Thalassemia Programme

A SOCIAL PROJECT ON

THALASSEMIA PROGRAMMEUNDERGONE AT

AHMEDABAD

Project guide:Prof. Jitendra Sharma

Submitted by:Parakhiya Vasant

ABOUT INDIAN RED CROSS SOCIETY

The British Government, after the II world war and failure of the League of Nations, started establishment of National Red Cross Societies in their colonial nations. The Act 15 of 1920 established the Indian Red Cross Society in 1920.

Subsequently the Indian Red Cross Society Ahmedabad District was established in 1923. The collector Shri Garret became the 1st President and Sir Ramanlal Nilkanth became the Hon. Secretary of the Society.

The act was last amended in 1992 and of rules were formed in 1994. 

The IRCS has 35 State / Union Territories Branches with their more than 700 districts and sub district branches. 

The President of India is the President and Hon'ble Union Health Minister is the Chairman of the Society.

The Secretary General is the Chief Executive of the Society

President IRCS

Hon'ble President of India: (Smt.) Pratibha Devisingh Patil

Chairman Secretary General

Dr. Anbumani Ramadoss Dr. S.P. Agarwal

PROGRAMMES AND ACTIVITIES

Promoting humanitarian principles and values

Disaster response Disaster preparedness Health and Care in the Community.

OTHER MAJOR ACTIVITIES Hospital services Blood Bank HIV/AIDS Programmes Home for disabled servicemen Vocational training centers Tracing activities Maternity railway & other accidents and events Child and family welfare Nursing Junior Red cross activities Preparedness and prevention of communicable & infectious diseases Relief operations in fire Railway & other accidents and events

 OBJECTIVES OF THE STUDY

To Study thalassemia program at Indian Red Cross Society, Ahmedabad.

To study awareness level among student. To study how Indian Red Cross Society are

providing treatment and blood units to patients.

To know the working area of Indian Red Cross Society.

How NGO like Indian Red Cross Society working for our society.

SCOPE OF THE PROJECT To find out awareness of Thalassemia among

students. To spread awareness among students how to

prevent from Thalassemia. To spread awareness about medical

treatment of Thalassemia.

RESEARCH METHODOLOGY Sampling Design:

Target Population: College Students Sample Frame: Gandhinagar Sampling Technique: Convenience Sampling. Sample Size: 50

We have collected secondary data from websites of the Indian Red Cross Society, Ahmedabad and other websites related to the Thalassemia and broachers of Indian Red Cross Society, Ahmedabad.

INTRODUCTION OF THALASSEMIA

It’s a Genetic blood disorder. A Blood cell consists of two different proteins,

an alpha and a beta. Red blood cells do not form properly and

cannot carry sufficient oxygen. Thalassemia is not a single disorder but a

group of related disorder. There are 23 pairs of chromosome, in

thalassemia minor one chromosome of 11 pair is defected.

PROBABILITY OF THALASSEMIA

THALASSEMIA MAJOR Thalassemia major, occurs when a child

inherits two mutated genes, one from each parent.

Thalassemia major usually develop the symptoms of severe anemia within the first year of life.

They lack the ability to produce normal adult hemoglobin (red blood cells).

Patients are regular transfusions of red blood cells every (Every 4 to 6 weeks).

Probability of Thalassemia Major- 25%

THALASSEMIA MINOR

Thalassemia trait in one gene are known as carriers or Thalassemia minor.

Special blood test called hemoglobin electrophoresis which can identify the gene.

Probability of Thalassemia Minor- 50%.

THALASSEMIA INTERMEDIA

Milder form of Thalassemia. One of the more severe thalassemic genes. Develop symptoms later in life.

CAUSES OF THALASSEMIA There are red cells, white cells and

plate cells in our blood. Hemoglobin in red blood cells carries

oxygen from lungs to all parts of body. Lack of Protein(hemoglobin)- can't

carry enough oxygen- thalassemia occur.

People with moderate to severe forms of thalassemia have inherited abnormal genes from both parents.

SIGN & SYMPTOMS OFTHALASSEMIA

Severity of symptoms depends on the severity of the disorder.

Alpha thalassemia - No signs or symptoms of the disorder.

Mild Anemia- People feel tired. Beta thalassemia- Slowed growth and delayed

puberty. Severe Thalassemia-Pale and listless appearance,

Poor appetite, Slowed growth and delayed puberty.

DIAGNOSE OF THALASSEMIA

Complete blood count (CBC) – provide amount of hemoglobin and the different kinds of blood cells.

Special hemoglobin tests - Types of hemoglobin in a blood.

TREATMENT OF THALASSEMIA Blood Transfusions - Main treatment for

people who have moderate or severe thalassemias.

Red blood cells live for only about 120 days. Thalassemia Major - Need regular blood

transfusions ( every 21 days). It is expensive and carry a risk of

transmitting infections and viruses. IRCS provide calferal to remove excessive

Iron from body.

IRON CHELATION THERAPY Needed to remove excess iron from the body. Deferasirox is a pill taken once a day. Deferoxamine is a liquid medicine that's

given slowly under the skin. Folic Acid Supplements: - Folic acid is a B

vitamin that helps build healthy red blood cells.

DATA ANALYSIS1. Have you donated blood?

Yes No

2. Do you know about the Thalassemia? Yes No

3. Do you know how this disease spreads? Yes No

4. Do you know about treatment? ______________________________________________

5. Do you think that Thalassemia test is necessary before marriage?

Yes No

6. Do you think you have to join this awareness

programme of Thalassemia? ______________________________________________

ANALYSIS OF STUDENTS We have made questionnaire for students

and from that we have analyze that most of student know about Thalassemia but not in detail but they know that it is necessary to test before marriage.

SUGGESTION Government should organize awareness

programme of Thalassemia in colleges. The Leader of each and every cast and

society organize seminar for the same. Government should make a compulsory test

for Thalassemia and it should be free of charge. 

Government should make a compulsory blood donation for healthy people

LIMITATIONS OF STUDY Sample size of 50 units cannot give accurate

conclusion regarding students awareness. This research is done only for the students of

Gandhinagar not for the students of other cities of Gujarat or India.

Research works, analysis, interpretation and finding are influences by time constrains

There may be possibilities for Bias or dishonesty on the part of respondents.

REFERENCE www.indianredcross.org http://sickle.bwh.harvard.edu/thal_inheritanc

e.html http://sickle.bwh.harvard.edu/menu_thal.html http://www.nhlbi.nih.gov/health/dci/Diseases/

Thalassemia/Thalassemia_WhatIs.html Broachers and Video CD of Indian Red Cross

Society, Ahmedabad

THANK YOUTHANK YOU