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8/12/2019 Scoring PedsQL v5
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Pediatric Quality of Life Inventory TM(PedsQL TM)
SCALING AND SCORING OF THE
PPeeddiiaattrriiccQQuuaalliittyyooffLLiiffeeIInnvveennttoorryy
PPeeddssQQLLTTMM
Mapi Research Trust27 rue de la Villette69003 LyonFrancePhone: +33 (0) 4 72 13 65 75Fax: +33 (0) 4 72 13 66 82
Contact:Marie-Pierre EmeryE-mail: mpemery@mapigroup.com
James W. Varni, Ph.D.ProfessorDepartment of Pediatrics, College of MedicineProfessor, Department of LandscapeArchitecture and Urban Planning, College ofArchitecture3137 TAMUCollege Station, Texas 77843-3137USA
E-mail :jvarni@archmail.tamu.edu
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PedsQLTM
4.0 Generic Core Scales .................................................................................................4
PARENT Report for Toddlers (ages 2-4) ........................................................................................4
PedsQL
TM
4.0 Generic Core Scales .................................................................................................7CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages
13-18)...............................................................................................................................................7
PedsQLTM
4.0 SF15 Short Form Generic Core Scales.................................................................10
PARENT Report for Toddlers (ages 2-4) ......................................................................................10
CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages
13-18).............................................................................................................................................10
PedsQLTM
3.0 Arthritis Module ....................................................................................................13PARENT Report for Toddlers (ages 2-4) ......................................................................................13
PedsQLTM
3.0 Arthritis Module ....................................................................................................15
CHILD and PARENT Reports for Young Children (ages 5-7) .....................................................15
PedsQLTM
3.0 Arthritis Module ....................................................................................................17CHILD and PARENT Reports for Children (ages 8-12), Teens (ages 13-18) ..............................17
PedsQLTM
3.0 Asthma Module ......................................................................................................19
PARENT Report for Toddlers (ages 2-4) ......................................................................................19
PedsQLTM
3.0 Asthma Module ......................................................................................................21CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages
13-18).............................................................................................................................................21
PedsQLTM
3.0 SF22 Short Form Asthma Module.......................................................................23
PARENT Report for Toddlers (ages 2-4) ......................................................................................23
PedsQLTM
3.0 SF22 Short Form Asthma Module .......................................................................25CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages
13-18).............................................................................................................................................25PedsQL
TMBrain Tumor Module...................................................................................................27
PARENT Report for Toddlers (ages 2-4) ......................................................................................27
PedsQLTM
Brain Tumor Module...................................................................................................29CHILD and PARENT Reports for Young Children (ages 5-7) .....................................................29
PedsQLTM
Brain Tumor Module...................................................................................................31CHILD and PARENT Reports for Children (ages 8-12), Teens (ages 13-18) ..............................31
PedsQLTM
3.0 Cancer Module .......................................................................................................33
PARENT Report for Toddlers (ages 2-4) ......................................................................................33
PedsQLTM
3.0 Cancer Module .......................................................................................................35
CHILD and PARENT Reports for Young Children (ages 5-7) .....................................................35
CHILD and PARENT Reports for Children (ages 8-12), Teens (ages 13-18) ..............................37
PedsQLTM
3.0 Cardiac Module......................................................................................................40
PARENT Report for Toddlers (ages 2-4) ......................................................................................40
PedsQLTM
3.0 Cardiac Module......................................................................................................42
CHILD and PARENT Reports for Young Children (ages 5-7) .....................................................42
PedsQLTM
3.0 Cardiac Module......................................................................................................44
CHILD and PARENT Reports for Children (ages 8-12) and Teens (ages 13-18) ........................44
PedsQLTM
3.0 Cerebral Palsy Module ..........................................................................................46PARENT Report for Toddlers (ages 2-4) ......................................................................................46
PedsQLTM
3.0 Cerebral Palsy Module ..........................................................................................48
CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages13-18).............................................................................................................................................48
PedsQLTM
Cognitive Functioning Scale........................................................................................50
PedsQLTM
3.0 Diabetes Module.....................................................................................................52
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PedsQLTM
3.0 End Stage Renal Disease Module .........................................................................54
PARENT Report for Toddlers (ages 2-4) ......................................................................................54
PedsQLTM
3.0 End Stage Renal Disease Module .........................................................................56
CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages13-18).............................................................................................................................................56
PedsQLTM
2.0 Family Impact Module ..........................................................................................59
PARENT Report ............................................................................................................................59
PedsQLTM
Gastrointestinal Symptom Scale (GSS) .....................................................................62
PARENT Proxy Report..................................................................................................................62
PedsQLTM
Healthcare Satisfaction Generic Module....................................................................64
PedsQLTM
Healthcare Satisfaction Hematology / Oncology Module..........................................66
PedsQLTM
Multidimensional Fatigue Scale..................................................................................68
PedsQLTM
Pediatric Pain Coping InventoryTM
(PPCI)...............................................................70PARENT Report for Children and Teens (ages 5-18) ...................................................................70
CHILD Report for Children (ages 5-12), Teens (ages 13-18).......................................................70PedsQL
TMPediatric Pain Questionnaire (PPQ) ..........................................................................72
PedsQLTM
Present Functioning Visual Analogue Scale (PedsQLTM
VAS) ..............................74
CHILD and PARENT reports for CHILD (ages 5-18)..................................................................74
PedsQLTM
3.0 Rheumatology Module...........................................................................................76
PARENT Report for Toddlers (ages 2-4) ......................................................................................76
PedsQLTM
3.0 Rheumatology Module...........................................................................................78
CHILD and PARENT reports for Young Children (ages 5-7) ......................................................78
PedsQLTM
3.0 Rheumatology Module...........................................................................................80CHILD and PARENT reports for Children (ages 8-12) and Teens (ages 13-18)..........................80
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
44..00GGeenneerriiccCCoorreeSSccaalleess
PARENT Report for Toddlers (ages 2-4)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Parent Report for Toddlers (ages 2-4) of the PPeeddssQQLLTTMM 44..00 GGeenneerriicc CCoorree SSccaalleess iscomposed of 21 items comprising 4 dimensions.
DESCRIPTION OF THE QUESTIONNAIRE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
PhysicalFunctioning
8 1-8 1-8
EmotionalFunctioning
5 1-5 1-5
Social
Functioning
5 1-5 1-5
SchoolFunctioning
3 1-3 1-3
Higher scores indicatebetter HRQOL.
SCORING OF DIMENSIONS:
Item Scaling 5-point Likert scale from 0 (Never) to 4 (Almost always)
Weighting ofItems
No
Extension oftheScoring Scale
Scores are transformed on a scale from 0 to 100.
ScoringProcedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as follows:0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores
Score by Dimensions:
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed.
Mean score = Sum of the items over the number of items answered.
Psychosocial Health Summary Score = Sum of the items over the number ofitems answered in the Emotional, Social, and School Functioning Scales.
Physical Health Summary Score = Physical Functioning Scale Score
Total Score: Sum of all the items over the number of items answered on all theScales.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
44..00GGeenneerriiccCCoorreeSSccaalleess
CHILD and PARENT Reports for Young Children (ages 5-7),Children (ages 8-12), Teens (ages 13-18)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Child and Parent Reportsof thePPeeddssQQLLTTMM 44..00GGeenneerriiccCCoorreeSSccaalleessfor:
- Young Children (ages 5-7),
- Children (ages 8-12),- And Teens (ages 13-18),
are composed of 23 items comprising 4 dimensions.
DESCRIPTION OF THE QUESTIONNAIRE:
DimensionsNumber of
ItemsCluster of
ItemsReversedscoring
Direction of Dimensions
Physical
Functioning
8 1-8 1-8
EmotionalFunctioning
5 1-5 1-5
SocialFunctioning
5 1-5 1-5
SchoolFunctioning
5 1-5 1-5
Higher scores indicatebetter HRQOL.
SCORING OF DIMENSIONS:
Item Scaling5-point Likert scale from 0 (Never) to 4 (Almost always)3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Young Child(ages 5-7) child report
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
ScoringProcedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as follows:
0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate ScoresScore by Dimensions:
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
Psychosocial Health Summary Score = Sum of the items over the number ofitems answered in the Emotional, Social, and School Functioning Scales.
Physical Health Summary Score = Physical Functioning Scale Score
Total Score: Sum of all the items over the number of items answered on all theScales.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
Interpretationand Analysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scores shouldnot be computed.If 50% or more items are completed: Impute the mean of the completed items ina scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
44..00SSFF1155
SShhoorrttFFoorrmmGGeenneerriiccCCoorreeSSccaalleess
PARENT Report for Toddlers (ages 2-4)CHILD and PARENT Reports for Young Children (ages 5-7),
Children (ages 8-12), Teens (ages 13-18)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
Interpretationand Analysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scores shouldnot be computed.
If 50% or more items are completed: Impute the mean of the completed items ina scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
33..00AArrtthhrriittiissMMoodduullee
PARENT Report for Toddlers (ages 2-4)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Parent Report for Toddlers(ages 2-4) of the PPeeddssQQLLTTMM33..00AArrtthhrriittiissMMoodduulleeis composed of
14 items comprising 3 dimensions.
DESCRIPTION OF THE ARTHRITIS MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Pain and Hurt 4 1-4 1-4
Daily Activities 5 1-5 1-5
Treatment 5 1-5 1-5
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling 5-point Likert scale from 0 (Never) to 4 (Almost always)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
Scoring Procedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed
Mean score = Sum of the items over the number of items answered
There is no Total ScoreInterpretation andAnalysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completeditems in a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
33..00AArrtthhrriittiissMMoodduullee
CHILD and PARENT Reports for Young Children (ages 5-7)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Child and Parent Reportsof the PPeeddssQQLLTTMM33..00AArrtthhrriittiissMMoodduulleefor Young Children(ages
5-7) are composed of 20 items comprising 5 dimensions.
DESCRIPTION OF THE ARTHRITIS MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Pain and Hurt 4 1-4 1-4
Daily Activities 5 1-5 1-5
Treatment 5 1-5 1-5
Worry 3 1-3 1-3
Communication 3 1-3 1-3
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling 5-point Likert scale from 0 (Never) to 4 (Almost always) for the parent report3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the child report
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
Scoring Procedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
There is no Total Score
Interpretation andAnalysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completeditems in a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
33..00AArrtthhrriittiissMMoodduullee
CHILD and PARENT Reports for Children (ages 8-12), Teens(ages 13-18)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
TheChild and Parent Reportsof the PPeeddssQQLLTTMM33..00AArrtthhrriittiissMMoodduulleefor:
- Children (ages 8-12),- And Teens (ages 13-18),
are composed of 22 items comprising 5 dimensions.
DESCRIPTION OF THE ARTHRITIS MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Pain and Hurt 4 1-4 1-4
Daily Activities 5 1-5 1-5
Treatment 7 1-7 1-7
Worry 3 1-3 1-3
Communication 3 1-3 1-3
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling 5-point Likert scale from 0 (Never) to 4 (Almost always)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
Scoring Procedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
There is no Total Score
Interpretation andAnalysisof missing data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completed
items in a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
33..00AAsstthhmmaaMMoodduullee
PARENT Report for Toddlers (ages 2-4)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Parent Report for Toddlers(ages 2-4) of the PPeeddssQQLLTTMM33..00AAsstthhmmaaMMoodduulleeis composed of
26 items comprising 4 dimensions.
DESCRIPTION OF THE ASTHMA MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Asthma 11 1-11 1-11
Treatment 9 1-9 1-9
Worry 3 1-3 1-3
Communication 3 1-3 1-3
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling 5-point Likert scale from 0 (Never) to 4 (Almost always)
Weighting of
Items
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
Scoring Procedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
There is no Total Score
Interpretation andAnalysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completeditems in a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
33..00AAsstthhmmaaMMoodduullee
CHILD and PARENT Reports for Young Children (ages 5-7),Children (ages 8-12), Teens (ages 13-18)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Child and Parent Reportsof the PPeeddssQQLLTTMM33..00AAsstthhmmaaMMoodduulleefor:
- Young Children (ages 5-7),- Children (ages 8-12,- And Teens (ages 13-18),
are composed of 28 items comprising 4 dimensions.
DESCRIPTION OF THE ASTHMA MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Asthma 11 1-11 1-11
Treatment 11 1-11 1-11
Worry 3 1-3 1-3
Communication 3 1-3 1-3
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling 5-point Likert scale from 0 (Never) to 4 (Almost always)3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the child reportfor Young Children (ages 5-7)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
Scoring Procedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
There is no Total Score
Interpretation andAnalysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completeditems in a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
33..00SSFF2222
SShhoorrttFFoorrmmAAsstthhmmaaMMoodduullee
PARENT Report for Toddlers (ages 2-4)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Parent Report for Toddlers(ages 2-4) of the PPeeddssQQLLTTMM33..00SSFF2222AAsstthhmmaaMMoodduulleeis
composed of 20 items comprising 2 dimensions.
DESCRIPTION OF THE SF22 ASTHMA MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Asthma 11 1-11 1-11
Treatment 9 1-9 1-9
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling 5-point Likert scale from 0 (Never) to 4 (Almost always)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
Scoring Procedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
There is no Total Score
Interpretation andAnalysis
of Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.
If 50% or more items are completed: Impute the mean of the completeditems in a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
33..00SSFF2222
SShhoorrttFFoorrmmAAsstthhmmaaMMoodduullee
CHILD and PARENT Reports for Young Children (ages 5-7),Children (ages 8-12), Teens (ages 13-18)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Child and Parent Reportsof the PPeeddssQQLLTTMM33..00SSFF2222AAsstthhmmaaMMoodduulleefor:
- Young Children (ages 5-7),- Children (ages 8-12),- And Teens (ages 13-18)
are composed of 22 items comprising 2 dimensions.
DESCRIPTION OF THE SF22 ASTHMA MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Asthma 11 1-11 1-11
Treatment 11 1-11 1-11
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling5-point Likert scale from 0 (Never) to 4 (Almost always)3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child RReport for Young Children (ages 5-7)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
Scoring Procedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
There is no Total Score
Interpretation andAnalysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completeditems in a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
BBrraaiinnTTuummoorrMMoodduullee
PARENT Report for Toddlers (ages 2-4)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Parent Report for Toddlers(ages 2-4) of the PPeeddssQQLLTTMMBBrraaiinnTTuummoorrMMoodduulleeis composed of
17 items comprising 5 dimensions.
DESCRIPTION OF THE BRAIN TUMOR MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Pain and Hurt 3 1-3 1-3
Movement andBalance
3 1-3 1-3
ProceduralAnxiety
3 1-3 1-3
Nausea 5 1-5 1-5
Worry 3 1-3 1-3
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling5-point Likert scale from 0 (Never a problem) to 4 (Almost always aproblem)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
Scoring Procedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
Mean score = Sum of the items over the number of items answered.
There is no Total Score
Interpretation andAnalysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completeditems in a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
BBrraaiinnTTuummoorrMMoodduullee
CHILD and PARENT Reports for Young Children (ages 5-7)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
BBrraaiinnTTuummoorrMMoodduullee
CHILD and PARENT Reports for Children (ages 8-12), Teens(ages 13-18)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Parent and Child Reports for Children(ages 8-12) and Teens(ages 13-18) of the
PPeeddssQQLLTTMMBBrraaiinnTTuummoorrMMoodduulleeare composed of 24 items comprising 6 dimensions.
DESCRIPTION OF THE BRAIN TUMOR MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
CognitiveProblems
7 1-7 1-7
Pain and Hurt 3 1-3 1-3
Movement and
Balance
3 1-3 1-3
ProceduralAnxiety
3 1-3 1-3
Nausea 5 1-5 1-5
Worry 3 1-3 1-3
Higher scores indicatelower problems
SCORING OF DIMENSIONS:
Item Scaling5-point Likert scale from 0 (Never a problem) to 4 (Almost always aproblem)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
Scoring Procedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
There is no Total Score
Interpretation andAnalysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completeditems in a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
33..00CCaanncceerrMMoodduullee
PARENT Report for Toddlers (ages 2-4)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Parent Report for Toddlers (ages 2-4)of the PPeeddssQQLLTTMM33..00CCaanncceerrMMoodduulleeis composed of
25 items comprising 8 dimensions.
DESCRIPTION OF THE CANCER MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Pain and Hurt2 1-2 1-2
Nausea5 1-5 1-5
ProceduralAnxiety
3 1-3 1-3
Treatment Anxiety 3 1-3 1-3
Worry3 1-3 1-3
CognitiveProblems
3 1-3 1-3
PerceivedPhysical
Appearance
3 1-3 1-3
Communication3 1-3 1-3
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling 5-point Likert scale from 0 (Never) to 4 (Almost always)
Weighting ofItems
No
Extension of theScoring Scale
Scores are transformed to a 0 to 100 scale.
ScoringProcedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
There is no Total Score.
Interpretationand Analysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completed itemsin a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Child and Parent Reportsof the PPeeddssQQLLTTMM33..00CCaanncceerrMMoodduulleeffoorrYoung Children (ages 5-
7), are composed of 26 items comprising 8 dimensions.
DESCRIPTION OF THE CANCER MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Pain and Hurt2 1-2 1-2
Nausea5 1-5 1-5
ProceduralAnxiety
3 1-3 1-3
Treatment Anxiety3 1-3 1-3
Worry3 1-3 1-3
CognitiveProblems
4 1-4 1-4
PerceivedPhysical
Appearance
3 1-3 1-3
Communication3 1-3 1-3
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling5-point Likert scale from 0 (Never) to 4 (Almost always)3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Reportfor Young Children (ages 5-7)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
ScoringProcedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
There is no Total Score.
Interpretation
and Analysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.If 50% or more items are completed: Impute the mean of the completed itemsin a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
33..00CCaanncceerrMMoodduullee
CHILD and PARENT Reports for Children (ages 8-12), Teens(ages 13-18)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Child and Parent Reportsof the PPeeddssQQLLTTMM33..00CCaanncceerrMMoodduulleeffoorr::
- Children (ages 8-12),- And Teens (ages 13-18)
are composed of 27 items comprising 8 dimensions.
DESCRIPTION OF THE CANCER MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Pain and Hurt2 1-2 1-2
Nausea5 1-5 1-5
ProceduralAnxiety
3 1-3 1-3
Treatment Anxiety3 1-3 1-3
Worry3 1-3 1-3
CognitiveProblems
5 1-5 1-5
PerceivedPhysical
Appearance
3 1-3 1-3
Communication
3 1-3 1-3
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling5-point Likert scale from 0 (Never) to 4 (Almost always)3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Reportfor Young Children (ages 5-7)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
ScoringProcedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
There is no Total Score.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
Interpretationand Analysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completed itemsin a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
33..00CCaarrddiiaaccMMoodduullee
PARENT Report for Toddlers (ages 2-4)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Parent Report for Toddlers (age 2-4)of the PPeeddssQQLLTTMM33..00CCaarrddiiaaccMMoodduulleeis composed of
23 items comprising 6 dimensions.
DESCRIPTION OF THE CARDIAC MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Heart problemsand Treatment
7 1-7 1-7
Treatment II3 1-3 1-3
PerceivedPhysical
Appearance
3 1-3 1-3
Treatment Anxiety4 1-4 1-4
CognitiveProblems
3 1-3 1-3
Communication3 1-3 1-3
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling 5-point Likert scale from 0 (Never) to 4 (Almost always)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed to a 0 to 100 scale.
Scoring
Procedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
There is no Total Score.
Interpretationand Analysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completed itemsin a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
33..00CCaarrddiiaaccMMoodduullee
CHILD and PARENT Reports for Young Children (ages 5-7)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Child and Parent Reportsof the PPeeddssQQLLTTMM33..00CCaarrddiiaaccMMoodduulleeffoorr Young Children (ages 5-
7) are composed of 25 items comprising 6 dimensions.
DESCRIPTION OF THE CARDIAC MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Heart Problemsand Treatment
7 1-7 1-7
Treatment II3 1-3 1-3
PerceivedPhysical
Appearance
3 1-3 1-3
Treatment Anxiety4 1-4 1-4
CognitiveProblems
5 1-5 1-5
Communication3 1-3 1-3
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling5-point Likert scale from 0 (Never) to 4 (Almost always)3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Reportfor Young Children (ages 5-7)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
ScoringProcedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
There is no Total Score
Interpretationand Analysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completed itemsin a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM33..00CCaarrddiiaaccMMoodduullee
CHILD and PARENT Reports for Children (ages 8-12) andTeens (ages 13-18)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Child and Parent Reportsof the PPeeddssQQLLTTMM33..00CCaarrddiiaaccMMoodduulleeffoorr::
- Children (ages 8-12),- And Teens (ages 13-18)
are composed of 27 items comprising 6 dimensions.
DESCRIPTION OF THE CARDIAC MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Heart Problemsand Treatment
7 1-7 1-7
Treatment II5 1-5 1-5
PerceivedPhysical
Appearance
3 1-3 1-3
Treatment Anxiety4 1-4 1-4
CognitiveProblems
5 1-5 1-5
Communication3 1-3 1-3
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling5-point Likert scale from 0 (Never) to 4 (Almost always)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
ScoringProcedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
There is no Total Score
Interpretationand Analysis
of Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.
If 50% or more items are completed: Impute the mean of the completed itemsin a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM33..00CCeerreebbrraallPPaallssyyMMoodduullee
PARENT Report for Toddlers (ages 2-4)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Parent Report for Toddlers (ages 2-4) ofthe PPeeddssQQLLTTMM
33..00CCeerreebbrraallPPaallssyyMMoodduulleeis
composed of 22 items comprising 5 dimensions.
DESCRIPTION OF THE CEREBRAL PALSY MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Daily Activities5 1-5 1-5
Movement andBalance
5 1-5 1-5
Pain and Hurt 4 1-4 1-4
Fatigue4 1-4 1-4
Eating Activities4 1-4 1-4
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling 5-point Likert scale from 0 (Never) to 4 (Almost always)
Weighting ofItems
No
Extension of theScoring Scale
Scores are transformed to a 0 to 100 scale.
ScoringProcedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scores
should not be computed, Mean score = Sum of the items over the number of items answered.
There is no Total score
Interpretationand Analysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completed itemsin a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
33..00CCeerreebbrraallPPaallssyyMMoodduullee
CHILD and PARENT Reports for Young Children (ages 5-7),Children (ages 8-12), Teens (ages 13-18)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Child and Parent Reportsof the PPeeddssQQLLTTMM 33..00CCeerreebbrraallPPaallssyyMMoodduulleeffoorr::
- Young Children (ages 5-7),- Children (ages 8-12),- And Teens (ages 13-18)
are composed of 35 items comprising 7 dimensions.
DESCRIPTION OF THE CEREBRAL PALSY MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Daily Activities9 1-9 1-9
School Activities4 1-4 1-4
Movement andBalance
5 1-5 1-5
Pain and Hurt4 1-4 1-4
Fatigue4 1-4 1-4
Eating Activities5 1-5 1-5
Speech andCommunication
4 1-4 1-4
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling5-point Likert scale from 0 (Never) to 4 (Almost always)3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Reportfor Young Children (ages 5-7)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
ScoringProcedure
Step 1: Transform ScoreItems are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
There is no Total score
Interpretation
and Analysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.If 50% or more items are completed: Impute the mean of the completed itemsin a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
CCooggnniittiivveeFFuunnccttiioonniinnggSSccaallee
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The PPeeddssQQLLTTMMCCooggnniittiivveeFFuunnccttiioonniinnggSSccaalleeis composed of 6 items comprising 1 dimension.
DESCRIPTION OF THE COGNITIVE FUNTIONING SCALE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
CognitiveFunctioning
6 1-6 1-6Higher scores indicate
lower problems
SCORING OF DIMENSIONS:
Item Scaling5-point Likert scale from 0 (Never) to 4 (Almost always)3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Reportfor Young Children (ages 5-7)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
Scoring Procedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calcu late Total ScoreSum of all the items over the number of items answered
Interpretation andAnalysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoreshould not be computed.If 50% or more items are completed: Impute the mean of the completeditems in a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
33..00DDiiaabbeetteessMMoodduullee
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The PPeeddssQQLLTTMM33..00DDiiaabbeetteessMMoodduulleeis composed of 28 items comprising 5 dimensions.
DESCRIPTION OF THE DIABETES MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Diabetes 11 1-11 1-11
Treatment I 4 1-4 1-4
Treatment II 7 1-7 1-7
Worry 3 1-3 1-3
Communication 3 1-3 1-3
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling
5-point scale from 0 (Never) to 4 (Almost always)
3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Reportfor Young Children (ages 5-7)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
Scoring Procedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate scores by Dimension If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
Mean score = Sum of the items over the number of items answered.
There is no Total Score
Interpretation andAnalysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completeditems in a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
33..00EEnnddSSttaaggeeRReennaallDDiisseeaassee
MMoodduullee
PARENT Report for Toddlers (ages 2-4)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Parent Report for Toddlers (ages 2-4)of the PPeeddssQQLLTTMM33..00EEnnddSSttaaggeeRReennaallDDiisseeaassee
MMoodduulleeis composed of 13 items comprising 4 dimensions.
DESCRIPTION OF THE END STAGE RENAL DISEASE MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
General Fatigue 3 1-3 1-3
About My KidneyDisease
4 1-4 1-4
TreatmentProblems
3 1-3 1-3
Worry 3 1-3 1-3
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling 5-point Likert scale from 0 (Never) to 4 (Almost always)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed to a 0 to 100 scale.
ScoringProcedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
Total Score: Sum of all the items over the number of items answered on all
the Scales.Interpretationand Analysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completed itemsin a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
33..00EEnnddSSttaaggeeRReennaallDDiisseeaassee
MMoodduullee
CHILD and PARENT Reports for Young Children (ages 5-7),Children (ages 8-12), Teens (ages 13-18)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Child and Parent Reportsof the PPeeddssQQLLTTMM33..00EEnnddSSttaaggeeRReennaallDDiisseeaasseeMMoodduulleefor:
- Young Children (ages 5-7)
-- Children (ages 8-12)-- And Teens ages (13-18)are composed of 34 items comprising 7 dimensions.
DESCRIPTION OF THE END STAGE RENAL DISEASE MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
General Fatigue 4 1-4 1-4
About My KidneyDisease
5 1-5 1-5
TreatmentProblems
4 1-4 1-4
Family and PeerInteraction
3 1-3 1-3
Worry 10 1-10 1-10
PerceivedPhysical
Appearance3 1-3 1-3
Communication 5 1-5 1-5
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling5-point Likert scale from 0 (Never) to 4 (Almost always)3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the YoungChildren (ages 5-7) child report
Weighting ofItems
No
Extension of the
Scoring Scale Scores are transformed on a scale from 0 to 100.
ScoringProcedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calcu late ScoresScore by Dimensions:
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
Total Score: Sum of all the items over the number of items answered on allthe Scales.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
Interpretationand Analysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completed itemsin a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
22..00FFaammiillyyIImmppaaccttMMoodduullee
PARENT Report
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Parent report of the PPeeddssQQLLTTMM22..00FFaammiillyyiimmppaaccttMMoodduulleeis composed of 36 items comprising
8 dimensions.
DESCRIPTION OF THE FAMILY IMPACT MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
PhysicalFunctioning
6 1-6 1-6
EmotionalFunctioning
5 1-5 1-5
SocialFunctioning
4 1-4 1-4
Cognitive
Functioning
5 1-5 1-5
Communication3 1-3 1-3
Worry5 1-5 1-5
DailyActivities
3 1-3 1-3
FamilyRelationships
5 1-5 1-5
Higher scores indicate betterfunctioning.
SCORING OF DIMENSIONS:
Item Scaling 5-point Likert scale from 0 (Never) to 4 (Almost always)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed to a 0 to 100 scale.
ScoringProcedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
Step 3: Total Scores
The Total Score is the sum of all 36 items divided by the number of itemsanswered
The Parent HRQL Summary Score (20 items) is computed as the sum ofthe items divided by the number of items answered in the Physical,Emotional, Social, and Cognitive Functioning scales.
The Family Functioning Summary Score (8 items) is computed as thesum of the items divided by the number of items answered in the DailyActivities and family Relationships scales.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
Interpretationand Analysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completed itemsin a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
GGaassttrrooiinntteessttiinnaall
SSyymmppttoommSSccaallee((GGSSSS))
PARENT Proxy Report
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
HHeeaalltthhccaarreeSSaattiissffaaccttiioonn
GGeenneerriiccMMoodduullee
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The PPeeddssQQLLTTMMHHeeaalltthhccaarreeSSaattiissffaaccttiioonnGGeenneerriiccMMoodduulleeis composed of 24 items comprising 6
dimensions.
DESCRIPTION OF THE MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Information5 1-5
Inclusion of Family 4 1-4
Communication 5 1-5
Technical Skills 3 1-3
Emotional Needs 4 1-4
OverallSatisfaction
3 1-3
NoHigher scores indicate
higher satisfaction.
SCORING OF DIMENSIONS:
Item Scaling 5-point Likert scale: 0 (Never) to 4 (Always) and Not Applicable
Weighting ofitems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
Scoring Procedure
Step 1: Transform Score
Items are scored and linearly transformed to a 0-100 scale as follows: 0=0,1=25, 2=50, 3=75, 4=100
Step 2: Calculate Scores by Dimensions
If 50% or more items are completed, the Mean score = Sum of the
items divided by the number of items answered in the scale, If more than 50% of the items in the scale are missing, the scale scores
should not be computed.
Total Score: Mean score = Sum of all the items in all scales divided by thenumber of items answered on all the scales.
Interpretation andAnalysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completeditems in the scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
HHeeaalltthhccaarreeSSaattiissffaaccttiioonn
HHeemmaattoollooggyy//OOnnccoollooggyyMMoodduullee
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The PPeeddssQQLLTTMMHHeeaalltthhccaarreeSSaattiissffaaccttiioonnHHeemmaattoollooggyy//OOnnccoollooggyyMMoodduulleeis composed of 25 items
comprising 6 dimensions.
DESCRIPTION OF THE MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
GeneralSatisfaction
3 1-3
Information 5 1-5
Inclusion of Family 4 1-4
Communication 5 1-5
Technical Skills 4 1-4
Emotional Needs 4 1-4
NoHigher scores indicate
higher satisfaction.
SCORING OF DIMENSIONS:
Item Scaling 5-point Likert scale: 1 (Very dissatisfied) to 5 (Very satisfied)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100
Scoring Procedure
Step 1: Transform Score
Items are scored and linearly transformed to a 0-100 scale as follows:1=0, 2=25, 3=50, 4=75, 5=100.
Step 2: Calculate Scores by Dimensions
If 50% or more items are completed, the Mean score = Sum of the
items divided by the number of items answered in the scale, If more than 50% of the items in the scale are missing, the scale scores
should not be computed.
Total Score: Mean score = Sum of all the items in all scales divided by thenumber of items answered on all the scales.
Interpretation andAnalysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completeditems in the scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
MMuullttiiddiimmeennssiioonnaallFFaattiigguueeSSccaallee
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The PPeeddssQQLLTTMMMMuullttiiddiimmeennssiioonnaallFFaattiigguueeSSccaalleeis composed of 18 items comprising 3 dimensions.
DESCRIPTION OF THE MULTIDIMENSIONAL FATIGUE MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
General Fatigue 6 1-6 1-6
Sleep/RestFatigue
6 1-6 1-6
Cognitive Fatigue 6 1-6 1-6
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling5-point Likert scale from 0 (Never) to 4 (Almost always)3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Reportfor Young Children (ages 5-7)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
Scoring Procedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score= Sum of the items over the number of items answered.
Total Score: Sum of all the items over the number of items answered on all
the ScalesInterpretation andAnalysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completeditems in a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
PPeeddiiaattrriiccPPaaiinnCCooppiinngg
IInnvveennttoorryyTTMM
((PPPPCCII))
PARENT Report for Chi ldren and Teens (ages 5-18)CHILD Report for Children (ages 5-12), Teens (ages 13-18)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Parent Report of the PPeeddssQQLLTTMMPPeeddiiaatt rriiccPPaaiinnCCooppiinnggIInnvveennttoorryyfor Children (ages 5-12)
and Teens (ages 13-18) is composed of 41 items comprising 5 dimensions.
The Child Reports of the PPeeddssQQLLTTMMPPeeddiiaattrriiccPPaaiinnCCooppiinnggIInnvveennttoorryyfor:- Children (ages 5-12)- And teens (ages 13-18)are composed of 41 items comprising 5 dimensions.
See Varni, J.W. et al. (1996). Development of the Waldron/Varni Pediatric Pain Coping Inventory.Pain, 67, 141-150, for scoring instructions for the a prioriand empirically-derivedscale scores.
DESCRIPTION OF THE PEDIATRIC PAIN COPING INVENTORY:
Dimensions Number ofItems Cluster ofItems ReversedScoring Direction of Dimensions
Cognitive Self-Instruction
7 12, 22, 23, 24,31, 32, 40
Problem-Solving 101, 2, 11, 15,
26, 27, 30, 33,34, 35
Distraction 96, 8, 9, 10, 14,16, 17, 18, 19
Seeks SocialSupport
93, 4, 7, 13, 28,29, 37, 38 ,39
Catastrophizing /
Helplessness 6
5, 20, 21, 25,
36, 41
No
Higher scores indicategreater use of the coping
strategy.
SCORING OF DIMENSIONS:
Item Scaling 3-point Likert scale from 0 (Never) to 2 (Often)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 2.
Scoring Procedure Calculate Scale ScoresSum of all the items over the number of items answered for each Scale.
Interpretation andAnalysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.
If 50% or more items are completed: Impute the mean of the completeditems in a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
PPeeddiiaattrriiccPPaaiinnQQuueessttiioonnnnaaiirree
((PPPPQQ))
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The PPeeddssQQLLTTMMPPeeddiiaattrriiccPPaaiinnQQuueessttiioonnnnaaiirreeis composed of 3 items.
DESCRIPTION OF THE QUESTIONNAIRE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Present Pain1 1
Worst Pain 1 2
NoHigher score = higher
pain intensity.
The third item refers to the localisation of pain and is not scored.
SCORING OF DIMENSIONS:
Item Scaling10cm VAS scales from 0 (Not hurting / No discomfort / No pain) to 10(Hurting a whole lot / Very uncomfortable / Severe pain)
Weighting ofItems
No
Extension of theScoring Scale 0-10
Scoring Procedure Present pain and worst pain are scored separately.The score is based on line length to the nearest 0.5 cm.
Interpretation andAnalysisof Missing Data
There is no imputation process since these are single item VAS scales.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
PPrreesseennttFFuunnccttiioonniinngg
VViissuuaallAAnnaalloogguueeSSccaallee((PPeeddssQQLLTTMM
VVAASS))
CHILD and PARENT reports for CHILD (ages 5-18)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The PPeeddssQQLLTTMMPPrreesseennttFFuunnccttiioonniinnggVViissuuaallAAnnaalloogguueeSSccaalleeis composed of 6 items.
DESCRIPTION OF THE SCALE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
PresentFunctioning
6 1-6 No Higher score = higherdistress or intensity.
SCORING OF DIMENSIONS:
Item Scaling 10cm VAS scales from 0 to 10
Weighting ofItems
No
Extension of theScoring Scale 0-10
Scoring Procedure- PedsQL VAS Total Symptom Score = average of all six items- PedsQL VAS Emotional Distress Summary Score = mean of the
anxiety, sadness, anger, and worry items
Interpretation and
Analysisof Missing Data
There is no imputation process since these are single item VAS scales.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
33..00RRhheeuummaattoollooggyyMMoodduullee
PARENT Report for Toddlers (ages 2-4)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Parent Report for Toddlers (age 2-4) of the PPeeddssQQLLTTMM
33..00RRhheeuummaattoollooggyyMMoodduulleeis
composed of 14 items comprising 3 dimensions.
DESCRIPTION OF THE RHEUMATOLOGY MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Pain and Hurt4 1-4 1-4
Daily Activities5 1-5 1-5
Treatment5 1-5 1-5
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling 5-point Likert scale from 0 (Never) to 4 (Almost always)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed to a 0 to 100 scale.
ScoringProcedure
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
There is no Total Score
Interpretation
and Analysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.If 50% or more items are completed: Impute the mean of the completed itemsin a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
33..00RRhheeuummaattoollooggyyMMoodduullee
CHILD and PARENT reports for Young Children (ages 5-7)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Child and Parent Reportsof the PPeeddssQQLLTTMM33..00RRhheeuummaattoollooggyyMMoodduulleeffoorr Young Children
(ages 5-7) are composed of 20 items comprising 5 dimensions.
DESCRIPTION OF THE RHEUMATOLOGY MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Pain and Hurt4 1-4 1-4
Daily Activities5 1-5 1-5
Treatment5 1-5 1-5
Worry 3 1-3 1-3
Communication3 1-3 1-3
Higher scores indicatelower problems.
SCORING OF DIMENSIONS:
Item Scaling5-point Likert scale from 0 (Never) to 4 (Almost always)3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the child report for
Young Children (ages 5-7)Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
ScoringProcedure
Step 1: Transform ScoreItems are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scores
should not be computed, Mean score = Sum of the items over the number of items answered.
There is no Total Score
Interpretationand Analysisof Missing Data
If more than 50% of the items in the scale are missing, the Scale Scoresshould not be computed.If 50% or more items are completed: Impute the mean of the completed itemsin a scale.
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Pediatric Quality of Life Inventory TM(PedsQL TM)
PPeeddssQQLLTTMM
33..00RRhheeuummaattoollooggyyMMoodduullee
CHILD and PARENT reports for Children (ages 8-12) and Teens(ages 13-18)
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Pediatric Quality of Life Inventory TM(PedsQL TM)
The Child and Parent Reportsof the PPeeddssQQLLTTMM
33..00RRhheeuummaattoollooggyyMMoodduulleeffoorr::- Children (ages 8-12),- And Teens (ages 13-18)
are composed of 22 items comprising 5 dimensions.
DESCRIPTION OF THE RHEUMATOLOGY MODULE:
DimensionsNumber of
ItemsCluster of
ItemsReversedScoring
Direction of Dimensions
Pain and Hurt4 1-4 1-4
Daily Activities5 1-5 1-5
Treatment7 1-5 1-5
Worry3 1-3 1-3
Communication3 1-3 1-3
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
5-point Likert scale from 0 (Never) to 4 (Almost always)
Weighting ofItems
No
Extension of theScoring Scale Scores are transformed on a scale from 0 to 100.
Scoring
Procedure
Step 1: Transform ScoreItems are reversed scored and linearly transformed to a 0-100 scale asfollows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores by Dimensions
If more than 50% of the items in the scale are missing, the scale scoresshould not be computed,
Mean score = Sum of the items over the number of items answered.
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