Www.breastcancer.org.nz Resilience and Hope: Kiwi Stories of Breast Cancer Dr. Chris Walsh, Deputy...

www.breastcancer.org.nz

Resilience and Hope: Kiwi Stories of Breast

Cancer

Dr. Chris Walsh, Deputy Chair

Breast Cancer Aotearoa Coalition

New Zealand

www.breastcancer.org.nzBreast Cancer

in NZ•Every year 2,700 women are diagnosed & 620 die•NZ has one of the worst survival rates in the developed world•Maori are 21% more likely to be diagnosed than non-Maori & 30% less likely to be diagnosed in the early stage

New Zealand

www.breastcancer.org.nz

Breast Cancer Aotearoa Coalition

Provides:

a united voice for NZ women who have experienced breast cancer to make world class detection, treatment and care accessible

information, support and representation empowering those with breast cancer to make informed decisions about their treatment and care

www.breastcancer.org.nz

BCAC Committee Members

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The BCAC Web Videos

Each video covers a different aspect of breast cancer

Women & men who have had breast cancer, partners, family members, treatment team members discuss aspects of their experience of the disease

Provides accessible support and information

Demystifies &‘normalises’ the experience so those diagnosed feel less isolated

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Process of Producing the Web Videos : Behind the Scenes

Pre-production

Production

Post production

Launch

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Demographic Profile

• 14 women, 1 male• 5 health professionals• 4 Family/whanau • Age range: 34-67 years• Ethnicity:7 Maori, 6 Pakeha,1 Pacific &1

Asian. • Types: lobular/ductal, grades, secondary,

inflammatory,HER2+ BRCA carrier, Hormone receptor

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Video Themes from Interviews in Order of Number of Views

Diagnosis

Risk

Surgery

Reactions

Life after

Getting through

Radiation

Chemotherapy

Reconstruction

Family support

Relationships

Hormone therapy

Secondary

Clinical trials

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Front Page of Web Site

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Content Page of Videos

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Response and FeedbackWritten:“I found the videos very helpful. I have been

diagnosed with IDC cancer in the breast and I am due to have surgery in 3 weeks. I now know what is in store for me and I am so pleased that I have had the opportunity to view the videos.”

Web analysis: Nearly 70% of traffic was new visits, most visits NZ but also picking up Australia, UK, US and Canada

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Life After Breast Cancer

Mereheeni Hooker

Diagnosed with HER 2 positive breast cancer.

Has a ‘bucket list’ that may not be very long but told her husband it could be very expensive.

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Thank You

We thank all those who gave so generously their time and wisdom to share their journey so others can be inspired.

Kia kaha

Be stronghttp://www.breastcancer.org.nz