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Support & Stories Finding Support via Social Media, Blogging, and Internet Communities

Finding Support via Social Media, Blogging, and Internet Communities

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Three Mom-Bloggers of adult children with Down syndrome discuss the pros and cons of sharing personal stories via social media. What are the risks? What is there to gain? If you have an interest in spreading awareness and sharing resources, but need the tips on how to get started, how to contribute, and how to grow your own online influence, start here. These three moms were brought together via on-line networking and, in fact, have begun a new, specific community that encourages support, discussion and stories. Are you ready to share yours?​

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Page 1: Finding Support via Social Media, Blogging,  and Internet Communities

Support & StoriesFinding Support via Social Media, Blogging,

and Internet Communities

Page 2: Finding Support via Social Media, Blogging,  and Internet Communities

Folks Putting Themselves “Out There”

Page 3: Finding Support via Social Media, Blogging,  and Internet Communities

Why Share On-line?

Page 4: Finding Support via Social Media, Blogging,  and Internet Communities

Stephanie“I started my blog because I wanted to share

stories about Josh to add to the “social history” of real experiences – not just all happy / extreme success stories, or all sad /grief

stories, but a balance of everyday life stuff.”

Page 5: Finding Support via Social Media, Blogging,  and Internet Communities

Karen“It's the best way to reach a large amount of people to share JOSH'S HUMOR, LOVE, LIGHT, LAUGHTER, JOY and the few times

when he or we are down.” 

Page 6: Finding Support via Social Media, Blogging,  and Internet Communities

 Why is it important specifically for

advocates and people involved within the Down syndrome

community to share their stories publicly?

Page 7: Finding Support via Social Media, Blogging,  and Internet Communities

Some of the Reasons…“Therapy” write for yourself

Updates for Family/Frien

ds

Advocate

Offer resources to new parents

Educate outside the community

Connect within the DS

community

All of the Above

Page 8: Finding Support via Social Media, Blogging,  and Internet Communities

What about You?

• What social networks are you currently on?

• Website or Blogs?

• Questions

Page 9: Finding Support via Social Media, Blogging,  and Internet Communities

Pro’s to sharing on-line

Over 1.1 billion+ Facebook Users - for exampleReach

•At last check – the internet is world wide AdvocacyCreating Awareness

•Good News •Fighting stereotypes and limitations

Sharing informationConnecting

•Help and Advice•Resources

Page 10: Finding Support via Social Media, Blogging,  and Internet Communities

Con’s of Sharing On-line

TrollsUnkind People

•Negative responses•make me doubt myself/ my parenting•Open to hateful public

Unauthorized sharingGiving up Privacy

•Pictures and information used out of context•Pictures used inappropriately •Out of your controlWhat are

you afraid of?

Page 11: Finding Support via Social Media, Blogging,  and Internet Communities

Tips to “battle the cons”

• Control What You Can• Share On-purpose

• Understand you do not have full control

• Balance priorities

• Go to your why?

• Is your mission best served by sharing with the public or chosen audience?

• Assert your power• Delete/moderate comments

• Block/report offenders

• Pictures• Prevent Google Crawlers

• Digimarc

Page 12: Finding Support via Social Media, Blogging,  and Internet Communities

Just Joshin’ YaFacebook Page

• Why Facebook?

• What is the difference between a profile and a page?

• When did you start your page?

• How have you grown followers? Do you use ads or “boost posts?”

• What are your most popular posts?

• What are your personal rules for posting?

• How do you acknowledge commenters?

• What’s your best advice for beginners?

Page 13: Finding Support via Social Media, Blogging,  and Internet Communities

Other Social Networks

Listly Google+

Storify

ScoopIt

Blog Talk Radio

RebelMouse

Pinterest

Page 14: Finding Support via Social Media, Blogging,  and Internet Communities

Blogging

• Storytelling

• Control the conversation

• You’re the Expert/ Platform

• Springboard Connections

• Bustling Community/support and interaction

Page 15: Finding Support via Social Media, Blogging,  and Internet Communities

#1 Choose Your

Medium

.

Page 16: Finding Support via Social Media, Blogging,  and Internet Communities

What’s Your Goal?Private Options

Guest Post

For Yourself and Your Family

ScoopIt and Listly

Tumbler and Pinterest Boards

Blog Pages and Links

Resources for

Families

Blog Resources

Facebook Groups

Website Communities

Connect within Communit

y

Blogs

Publish

Social Platforms

Educate and Advocat

e

Page 17: Finding Support via Social Media, Blogging,  and Internet Communities

Get startedContributeInfluence

#1 Choose Your

Medium

1.Fill Your Pages/Platform

2.Be Genuine

3.Give and Share!

Page 18: Finding Support via Social Media, Blogging,  and Internet Communities

Get startedContributeInfluence

#2 Share your

Stories +

1.Local Newspaper

2.Guest Blog

3. Blog Hop/Twitter Chat/Forums

Page 19: Finding Support via Social Media, Blogging,  and Internet Communities

Get startedContributeInfluence

#3 Connect with the

Community

1.Comment on blogs, ask follow-up questions

2.Interviews – Both sides of the table

3.Share across Platforms

Page 20: Finding Support via Social Media, Blogging,  and Internet Communities

Quick note about improving SEO

1. Internal links

2. Name your photos

3. Key words – what do you want to be found “for”

• The Real #1 about SEO is this:

The “rules” change all the

time! – Content First!

Page 21: Finding Support via Social Media, Blogging,  and Internet Communities

Get startedContributeInfluence

Think Bigger,

Dig Deeper,

Speak Louder

Page 22: Finding Support via Social Media, Blogging,  and Internet Communities

Support & Stories and Connect!

Come by and say Hi!

• The Road We’ve Shared: http://roadwevesharedgzp.weebly.com/

Facebook:

• The Road We’ve Shared: https://www.facebook.com/TheRoadWeveShared

• Just Joshin’ Ya: https://www.facebook.com/pages/Just-Joshin-Ya

• Walkersville Mom: https://www.facebook.com/Walkersvillemomblog

• Mardra Sikora: https://www.facebook.com/Mardraspage

Blogs and Contact:

The Road We’ve Shared: http://roadwevesharedgzp.weebly.com/

Walkersville Mom: http://walkersvillemom.weebly.com/

Grown Ups & Downs: www.grownupsanddowns.com

Page 23: Finding Support via Social Media, Blogging,  and Internet Communities

Now…You!

• We want to support you in your journey to share.

• In the forum of The Road We’ve Shared, Community: http://roadwevesharedgzp.weebly.com/forums.html#/20140301/support-stories-321-friends-3716972/

• Share your blog, your Facebook, your Twitter, your whatever – So we can find and support one another.

• See you there!

Page 24: Finding Support via Social Media, Blogging,  and Internet Communities