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1
‘Good Health’ Delivery Group
Minutes
Date: 20th September 2017 – 1.00 pm – 3.00 pm
Venue: Sturry Social Centre, 15 Mill Road,
Sturry, Canterbury, CT2 0AN
Who was there?
Danielle Barlow - Self advocate, Canterbury
Xan Brooker - KCC, Commissioning Officer - Learning Disabilities
Hannah Chandler - KCC, Admin Officer - Transforming Care
Louise Flatman - North Kent Independent Advocacy Scheme (NKIAS)
Sam Holman - Joint Chair of the Kent LD Partnership Board
Michelle Hoskens - East Kent Mencap
Janine Jacquin - Pepenbury
Continued . . .
2
Who was there? (continued)
Neil Kirbey - Self Advocate, Thanet
Liz Lester - Public Health England, Screening and Immunisation Coordi-
nator
Cheryl Pannell - Pepenbury
Deborah Russell - Kent Community Day Service Scheme, Thanet
Helen Scott-Cooper - GOLD, East Kent Mencap
Pene Stevens - Kent Community Health NHS Foundation Trust,
Consultant Nurse / Professional Lead
David Tate - Self advocate, Thanet
Linda Trower - GOLD, East Kent Mencap
R Veasey - GOLD, East Kent Mencap
Nicky Wells - Joint Chair of the Good Health Group
Apologies
Susan Abels - KCC, Team Leader
Cathy Bernal - Canterbury Christ Church University, Senior Lecturer in
Learning Disability
Joanne Cunningham - KCC, Kent LD Partnership Coordinator
Nick Hughes - North Kent Independent Advocacy Scheme (NKIAS)
Sally Hyde - East Kent Hospitals University NHS Foundation Trust,
Head of Adult Safeguarding
Tanya Orchin - North Kent Independent Advocacy Scheme (NKIAS)
3
Welcome and Apologies
Nicky welcomed everyone to the meeting and the
ground rules were read. Everyone introduced
themselves to the group.
Visiting the doctor
The group spoke about issues in going to see the
doctor.
Xan projected a presentation on this.
People do not like visiting the doctor because of how they are treated.
Xan advised doctors should be making reasonable adjustments at their
surgeries.
What is a reasonable adjustment?
A reasonable adjustment is anything where a doctor can
adapt something to help you at the surgery – Easy Read
information, extra time, a ramp available for a wheel chair
user.
4
Visiting the doctor (continued)
Problems discussed:
Some members of the group experience
difficulties when phoning the doctor to make an
appointment. At some doctors surgeries you
need to phone the doctor on the day if you need
an appointment, then give a brief description of
your illness to the receptionist. The group do
not feel they should need to tell the receptionist, and that
they should only discuss personal issues with the doctor.
The doctor should call straight back, as some
members of the group advised they have plans to
go out and causes problems if they need to wait
for the doctor to phone back in an hours’ time.
Some members of the group do not like talking about personal
things on the phone as they are shy, and they do not like their
parent or carer saying anything for them as it is embarrassing.
People with an LD may not have the confidence to challenge
what the doctor is saying.
Telephone system at the doctors – too many options to select,
then you can get put on hold, makes you feel anxious, and can’t
remember all of the options to select.
People feel pressured and not listened to.
Not all doctors are good at talking about
Mental Health.
Reception areas are not always confidential,
can hear reception staff moaning about patients.
5
Visiting the doctor (continued)
The group had a vote and the majority agreed they do not like talking to the doctor on the phone. A couple of members of the group advised they have had a yearly
health check and they are good.
A member of the group said that Doctors only get 10
minutes with each person for an appointment, they rush
through, and they are stressed.
Appointments need to be made more effective.
People with an LD should have this flagged on their medical record so
the receptionist can see as well.
One surgery has a screen placed in the waiting room, when it is your
appointment your name comes up together with the Doctors name and
picture that you are seeing.
What things would be helpful for Doctor’s to know?
One member of the group suggested doing the ‘You say but
we hear’ method as this has worked well previously (a group
of people listen to someone speak, and then see what bits
they pick out).
6
Visiting the doctor (continued)
Some people felt it was better when the doctor comes out
to greet you in person.
Better signs pointing you where to go are needed.
Fixing the broken appointment registration machines.
Receptionists should not shout at people if they have
hearing problems.
Talk to the person direct, not their parent/carer.
ACTION – Xan to pull something together around reasonable
adjustments, things that should be in place before we get through the
door.
ACTION – Group members to take the ‘We would like to know about
your experience’ slide from today’s presentation back to their groups
and ask for their feedback.
ACTION – After DPGs come back—Xan to work with
Advocacy and Community teams to arrange a workshop
to help people with learning disabilities tell their GP
Surgeries what they can do better.
ACTION – Xan/Pene to invite someone from a Patient
Participation Group to attend the next meeting.
7
Visiting the doctor (continued)
ACTION – DPGs and the Good Health Group to write a letter to the
Clinical Commissioning Group to the GPs around this, then bring back to
another Good Health Group.
8
Public Health Screening Programmes –
Liz Lester & Pene Stevens
During March 2017 a large meeting took place about ‘screening’.
Liz handed out some leaflets to the group on different types of
Screening – breast screening, bowel screening, diabetic eye screening.
Some people do not understand the letters that are sent out inviting
them for a screening appointment.
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Public Health Screening Programmes –
Liz Lester & Pene Stevens (continued)
Pene and her team went along to some doctors
surgeries and looked at the LD registers there.
There were several ladies with an LD at one
surgery, so Pene and her team contacted them to
ask whether they would like someone to explain
what the screening is about? The ladies all said yes
to help. Leaflets were handed out to the ladies, pictures were shown to
them of the screening process, and pictures of the mobile van were
shown too.
Pene and her team plan to continue this work across Kent for the next
year.
Pene advised it would be really useful for people to give their feedback
with any problems.
How do we get in touch with the right people about
screening, or if we have not received an appointment letter
when we should?
Please contact the ‘Learning Disability Central Referral
Service’:
Telephone- 0300 1234195
Email- kentchft.ldsref@nhs.net
(Monday to Friday - 9.00-5.00)
10
Minutes of the last meeting
Nicky went through the actions from the last
meeting.
All actions complete except one on page 11:
Carry action forward -‘Joanne is chasing up with
Public Health on how they will ensure that people with a learning
disability could be involved in future website development’ – still
chasing, leave action open.
Planning for the next meeting
Suggestions:
Menopause
Action – Pene to get a nurse to come along to the next
meeting to talk about the Menopause.
The Men within the group today said it would be
helpful for them to listen about the Menopause too so
that they could support others going through it.
11
Planning for the next meeting
(continued)
Health issues
DPGs would like someone from the NHS to come out to
their local meetings to talk about health issues.
Action – Pene to arrange for someone from the NHS to go
out to the DPGs local meetings.
Dentist experiences
Diabetes
Mental Health
Action – Joanne to email Chris Hunter and Des Clark (Community Nurses
at Cairn Ryan) for a copy of the easy read document on Diabetes, then
circulate to the group.
12
Any Other Business
Easy Read Information
Neil and David passed around some of their Easy
Read work to the group, they have been working on
some handouts with Mencap around various health issues.
Next meeting
To be confirmed
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