Social Media & Healthcare

SOCIAL MEDIA & HEALTHCARE IRIS THIELE ISIP TAN MD, MSC Professor, UP College of MedicineChief, UP Medical Informatics UnitDirector, UP Manila Interactive Learning Center@endocrine_witch

Patients are increasingly using online social networks to connect with other patients and healthcare professionals

PEER-TO-PEER HEALTHCARE

Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24

Isip Tan ITC, Madamba H, Balandra RJ. Acta Medica Philippina 2016;50(4):295-301

Content Analysis of Tweets of Pregnant Women with Diabetes

Concepcion AO, Garcia AM, Isip Tan ITC, Fernando G

Reliability of Health Information Websites for Breast Cancer in Twitter

The Main Sources of Anxiety & Dissatisfaction of Women with Gestational Diabetes Determined by Content Analysis of their Blogs

Automated Sentiment Analysis of Commentaries in a HCP-moderated Facebook Page in R programming Language

Evaluation of Facebook’s Capacity as a Platform for Health

Communication: A Process Evaluation Strategy

Social Media & Healthcare

Lung Cancer-related Twitter Activity among Patients & Healthcare Professionals Garcia AM, Concepcion AO, Isip Tan ITC, Fernando G

Li, R & Isip Tan ITC

Obrero RJ & Isip Tan ITC

Tiongson N & Isip Tan ITC

SYMPLUR HEALTHCARE HASHTAGS PROJECTAllow exploration by either hashtag

or healthcare subject matter

Thomas M. Lee @tmlfox http://www.symplur.com/blog/healthcare-hashtags-social-project/

#HEALTHXPH

http://www.symplur.com/blog/healthcare-hashtags-social-project/

STANFORD MEDICINE X & SYMPLURSOCIAL MEDIA ANALYTICS RESEARCH CHALLENGE

… precious little is known about health system or societal factors that hinder compliance and what can be done to improve it.”

“

Nielsen KK, Kapur A, Damm P, de Courten M & Bygbjerg IC. BMC Pregnancy and Childbirth 2014, 14:41.

PREGNANCY & DIABETES

Describe health beliefs of pregnant women with diabetes using tweets

OBJECTIVES

Describe how information on diabetes in pregnancy is shared on Twitter


#diabetes#pregnancy

#gestationaldiabetes

SYMPLURSignals


RESULTS


SEARCH yielded 6433 tweets

1024 tweets by patients

524 tweets from manual scan of 4260 tweets

1548 tweets coded for content

184 status tweets79 women

Pregestational diabetes

292 status tweets206 women

Gestational diabetes

239 tweets with links93 unique domains

24 women T1D16 wrote blogs

4 women from Philippines

Status tweets

PersonalTemporal LocationMechanicalPhysicalWorkAutomatedActivity

Dann, S. Twitter content classification. First Monday, 15(12). 2010. doi:10.5210/fm.v15i12.2745

Rosenstock IM, Becker VJ, Marshall H (1988). Social learning theory and the health belief model. Health Education & Behaviour 15(2):175-183

Modifying variables

Perceived seriousness

Perceived susceptibility

Perceived benefits vs perceived barriers

Perceived threat

Self-efficacy

Cues to action

Likelihood of engaging in health-promoting behavior

HEALTH BELIEF MODEL

Twee

ts

0

40

80

120

160

Susceptibility Benefits Cues to action Severity Barriers Self efficacy

Pregestational diabetesGestational diabetes

Distribution of status tweets mapped to constructs of the Health Belief Model comparing women with gestational and pregestational diabetes


Perceived severity

So, my baby weighs 9 pounds at only 36 weeks gestation. Hmmmmm..... #pregnancy #SlightlyApprehensive #birth #gestationaldiabetes

Mom has had way way way too many carbs today. Poor baby is gonna be on sugar overload. #GestationalDiabetes :(

Heading to an ultrasound to see how big baby girl is... eeeeeek! #29weeks #gestationaldiabetes

Opinion of how serious a condition and its consequences are


Logically I know #GestationalDiabetes is not my fault...pregnancy hormones make it impossible to be logical #PregnancyProblems #hormonal

Why do I have cravings for sweets a week before my Glucose Tolerance test?! :P Super worried about #gestationaldiabetes :/ Help me, Oh Lord!

Damn Pregnancy hormones! Kung kelan malapit na! T_T #gestationaldiabetes #30weeks

Perceived susceptibilityOpinion of chances of getting a condition


Meat sauce over baked garlic cabbage. #lowcarb #gestationaldiabetes

Healthy snack. #29weekspregnant #gestationaldiabetes #healthy #snack #cucumber #carrot #yoghurt

I will do anything for love -- poke my finger 7x a day and get shots 4x a day #gestationaldiabetes #babylove

Found out I can eat air popped popcorn!! #gestationaldiabetes woohoo! (Little things make me happy these days)

Perceived benefitsBelief in the efficacy of the advised action to reduce risk or seriousness of impact


Perceived barriers

Cheating on a diet and feeling like a murderer while you frantically hide the evidence! #gestationaldiabetes #sucks #nosugar #thestruggle

Omg today is national cream filled donut day and I can't participate because of stupid #gestationalDiabetes, that’s just crap!

I am sick of this frickin' diet... Just hate it #PregnancyProblems #gestationaldiabetes #GDM #pregnant


Opinion of the tangible and psychological costs of the advised action

Tweets (gestational diabetes)Food restriction & hunger 61% Dealing with emotions 9% Blood glucose monitoring 7.6% Clinic consults 6.2% Lab tests 4%

Tweets (pregestational diabetes)Emotional 33% Dietary restrictions 23.5%

Perceived Barriers


Perceived barriers


Opinion of the tangible and psychological costs of the advised action

I miss my mum and sisters.feeling emotional n scared. being pregnant without them to help is no fun!#diabetes #pregnancy

Well.. I could use a vacation from needles and not-as-low-as-the-drs-would-like blood sugars today...*sigh* #diabetes #pregnancy #insulin

Diabetes sucks! #diabetes #diabetics #bloodsugars #pregnancy #diabeticpregnancy #troubles

WHAT?! After 50 units of #insulin, a 12.1mmol/L result?!?! UGH!! #pregnancy #diabetes

Stupid elevated after lunch sugar number. Hitting the treadmill. #gestationaldiabetes #32weeks

#30weekspregnant #babybump #gestationaldiabetes #walking #stayfit #stayhealthy #iloveexercise

Cues to action


Strategies to activate "readiness"

Self-efficacy

Hopped on the treadmill for 30 min after work, made dinner, AND walked the dogs tonight. Woooooot! #kickass #gestationaldiabetes #30weeks

Been monitoring my blood sugar today. Whooped that elevated sugar's butt! #gestationaldiabetes #aintgotshitonme #pregnancyproblems

Tested my sugar after dinner and it was well within range. #Victorious #GestationalDiabetes #CelebrateTheSmallThings

Proud that I've learned to inject insulin by myself - have overcome my deep fear of needles! #gestationaldiabetes

Two miles done and done. Before work. Before 6am. Woooo! #gestationaldiabetes #kickass #pregnant


Confidence in one's ability to take action

Pass along tweets

RetweetsUser generated contentEndorsement

Dann, S. Twitter content classification. First Monday, 15(12). 2010. doi:10.5210/fm.v15i12.2745

Health on the Net Foundation https://www.hon.ch/

Health on the Net Foundation https://www.hon.ch/

9/93 (9.7%) unique domains had HON Code seal

Women with preexisting diabetes shared blog posts (67%)

Women with gestational diabetes shared links from organisations or news sites(64%)


Examining tweets of pregnant women with diabetes identifies issues important to them

Women with gestational diabetes and preexisting diabetes had differing perceptions of barriers

Conclusion

IRIS THIELE ISIP TAN MD, MSC Professor, UP College of MedicineChief, UP Medical Informatics UnitDirector, UP Manila Interactive Learning Center@endocrine_witch