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Faith in Action Workbook: Advocating
with People of All Abilities
Laura Lee WrightDirector of Christian Partnerships
Bethesda Ministries
Who am I?
follower of Jesus
have a disability
have worked in the field of disability the last 30 years, the last 15 years in Faith and Disability
on staff of a mega-church
Ministry Consultant for Bethesda Ministries
Director of Ministry Partnerships, Bethesda Ministries
Where are We Going?
History
ARC/AAIDD Statement of Faith
CQL
Models of Spiritual Assessment
My Faith in Action Workbook
History
Bethesda has invested in the spiritual well-being of people supported since it’s inception.
We have not always gotten it right.
Spiritual background information has historically been collected but not always utilized.
Human and Civil Rights training has been minimal.
ARC/AAIDD Statement of Faith
People with intellectual and/or developmental disabilities have the right to choose their own expressions of spirituality, to practice those
beliefs and expressions and to participate in the faith community of their choice or other spiritual activities. They also have a right to choose not to participate in religious or spiritual activity.
ARC/AAIDD Statements on Faith Supports
Spirituality, spiritual growth and religious expression that respect a person’s history, tradition and current preferences are rights that must be honored by service systems and faith-based communities, as should the choice not to participate.
ARC/AAIDD Statements on Faith Supports
Spirituality is an important part of the
human experience that may be expressed both
through religious practice and through
other spiritual activities which carry personal
meaning and reflect the person’s values.
ARC/AAIDD Statements on Faith Supports
Supports and accommodations, such as transportation and easy-to-read materials, must be provided as needed to facilitate the individual’s full participation in spiritual or religious activities of her/his choice.
Supports and programs should be age-appropriate and inclusive.
ARC/AAIDD Statements on Faith Supports
Faith communities should be encouraged to build their capacity to support and welcome individuals with intellectual and/or developmental disabilities and their families, and should be assisted in such efforts.
ARC/AAIDD Statements on Faith Supports
Self-advocates, families, advocacy organizations, service providers, and faith communities should work together to develop training and other resources on the inclusion and support of people with intellectual and/or developmental disabilities and their families.
ARC/AAIDD Statements on Faith Supports
People with intellectual and/or developmental disabilities bring their own unique spiritual gifts and benefits to spiritual and religious communities, just as people without disabilities do.
Council on Quality Leadership(CQL)
CQL is dedicated to the definition, measurement and
improvement of personal quality of life for people
receiving human services and supports.
Personal Outcome Measures
Personal -- One’s own view of life
Outcomes -- Define what is important to the person
Measures -- Determine if people are receiving what is important to them
Three Key Factors
Myself My World My Dreams
21 OutcomesBethesda has a 22nd outcome
People choose & express their religious and spiritual beliefs
Bethesda’s Perspective on Faith
As a faith-based organization, Bethesda follows the teachings of Lutheran theology. Christianity is its cornerstone.
However, as advocates for equality and inclusion, Bethesda believes people have the right to follow their own spiritual journey and pursue their own personal beliefs.
A variety of faith-based activities are offered in our programs; people choose if they wish to participate.
Models for Spiritual Assessment
FICA
Faith, Influence, Community, Address
HOPEH meaning comfort, peace, comfort
Organized Religion
Personal Practice and Spirituality
Effects on the type of Care
Models for Spiritual Assessment
7 X7 Model for Spiritual Care (holistic approach) Belief and meaning Vocation and consequences Experiences and emotions Courage and growth Ritual and practice Community Authority and guidance
My Faith in Action Workbook
The workbook is in early stages of implementation
A tool created to assist people with disabilities to advocate for their own spiritual needs and wants.
Assists with the spiritual outcomes/goals, Individual Support Plan
Interactive and adaptable --- someone interviews, one writes for themselves or a combination can occur
Person supported keeps the book in their own personal possession.
Questions and Discussion
Contact Information
Laura Lee Wright
321-274-5262
References
http://aaidd.org/news-policy/policy/position-statements/spirituality#.VWKEMtJ0xy0
http://www.c-q-l.org/
http://www.professionalchaplains.org/files/publications/chaplaincy_today_online/volume_28_number_1/28_1laroccapitts.pdf
http://www.rushu.rush.edu/servlet/Satellite?blobcol=urlfile&blobheader=application%2Fpdf&blobkey=id&blobnocache=true&blobtable=document&blobwhere=1144357138306&ssbinary=true
