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I Know What I Want! -project
Aarne Rajalahti, KVPS
28.3.2013
I know what I want! –project develops and tries out personal budgeting in Finland
Trying out and development • A model that’s suitable in Finnish operational environment in services and support of persons with (intellectual) disability
Research • The key question of research is ”what’s the role and state of a person with disabilities in a personal budgeting process”
Target groups • Young adults and adults with disabilities and their families
• Local authorities and people who plan and organize services
Operation time • 2010: planning and defining of different models of PB • 2011-2013: trying out, development, research
A support group consists of • Ministry of Social Affairs and Health • Association of Finnish Local and Regional Authorities • The Social Incurance Institution • National Institute for Health and Welfare • Associations of persons with disabilities • Local authorities • Service producers
International partner • In Control
The aim of the project
• The aim of the “I know what I want!” -project is to develop personal budgeting practices that are suitable for the Finnish social care environment and to test out these practices.
• Models of personal budgeting and person centered planning are being piloted across the country. Participants to these pilot projects include people with disabilities and their families, support staff and local authority- and service provider representatives.
• The participants are offered training and are able to join in on different peer group activities to support them along the process. The project will also produce different materials about personal budgeting and person centered planning for young people and adults with an intellectual disability.
• The project runs from 2010 to 2013 and is carried out by the Finnish Association on Intellectual and Developmental Disabilities (FAIDD) and the Service Foundation for People with an Intellectual Disability. The project is funded by RAY (Finland’s Slot Machine Association).
How do we define personal budgeting and a personal budget?
• A process based on self-determination of a person who needs some support, where support, services and a budget reserved on them is being planned
• (Re)allocation on resources and money that is spent on services and support anyways
• The goal is a life that’s unique, meaningful and self-determined
• The key focus has been in the principles of Self-Directed support that’s been developed in In Control and by Dr Simon Duffy
The service system in Finland
Local authorities responsible
for services
Services
available
Can
they really
be person
centered?
People and their lifes and
needs are different
Person-centered planning
isn’t enough, if there are no
real choices or they are
always similar to everybody
Public tendering processes
have mixed the picture
even more. Bidding doesn’t
fit in housing and support
services of people with
disabilities
There are 320
municipalities and they
have 535 tasks assigned in
legislation and the
obligations relating to
them (114 tasks in year
1970). Health and social
services takes 60 % of
annual budgets.
Laws
People with different lifes and needs
Funding by
taxes
These are things that people actually said:
“I sit in a day activity center and do nothing except drink coffee. I am a young man. Is this what my life will
always be?”
“My self-autonomy isn’t being respected in a service home. I wan’t to move out”.
“I’d like to spend my leisure time
sometimes with someone else than my mom or in a group”
Creating of a personal budget
- from people’s needs, services and support they are entitled to
- from things people want to change or achieve
Making of a support plan
Analyzation and acceptance of a support plan ( + final budget)
Living life = getting the support and services, what’s written in the support plan
Evaluation = Is the support right and adequate
Revising of a budget
Person-centred planning
What do I want to achieve?
What do I want to keep?
What do I want to change?
(Self) evaluation of
support needs
We changed the process
Possible allowances and benefits due to disability in Finland
Housing services and support (local authorities)
Essential home renovations to make it accessible (local authorities)
Return of vehicle tax
Disability parking permit
50 % allowance of buying a car and essential amendment works
Work and day activities (local authorities)
Morning- and afternoon activities after school days (local authorities)
Specialist services of health centers or rehabilitation centers (local authorities)
Adaptation and rehabilitation guidance
Assistive devices (covered by the Social Insurance Institution, Kela)
Support person (voluntary)
Disability allowance (Kela), 85,59 €, 199,71 € or 387,26 € Per month
Care allowance for pensioners (Kela)
Special care allowance for parents with ill child (Kela)
Disability pension, minimum 687 € per month (The Social Insurance Institution, Kela)
Medical, vocational and discretio-nary rehabilitation and allowance (Kela)
Compensation for medication (42, 71 or 100 %, Kela)
Travelling expenses to a hospital and getting and maintaining assistive devices (covered by health insurance of Kela)
Dietary Grant for persons with coeliac disease, 21 € per month (Kela)
Personal assistant for education
Physical, psychological and social care of students
Housing allowance for students
- Respite care for minimum 3 days per month (Support for carers, local authorities)
Personal assistance for persons with severe disabilities (local authorities)
Transportation services for persons with severe disabilities (for work and studying + 18 one way trips per month)
Interpretation services (Kela)
Contribution for special nutrition (Kela or local authorities)
Contribution for special clothing
Decrease of taxes
Housing allowance for Pensioners (Kela)
These services and support we have
started transforming into personal budgets
These things are covered by The Social Insurance Institution
These services and benefits are harder to transform into personal budgets?
Supported employment services (local authorities)
Other essential support for independent living, and individual care (local authorities)
Support and services can be arranged in different ways
”Traditional social services”
”New ”precautionary” social services
• Physical education services, culture services, lifelong learning services in local authorities/outside
Other support and services
• Private sector
• Third sector
• ”Something else”
Pekka Kinnunen changed his day activities from a centre to a farm
”The quality of life improved with another job”
Sirpa Kemppinen lives independently and leads her life after 30 years in
institutions
http://verneri.net/yleis/arki/henkilokohtainen-budjetointi/tiedan-mita-tahdon-materiaalit.html
Some tools for PCP and evaluation of needs
Some points so far
• Empowerment of the people with disabilities and their families during process
– ”It’s like my son is suddenly more self confident and therefore taller”
– The families have gotten new strength to enhance their family members lives
– Many have learned new things from services
Some points from the local authorities point of view
• There’s been good conversations and pondering of how we do work and what are the positions of social worker and a client in the process
• Everybody has realized the importance of the voice of a person and we have moved towards real companionship
• We have learned new ways of working (PCP)
• The life of the clients are changing
• It’s been a very worthwhile experience that lifts the traditional way of organizing care to this era of citizenship and self-determination
Kiitos!
Aarne Rajalahti
Development Manager
Service Foundation for People with
Intellectual Disabilities
tel. +358 207 713 516
www.verneri.net/hb Facebook: Tiedän mitä tahdon!
