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MEMBERSHIP
DIRECTORY
2011
Rev. 8/8/2011
1660 L Street, NW, Suite 701 • Washington, DC 20036 • PH 202/783-2229 • FAX 202/783-8250 • Info@c-c-d.org • www.c-c-d.org
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CCD MEMBERSHIP DIRECTORY
2011
AARP Foundation (AARP) 601 E Street, NW Washington, DC 20049 (202) 434-3704 (office) (202) 434-2320 (fax) http://www.aarp.org
Daniel Kohrman dkohrman@aarp.org Julie Nepveu jnepveu@aarp.org Ken Zeller kzeller@aarp.org
ACCSES (formerly American Congress of Community Supports and Employment Services) 1501 M Street NW, 7th Floor Washington, DC 20005 (202) 466-3355 (office) (202) 466-7571 (fax) www.accses.org
Theresa Morgan Theresa.morgan@ppsv.com Gary Goosman ggoosman@verizon.net Terry Farmer trfarmer@comcast.net
Adapted Physical Activity Council (APAC) 2322 40th Place, NW, Ste. 203 Washington, DC 20007 (202) 295-9033 (office) (202) 295-9033 (fax)
Sue Parham sparham@verizon.net
American Academy of Pediatrics (AAP) 601 13th Street, NW, Ste. 400N Washington, DC 20005 (202) 347-8600 (office) (202) 393-6137 (fax) www.aap.org
Bob Hall rhall@aap.org Cindy Pellegrini cpellegrini@aap.org Kristen Mizzi kmizzi@aap.org Betsy Dunford bdunford@aap.org Ielnaz Kashefipour ikashefipour@aap.org Alison Perencevinch aprencevich@aap.org
American Academy of Physical Medicine and Rehabilitation (AAPM&R) 1501 M Street NW, 7th Floor Washington, DC 20005 (202) 466-6550 (office) (202) 785-1756 (fax) www.aapmr.org
Theresa Morgan Theresa.morgan@ppsv.com
American Association of People with Disabilities (AAPD) 1629 K St., NW Suite 503 Washington, DC 20006 (202) 457-0046 (office) V/TTY (202) 457-0473 (fax) http://www.aapd-dc.org
Helena Berger e-mail: hberger@aapd.com Jenifer Simpson e-mail: jsimpson@aapd.com Jim Dickson e-mail: jdickson@aapd.com Ilycia Schwartz (Intern) e-mail: ischwartz@aapd.com Robin Shaffert e-mail: rshaffert@aapd.com David Heymsfeld dheymsfeld@gmail.com Francesca Mastrangelo fmastrangelo@aapd.com
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American Association on Health and Disability (AAHD) 110 N. Washington Street, #328J Rockville, MD 20850 (301) 545-6140 (office) (301) 545-6144 (fax) www.aahd.us
Roberta Carlin rcarlin@aahd.us Clarke Ross clarkeross10@comcast.net
American Association on Intellectual and Developmental Disabilities (AAIDD) 501 Third Street, NW, Ste. 200 Washington, DC 20001 (202) 387-1968 (office) (202) 387-2193 (fax) http://www.aaidd.org
Joyce Martin jmartin@aaidd.org Margaret Nygren mnygren@aaidd.org
American Cancer Society (ACS) 901 E Street, NW, Suite 500 Washington, DC 20004 (202) 661-5707 (office) (202) 661-5750 (fax)
American Council of the Blind (ACB) 2200 Wilson Blvd, Suite 650 Arlington, VA 22201 (202) 467-5081 (office) (202) 467-5085 (fax) http://www.acb.org
Eric Bridges ebridges@acb.org
American Dance Therapy Association (ADTA) c/o MRM Associates 2800 Quebec Street, NW, Ste. 218 Washington, DC 20008 (202) 421-3526 (office) (202) 686-1637 www.adta.org
Myrna Mandlawitz mandlawitz@verizon.net
American Diabetes Association (ADA) 1701 North Beauregard Street Alexandria, VA 22311 (703) 299-5519 (office) (703) 549-8748 (fax) www.diabetes.org
Shereen Arent sarent@diabetes.org Claire Borelli cborelli@diabetes.org Brian Dimmick bdimmick@diabetes.org Gary Gross ggross@diabetes.org Amy Wotring awotring@diabetes.org
American Foundation for the Blind (AFB) 1660 L Street, NW, Ste.513 Washington, DC 20036 (202) 822-0830 (office/TDD) (202) 822-0838 (fax) http://www.afb.org
Mark Richert 202-822-0833 direct line mrichert@afb.net
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American Medical Rehabilitation Providers Association (AMRPA) 1710 N Street, NW Washington, DC 20036-2907 (202) 223-1920 (office) (202) 223-1925 (fax) www.amrpa.org
Carolyn Zollar czollar@amrpa.org Peter Thomas pthomas@ppsv.com Theresa Morgan Theresa.morgan@ppsv.com Caroline Gould caroline.gould@ppsv.com Sarah Nicholls snicholls@amrpa.org
American Music Therapy Association (AMTA) 8455 Colesville Road, Ste. 1000 Silver Spring, MD 20910 (301) 589-3300 (office) (301) 589-5175 (fax) http://www.musictherapy.org
Judy Simpson simpson@musictherapy.org Rebecca Smith smithr@musictherapy.org Myrna Mandlawitz mandlawitz@verizon.net
American Network of Community Options And Resources (ANCOR) 1101 King Street, #380 Alexandria, VA 22314 (703) 535-7850 (office) (703) 535-7660 (fax) http://www.ancor.org
Suellen Galbraith sgalbraith@ancor.org
American Occupational Therapy Association (AOTA) 4720 Montgomery Lane Bethesda, MD 20824-1220 (3010 652-2682 (office) (301) 652-7711 (fax) http://www.aota.org
Tim Nanof tnanof@aota.org
American Physical Therapy Association (APTA) 1111 N. Fairfax Street Alexandria, VA 22314 (703) 684-2782 (office) (703) 684-7343 (fax) http://www.apta.org
Deborah Crandall deborahcrandall@apta.org Michael Hurlbut michaelhurlbut@apta.org Nate Thomas natethomas@apta.org
American Psychological Association (APA) 750 First Street, NE Washington, DC 20002-4242 (202) 336-5500 (office) (202) 336-6123 (TDD) (202) 336-6040 (fax) http://www.apa.org/ppo/
Anju Khubchandani akhubchandani@apa.org Stefanie Reeves sreeves@apa.org
American Speech-Language-Hearing Association (ASHA) 444 N. Capitol Street, NW, Ste. 715 Washington, DC 20001 (202) 624-7750 (office) (202) 624-5955 (fax) http://www.asha.org
Catherine Clarke cclarke@asha.org Laurie Alban-Havens lalanhavens@asha.org Susan Karr skarr@asha.org 2200 Research Boulevard Rockville, MD 20850 (301) 296-5684 (office) (301) 296-8579
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American Therapeutic Recreation Association (ATRA) 1501 M Street NW, 7th Floor Washington, DC 20005 (202) 466-6550 (office) (202) 785-1756 (fax) http://www.atra-tr.org
Peter Thomas pthomas@ppsv.com Caroline Gould caroline.gould@ppsv.com Theresa Morgan theresa.morgan@ppsv.com
Amputee Coalition of America (ACA) P.O. Box 73725 Washington, DC 20058 (202) 302-4373 (office) (800) 599-8994 (fax)
Dan Ignaszewski email: dan@amputee-coalition.org
APSE – The Network on Employment (APSE) 451 Hungerford Drive, Ste. 700 Rockville, MD 20850 (414) 581-3032 (office) (804) 278-9377 (fax) www.apse.org
Laura Owens lowens@apse.org Nancy Molftenter nancy@apse.org Susan Goodman susan@apse.org
Association for Behavior Analysis International (ABAI) 601 Elmwood Ave, Box 671 University of Rochester Medical Center Rochester,NY 14642 (585) 273-5974 (office) (585) 276-2605 (fax)
Jennifer Zarcone Jennifer_zarcone@urmc.rochester.edu
Association of Assistive Technology Act Programs (ATAP) P.O. Box 32 Delmar, NY 12054 (518) 439-1263 (518) 439-3451 (fax) www.ataporg.org
Audrey Busch abusch@wpllc.net 700 McKnight Park Drive, Suite 708 Pittsburgh, PA 15237 Ellin Nolan enolan@wpllc.net 1101 Vermont Ave., NW, Ste. 400 Washington DC 20005 (202) 289-3900 (office) (202) 371-0197 (fax)
Association of University Centers on Disabilities (AUCD) 1010 Wayne Ave., Ste. 920 Silver Spring, MD 20910 (301) 588-8252 (office) (301) 588-2842 (fax) http://www.aucd.org
Kim Musheno kmusheno@aucd.org Ellen Jensby ejensby@aucd.org Amy Lulinski-Norris alnorris@aucd.org
Autism National Committee, Inc. (ANC) P.O. Box Arlington, VA 22207 (703) 598-9610 (office) www.autcom.org
James Butler jbutler5700@gmail.com Jessica Butler Jessica@jnba.net 3 Bedford Green South Burlington, VT 05403
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Autism Speaks 1990 K Street, NW Washington, DC 20006 (202) 955-3312 (office) (202) 424-5834 (fax) www.autismspeaks.org
Bazelon Center for Mental Health Law (BCMHL) 1101 15th Street, NW, Ste. 1212 Washington, DC 20005 (202) 467-5730 (office) (202) 223-0409 (fax) http://www.bazelon.org
Bonnie Milstein bonniem@bazelon.org Laurel Stine laurels@bazelon.org Allison Wishon Seigwarth allisonw@bazelon.org Chris Koyanagi thompson@bazelon.org Elaine Alfano elaine@bazelon.org Lewis Bossing lewisb@bazelon.org Jennifer Mathis jenniferm@bazelon.org
Brain Injury Association of America (BIAA) 1608 Spring Hill Road, Ste. 110 Vienna, VA 22182 (703) 761-0750 (office) (703) 761-0755 (fax) www.biausa.org
Robert Demichelis rdemichelis@biausa.org Sarah D’Orsie sdorsie@biausa.org Theresa Morgan Theresa.morgan@ppsv.com
Center for Medicare Advocacy, Inc. (CMA) 1025 Connecticut Ave., NW, #709 Washington, DC 20036 (202) 293-5760 (office) (202) 293-5764 (fax) www.medicareadvocacy.org
Alfred J. Chiplin achiplin@medicareadvocacy.org
Center for Workers with Disabilities (CWD) 1133 19th Street, NW, Ste. 400 Washington, DC 20036 (202) 682-0100 (office) (202) 289-6555 (fax) http://cwd.aphsa.org
Nanette Relave NRelave@aphsa.org Megan Lape mlape@aphsa.org
Center on Budget and Policy Priorities (CBPP) 820 First Street, NE, Suite 510 Washington, DC 20002 (202) 408-1080 (office) (202) 408-1056 (fax) www.cbpp.org
Judy Solomon solomon@cbpp.org
Children and Adults with Attention-Deficit/ Hyperactivity Disorder (CHADD) 8181 Professional Place, Ste. 150 Landover, MD 20785 (301) 306-7070 (office) (301) 306-7090 (fax) http://www.chadd.org
Ruth Hughes Ruthj_hughes@chadd.org
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Community Access National Network (CANN) 1773 T Street, NW Washington, DC 20009 (202) 479-2543 (office) (202) 479-1169 (fax) www.tiicann.org
Tom McCormack tomxix@ix.netcom.com
Conference of Educational Administrators of Schools and Programs for the Deaf (CEASD) P.O. Box 685 Washington Grove, MD 20880 (301) 990-2847 (office) (301) 990-2848 (fax) http://www.ceasd.org
Barbara Raimondo baraimondo@me.com
Corporation for Supportive Housing (CSH) 1731 Connecticut Ave., NW, 4th Floor Washington, DC 20009 (202) 588-1110 (office) (202) 330-5960 (fax) www.csh.org
Peggy Bailey peggy.bailey@csh.org Jordan Press jordan.press@csh.org
Council for Exceptional Children (CEC) 1110 North Glebe Road, Ste. 300 Arlington, VA 22201 (800) 224-6830 (office) (703) 243-0410 (fax) http://www.cec.sped.org
Deb Ziegler debz@cec.sped.org Kimberly Hymes kimh@cec.sped.org Lindsay E. Jones lindsayj@cec.sped.org
Council for Learning Disabilities (CLD) 15122 Red Cedar Drive Burtonsville, MD 20866-1386 (301) 549-1779 (home) http://www.cldinternational.org
Debi Gartland gartland@towson.edu
Council of Parent Attorney and Advocates (COPAA) P.O. Box 6767 Towson, Maryland 21285 (410) 372-0208 (office) (410) 372-0209 (fax) www.copaa.org
Robert Berlow robertberlow@comcast.net Denise Marshall denise@copaa.org
Council of State Administrators of Vocational Rehabilitation (CSAVR) 4733 Bethesda Avenue, #330 Bethesda, MD 20814 (301) 654-8414 (office) (301) 654-5542 (fax) www.rehabnetworking.org
Rita Martin rmartin@rehabnetwork.org Paul Seifert paulseifert@rehabnetwork.org
Dialysis Patient Citizens (DPC) 900 7th Street, NW Ste. 670 Washington, DC 20001 (202) 789-6931 (office) (202) 789-6935 (fax)
Hrant Jamgochian hjamgochian@dialysispatients.org
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Disability Rights Education and Defense Fund, Inc. (DREDF) 1660 L Street N.W, #701 Washington, DC 20036 202-725-5523 (office) (fax) http://www.dredf.org
Rhonda Neuhaus rneuhaus@dredf.org Pat Wright pwright@dredf.org Susan Henderson shenderson@dredf.org Marilyn Golden mgolden@dredf.org Mary Lou Breslin mlbreslin@dredf.org Pamela Brain pamelabrain@berkeley.edu 3075 Adeline Street, Suite 210 Berkeley, CA 94703 (510) 644-2555 ext. 5247 (Office) (510) 841-8645 (fax)
Division for Early Childhood of the CEC (DEC/CEC) 6129 Calico Pool Lane Burke, VA 22015 (703) 850-1187 (office) (703) 250-4935 (fax) http://www.dec-sped.org
Sharon Walsh walshtaylo@aol.com
Division for Learning Disabilities of CEC (DLD) 932 Raymond Rd. Charlottesville, VA 22959- (434) 924-0759 (office) (434) 924-0747 (fax) www.teachingld.org
David Bateman dfbate@ship.edu 223 Conway Street Carlisle, PA 17013 (717) 253-8961 (office) (717) 477-4036 (fax)
Easter Seals (ES) 1425 K Street, NW, Ste 200 Washington, DC 20005 (202) 347-3066 (office) (202) 737-7914 (fax) http://www.easter-seals.org
Jennifer Dexter jdexter@easterseals.com Katy Beh Neas kneas@easterseals.com Denise Rozell drozell@easterseals.com Mary Andrus mandrus@easterseals.com Maynard Friesz mfriesz@easterseals.com
Epilepsy Foundation (EF) 8701 Professional Place East Landover, MD 20785-2238 (301) 459-3700 (office) (301) 731-3842 (fax) http://www.epilepsyfoundation.org
Bill Murphy bmurphy@efa.org Angela Ostrom aostrom@efa.org Gabrielle Lincoff glincoff@efa.org Sandy Finucane afinucane@efa.org Donna Meltzer dmeltzer@efa.org
Family Voices 2030 M Street, NW #350 Washington, DC 20036 (202) 546-0558 (office) www.familyvoices.org
Janis Guerney jguerney@famiilyvoices.org
Goodwill Industries International (GII) 600 Maryland Ave., SW, #800 West Washington, DC 20008 (202) 508-7494 (office) (202) 530-6500 (fax) http://www.goodwill.org
Seth Turner seth.turner@goodwill.org Laura Walling laura.walling@goodwill.org Jodi Driscoll jodi.driscoll@goodwill.org
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Helen Keller National Center (HKNC) 141 Middle Neck Road Sands Point, NY 11050 (516) 944-8900 (office) (516) 944-8367 (TTY) (516) 944-5984 (fax) www.hknc.org
Michael Fagbemi mike.fagbemi@hknc.org
Higher Education Consortium for Special Education (HECSE) c/o AACTE 1307 New York Ave., NW, Ste. 300 Washington, DC 20005 (202) 478-4593 (office) (202) 457-8095 (fax) www.hecse.org
Jane West jwest@aacte.org
IDEA Infant and Toddler Coordinators Association 6129 Calico Pool Lane Burke, VA 22015 (703) 850-1187 (office) (703) 250-4935 (fax) www.ideainfanttoddler.org
Sharon Walsh walshtaylo@aol.com Maureen Greer mhmgreer@aol.com
Inter/National Association of Business, Industry And Rehabilitation (I-NABIR) P.O. Box 15242 Washington, DC 20003 (202) 543-6353 (office) (202) 546-2854 (fax) www.inabir.org
Charles Harles charlie@harles.com Andrea Harles andrea@harles.com
Learning Disabilities Association of America (LDA) 4001 N 9th Street, #505 Arlington, VA 22203 (703) 243-2614 (office) (703) 243-0894 (fax) http://www.ldaamerica.org
Justine Maloney justinelda@earthlink.net Libby Nealis libbynealis@yahoo.com Myrna Mandlawitz Mandlawitz@verizon.net 3001 Veeazey Terrace, NW Washington, DC 20008 (202) 686-1637 (office/fax)
Lutheran Services in America (LSA) 122 C Street, NW, Suite #125 Washington, DC 20001 (202) 626-7945 (office) (202) 628-5421 (fax) www.lutheranservices.org
Meg Cooch mcooch@lutheranservices.org
Mental Health America (MHA) 2000 N. Beauregard St., 6th Floor Alexandria, VA 22311 (571) 236-2802 (office) (703) 684-5968 (fax) http://www.nmha.org
Julio Abreu jabreu@nmha.org
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National Alliance for Caregiving (NAC) 4720 Montgomery Lane, Suite #205 Bethesda, MD 20814 (301) 718-8444 (office) (301) 951-9067 (fax) www.caregiving.org
Enzo Pastore enzo@caregiving.org
National Alliance on Mental Illness (NAMI) 2107 Wilson Boulevard, Ste. 300 Arlington, VA 22201 (703) 516-7222 (office) (703) 516-0694 (fax) http://www.nami.org
Andrew Sperling andrew@nami.org Darcy Gruttadaro darcy@nami.org Dana Markey danac@nami.org Sita Diehl sdiehl@nami.org
National Alliance to End Homelessness (NAEH) 1518 K Street NW, #410 Washington, DC 20005 (202) 638-1526 (office) (202) 638-4664 (fax) www.endhomelessness.org
Lisa Stand lstand@naeh.org
National Association for the Advancement of Orthotics and Prosthetics (NAAOP) 1501 M Street NW, 7th Floor Washington, DC 20005 (202) 466-6550 (office) (202) 737-2517 (fax) www.naaop.org
Peter Thomas pthomas@ppsv.com Theresa Morgan theresa.morgan@ppsv.com Caroline Gould caroline.gould@ppsv.com
National Association of Councils on Developmental Disabilities (NACDD) 1660 L Street, NW, Suite 700 Washington, DC 20036 (202) 506-5813 (office) (202) 506-5846 (fax) http://www.nacdd.org
Michael Brogioli mbrogioli@nacdd.org Peggy Hathaway phathaway@nacdd.org Chris Rodriguez crodriguez@ucp.org
National Association of County and City Health Officials (NACCHO) 1100 17th Street, NW Second Floor Washington, DC 20036 (202) 783-5550 (office) (202) 783-1583 (fax)
Jennifer Li jli@naccho.org Sarah Yates syates@naccho.org
National Association of County Behavioral Health and Development Disability Directors (NACBHDD) 25 Massachusetts Avenue, NW, Ste. 500 Washington, DC 20001 (202) 661-8816 (office) (202) 661-8871 (fax) www.nacbhd.org
Ron Manderscheid rmanderscheid@nacbhd.org
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National Association of Disability Representatives (NADR) c/o Akerman Senterfitt LLP 750 9th Street, NW, Ste. 750 Washington, DC 20001 (202) 824-1725 (office) (202) 393-5959 (fax) www.nadr.org
Jeanne Morin jmorin@akerman.com
National Association of Private Special Education Centers (NAPSEC) 1522 K Street, NW, Ste. 1032 Washington, DC 20005 (202) 408-3338 (office) (202) 408-3340 (fax) http://www.napsec.com
Sherry L. Kolbe napsec@aol.com
National Association of School Psychologists (NASP) 4340 East West Highway, Ste. 402 Bethesda, MD 20814 (301) 657-0270 (office) (301) 657-0275 (fax) http://www.nasponline.org
Mary Beth Klotz mbklotz@naspweb.org Stacy Skalski sskalski@naspweb.org
National Association of Social Workers, Inc. (NASW) 750 First Street, NE, #700 Washington, DC 20002 (202) 408-8600 (office) (202) 336-8311 (fax) www.socialworkers.org
James Finley jfinley@naswdc.org
National Association of State Directors of Developmental Disabilities Services (NASDDDS) 113 Oronoco Street Alexandria, VA 22314 (703)·683·4202 (office) (703)·683·8773 or (703)·684·1395 (fax) www.nasddds.org
Dan Berland dberland@nasddds.org
National Association of State Directors of Special Education (NASDSE) 1800 Diagonal Road, Ste. 320 Alexandria, VA 22314 (703) 519-3800 (office) (703) 519-3808 (fax) http://www.nasdse.org
Nancy Reder nancy.reder@nasdse.org Amanda Lowe amanda.lowe@nasdse.org
National Association of State Head Injury Administrators (NASHIA) 4330 East West Highway, Suite 301 Bethesda, MD 20814 (301) 656-3145 (office) (301) 656-3530 (fax) www.nashia.org
Susan Vaughn slvaughn@nashia.org
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National Association of State Mental Health Program Directors (NASMHPD) 66 Canal Center Plaza, Ste. 302 Alexandria, VA 22314 (703) 682-5194 (office) (703) 548-9517 (fax) www.nasmhpd.org
National Center for Learning Disabilities (NCLD) 1101 Vermont Ave., NW, #400 Washington, DC 20005 (703) 476-4894 (office) (202) 842-1942 (fax) www.ncld.org
Laura Kaloi lkaloi@ncld.org
National Coalition on Deaf-Blindness (NCDB) 141 Middle Neck Road Sands Point, NY 11050 (1-516) 944-8900 (office) (1-516) 944-5984 (fax) http://www.hknc.org
Michael Fagbemi mike.fagbemi@hknc.org
National Collaborative on Workforce And Disability/Youth (NCWD/Y) c/o Institute for Educational Leadership 4455 Connecticut Ave., NW, #310 Washington, DC 20008 (202) 822-8405 (office) (202) 872-4050 (fax) www.ncwd-youth.info
Curtis Richards richardsc@iel.org
National Council for Community Behavioral Healthcare (NCCBH) 1701 K K St.street, NW, Ste. 400 Washington, DC 20006 (202) 684-7457 (office) (202) 684-7472 (fax) www.nccbh.org
Charles Ingoglia chucki@thenationalcouncil.org Mohini Venkatesh mohiniv@thenationalcouncil.org Laura Galbreath laurag@thenationalcouncil.org Jeannie Campbell jeanniec@thenationalcouncil.org Rebecca Farley rebeccaf@thenationalcouncil.org Bryan Gibb bryang@thenationalcouncil.org Stacey Larson staceyl@thenationalcouncil.org Al Guida aguida@guidelobby.com
National Council on Aging (NCOA) 1901 L Street, NW, 4th Floor Washington, DC 20036 (202) 479-6678 (office) (202) 479-0735 (fax)
Howard Bedlin howard.bedlin@ncoa.org Joe Caldwell joe.caldwell@ncoa.org
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National Council on Independent Living (NCIL) 1710 Rhode Island Ave., NW, 5th Floor Washington, DC 20036 (202) 207-0334 (office) (202) 207-0341 (fax) www.ncil.org
Kelly Buckland Kelly@ncil.org Austin Walker Austin@ncil.org Crystal Jones crystal@nciol.org L. Dara Baldwin dara@ncil.org Thea Rae Ervin thea@ncil.org Judy Roy bhamilc1@bellsouth.net Independent Living Resources of Gtr. Birmingham (250) 251) 2223 ext. 102 Steven Thovson steve@swcil.com Southwestern Center for Independent Living (507) 532-2221 Brian Peters bpeters@independencefirst.org Independence First (414) 937-5912
National Disability Institute (NDI) 1667 K Street, NW, #640 Washington, DC 20006 (202) 296-2043 (office) (202) 296-2047 (fax) www.ndi-inc.org
Johnette Hartnett jhartnett@ndi-inc.org
National Disability Rights Network (NDRN) 900 2nd Street, NE, Ste. 211 Washington, DC 20002 (202) 408-9514 (office) (202) 408-9520 (fax) http://www.ndrn.org
Cheryl Bates-Harris cheryl.bates-harris@ndrn.org Eric Buehlmann eric.buehlmann@ndrn.org Curt Decker curt.decker@ndrn.org Ron Hager ron.hager@ndrn.org David Hutt david.hutt@ndrn.org Cindy Smith cindy.smith@ndrn.org Patrick Wojahn Patrick.wojahn@ndrn.org Delores Scott delores.scott@ndrn.org
National Down Syndrome Congress (NDSC) 2107 Dumfries Terrace Olney, MD 20832 (301) 570-8892 (office) (301) 570-7022 (fax) www.ndsccenter.org
Susan Goodman susan1961@aol.com
National Down Syndrome Society (NDSS) 2520 Locustwood Place Silver Spring, MD 20905 (301) 452-0811 (office) (301) 879-1467 (fax) http://www.NDSS.org
Ricki Sabia rsabia@ndss.org Stephanie Smith Lee slee@ndss.org 2606 Lasswade Lane Oakton, VA 22124 (703-938-4041 (office)
National Industries for the Blind (NIB) 1310 Braddock Place Alexandria, VA 22314 (703) 310-0520 (office) (703) 671-9053 (fax) www.nib.org
Brian Hurley bhurley@nib.org James “Ned” Rupp nrupp@nib.org Anthony “Tony” Stephens astephens@nib.org Angela Hartley ahartley@nib.org
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National Multiple Sclerosis Society (NMSS) 1100 New York Ave., NW, Ste. 660 East Washington, DC 20005 (202) 408-1500 (office) (202) 408-0696 (fax) www.nationalmssociety.org
Lauren Chiarello lauen.chiarello@nmss.org Laura Weidner laura.weidner@nmss.org Kim Calder kim.calder@nmss.org David Chatel david.chatel@nmss.org Bari Talente bari.talente@nmss.org
National Organization of Social Security Claimants’ Representatives (NOSSCR) 1025 Connecticut Avenue, NW Suite 709 Washington, DC 20036 (202) 457-7775 (office) (202) 457-7773 (fax) http://www.nosscr.org
Ethel Zelenske nosscrdc@worldnet.att.net
National PTA 1400 L Street, NW, #300 Washington, DC 20005 (202) 289-6790 (office) (202) 289-6791 (fax)
Elizabeth Rorick erorick@pta.org
National Rehabilitation Association (NRA) 633 South Washington Street Alexandria, VA 22314-4109 (703) 836-0850 (office) (703) 836-0848 (fax) http://nationalrehab.org
Patricia Leahy pleahy@nationalrehab.org Beverlee Stafford Beverlee@nationalrehab.org
National Respite Coalition (NRC) 4016 Oxford Street Annandale, VA 22003 (703) 256-9578 (office) (703) 256-0541 (fax) http://www.chtop.com
Jill Kagan jbkagan@verizon.net
National Tourette Syndrome Association, Inc. (TSA) 1301 K Street, NW, #600 East Washington, DC 20005 (202) 408-7009 (phone) (202) 408-3260 (fax) http://www.tsa-usa.org
Elridge Proctor elridge.proctor@tsa-usa.org
NISH 8401 Old Courthouse Road Vienna, VA 22182 (571) 571-226-4660 (office) (571) 288-9146 (fax) http://www.nish.org
Tony Young tyoung@nish.org Bill Jefferson bjefferson@nish.org David Fields davidfields@nish.org Alicia Epstein aepstein@nish.org John Kelly jkelly@nish.org
Paralyzed Veterans of America (PVA) 801 18th Street, NW Washington, DC 20006 (202) 872-1300 (office) (202) 416-7706 (fax) http://www.pva.org
Lee Page (416-7694) leep@pva.org Susan Prokop (416-7707) susanp@pva.org Maureen McCloskey (416-7696) maureenm@pva.org Bob Herman (416-7707) e-mail: bobhn@pva.org Len Selfon e-mail: lens@pva.org
15
Physician-Parent Caregivers, Inc. (PPC) 9700 Great Seneca Highway, Suite 258 Rockville, MD 20850 (301) 983-0406 (office) (240) 238-2601 (fax) www.phusicianparent.org
Santi KM Bhagat santi@ppc-inc.org John Reiss jgr@ichp.ufl.edu
Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) 1700 N. Moore Street, Ste. 1540 Arlington, VA 22209 (703) 524-6686 (office) (703) 524-6630 (fax) http://www.resna.org
Paul Galonsky pgalonsky@resna.org Nell Bailey nbailey@resna.org
Research Institute for Independent Living (RIIL) 2322 40th Place, NW, Ste. 203 Washington, DC 20007 (202) 295-9033 (office) (202) 295-9034 (fax)
David Auxter dauxter@bellatlantic.net
School Social Work Association of America (SSWAA) 3001 Veasey Terrace, NW, Ste. 825 Washington, DC 20008 (202) 686-1637 (office) (202) 686-1637 (fax) http://www.sswaa.org
Myrna Mandlawitz mandlawitz@verizon.net Libby Nealis libbynealis@yahoo.com
TASH 1025 Vermont Avenue NW, Ste. 300 Washington, DC 20005 (202) 540-9016 (office) (202) 540-9019 (fax) http://www.tash.org
Barb Trader btrader@tash.org
Teacher Education Division/CEC (TED/CEC) c/o AACTE 1307 New York Ave., NW, Ste. 300 Washington, DC 20005 (202) 478-4593 (office) (202) 457-8095 (fax) www.tedced.org
Jane West jwest@aacte.org
The Advocacy Institute P.O. Box 565 Marshall, VA 20116 (540) 364-0051 phone www.advocacyinstitute.org
Candace Cortiella Candace@advocacyinstitute.org
16
The Arc of the United States 1660 L Street, NW, Suite 701 Washington, DC 20036 (202) 783-2229 (office) (202) 783-5433 (TDD) (202) 783-8250 (fax) http://www.thearc.org
Marty Ford ford@thearc.org Julie Ward ward@thearc.org Maureen Fitzgerald fitzgeerald@thearc.org Annie Acosta acosta@thearc.org TJ Sutcliffe Sutcliffe@thearc.org Brenda Walker walker@thearc.org Intern: Sarah Baron sbaron182gmail.com
The Jewish Federations of North America 1720 I Street, NW, #800 Washington, DC 20006 (202) 736-5871 (office) (202) 785-4937 (fax) http://www.ujc.org
Jonathan Westin jonathan.westin@ujc.org David Feinman David.feinman@jewishfederations.org Stephan Kline Stephan.kline@jewishfederations.org Allison Redisch allison.redisch@jewishfederations.org
United Cerebral Palsy 1660 L Street, NW, Suite 700 Washington, DC 20036 (202) 776-0406 (office) (202) 776-0414 (fax) http://www.ucp.org
Connie Garner CGarner@ucp.org Chris Thomson cthomson@ucp.org Chris Rodriguez crodriguez@ucp.org
United Spinal Association (USA) 1660 L Street, NW, Ste. 510 Washington, DC 20036 (202) 556-2076 (office) (202) 223-2380 (fax) www.unitedspinal.org
Andrew Morris amorris@unitedspinal.org Joseph Isaacs jisaacs@unitedspinal.org Terry Moakley ext. 1-277 tmoakley@unitedspinal.org NY Office: 105 Robinhood Lane West Nyack, NY 10994 (718) 803-3782 (office) (fax) VetsFirst, a program of United Spinal Association Heather Ansley hansley@vetsfirst.org
United States International Council on Disabilities (USICD) 1710 Rhode Island Ave., NW, 5th Floor Washington, DC 20036 (202) 207-0338 (office)
David Morrissey dmorrissey@usicd.org
Urban Special Education Leadership Collaborative Education Development Center (EDC) 55 Chapel Street Newton, MA 02458 (617) 618-2340 (office) (617) 969-3440 (fax) (617) 964-5448 TDD www.urbancollaborative.org
David Riley driley@edc.org
17
Vietnam Veterans of America (VVA) 8719 Colesville Road, Suite 100 Silver Spring, MD 20910 (301) 585-4000 ext. 118 (office) (301) 585-3180 (fax)
Bernard Edelman bedelman@vva.org
World Institute on Disability (WID) 3075 Adeline Street, Suite 280 Berkeley, CA 94703 (510) 225-6400 (office) (510) 225-0477 (fax) (510) 225-0478 (TTD) www.wid.org
Thomas Foley tom@wid.org Anita S. Aaron anita@wid.org Bryon MacDonald bryon.wid@gmail.com
NEW MEMBERS – 2011
American Bar Association (ABA) Commission on Mental & Physical Disability Law 740 15th Street, NW, 9th Floor Washington, DC 20005 (202) 662-1576 (office) (2020 442-3439 (fax) www.americanbar.org/disability
William Phelan william.phelan@americanbar.org Mildred Rivera-Rau mildred.rovera@eeoc.gov
Health & Disability Advocates 623 Kennedy Street, NW Washington, DC 20011 (202) 506-6481 (office) (202) 506-6481 (fax) www.hdadvocates.org
Lisa Ekman e-mail: lekman@hdadvocates.org
Union for Reform Judaism (URJ) 2027 Massachusetts Ave., NW Washington, DC 20036 (202) 237-5620 (office) (202) 237-5618 (fax) www.rac.org
Rabbi Lynne Landsberg lynneflandsberg@starpower.net Deborah Swerdlow dswerdlow@rac.org
National Association of States United for Aging and Disabilities (NASUAD) 1201 15th Street, NW, Suite 250 Washington, DC 20005 (202) 898-2578 (office) (202) 898-2583 (fax) www.nasuad.org
Mike Cheek mcheek@nasuad.org Leslie Finnan lfinnan@nasuad.org Kelsey Walter kwalker@nasuad.org Sara Tribe striabe@nasuad.org Rex O’Rourke rorourke@nasuad.org Linda Copeland lcopeland@nasuad.org
18
The Daniel Jordan Fiddle Foundation
P.O. Box 1149
Ridgewood, NJ 07451-1149
(877) 444-1149 or (201) 444-4141
www.djfiddlefoundation.org
Linda Walder Fiddle linda@djfiddlefoundation.org
Pamela Ball pam@djfiddlefoundation.org
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