Scientific Advisory Board Fragile X AFrAHM asbl Monday November 18th, 2013 Olivier Crevoulin &...

Scientific Advisory BoardFragile X

AFrAHM asblMonday November 18th, 2013

Olivier Crevoulin & François Rycx

Introduction

Round table - intro

Simply using your native language

Feel free to intervene at all time – this is your meeting

Agenda

Pre-mutation and related disorders

Awareness campaign for doctors and non-medical professionals

PAH: Plateforme Annonce Handicap

Conference for families 2014

How to best support schools and related centers

Latest news –clinical trials; medical & non-medical research

Pre-mutationDiagnostic for child, teenager

FXTAS & FXPOI in Belgium

Awareness Campaign

early detection & right intervention

Postcard for pediatricians & GPEuropean folder

Quid non-medical staff ?

PlateformeAnnonceHandicap

Conference 2014for Families

Round table - hot topics in your field

Supporting schools & related center

Round table

Latest News to share?Round table

Thank you!Your personal commitment makes the difference and gives

hope to families

Association X fragile Belgique

Website:www.x-fragile.be

Facebook: https://www.facebook.com/AssociationXFragileBelgique

Contact for SAB:Olivier Crevoulin – o.crevoulin@gmail.com – 0477 81 13 18François Rycx – francois.rycx@bt.com – 0496 57 35 19

Fragiel

Website:www.fragiel.be