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Ten lessons learned about integrating social media into health, with an eye towards shared decision making (SDM). Presented at the 2011 Dartmouth Summer Institute on Shared Decision Making.
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A Bicycle Built for Two 10 Lessons Learned on Integrating Social Media and Health
Jodi Sperber, MSW, MPH
8/29/11
1. let’s face it: lots of people are out for a ride.
Photo credit: boston.com. h8p://bo.st/prPD7h
8 in 10 adults in the U.S. use the Internet. 18-29 year olds online: 95% Adults 65+ years: 42% Latinos: 78% African Americans: 67%
Who's Online: Internet User Demographics | Pew Research Center's Internet & American Life Project h8p://bit.ly/ra8nCd
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What are the top 5 things people in the U.S. do online?
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What are people doing when they are online? 92% Send or read an email 87% Use search to find information
83% Look for health/medical information
83% Look for info about a hobby or interest
82% Search for a map or driving directions
What Internet Users Do Online | Pew Research Center's Internet & American Life Project http://bit.ly/r4Duh1
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Social Life of Health Information, Pew Internet and American Life, June 11, 2009. By Susannah Fox and Sydney Jones.
Health is social
§ 59% turn to Internet when they need info and assistance in dealing with health or medical issues.
§ 60% say information found online affected a decision about how to treat an illness or condition.
§ 56% say it changed their overall approach to maintaining their health or the health of someone they help take care of.
59%
60%
56%
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Decisions & actions impacted
§ 53% - led them to ask a doctor new questions, or to get a second opinion from another doctor.
§ 49% - changed the way they think about diet, exercise, or stress management.
§ 38% - affected decision about whether to see a doctor.
§ 38% - changed the way they cope with a chronic condition or manage pain.
53%
49%
38%
38%
Social Life of Health Information, Pew Internet and American Life, June 11, 2009. By Susannah Fox and Sydney Jones.
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Clinical support + Non-clinical support
Better health
Photo Credit: Reini68. h8p://www.flickr.com/photos/stansich/184606467/
Photo Credit: Reini68. h8p://www.flickr.com/photos/stansich/184606467/
2. if all you see are the potholes, you’re in for a bumpy ride.
Adults living with 2+ chronic conditions 2x likely to report “major help”
Social Life of Health Information, 2011. Pew Research Center’s Internet and American Life Project, August 9 – September 13, 2010 Survey. http://bit.ly/nbTvPr
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3. if you don't have the basics
down it’s harder.
It’s social media
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Photo credit: Evgeniy Zotov. h8p://bit.ly/qArGrv
Listen and observe first. It’s not (just) about you.
Photo credit: Kyle Rokos. http://bit.ly/qOlYpU
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h8p://www.pedalinghistory.com/PHhistory.html
4. things evolve over Zme, but the basics are the same.
5. it takes pracZce. and it’s ok to have help. Photo Credit: adwriter. h8p://bit.ly/oIei5Q
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Photo credit: earth2marsh. h8p://bit.ly/oF3u0b
6. it's not about owning a bike; it's that you ride it.
Sharing: Ideas
Experience Support
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#hcsm: Every Sunday, 6pm Pacific, 9pm Eastern
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Independent
Organizational
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7. ok, it's a li8le bit about the bike.
Planning is essential
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Goal:
P Who is your primary audience? Where can they be found?
O What are you trying to accomplish?
S What will change if you are successful? How will you respond?
T Based on the above, what tools make sense?
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Adapted from Forrester Research. More at h8p://bit.ly/pTp4R2
Make SDM part of routine care
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Photo credit: SCA Svenska Cellulosa AkZebolaget. h8p://bit.ly/owZjca
8. it’s exercise, but and it’s fun!
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-‐
9. without you it’s less useful.
Case Study
2010 Research and Policy Forum Washington, DC
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2010 Research and Policy Forum
• Combination of tools – Eventbrite (invite), Twitter (messaging),
Watershed/UStream (webcast)
• Promoted hashtag: #rpforum • Requested (free) signup prior to event • Goal: 25-50 participants
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From Auckland, NZ to Yaphank, NY
• Australia • Austria • Belgium • Brazil • Bulgaria • Canada • Germany
• Great Britain • Greece • Israel • Netherlands • New Zealand • Spain • United States
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Those with interest and influence may not be in the room, but they can s;ll be an asset.
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A few weeks later…
…the conversaZon conZnued
Case Study: #rpforum
• Leveraged network built over time • Expanded reach globally for very little cost • Brought virtual audience into the room • Kept the conversation going • Mutually beneficial
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Day 1 of SIIPC
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Day 1 of SIIPC
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SZmulate a two way flow of informaZon and encourage paZents to ask quesZons, explain their circumstances, and express their personal preferences
Salzburg statement on shared decision making
Speak up about their concerns, quesZons, and what’s important to them
Clinicians:
Patients:
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SZmulate a two way flow of informaZon and encourage paZents to ask quesZons, explain their circumstances, and express their personal preferences
Salzburg statement on shared decision making
Speak up about their concerns, quesZons, and what’s important to them
Clinicians:
Patients:
it’s social
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but it's sZll a bike.
10. everyone has their
own style...
Photo credit: faster panda kill kill. h8p://bit.ly/pvrLgM
Photo credit: Dmitry Gudkov. h8p://bit.ly/qR1Gvb
Your next step, in a tweet
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#siipc
A Bicycle Built for Two 10 Lessons Learned on Integrating Social Media and Health
Jodi Sperber, MSW, MPH
8/29/11
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