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MEMBERSHIP
DIRECTORY
2012
Rev. 12/11/2012
1825 K Street, NW, Suite 1200 • Washington, DC 20006 • PH 202/783-2229 • FAX 202/534-3731 • Info@c-c-d.org • www.c-c-d.org
2
CCD MEMBERSHIP DIRECTORY
2012
AARP Foundation (AARP)
601 E Street, NW
Washington, DC 20049
(202) 434-3704 (office)
(202) 434-2320 (fax)
http://www.aarp.org
Julie Nepveu jnepveu@aarp.org
ACCSES (formerly American Congress of
Community Supports and Employment Services)
1501 M Street NW, 7th
Floor
Washington, DC 20005
(202) 466-3355 (office)
(202) 466-7571 (fax)
www.accses.org
Theresa Morgan Theresa.morgan@ppsv.com
Gary Goosman ggoosman@verizon.net
Terry Farmer trfarmer@comcast.net
Peter Thomas peter.thomas@ppsv.com
Sara Rosta Sara.rosta@ppsv.com
Adapted Physical Activity Council (APAC)
2322 40th Place, NW, Ste. 203
Washington, DC 20007
(202) 295-9033 (office)
(202) 295-9033 (fax)
David Auxter dauxter@verizon.net
Sue Parham sparham@verizon.net
Jayne Robinson jaynedrobinson@aol.com
American Academy of Pediatrics (AAP)
601 13th Street, NW, Ste. 400N
Washington, DC 20005
(202) 347-8600 (office)
(202) 393-6137 (fax)
www.aap.org
Bob Hall rhall@aap.org
Kristen Mizzi kmizzi@aap.org
Betsy Dunford bdunford@aap.org
Ielnaz Kashefipour ikashefipour@aap.org
Alison Perencevinch aprencevich@aap.org
Patrick Johnson pjohnson@aap.org
Sonya Clay sclay@aap.org
American Association of People with
Disabilities (AAPD)
2013 H Street, NW
Washington, DC 20006
(202) 457-0046 (office) V/TTY
(202) 457-0473 (fax)
http://www.aapd-dc.org
Helena Berger hberger@aapd.com
Jim Dickson jdickson@aapd.com
Jackie Zamarripa jzamarripa@aapd.com
Adam Abosedra aabosedra@aapd.com
David Heymsfeld dheymsfeld@gmail.com
3
American Association on Health
and Disability (AAHD)
110 N. Washington Street, #328J
Rockville, MD 20850
(301) 545-6140 (office)
(301) 545-6144 (fax)
www.aahd.us
Roberta Carlin rcarlin@aahd.us
Clarke Ross clarkeross10@comcast.net
American Association on Intellectual and
Developmental Disabilities (AAIDD)
501 Third Street, NW, Ste. 200
Washington, DC 20001
(202) 387-1968 (office)
(202) 387-2193 (fax)
http://www.aaidd.org
Margaret Nygren mnygren@aaidd.org
Ravita Maharaj rmaharaj@aaidd.org
Danielle Webber dwebber@aaidd.org
Jason Epstein jepstein@aaidd.org
American Bar Association
Commission on Disability Rights (CDR) 740 15
th Street, NW
Washington, DC 20005
(202) 662-1570 (office)
(202) 442-3439 (fax)
www.americanbar.org/disability
Mildred Rivera-Rau mildred.rovera@eeoc.gov
Amy Allbright amy.allbright@americanbar.org
American Council of the Blind (ACB)
2200 Wilson Blvd, Suite 650
Arlington, VA 22201
(202) 467-5081 (office)
(202) 467-5085 (fax)
http://www.acb.org
Eric Bridges ebridges@acb.org
American Dance Therapy Association (ADTA)
c/o MRM Associates
2800 Quebec Street, NW, Ste. 218
Washington, DC 20008
(202) 421-3526 (office)
(202) 686-1637
www.adta.org
Myrna Mandlawitz mandlawitz@verizon.net
Libby Nealis libbynealis@yahoo.com
4
American Diabetes Association (ADA)
1701 North Beauregard Street
Alexandria, VA 22311
(703) 299-5519 (office)
(703) 549-8748 (fax)
www.diabetes.org
Shereen Arent sarent@diabetes.org
Claire Borelli cborelli@diabetes.org
Brian Dimmick bdimmick@diabetes.org
Amy Wotring awotring@diabetes.org
Katie Hathaway khathaway@diabetes.org
American Foundation for the Blind (AFB)
1660 L Street, NW, Ste.513
Washington, DC 20036
(202) 822-0830 (office/TDD)
(202) 822-0838 (fax)
http://www.afb.org
Mark Richert 202-822-0833 direct line
mrichert@afb.net
Katie Vizenor kvizenor@afb.net
American Medical Rehabilitation Providers
Association (AMRPA)
1710 N Street, NW
Washington, DC 20036-2907
(202) 223-1920 (office)
(202) 223-1925 (fax)
www.amrpa.org
Carolyn Zollar czollar@amrpa.org
Sarah Nicholls snicholls@amrpa.org
Peter Thomas peter.thomas@ppsv.com
Sara Rosta Sara.rosta@ppsv.com
American Music Therapy Association (AMTA)
8455 Colesville Road, Ste. 1000
Silver Spring, MD 20910
(301) 589-3300 (office)
(301) 589-5175 (fax)
http://www.musictherapy.org
Judy Simpson simpson@musictherapy.org
Rebecca Smith smithr@musictherapy.org
Myrna Mandlawitz mandlawitz@verizon.net
American Network of Community Options
And Resources (ANCOR)
1101 King Street, #380
Alexandria, VA 22314
(703) 535-7850 (office)
(703) 535-7660 (fax)
http://www.ancor.org
Suellen Galbraith sgalbraith@ancor.org
Jessica Sadowsky jsadowsky@ancor.org
American Physical Therapy Association (APTA)
1111 N. Fairfax Street
Alexandria, VA 22314
(703) 684-2782 (office)
(703) 684-7343 (fax)
http://www.apta.org
Deborah Crandall deborahcrandall@apta.org
Michael Hurlbut michaelhurlbut@apta.org
Monica Herr monicaherr@apta.org
5
American Psychological Association (APA)
750 First Street, NE
Washington, DC 20002-4242
(202) 336-5500 (office)
(202) 336-6123 (TDD)
(202) 336-6040 (fax)
http://www.apa.org/ppo/
Anju Khubchandani akhubchandani@apa.org
Stefanie Reeves sreeves@apa.org
American Speech-Language-Hearing
Association (ASHA)
444 N. Capitol Street, NW, Ste. 715
Washington, DC 20001
(202) 624-7750 (office)
(202) 624-5955 (fax)
http://www.asha.org
Catherine Clarke cclarke@asha.org
Laurie Alban-Havens lalanhavens@asha.org
Susan Karr skarr@asha.org
2200 Research Boulevard
Rockville, MD 20850
(301) 296-5684 (office)
(301) 296-8579
American Therapeutic Recreation
Association (ATRA)
1501 M Street NW, 7th
Floor
Washington, DC 20005
(202) 466-6550 (office)
(202) 785-1756 (fax)
http://www.atra-tr.org
Lisa Morgan lisajomorgan@comcast.net
Thomas Skalko skalkot@ecu.edu
Peter Thomas peter.thomas@ppsv.com
Sara Rosta Sara.rosta@ppsv.com
APSE – The Network on Employment (APSE)
451 Hungerford Drive, Ste. 700
Rockville, MD 20850
(414) 581-3032 (office)
(804) 278-9377 (fax)
www.apse.org
Laura Owens lowens@apse.org
Association for Behavior Analysis
International (ABAI)
601 Elmwood Ave, Box 671
University of Rochester Medical Center
Rochester,NY 14642
(585) 273-5974 (office)
(585) 276-2605 (fax)
Jennifer Zarcone Zarcone@kennedykrieger.org
Santi KM Bhagat santi@ppc-inc.org
6
Association of Assistive Technology Act Programs
(ATAP)
P.O. Box 32
Delmar, NY 12054
(518) 439-1263
(518) 439-3451 (fax)
www.ataporg.org
Audrey Busch abusch@wpllc.net
700 McKnight Park Drive, Suite 708
Pittsburgh, PA 15237
Marty Exline marty.exline@att.net
Ellin Nolan enolan@wpllc.net
1101 Vermont Ave., NW, Ste. 400
Washington DC 20005
(202) 289-3900 (office)
(202) 371-0197 (fax)
Association of Maternal and
Child Health Programs (AMCHP)
1220 19th Street, NW, Ste. 801
Washington, DC 20036
(202) 775-0436 (office)
(202) 775-0061 (fax)
Carolyn Mullen cmullen@amchp.org
Association of University Centers on
Disabilities (AUCD)
1010 Wayne Ave., Ste. 920
Silver Spring, MD 20910
(301) 588-8252 (office)
(301) 588-2842 (fax)
http://www.aucd.org
Kim Musheno kmusheno@aucd.org
Ellen Jensby ejensby@aucd.org
Kristina Majewski kmajewski@aucd.org
Diane Dressler dressler@kennedykrieger.org
Autism Speaks
1990 K Street, NW
Washington, DC 20006
(202) 955-3312 (office)
(202) 424-5834 (fax)
www.autismspeaks.org
Stuart Spielman sspielman@autismspeaks.org
Karen.Driscoll karen.driscoll@autismspeaks.org
Bazelon Center for Mental Health Law (BCMHL)
1101 15th
Street, NW, Ste. 1212
Washington, DC 20005
(202) 467-5730 (office)
(202) 223-0409 (fax)
http://www.bazelon.org
Allison Wishon Seigwarth allisonw@bazelon.org
Elaine Alfano elaine@bazelon.org
Lewis Bossing lewisb@bazelon.org
Jennifer Mathis jenniferm@bazelon.org
Todd Rubin toddr@bazelon.org
7
Brain Injury Association of America (BIAA)
1608 Spring Hill Road, Ste. 110
Vienna, VA 22182
(703) 761-0750 (office)
(703) 761-0755 (fax)
www.biausa.org
Amy Colberg acolberg@biausa.org
Center for Medicare Advocacy, Inc. (CMA)
1025 Connecticut Ave., NW, #709
Washington, DC 20036
(202) 293-5760 (office)
(202) 293-5764 (fax)
www.medicareadvocacy.org
Center for Workers with Disabilities (CWD)
1133 19th
Street, NW, Ste. 400
Washington, DC 20036
(202) 682-0100 (office)
(202) 289-6555 (fax)
http://cwd.aphsa.org
Nanette Relave NRelave@aphsa.org
Center on Budget and Policy Priorities (CBPP)
820 First Street, NE, Suite 510
Washington, DC 20002
(202) 408-1080 (office)
(202) 408-1056 (fax)
www.cbpp.org
Judy Solomon solomon@cbpp.org
Children and Adults with Attention-Deficit/
Hyperactivity Disorder (CHADD)
8181 Professional Place, Ste. 150
Landover, MD 20785
(301) 306-7070 (office)
(301) 306-7090 (fax)
http://www.chadd.org
Ruth Hughes Ruthj_hughes@chadd.org
Community Access National Network (CANN)
1773 T Street, NW
Washington, DC 20009
(202) 479-2543 (office)
(202) 479-1169 (fax)
www.tiicann.org
Tom McCormack tomxix@ix.netcom.com
8
Community Legal Services (CLS)
3638 N Broad Street
Philadelphia, PA 19140
(215) 227-2417 (office)
(215) 227-2435 (fax)
www.clsphila.org
Rebecca Vallas rvallas@clsphila.org
Conference of Educational Administrators
of Schools and Programs for the Deaf (CEASD)
P.O. Box 685
Washington Grove, MD 20880
(301) 990-2847 (office)
(301) 990-2848 (fax)
http://www.ceasd.org
Barbara Raimondo baraimondo@me.com
Corporation for Supportive Housing (CSH)
1731 Connecticut Ave., NW, 4th
Floor
Washington, DC 20009
(202) 588-1110 (office)
(202) 330-5960 (fax)
www.csh.org
Peggy Bailey peggy.bailey@csh.org
Jordan Press jordan.press@csh.org
Council for Exceptional Children (CEC)
1110 North Glebe Road, Ste. 300
Arlington, VA 22201
(800) 224-6830 (office)
(703) 243-0410 (fax)
http://www.cec.sped.org
Deb Ziegler debz@cec.sped.org
Kimberly Hymes kimh@cec.sped.org
Lindsay E. Jones lindsayj@cec.sped.org
Council for Learning Disabilities (CLD)
15122 Red Cedar Drive
Burtonsville, MD 20866-1386
(301) 549-1779 (home)
http://www.cldinternational.org
Debi Gartland gartland@towson.edu
Roberta Strosnider rstrosnider@comcast.net
Council of Parent Attorney and Advocates (COPAA)
P.O. Box 6767
Towson, Maryland 21285
(410) 372-0208 (office)
(410) 372-0209 (fax)
www.copaa.org
Robert Berlow bobb@mdlclaw.org
Denise Marshall denise@copaa.org
9
Council of State Administrators of Vocational
Rehabilitation (CSAVR)
4733 Bethesda Avenue, #330
Bethesda, MD 20814
(301) 654-8414 (office)
(301) 654-5542 (fax)
www.rehabnetworking.org
Rita Martin rmartin@rehabnetwork.org
Dialysis Patient Citizens (DPC)
900 7th
Street, NW Ste. 670
Washington, DC 20001
(202) 789-6931 (office)
(202) 789-6935 (fax)
Carrie Lamb clamb@dialysispatients.org
Disability Rights Education and Defense
Fund, Inc. (DREDF)
1660 L Street N.W, #701
Washington, DC 20036
202-725-5523 (office)
(fax)
http://www.dredf.org
Rhonda Neuhaus rneuhaus@dredf.org
Susan Henderson shenderson@dredf.org
Marilyn Golden mgolden@dredf.org
Mary Lou Breslin mlbreslin@dredf.org
Silvia Yee syee@dredf.org
Disability Rights Legal Center (DRLC)
800 S Figueroa Street, #701
Los Angeles, CA 90017n, DC 20036
202-725-5523 (office)
(fax)
http://www.dredf.org
Paula Pearlman paula.pearlman@lls.edu
Michelle Uzeta michelle.uzeta@lls.edu
Shawn Kravich shawn.kravich@lls.edu
Division for Early Childhood of
the CEC (DEC/CEC)
6129 Calico Pool Lane
Burke, VA 22015
(703) 850-1187 (office)
(703) 250-4935 (fax)
http://www.dec-sped.org
Sharon Walsh walshtaylo@aol.com
Division for Learning Disabilities of CEC (DLD)
932 Raymond Rd.
Charlottesville, VA 22959-
(434) 924-0759 (office)
(434) 924-0747 (fax)
www.teachingld.org
David Bateman dfbate@ship.edu
223 Conway Street
Carlisle, PA 17013
(717) 253-8961 (office)
(717) 477-4036 (fax)
10
Easter Seals (ES)
1425 K Street, NW, Ste 200
Washington, DC 20005
(202) 347-3066 (office)
(202) 737-7914 (fax)
http://www.easter-seals.org
Jennifer Dexter jdexter@easterseals.com
Katy Beh Neas kneas@easterseals.com
Denise Rozell drozell@easterseals.com
Mary Andrus mandrus@easterseals.com
Maynard Friesz mfriesz@easterseals.com
Bryan Vidal bvidal@easteseals.com
Epilepsy Foundation (EF)
8701 Professional Place East
Landover, MD 20785-2238
(301) 459-3700 (office)
(301) 731-3842 (fax)
http://www.epilepsyfoundation.org
Angela Ostrom aostrom@efa.org
Gary Gross ggross@efa.org
Cornell Woolridge cwoolridge@efa.org
Family Voices
2030 M Street, NW #350
Washington, DC 20036
(202) 546-0558 (office)
www.familyvoices.org
Janis Guerney jguerney@famiilyvoices.org
Goodwill Industries International (GII)
600 Maryland Ave., SW, #800 West
Washington, DC 20008
(202) 508-7494 (office)
(202) 530-6500 (fax)
http://www.goodwill.org
Seth Turner seth.turner@goodwill.org
Paul Seifert paul.seifert@goodwill.org
Laura Walling laura.walling@goodwill.org
Jordan Ambushawish
jordan.abushawish@goodwill.org
Health & Disability Advocates (HDA)
623 Kennedy St., NW
Washington, DC 20011
(202) 506-6481 (office)
(202) 506-6481 (fax)
http://www.hdadvocates.org
Lisa Ekman lekman@hdadvocates.org
Helen Keller National Center (HKNC)
141 Middle Neck Road
Sands Point, NY 11050
(516) 944-8900 (office)
(516) 944-8367 (TTY)
(516) 944-5984 (fax)
www.hknc.org
Michael Fagbemi mike.fagbemi@hknc.org
11
Higher Education Consortium for
Special Education (HECSE)
c/o AACTE
1307 New York Ave., NW, Ste. 300
Washington, DC 20005
(202) 478-4593 (office)
(202) 457-8095 (fax)
www.hecse.org
Jane West jwest@aacte.org
IDEA Infant and Toddler Coordinators Association
6129 Calico Pool Lane
Burke, VA 22015
(703) 850-1187 (office)
(703) 250-4935 (fax)
www.ideainfanttoddler.org
Sharon Walsh walshtaylo@aol.com
Maureen Greer mhmgreer@aol.com
Institute for Educational Leadership/Center for
Workforce Development (IEL/CWD)
4455 Connecticut Ave, NW, #310
Washington, DC 20008
(202) 872-8405 (office)
(202) 872-4050 (fax)
Curtis Richards andrea@harles.com
Inter/National Association of Business, Industry
And Rehabilitation (I-NABIR)
P.O. Box 15242
Washington, DC 20003
(202) 543-6353 (office)
(202) 546-2854 (fax)
www.inabir.org
Charles Harles charlie@harles.com
Andrea Harles andrea@harles.com
Learning Disabilities Association of America (LDA)
4001 N 9th
Street, #505
Arlington, VA 22203
(703) 243-2614 (office)
(703) 243-0894 (fax)
http://www.ldaamerica.org
Justine Maloney justinelda@earthlink.net
Libby Nealis libbynealis@yahoo.com
Myrna Mandlawitz Mandlawitz@verizon.net
3001 Veeazey Terrace, NW
Washington, DC 20008
(202) 686-1637 (office/fax)
12
Lutheran Services in America (LSA)
122 C Street, NW, Suite #125
Washington, DC 20001
(202) 626-7945 (office)
(202) 628-5421 (fax)
www.lutheranservices.org
Meg Cooch mcooch@lutheranservices.org
Mental Health America (MHA)
2000 N. Beauregard St., 6th
Floor
Alexandria, VA 22311
(571) 236-2802 (office)
(703) 684-5968 (fax)
http://www.nmha.org
Julio Abreu jabreu@nmha.org
National Alliance for Caregiving (NAC)
4720 Montgomery Lane, Suite #205
Bethesda, MD 20814
(301) 718-8444 (office)
(301) 951-9067 (fax)
www.caregiving.org
Russell Mark russell@caregiving.org
National Alliance on Mental Illness (NAMI)
2107 Wilson Boulevard, Ste. 300
Arlington, VA 22201
(703) 516-7222 (office)
(703) 516-0694 (fax)
http://www.nami.org
Andrew Sperling andrew@nami.org
Sita Diehl sdiehl@nami.org
National Alliance to End Homelessness (NAEH)
1518 K Street NW, #410
Washington, DC 20005
(202) 638-1526 (office)
(202) 638-4664 (fax)
www.endhomelessness.org
Sharon McDonald smcdonald@naeh.org
Steve Berg sberg@naeh.org
Lisa Stand lstand@naeh.org
Ian Lisman Ilisman@naeh.org
13
National Association for the Advancement
of Orthotics and Prosthetics (NAAOP)
1501 M Street NW, 7th
Floor
Washington, DC 20005
(202) 466-6550 (office)
(202) 737-2517 (fax)
www.naaop.org
Peter Thomas peter.thomas@ppsv.com
Sara Rosta Sara.rosta@ppsv.com
National Association of Councils on Developmental
Disabilities (NACDD)
1825 K Street, NW, Suite 600
Washington, DC 20006
(202) 506-5813 (office)
(202) 506-5846 (fax)
http://www.nacdd.org
Peggy Hathaway phathaway@nacdd.org
Nicholas Olumoya nolumoya@law.gwu.edu (Intern)
Eli Hanson-Metayer intern@nacdd.org (Intern)
Donna Meltzer dmeltzer@nacdd.org
National Association of County Behavioral
Health and Development Disability Directors
(NACBHDD) 25 Massachusetts Avenue, NW, Ste. 500
Washington, DC 20001
(202) 661-8816 (office)
(202) 661-8871 (fax)
www.nacbhd.org
Katie Bess kbess1@nacbhd.org
National Association of Disability
Representatives (NADR)
c/o Akerman Senterfitt LLP
750 9th
Street, NW, Ste. 750
Washington, DC 20001
(202) 824-1725 (office)
(202) 393-5959 (fax)
www.nadr.org
Jeanne Morin jmorin@akerman.com
National Association of Private Special
Education Centers (NAPSEC)
1522 K Street, NW, Ste. 1032
Washington, DC 20005
(202) 408-3338 (office)
(202) 408-3340 (fax)
http://www.napsec.com
14
National Association of School
Psychologists (NASP)
4340 East West Highway, Ste. 402
Bethesda, MD 20814
(301) 657-0270 (office)
(301) 657-0275 (fax)
http://www.nasponline.org
Mary Beth Klotz mbklotz@naspweb.org
Stacy Skalski sskalski@naspweb.org
Kelly Vaillancourt kvaillancourt@naspweb.org
National Association of State Directors of
Developmental Disabilities Services (NASDDDS)
113 Oronoco Street
Alexandria, VA 22314
(703)·683·4202 (office)
(703)·683·8773 or (703)·684·1395 (fax)
www.nasddds.org
Dan Berland dberland@nasddds.org
Nancy Thaler nthaler@nasddds.org
National Association of State Directors of
Special Education (NASDSE)
1800 Diagonal Road, Ste. 320
Alexandria, VA 22314
(703) 519-3800 (office)
(703) 519-3808 (fax)
http://www.nasdse.org
Nancy Reder nancy.reder@nasdse.org
Amanda Lowe amanda.lowe@nasdse.org
National Association of State Head Injury
Administrators (NASHIA)
4330 East West Highway, Suite 301
Bethesda, MD 20814
(301) 656-3145 (office)
(301) 656-3530 (fax)
www.nashia.org
Susan Vaughn slvaughn@nashia.org
National Association of State Mental Health
Program Directors (NASMHPD)
66 Canal Center Plaza, Ste. 302
Alexandria, VA 22314
(703) 682-5194 (office)
(703) 548-9517 (fax)
www.nasmhpd.org
David Miller david.miller@nasmhpd.org
15
National Association of States United
for Aging and Disabilities (NASUAD)
1201 15th
Street, NW, Suite 250
Washington, DC 20005
(202) 898-2578 (office)
(202) 898-2583 (fax)
www.nasuad.org
Karl Cooper kcooper@nasuad.org
Diana Scully dscully@nasuad.org
Sara Tribe striabe@nasuad.org
Lindsey Copeland lcopeland@nasuad.org
Rachel Feldman rfeldman@naduad.org
Deborah Merrill
National Center for Learning Disabilities (NCLD)
1101 Vermont Ave., NW, #400
Washington, DC 20005
(703) 476-4894 (office)
(202) 842-1942 (fax)
www.ncld.org
Laura Kaloi lkaloi@ncld.org
Nina DiPadova
National Coalition on Deaf-Blindness (NCDB)
141 Middle Neck Road
Sands Point, NY 11050
(1-516) 944-8900 (office)
(1-516) 944-5984 (fax)
http://www.hknc.org
Michael Fagbemi mike.fagbemi@hknc.org
National Council for Community
Behavioral Healthcare (NCCBH)
1701 K St. NW, Ste. 400
Washington, DC 20006
(202) 684-7457 (office)
(202) 684-7472 (fax)
www.nccbh.org
Charles Ingoglia chucki@thenationalcouncil.org
Mohini Venkatesh mohiniv@thenationalcouncil.org
Jeannie Campbell jeanniec@thenationalcouncil.org
Rebecca Farley rebeccaf@thenationalcouncil.org
Stacey Larson staceyl@thenationalcouncil.org
Laira Kolkin
Kirsten Reed
Nina Marshall
National Council on Aging (NCOA)
1901 L Street, NW, 4th
Floor
Washington, DC 20036
(202) 479-6678 (office)
(202) 479-0735 (fax)
Howard Bedlin howard.bedlin@ncoa.org
Joe Caldwell joe.caldwell@ncoa.org
Marci Phillips
16
National Council on Independent Living (NCIL)
1710 Rhode Island Ave., NW, 5th
Floor
Washington, DC 20036
(202) 207-0334 (office)
(202) 207-0341 (fax)
www.ncil.org
L. Dara Baldwin dara@ncil.org
Steven Thovson steve@swcil.com
Southwestern Center for Independent Living
(507) 532-2221
Brian Peters bpeters@independencefirst.org
Independence First
(414) 937-5912
National Disability Institute (NDI)
1667 K Street, NW, #640
Washington, DC 20006
(202) 296-2043 (office)
(202) 296-2047 (fax)
www.ndi-inc.org
Johnette Hartnett jhartnett@ndi-inc.org
Michael Roush
Caroline Burke
Katie Metz
National Disability Rights Network (NDRN)
900 2nd
Street, NE, Ste. 211
Washington, DC 20002
(202) 408-9514 (office)
(202) 408-9520 (fax)
http://www.napas.org
Cheryl Bates-Harris cheryl.bates-harris@ndrn.org
Eric Buehlmann eric.buehlmann@ndrn.org
David Hutt david.hutt@ndrn.org
Cindy Smith cindy.smith@ndrn.org
Patrick Wojahn Patrick.wojahn@ndrn.org
Delores Scott delores.scott@ndrn.org
Kenneth Shiotani kenneth.shiotani@ndrn.org
Diane Smith-Howard
National Down Syndrome Congress (NDSC)
2107 Dumfries Terrace
Olney, MD 20832
(301) 570-8892 (office)
(301) 570-7022 (fax)
www.ndsccenter.org
Susan Goodman susan1961@aol.com
National Down Syndrome Society (NDSS)
2520 Locustwood Place
Silver Spring, MD 20905
(301) 452-0811 (office)
(301) 879-1467 (fax)
http://www.NDSS.org
Ricki Sabia rsabia@ndss.org
Sara Weir
Stephanie Smith Lee slee@ndss.org
2606 Lasswade Lane
Oakton, VA 22124
(703) 938-4041 (office)
17
National Industries for the Blind (NIB)
1310 Braddock Place
Alexandria, VA 22314
(703) 310-0520 (office)
(703) 671-9053 (fax)
www.nib.org
James “Ned” Rupp nrupp@nib.org
Anthony “Tony” Stephens astephens@nib.org
Angela Hartley ahartley@nib.org
Rick Webster rwebster@nib.org
National Multiple Sclerosis Society (NMSS)
1100 New York Ave., NW, Ste. 660 East
Washington, DC 20005
(202) 408-1500 (office)
(202) 408-0696 (fax)
www.nationalmssociety.org
Lauren Chiarello lauen.chiarello@nmss.org
Laura Weidner laura.weidner@nmss.org
Kim Calder kim.calder@nmss.org
David Chatel david.chatel@nmss.org Bari Talente bari.talente@nmss.org
Ted Thompson
National Organization of Social Security
Claimants’ Representatives (NOSSCR)
1025 Connecticut Avenue, NW Suite 709
Washington, DC 20036
(202) 457-7775 (office)
(202) 457-7773 (fax)
http://www.nosscr.org
Ethel Zelenske nosscrdc@worldnet.att.net
National Organization on Disability (NOD)
77 Waters Street, Suite 204
New York, NY 10005
(646) 505-11910 (office)
(646) 505-1184 (fax)
http://www.nosscr.org
Kate D. Brady BradyK@nod.org
National PTA
1400 L Street, NW, #300
Washington, DC 20005
(202) 289-6790 (office)
(202) 289-6791 (fax)
National Rehabilitation Association (NRA)
633 South Washington Street
Alexandria, VA 22314-4109
(703) 836-0850 (office)
(703) 836-0848 (fax)
http://nationalrehab.org
Patricia Leahy pleahy@nationalrehab.org
18
National Respite Coalition (NRC)
4016 Oxford Street
Annandale, VA 22003
(703) 256-9578 (office)
(703) 256-0541 (fax)
http://www.chtop.com
Jill Kagan jbkagan@verizon.net
National Tourette Syndrome Association, Inc. (TSA)
1301 K Street, NW, #600 East
Washington, DC 20005
(202) 408-7009 (phone)
(202) 408-3260 (fax)
http://www.tsa-usa.org
Elridge Proctor elridge.proctor@tsa-usa.org
NISH
8401 Old Courthouse Road
Vienna, VA 22182
(571) 571-226-4660 (office)
(571) 288-9146 (fax)
http://www.nish.org
Tony Young tyoung@nish.org
David Fields davidfields@nish.org
Alicia Epstein aepstein@nish.org
Paralyzed Veterans of America (PVA)
801 18th
Street, NW
Washington, DC 20006
(202) 872-1300 (office)
(202) 416-7706 (fax)
http://www.pva.org
Lee Page (416-7694) leep@pva.org
Susan Prokop (416-7707) susanp@pva.org
Maureen McCloskey (416-7696) maureenm@pva.org
Bob Herman (416-7707) e-mail: bobhn@pva.org
Len Selfon e-mail: lens@pva.org
Rehabilitation Engineering and Assistive
Technology Society of North America (RESNA)
1700 N. Moore Street, Ste. 1540
Arlington, VA 22209
(703) 524-6686 (office)
(703) 524-6630 (fax)
http://www.resna.org
Nell Bailey nbailey@resna.org
Religious Action Center - Union for Reform Judaism
(URJ)
2027 Massachusetts Ave., NW
Washington, DC 20036
(202) 237-5620 (office)
(202) 237-5618 (fax)
www.rac.org
Rabbi Lynne Landsberg
lynneflandsberg@starpower.net
Ian Hainline ihainline@rac.org
19
Research Institute for Independent
Living (RIIL)
2322 40th
Place, NW, Ste. 203
Washington, DC 20007
(202) 295-9033 (office)
(202) 295-9034 (fax)
David Auxter dauxter@bellatlantic.net
School Social Work Association of
America (SSWAA)
3001 Veasey Terrace, NW, Ste. 825
Washington, DC 20008
(202) 686-1637 (office)
(202) 686-1637 (fax)
http://www.sswaa.org
Myrna Mandlawitz mandlawitz@verizon.net
Libby Nealis libbynealis@yahoo.com
Teacher Education Division/CEC (TED/CEC)
c/o AACTE
1307 New York Ave., NW, Ste. 300
Washington, DC 20005
(202) 478-4593 (office)
(202) 457-8095 (fax)
www.tedced.org
Jane West jwest@aacte.org
The Advocacy Institute
P.O. Box 565
Marshall, VA 20116
(540) 364-0051 phone
www.advocacyinstitute.org
Candace Cortiella Candace@advocacyinstitute.org
The Arc of the United States
1825 K Street, NW, Suite 1200
Washington, DC 20006
(202) 783-2229 (office)
(202) 783-5433 (TDD)
(202) 534-3731 (fax) http://www.thearc.org
Marty Ford ford@thearc.org
Julie Ward ward@thearc.org
Maureen Fitzgerald fitzgeerald@thearc.org
Annie Acosta acosta@thearc.org
TJ Sutcliffe Sutcliffe@thearc.org
Brenda Walker walker@thearc.org
The Daniel Jordan Fiddle Foundation
P.O. Box 1149
Ridgewood, NJ 07451-1149
(877) 444-1149 or (201) 444-4141
www.djfiddlefoundation.org
Pamela Ball pam@djfiddlefoundation.org
20
The Jewish Federations of North America
1720 I Street, NW, #800
Washington, DC 20006
(202) 736-5871 (office)
(202) 785-4937 (fax)
http://www.ujc.org
Jonathan Westin jonathan.westin@ujc.org
David Feinman
David.feinman@jewishfederations.org
United Cerebral Palsy (UCP)
1825 K Street, NW, Suite 600
Washington, DC 20006
(202) 776-0406 (office)
(202) 776-0414 (fax) http://www.ucp.org
Connie Garner CGarner@ucp.org
Kaelan Richards
Kate Josephson
United Spinal Association (USA)
1660 L Street, NW, Ste. 504
Washington, DC 20036
(202) 556-2076 (office)
(202) 223-2380 (fax)
www.unitedspinal.org
Alexandra Bennewith abennewith@unitedspinal.org
VetsFirst, a program of United Spinal Association
Heather Ansley hansley@vetsfirst.org
Carol Tyson ctyson@unitedspinal.org
United States International Council
on Disabilities (USICD)
1710 Rhode Island Ave., NW, 5th
Floor
Washington, DC 20036
(202) 207-0338 (office)
David Morrissey dmorrissey@usicd.org
Esme` Grant
Vietnam Veterans of America (VVA)
8719 Colesville Road, Suite 100
Silver Spring, MD 20910
(301) 585-4000 ext. 118 (office)
(301) 585-3180 (fax)
Bernard Edelman bedelman@vva.org
NEW MEMBERS – 2012
Advance CLASS Inc. (LFA)
1815 K Street, NW #600
Washington, DC 20036
(202) 349-1150 (office)
(202) 349-1156 (fax)
Connie Gardner cgarner@advanceclass.org
Kate Josephson
21
American Council on Rural Special
Education (ACRES)
509 Allen Hall
P.O. Box 6122
Morgantown, WV 26506-6122
(304) 293-3835 (office)
(304) 292-8945 (fax)
www.acres-sped.org
Barbara Ludlow acres-sped@mail.wvu.edu
Legal Action Center (LAC)
236 Massachusetts Ave., NE # 505
Washington, DC 20002
(202) 544-5478 (office)
(202) 544-5712 (fax)
Gabrielle de la Gueronniere
gdelagueronniere@lac-dc.org
Lupus Foundation of America (LFA)
2000 L Street, NW #410
Washington, DC 20036
(202) 349-1150 (office)
(202) 349-1156 (fax)
Kim Cantor cantor@lupus.org
Sara Change chang@lupus.org
National Health Law Program (NHeLP)
1444 I Street NW, @1105
Washington, DC 20005
(202) 289-7661 (office)
(202) 289-7724 (fax)
Mara Youdelman youdelman@healthlaw.org
David Machledt machledt@healthlaw.org
Special Needs Alliance (SNA)
6341 E. Brian Kent Drive
Tucson, AZ 85710
(520) 546-1005 (office)
(520) 546-5119 (fax)
Jihane Rohrbacker jihane@specialneedsalliance.org
Morris Klein morrisklein@netzero.net
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