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Improving health outcomes across England by providing improvement and change expertise Welcome to the Winterbourne Medicines Programme Launch Event @NHSIQ #winterbourne_meds

National overview learning disabilities

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Anne Webster, -Clinical Lead Winterbourne Projects, NHS England, Joanne McDonnell - Senior Nurse for Mental Health and Learning Disabilities, NHS England Neil Hoskin - Expert by Experience, NHS England Presentation from the Winterbourne Medicines Programme Launch held in London on 10 September 2014 Ensuring safe, appropriate and optimised use of medication for people with learning disabilities who demonstrate behaviour that can challenge

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Page 1: National overview  learning disabilities

Improving health outcomes across England by providing improvement and change expertise

Welcome to the Winterbourne Medicines Programme

Launch Event

@NHSIQ #winterbourne_meds

Page 2: National overview  learning disabilities

Improving health outcomes across England by providing improvement and change expertise

Welcome…

• No fire drill planned today – if the alarm sounds, please follow exit signs. Staff will direct you to the assembly point opposite Parnell House, corner of Dyott St & Streatham St (side of the building)

• Ladies, Gents & Disabled toilets are all located on this floor

• Please switch mobile phones off or onto silent (if you want to tweet)

• Free Wi-Fi – Code is: Congress Centre Free Wi-Fi Password is: 12345abcde

• Lunch is at 12:50 in meeting room 1 & 2 on the 5th floor

Page 3: National overview  learning disabilities

Improving health outcomes across England by providing improvement and change expertise

Winterbourne Medicines Programme Launch Event

@NHSIQ #winterbourne_meds

Page 4: National overview  learning disabilities

Joanne McDonnell, Senior Nurse, Mental Health & Learning Disabilities, NHS EnglandNeil Hoskin- Expert by Experience, NHS EnglandAnne Webster- Clinical Lead- Winterbourne Projects, NHS England

Winterbourne Medicines LaunchOverview of National Learning Disabilities Programme 8th September 2014

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• To give an overview of the NHS England Learning Disability Programme

• To help you understand where the NHSIQ medication project fits with the wider learning disability programme.

Aims of the presentation

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Message from Ann Earley, Simon’s mum ( Panorama- Winterbourne View)

" Simon's had many indignities foisted upon him. He has been deprived of his liberty, abused, removed from his home and medicated all without his consent. In his position would you stand for it? "

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“Far too many people have their behavioural problems managed with anti-psychotics. The Learning Disability Census highlighted that there are huge numbers of people on anti-psychotic medication who haven’t got a psychiatric diagnosis. I see this as an infringement, or abuse of people’s human rights. I am really looking forward to the findings of the pilot in order to improve the care, and experiences of care for people with learning disabilities.”

Message from Dominic Slowie, national clinical director for learning disability, NHS England

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“The Confidential Inquiry (2013) found that women with learning disabilities died 20 years sooner than the general population.Men died 13 years sooner.”

Having a learning disability-health

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“Census (HSCIC 2013)- over half in the census had been subject to at least one incident in last 3 monthsTwo thirds were given antipsychotic drugs”

Having a learning disability-safety

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“CQC reported (2013) that 38% of detained and 66% of informal inpatients were deemed incapable of consenting to treatment”

Having a learning disability-choice & control

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Transforming Care – delivery modelThe work programme has 7 workstreams to ensure that we deliver the best care now, and that we are focused on the design of future care.

Operational DeliveryGetting the basics right, ensuring everyone has a Care Coordinator, has had their care reviewed, and had a date planned for their discharge.

Care and Treatment Reviewsensuring all inpatients get a Care and Treatment Review, reviewing care with the person and their families/carers in the context of their Human Rights, the principles of ‘least restrictive practice’ and with future discharge arrangement s as part of the review.

Data and Informationensuring we have accurate and accessible data, and transferring the collection of that data to the HSCIC to enable it to become part of the Mental Health/Learning Disability Minimum Data Set.

Planning and Contract work ensuring the NHS Planning Guidance and Standards contract support commissioners to deliver best practice is current and future services for people with a learning disability.

New Funding Models – working with the Voluntary and Community Sector to develop new ways of commissioning and funding services.

New Care Pathways to support commissioners to co-commission services jointly with Local Authorities, people with learning disabilities and their families/carers to meet individual and local needs.

Stakeholder Engagement – working at all times to ensure people with learning disabilities, their families/carers, and all other stakeholders are involved in designing services.

Delivering the best care now Future care design

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• Joint health & social care self assessment framework (SAF)

• Mortality review group.• Annual health checks• Positive & safe programme

NHS England learning disability programme

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6Cs Website Launch