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Action for M.E.Welfare Reform
Consultation Survey
October 2008
Welfare Reform
Do you think the Work Capability Assessment will accurately identify which people with M.E. should go in the Support Group and which
should go into the Work Related Activity Group?
YesNoNot sure
Total Responses: 899
Do you agree that the new Work Capability Assessment will make it easier for the Department for Work and Pensions to assess accurately
the functional ability of people with different levels of M.E. to work?
YesNoNot sure
Total Responses: 887
In the past three years, have you taken part in a benefits assessment?
YesNoNot sure
Total Responses: 890
If yes, have you experienced any of the following during a capability assessment?
Total Responses: 424
An inappropriate assessment environment
Recognition of need for time to recover
Suitable guidance for assessors
Appropriate tests for functionality
Assumption of capability of work
Evidence from own GP
Assumption of not wanting to work
Lack of evidence from M.E. specialist
Disregard of evidence from GP
Prejudice or disbelief
Employers will employ disabled people
Recognition that time is needed to recover
Understanding of fluctuation
Employers are able to support disabled people
0 50 100 150 200 250 300
88
266
248
101
104
124
124
139
202
131
296
238
208
165
159
99
47
156
222
170
186
172
116
200
49
50
111
186
Yes No
Has the benefits assessment affected your health, in the short term or long term?
Yes No
Total Responses: 611
Have you had a relapse as a result of a Personal Capability Assessment?
Yes No
Total Responses: 574
From what you know, do you agree that the new proposals for providing more support for people to get back into work, will make it
easier for people with M.E. to get back into employment?
YesNoNot sure
Total Responses: 879
If you think the new proposals will not make it easier for people who have M.E. to get back into work, what
will the biggest problems be?
Total Responses: 655
Appropriate help not available
Employers not accomodating
Not enough employers accommodating
Jobs too demanding
Jobs too low paid
Not cost effective
Detrimental to long-term health
Other
0 50 100 150 200
23
102
73
56
96
86
93
89
11
105
33
61
157
115
84
66
21
189
20
20
119
128
90
67
1st 2nd 3rd
If you think the new proposals will not make it easier for people who have M.E. to get back into work, what
will the biggest problems be?
Total Responses: 655
Appropriate help not available
Employers not accomodating
Not enough employers accommodating
Jobs too demanding
Jobs too low paid
Not cost effective
Detrimental to long-term health
Other
0 99 198 297 396
23
102
73
56
96
86
93
89
11
105
33
61
157
115
84
66
21
189
20
20
119
128
90
67
1st 2nd 3rd
In your view, which changes would make it easier for those people who have M.E. who could possibly work
to return to work and remain in employment?
Total Responses: 849
Increased understanding of M.E. amongst support providers
Increased understanding of M.E. amongst employers
Increased understanding of M.E. amongst medical examiners
Financial support for employers
Financial help for people to stay in work
Good practice guide for employers
More incentives for employers
Harsher penalties under Disability Discrimination Act
Availability of legal aid
Availability of part-time, flexible work
Continued support from support providers
Other
0 65 130 195 260 325
1st 2nd 3rd
In your view, which changes would make it easier for those people who have M.E. who could possibly work
to return to work and remain in employment?
Total Responses: 849
Increased understanding of M.E. amongst support providers
Increased understanding of M.E. amongst employers
Increased understanding of M.E. amongst medical examiners
Financial support for employers
Financial help for people to stay in work
Good practice guide for employers
More incentives for employers
Harsher penalties under Disability Discrimination Act
Availability of legal aid
Availability of part-time, flexible work
Continued support from support providers
Other
0 100 200 300 400 500
27
79
141
20
39
71
29
70
41
60
157
82
12
51
140
15
30
61
16
56
41
90
182
132
17
20
202
5
19
23
7
33
13
325
102
81
1st 2nd 3rd
Please indicate whether you want to view the list of questions.
Yes pleaseNo thanks
Total Responses: 903
Questions to choose from.
Total Responses: 205
Question 8
Question 9
Question 14
Question 15
Question 16
Question 17
Question 18
Question 20
Question 21
0 50 100 150 200
51
33
63
85
157
45
56
50
66
