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Early Contact with Parents:A Resource Kit for Parents and
Professionals
Janet Gilbert, Ed.D. Mary Ann Lyon, MA, CCC/ASusan Swartz, MA, CCC/SLP
EHDI National Conference Salt Lake City 2007
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Who are we?
Oakland Schools Intermediate Service District (ISD) was established in Michigan in 1962. It is a regional service agency offering support services to school personnel that are best delivered regionally, as measured by cost, size and quality advantages.
Oakland Schools is an autonomous, tax-supported public school district governed by Michigan General School Laws.
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What do we do?
Align activities with the Michigan School Improvement Framework
Leadership regarding best practice Encourage and facilitate
school/community relation Support school personnel and families
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How do we do it? Awareness….
Collaboration….
Technology….
Support
for families and professionals of children who are Deaf/Hard of Hearing
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What’s this kit all about?
A learning opportunity for families and the community to access information efficiently and in the comfort of their own surroundings
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What we believe…
People have limited time and want to access information on their own
Information needs to be both general and specific
Target the needs of the community
Value diversity of thought
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We started assessing our needs….
824%
11%
8%
7%
4%
2%
2%4%
38% LD
Speech
CI
EI
OHI
Autism
ECDD
PI
Low I nc
Identification Rates By Disability 2005
December 1, 2005/MICIS
The state of Michigan provides special education services to children ages Birth to 26
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Oakland County Demographics
Total students 230,000
Total Special Ed. students 25,335
Deaf/H of H (K-12) 383
Deaf/H of H (3-5 yrs.) 25
Deaf/H of H (birth-3) 21
Special education count, 2006
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Oakland County Demographics (cont.)
14,623 births
100% participation by hospitals in UNHS (state) 14 diagnosed with hearing loss 7 undetermined
Five county area 6 diagnostic centers (birth-6 months) 28 diagnostic / follow-up centers (6 months-5
yrs.)EHDI Program, 2005 statistics
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Ethnicity 83% White10% African-American
7% Other
Languages more than 100 spoken; 13% of homes have a language other than
English
Median Household
Incomerange: $31,200 to
$104,000
Oakland County Population : 1.2 million
U.S. Census Bureau, 2004
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What did we find out as we started peeling the onion?
Educational services are available for babies and a referral process is in place
Level of awareness of information about hearing loss was variable
Understanding about parents’ feelings was variable
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What did we do next?
Parent information through interview
Systems review of referral process
Review of available materials
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We listened to, and valued, our comments from families…..
“I just need some basic information…”
“Too much information too soon”
“The process is so different from one parent to the next”
“An unbiased list of resources and where to get them”
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Systems review of the referral process
Stakeholder Meetings
Quickstart Referral Guide Best Practice Guidelines Service Delivery
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Reviewed available materials
A lot out there but it didn’t meet our needs Hearing loss Sensitivity Ease of distribution Specific to our county Cost
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What issues did we decide to target?
Level of awareness of information about hearing loss
Referral from diagnosis to intervention
Delivery of information about hearing loss in a sensitive way
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A Resource Kit for Parents and Professionals
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Components of the kit
Hearing Loss: Delivering the Diagnosis in a Helpful Way
Quick Start Guide
Introduction to Hearing Loss
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Development of the DVD
Access to facilities, technology and personnel to develop and produce
Time
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Development of the Guide
Levels of involvement Selection of stakeholders Scheduled meetings Facilitation of meetings Production and resources
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The video selection
Review videos
Video selection Sensitivity Diversity Cost Ease of access in attaining
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www.med.umich.edu/childhearinginfo/
Video - Introduction to Hearing Loss
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CD - Infant Hearing Guide
National Center for Hearing Assessment
& Management (NCHAM) Utah State University2880 Old Main HillLogan UT 84322-2880 (attn: Kim Palmer)
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DVD - Hearing Loss- Delivering the Diagnosis in a
Helpful Way
Oakland Schools2111 Pontiac Lake RoadWaterford, MI 48328 (attn: Mary Ann Lyon)
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Factors in Distribution
Maximize effect Parents
Physicians - awareness of hearing loss and family feelings, and to explain the referral process in Oakland County
Educators and Community Partners Awareness of hearing loss and family feelings What families would be receiving from
diagnostic centers
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Challenges Funding Administrative support Appropriate materials Time Stakeholder selection and commitment Diversity of perspective Development of group processes Setting timelines and developing a
product Distribution
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Final Thoughts
To develop a resource kit tailored to your needs ... Needs assessment including
resources
Develop or purchase materials
Distribution plan
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“Thus, the source of change and growth for an organization or an individual is to…..”
Margaret J. Wheatley and Myron-Kellner Rogers,
A Simpler Way, 1996
