Better breaks, better outcomes

Shared Learning from Scotland

Innovation in RespiteGrosvenor Hall, Belfast

21st February 2012

Shared Care ScotlandWorking together to improve the quality and

availability of short breaks across Scotland

Right Break, Right Place, Right Time

www.sharedcarescotland.org.uk

Presentation headings

Caring in Scotland Re-defining respite care Recent policy developments The road ahead – opportunities and

constraints

A profile of Scotland’s carersThere are an estimated 657,300 carers in

Scotland60% female, 40% men20% over 70 years of ageAn estimated 100,000 young carers20% caring for 50hrs/week or more70% have been caring for more than 5 yearsUnpaid carers save the Scottish economy

£10.3 billion/year

The impact of caring70% of carers experiencing health problemsOne in five give up work to careMore than half feeling isolated and lonely40-60% of carers have not had a short break

The changing shape of Scotland’s population

“Carers will play an increasingly important role in the support, care and treatment of people with long-term and/or multiple conditions, disabilities, illnesses, including dementia.”

Carer Power!

VisionCarers are recognised and valued as equal

partners incare.

Carers are not disadvantaged, or discriminated against by virtue of being a carer.

Carers are supported and empowered to manage their caring responsibilities with confidence and in good health, and to have a life of their own outside of caring.

From Beds to Breaks...The Long and Winding Road!

Coping

Rest

Hospital

Emergency

Institution

Relief

Turning a corner…2005/6: Care 21 – The Future of Unpaid Care in

Scotland – highlights breaks from caring as top concern

2007: SNP Manifesto commitments – +10,000 weeks, guaranteed entitlement

2008: Scottish Government short break guidance to local authorities, health boards and partnerships

2010: Carers Strategy for Scotland, £5m commitment to improving short breaks

...A BETTER DEFINITION?

Services provided with the aim of enhancing and developing the quality of life of a person who has support needs and their carer (where there is one), and to support their relationship.

The distinctive feature of short breaks is that they should be a positive experience for both.

Scottish Govt. guidance on the planning and development of personalised short break services, circular CCD 4/2008

Services provided with the aim of enhancing and developing the quality of life of a person who has support needs and their carer (where there is one), and to support their relationship.

The distinctive feature of short breaks is that they should be a positive experience for both.

Scottish Govt. guidance on the planning and development of personalised short break services, circular CCD 4/2008

Now £12 million – 2010-2015 Third Sector – service development grants &

direct grants to families and carers Managed by Shared Care Scotland on behalf

of NCOs 80,000 additional hours delivered so far -

4,500 carers and families benefitting 1% of total breaks provided

The principles of the Short Breaks Fund: Funds will support the personalisation

agenda, providing early intervention, choice and the tailoring of service provision to meet the needs of individuals;

Funding will be allocated where there is mutuality of benefit, i.e. the benefit to the carer and those they care for are clearly defined;

Strengthening evidence basis and embedding learning

Choice

Fun

Excitement

Friendship

Companionship

Energy

“I HAD THE BEST WEEKEND EVER, NEVER STOPPED LAUGHING AND MET SOME WONDERFUL PEOPLE.”

“I REALLY ENJOYED NOT WAKING UP TO THE SOUND OF THE ALARM, NOT HAVING TO SHOP IN THE SUPERMARKET AND NOT COOKING!”

“THANK YOU FOR MY HOLIDAY. WE WENT ON A BIG BUS AND SAW LOTS OF BOATS AND A BIG BIRD CAME DOWN AND STOLE MY CHIPS.”

“DIDN’T REALISE HOW MUCH I NEEDED IT UNTIL I GOT BACK. MADE A HUGE DIFFERENCE TO STRESS LEVELS AND GENERAL OUTLOOK.”

“MY HUSBAND REALLY ENJOYED THIS BREAK. HE WAS RELAXED, ENJOYED MEETING PEOPLE AND I WAS HAPPY TO SEE HIM LAUGHING, HAPPY

AND NORMAL. WE EVEN DANCED.”

“SHORT BREAKS MEAN EVERYTHING TO OUR FAMILY. THEY GIVE US THE ABILITY TO RECHARGE OUR BATTERIES AND CARRY ON.”

Keeps families together and strengthens caring relationships

Prevents or delays the need for permanent care

Improves physical and emotional health and well-being

Allows people with care needs and their carers to enjoy the same rights, opportunities and aspirations as other people

Promotes inclusion and independence

IT WORKS WHEN...

Carers and the people they support: can arrange and plan for a break when they

need it have a choice of short break opportunities

which are flexible have easy access to support, information

and advice and know how to get help if they need it

are confident in the reliability and quality of care provided by short break providers

have peace of mind that appropriate replacement care will be available if there is an emergency

IT WORKS WHEN...

People : have a choice of short break opportunities

which are flexible have more control over decisions about

how, when and where services are provided have information and support to help with

these decisions are able to influence the shape and

direction of short break provision in their area

“Barriers to respite are not always simply financial. Many carers feel nervous about leaving a family member in someone else’s care...the Short Breaks Fund introduced the option gently through the short breaks tailored to them. This has made them more open to considering further use of respite services.”

Quarriers Glasgow South West Carers Centre

Looking ahead...Opportunities Constraints on progress

Growing recognition of carers

Cross party support – long term goal setting

Exciting developments in Self Directed Support

Outcome focused commissioning

Integration of Health & Social Care

Insufficient leadership, planning and management

Varying pace = inequities

Lack of capacity building in information and support services

Financial pressures lead to fire fighting not fire prevention

“We expect the Change Fund to act as a catalyst for driving a radical and innovative redesign of older people’s services within a more integrated system of health and social care in Scotland.”

RESHAPING CARE FOR OLDER PEOPLE: CHANGE FUND GUIDANCE 2012/13

“However beautiful the strategy, you should occasionally look at the results.”

Sir Winston Churchill

Shared Care ScotlandWorking together to improve the quality and

availability of short breaks across Scotland

Right Break, Right Place, Right Time

www.sharedcarescotland.org.uk

specialised respite centressitter services

befriending networksbreaks in the home of another family

supported holiday breaks

residential care homes or nursing homes

breaks in supported accommodation

day centres and activity clubs

self directed breaks supported by vouchers, direct payments or individual budgets