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1998: 3 counties 2013: 55 counties

1998: 3 counties 2013: 55 counties. Once upon a time…

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Page 1: 1998: 3 counties 2013: 55 counties. Once upon a time…

1998: 3 counties

2013: 55 counties

Page 2: 1998: 3 counties 2013: 55 counties. Once upon a time…

Once upon a time…

Page 3: 1998: 3 counties 2013: 55 counties. Once upon a time…

W.A.Neal, MD

…there was a famous pediatric cardiologist. He saved and improved the quality of the lives of hundreds of sick children.

Page 4: 1998: 3 counties 2013: 55 counties. Once upon a time…

He was very happy about this.

Page 5: 1998: 3 counties 2013: 55 counties. Once upon a time…

But he knew there was more.

In 1995, the WV age adjusted death rate from heart disease was 21% higher than the national average.

Page 6: 1998: 3 counties 2013: 55 counties. Once upon a time…

Something had to be done. But the grown-ups just didn’t seem to be getting it.

Page 7: 1998: 3 counties 2013: 55 counties. Once upon a time…

Now, this was not just your average “run of the mill” famous pediatric cardiologist. He was a deep thinker!

Hold that thought.

Page 8: 1998: 3 counties 2013: 55 counties. Once upon a time…
Page 9: 1998: 3 counties 2013: 55 counties. Once upon a time…

The postman delivered letters that invited lots of people (including the famous pediatric cardiologist and a cranky nurse) to a meeting.

Page 10: 1998: 3 counties 2013: 55 counties. Once upon a time…

And lots of people went to the meeting to do good work.

Page 11: 1998: 3 counties 2013: 55 counties. Once upon a time…

And everyone listened carefully to all the speeches.

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Page 12: 1998: 3 counties 2013: 55 counties. Once upon a time…

Then everyone at the meeting got a special assignment to a

special focus group.

And the famous pediatric cardiologist with the bright idea was assigned to the same focus group as the cranky nurse.

Page 13: 1998: 3 counties 2013: 55 counties. Once upon a time…

…blah blah…if the school nurses had the money…blah

blah…reports

The cranky nurse didn’t like focus groups with all talk and no action and said so as she introduced herself to the group.

Page 14: 1998: 3 counties 2013: 55 counties. Once upon a time…

My name is Valerie Minor and I am from Alderson-Broaddus College, Department of Nursing and also Field Faculty for the WV Rural Health Education Partnerships…

Page 15: 1998: 3 counties 2013: 55 counties. Once upon a time…

• In 1991, Governor Gaston Caperton called a special session of the Legislature

• Passed the Rural Health Initiative (RHI) Act

• Main purpose: Increase retention of state trained health professionals

• In 1991 WV received a W. K. Kellogg grant

• Main purpose: Provide rural community-based academic training sites for health professionals

• In 1995 Kellogg and RHI are joined and form the West Virginia Rural Health Education Partnerships.

Page 16: 1998: 3 counties 2013: 55 counties. Once upon a time…
Page 17: 1998: 3 counties 2013: 55 counties. Once upon a time…

The land of dead-end reports

The famous pediatric cardiologist agreed. He decided to introduce himself to the cranky nurse.

Page 18: 1998: 3 counties 2013: 55 counties. Once upon a time…

W.Neal, MD

So over lunch at the meeting, the famous pediatric cardiologist talked to the cranky nurse. He told her about his bright idea and about 2 dyn-o-mite resources...

Page 19: 1998: 3 counties 2013: 55 counties. Once upon a time…

The Bright Idea• Prevention! Identify kids at risk for cardiovascular

disease.

• Go to the schools and offer free screenings. – Blood pressure– Finger-stick for cholesterol (evolved to FLP)– BMI– Eventually “neck check” for acanthoisis nigricans

• Get those at risk into appropriate treatment.

Reverse Universal Screening

Page 20: 1998: 3 counties 2013: 55 counties. Once upon a time…

West Virginia Rural Health Education Partnerships

An infrastructure found only in West Virginia!

And you will do community service

projects…

Page 21: 1998: 3 counties 2013: 55 counties. Once upon a time…

WVU SOM Department of Pediatric Cardiology

Page 22: 1998: 3 counties 2013: 55 counties. Once upon a time…

Many Moving Parts

• WVU Institutional Review Board

• RHEP

• School Superintendents

• School Nurses

• Funding

Page 23: 1998: 3 counties 2013: 55 counties. Once upon a time…

CDC

Benedum Foundation

Departm

ent o

f

Pedia

trics

Foundatio

n

Compton Nutrition Chair

American Heart

Association

Private

contributions

PROBLEM: SUSTAINBILITY

Page 24: 1998: 3 counties 2013: 55 counties. Once upon a time…

WE CARDIAC

Chair, Senate Committee on Health and Human Resources

Fall 2000

Page 25: 1998: 3 counties 2013: 55 counties. Once upon a time…

And the famous pediatric cardiologist said, “This is good.”

W. Neal, MD

Page 26: 1998: 3 counties 2013: 55 counties. Once upon a time…

Major Change: Demise of RHEP2011-2012 School Year

Page 27: 1998: 3 counties 2013: 55 counties. Once upon a time…

No worries. We’ll just will reconfigure .

W. Neal, MD

Page 28: 1998: 3 counties 2013: 55 counties. Once upon a time…

Based at WVU SOM

• Many of the same people– Site Coordinators became Area Coordinators

• Able to focus on CARDIAC alone– More involvement in intervention

• Remains community-based

Page 29: 1998: 3 counties 2013: 55 counties. Once upon a time…

PRESTON

MONONGALIA

ROANE

CALHOUNGILMER

WEBSTER

BRAXTON

NICHOLAS

CLAY

Kathryn Greenlief - [email protected]

16+

DODDRIDGE

WETZEL

MARSHALL

OHIO

BROOKE

HANCOCK

TYLER

PLEASANTS

RITCHIE

WIRT

Dalena Riggs - [email protected]

TUCKER

GRANT

MINERALHAMPSHIRE

MORGAN

BERKELEY

JEFFERSON

HARDY

PENDLETON

Robin VanFleet - [email protected]

FAYETTE

RALEIGH

KANAWHA

Tammy Pyle-Vicars - [email protected]

WOOD

JACKSON

PUTNAM

MASON

CABELL

WAYNE LINCOLN

Tina Whitt - [email protected]

GREENBRIER

Nahied Haidar - [email protected]

MARION

TAYLOR

BARBOUR

Valerie Minor - [email protected]

CARDIAC 2012

LEWIS

UPSHURRANDOLPH

POCAHONTAS

Rhonda Carpenter - [email protected]

HARRISON

CARDIAC WEST – Tammy

CARDIAC EAST – Kathryn

SUMMERS MONROE

MCDOWELL

WYOMING

MINGO

LOGAN

BOONE

Janetta Massie - [email protected]

MERCER

declined

Page 30: 1998: 3 counties 2013: 55 counties. Once upon a time…

So far, so good!

• 15 years of Surveillance, Research and Intervention

And certainly not the end…