreck Keli Schubert Mr. Robert SeeMs. Andrea Segedi Stewart J. Sharpe

Donors

The Epilepsy Association wishes to thank all the individuals who supported the agency during 2014. The Epilepsy Association named the giving levels listed below after writers, artists and composers who had epilepsy.

7Every effort is made to ensure the accuracy of our donor listings. If a mistake has been made, please call our development office so we many correct our records.

Donors

The Epilepsy Association wishes to thank all the individuals who supported the agency during 2014. The Epilepsy Association named the giving levels listed below after writers, artists and composers who had epilepsy.

The Leo Tolstoy Society ($100 to $249) continuedMr. James Shaw Mary Shaw Ms. Stefanie SheinMr. Robert Slepecky Jr. Gloria Smith Mr. Jamey Snodgrass Mr. Rick Sobotka Ronald Solt Chris Spirnak Mary Stergiou Mr. David J. Strauss Ms. Michelle Sweetland Mr. Jopseph Thacker Mr. Dennis Thatcher Mr. & Mrs. Joseph H. ThomasSteve Thornton Tom Tucker Heineken USAJason Veloso Mr. & Mrs. Robert Vilcheck Mr. Samuel Webb Marilyn Wesel Diane Wilcox Mr. Michael Wilemaitis Dr. Elaine Wyllie Mr. Gerald Zahler Mr. Matthew Zajac Mr. Adam Zuccaro

The Lord Byron Society ($250 to $499)Mr. & Mrs. Paul Apostle Mr. Anthony BiasiottaMr. Michael BlakeMs. Roberta E. Brown Mr. & Mrs. Darren Clemente Frank Costanzo Mr. Thomas Delaney Timothy Eippert Mr. Evan Fineberg Jill Fitch Ms. Loretta Flynn Mr. & Mrs. Jerry Frebes Dale and Hollis Friedland

Kevin and Pamela Steurer Mr. & Mrs. Jerry and Laurie Gentz Ms. Amy Georgalis Ms. Cheryl Diane Gregerson Mr. Zachary GuzyMr. & Mrs. Tom Johnson Mr. Michael Keiper Lynn Kennedy Ms. Susan KrantzMr. Timothy Lahey Ms. Lucinda Lavelli Bill Leahy Mr. & Mrs. William Leahy Ms. Christine LobasMr. & Mrs. Ben and Courtney MaibachMr. & Mrs. John Metzger Mr. Sam Misseri Mr. Kevin Moore Ms. Stephanie Moore Mr. James Negrelli Mr. & Mrs. William RoddyMrs. Catherine RuttiChris Samstag Mrs. Paula M. Sauer Ms. Justina Saxby Ms. Lisa SchechterMr. & Mrs. Gerald and Suzanne Schroer Mr. Mike Shay Dr. Ingrid TuxhornMr. & Mrs. Michael Voll Mr. Richard Walinski Mrs. April WalshMs. Heather Zachariah

The George Frederick Handel Society ($500 to $999)Ms. Jennifer Baus Mr. & Mrs. Richard Beyer Mr. & Mrs. Charlie and Grosvie CooleyMr. Larry Friedman Mr. Neil Gurney Mr. Ray Haseley Mr. Alan Hirth Mr. & Mrs. Mark Holcomb Ms. Elaine Hutchins Baker Hostetler Mike and Robin Kane Family

Mr. Brandon Kapan Ms. Stephanie Kapcio Mr. Eric KennedyMr. Robert Landon Dr. Jonathan Miller Mr. Vincent Mottolo Mr. & Mrs. Michael F. Needham Mr. Peter NelsonMr. & Mrs. Gene Novak Robert Palame Mr. & Mrs. Ryan Routh Mr. James Smith Dr. Norman SoMr. & Mrs. James D. WilsonMr. & Mrs. Zeeland

The Charles Dickens Society ($1,000 and above)Mr. & Mrs. Harold Babbit Mr. & Mrs Richard Bass Mr. Michael Battaglia Mr. & Mrs. James R. Bavis Ms. Jennifer Carlile Mr. & Mrs. Gerald Chalfin Mr. & Mrs. Lee and Tuni Chilcote Mr. Chad DaviesDr. & Mrs. Michael DevereauxMr. Alan Gendler Ms. Debra Horn Karen Ben and Johnson FamilyMr. & Mrs. Jeffrey KarlovecMs. Amy KelloggMrs. Joy W. Lavelli Mr. & Mrs. Rob & Holley Martens Mrs. Cynthia McHughMr. E. Sean MedinaMr. Mark NussMr. & Mrs. Dave and Karen PerkowskiMr. Philip Richter Ms. Marquettes RobinsonDr. Robert E. RzewnickiMr. & Mrs. Daniel Schmidt Dr. & Mrs. J. Patrick Spirnak Dr. Susan StagnoMs. Rosemarly Zang

8 2014Every effort is made to ensure the accuracy of our donor listings. If a mistake has been made, please call our development office so we many correct our records.

9Epilepsy Association Annual Report

Foundation Gifts

Dollar Bank Foundation

Grant support for the President’s Luncheon: A donor cultivation event

William J. & Dorothy K. O'Neill Foundation

Grant support for the “Kids and Family Program”

Ridgecliff Foundation

Grant support for the “Proactive Skill-Building Program”

Ronald McDonald House Charities of NE Ohio

Grant support for “Youth Epilepsy Education”

U.S. Bank Foundation

Grant support for Economic Opportunity, employment, and training

United Black Fund of Greater Cleveland

Grant support for the “Proactive Skill-Building Program”

Matching Gifts

Citizens Bank Foundation

Dollar Bank Foundation

GE Foundation

Hyster-Yale Materials Handling

Johnson & Johnson

KeyBank Foundation

Nestle USA

The Progressive Insurance Foundation

Sherwin-Williams Company

Donations

10 2014

Contributions through United Way of Greater Cleveland

The Epilepsy Association thanks all the generous contributors who designated their gift through the United Way Campaign.

Barbara AllianceRobert AntonelliCharlotte BaselEva BasquezMichael BertschMargaret BewieAnthony BiasiottaKatie BlumeThomas BoltjaSharon BradleyGenesis BrownPatricia ChevroletLaura ConwayStephen CoolbaughDeac DeCampMark DevcicMary DyczekDaniel EnovitchRita Enovitch

Gordon EtchisonRobert FeltyCarolyn FenderBruce FerraroJoel ForquerJohanna. FrebesIrene FryeWanda GoodAnthony GriffinMegan GrodekSharron GustavsonJohn HaightMartin HausermanMary HavanasBrian HirkoKristy HogueBrenda HouryGregory JelinekAnna Johnson

Jeffrey JonesAmy KelloggBrian KimballMark KnappPamela LangCynthia LehmanLaura LennerthHolly LewisHans LudersRonald MaichleBryan MaikutThomas MaioloKimberly McGrealDiana MeaneyJohn MetzgerMelissa MolinaJeanmarie MooreKelley NeedhamLaura NelsonPeter NelsonMirjana NovakovicTiffany PerryJim PetsockChristine PfeiferLorie PorcherWilliam PordanLuz ReyesJodi RichMarquettes RobinsonJeffrey Rosengard

Catherine RuttiLaura SamsaKathleen SannitiColleen SaunierPeter SchmeidaGayle SchmuhlAndrea SegediDeanne SikoraEleeshia SimmonsMichael SlamaSusan StagnoJulie StaveskiConnie TaylorSharon UngarAlicia VandenkPamela WallApril WalshLinda WareTracey WhiteRussell WilliamsNicole WinkelmanLacey Wood

Listing supplied from United Way of Greater Cleveland. If you name is not listed, please call our development office at 216.579.1330.

11Epilepsy Association Annual Report

2014 Board of TrusteesPeter Nelson, PresidentJeffrey B. Karlovec, Vice PresidentJames J. Smith, TreasurerDebra J. Horn, SecretaryKathleen J. Sanniti, President,

Immediate Past President**

Rabon Allen Richard BassMark Bej, MDAnthony D. BiasiottaMichael BlakeJennifer CarlileChad DaviesZachary A. GuzyRay HaseleyLara Jehi, MD

Karen P. JohnsonRobin J. KaneAmy E. KelloggSusan D. KrantzValentino Lassiter, DDivChristine A. LobasBill MartinE. Sean MedinaCynthia McHughJonathan P. Miller, MD

2014 Professional Advisory BoardNorman So, MD Co-ChairSusan Stagno, MD Co-ChairPeter Bambakidis, MDMarcia Columbro, MDMichael Devereaux, MD

Thomas Enlow, MDNancy Foldvary-Schaefer, DOAjay Gupta, MDPrakash Kotagal, MDPamela A. Lang, MS, RN

Kim Merner, MSNImad M. Najm, MDMark S. Scher, MDTanvir U. Syed, MDIngrid Tuxhorn, MD

Our Supporters

2014 Officers:(l to r) Jeffrey Karlovec, Vice President, Debra Horn, Secretary; Peter Nelson, President; James Smith, Treasurer

Maureen M. MorrealeJason PriceMark NussMarquettes D. RobinsonWilliam P. RoddyNorman So, MDSusan Stagno, MD Catherine Rutti*Mark S. Scher, MD*April Kingsbury Walsh*

*indicates term ending in 2014

2014 Staff Listing Kelley S. Needham—CEOLacey Wood—Director of Community ProgrammingColleen Saunier—Director of Special EventsAndrea Segedi—Director of Special Gifts and ITAnthony Griffin—Lead CPST WorkerLinda Ware—CPST WorkerNicole Richter—CPST WorkerN. Susan Wertenberger—Administrative Assistant

PartnershipsADAMHS Board of Cuyahoga CountyUnited Way of Greater ClevelandCARF-AccreditedLicensed by the Ohio Department of Mental Health

and Addiction Services

12 2014

Support and Revenue: 2014 Audited 2013 Audited

Contributions $157,956 $196,687 Program services fees $236,875 $228,459 Special events $277,621 $225,779 Less: Direct benefit to donor ($69,252) ($69,256) Net gain on investments $35,811 $96,034 Miscellaneous $1,851 $2,646 Total Support and Revenue $640,862 $680,349 Expenses: Program services Community services $57,512 $55,322 Patient services $402,569 $387,227 Public health education $115,019 $110,635 Bad debts $32,503 $13,155 $607,603 $566,339 Supporting services Management and General $26,477 $25,466 Fundraising $64,818 $62,349 Total Support Service $91,295 $87,815 Total Expenses $698,898 $654,154 Change in net Assets ($58,036 ) $26,195Net Assets—Beginning of Year $969,397 $943,202 Net Assets—End of Year $911,361 $969,397

2014 Use of Funds 2014 Revenue Sources

Financials

2014 independent audit performed by Howard Wershbale & Co.

60%17%

9%

14%Patient ServicesEpilepsy Awareness EducationIndividual and Family SupportSupporting Services

37%

25%

33%

5% Program Service FeesContributionsSpecial EventsInvestment Income and Miscellaneous

13Epilepsy Association Annual Report

A community art project to build a common dialogue of hope and healing. This Project allowed us to tell our story, generate awareness, secure resources and revitalize a neighborhood. The mural is located at the Epilepsy Association Office at 2831 Prospect Avenue, Cleveland, Ohio 44115.

The following individuals/foundations contributed to the Project and we are so very grateful for their support.

The Char and Chuck Fowler Family FoundationAmy E. KelloggFrank H. Porter Jr.J. Patrick and Diane SpirnakTuni and Lee Chilcote

Kathy and James Pender Reginald and Lynn ShiverickMedical MutualKitt and Mark HolcombPaula Sauer

The Epilepsy Association Mural Project“Beyond the Storm”

by artist Katherine Chilcote

Supported by:

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The Epilepsy Association

2831 Prospect Ave. Cleveland, Ohio 44115(216) 579-1330 www.epilepsyinfo.org