Health Information Literacy

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Presentation by Jean Shipman at the Health Sciences Libraries 'Health Literacy Forum' October 23, 2009

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<ul><li> 1. The Health Information Literacy Curriculum Sponsored by theMedical Library AssociationFunded by theNational Library of Medicine Contract Number HHSN276200663511/NO1-LM-6-3511 2008</li></ul> <p> 2. Learning Objectives </p> <ul><li>Recognize the impact low health literacy has on patient care </li></ul> <ul><li>Name five strategies and resources to improve health literacy </li></ul> <ul><li>Describe the health literacy services offered by the library</li></ul> <p> 3. What is Health Literacy? </p> <ul><li> The degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate health decisions. </li></ul> <ul><li>Healthy People 2010 </li></ul> <p> 4. What factors affect Health Literacy?</p> <ul><li>Health literacy is dependent on individual and system factors</li></ul> <ul><li><ul><li>Communication skills</li></ul></li></ul> <ul><li><ul><li>Information and knowledge </li></ul></li></ul> <ul><li><ul><li>Culture and language </li></ul></li></ul> <ul><li><ul><li>Demands of the system </li></ul></li></ul> <p> 5. Why is Health Literacy Important? </p> <ul><li>Low health literacy is linked to</li></ul> <ul><li><ul><li>Under-utilization of services</li></ul></li></ul> <ul><li><ul><li>Increased medication errors </li></ul></li></ul> <ul><li><ul><li>Poor knowledge about health</li></ul></li></ul> <ul><li><ul><li>Increased hospitalizations</li></ul></li></ul> <ul><li><ul><li>Poor health outcomes </li></ul></li></ul> <ul><li><ul><li>Increased healthcare costs </li></ul></li></ul> <p> 6. Health Literacy and Cancer Screening </p> <ul><li>Women with low health literacy are less likely to have had a mammogram or Pap test than women with higher health literacy skills</li></ul> <p>Source: Davis, et al (1996).Caner .Lindau, et al (2002).Am J Obstet Gynecol . 7. Health Literacy andHIV / AIDS Knowledge Source: Kalichman, et al (2000).Am J Prev Med . 8. Health Literacy and Diabetes Management Percent of patients with diabetes correctly answering questions according to literacy level (low, moderate, high) Need to Know : symptoms of low blood sugar (hypoglycemia) Need to Do : correct action for hypoglycemic symptoms Low Moderate High Low Moderate High Source: Williams, et al (1998).Arch Int Med . 9. Health Literacy and Healthcare Costs $2,891 $10,688 Annual Healthcare Costs of Medicaid Enrollees Source: Weiss, et al (2004).J Am Board Fam Pract. ( &lt; 3 rd -grade reading level) ( &gt; 4 th -grade reading level) 10. How is Information Critical to Health Literacy?</p> <ul><li>Health information is key to: </li></ul> <ul><li><ul><li>Patient and provider communication </li></ul></li></ul> <ul><li><ul><li>Shared health care decision making </li></ul></li></ul> <ul><li><ul><li>Understanding and following directions</li></ul></li></ul> <ul><li><ul><li>Recognizing when to seek care </li></ul></li></ul> <ul><li><ul><li>Learning and adopting healthy behaviors </li></ul></li></ul> <p> 11. What are the Challenges? </p> <ul><li>Health literacy in the U.S. </li></ul> <ul><li>Readability of health materials</li></ul> <ul><li>Health information and the Internet </li></ul> <p> 12. Health Literacy in the U.S.Intermediate Basic Below Basic Proficient 13% 12% 53% 22%77 million adults have basic or below health literacy skills Source:The Health Literacy of American Adults. Results from the 2003 National Assessment of Adult Literacy.National Center for Education Statistics (2006). http://nces.ed.gov/naal/health.asp 13. Readability of Health Information </p> <ul><li>Over 300 studies show health-related materials far exceed the reading ability of U.S. adults </li></ul> <ul><li>Increasing number of studies show similar results when looking at the readability of online health information </li></ul> <p>Source: NLM BibliographyUnderstanding Health Literacy and Its Barriers (2004).www.nlm.nih.gov/pubs/cbm/healthliteracybarriers.html 14. Health Information and the Internet </p> <ul><li>80% of Internet users search for health information </li></ul> <ul><li>75% rarely or never check the source and date</li></ul> <ul><li>72% express trust in most or all information found online </li></ul> <p>Source:Fox, S. Vital Decisions (2003). Online Health Search (2006).Washington, DC: Pew Internet &amp; American Life Project.www.pewinternet.org/PPF/c/5/topics.asp 15. Health Literacy From the Patients Perspective Source:Help Your Patients Understand . AMA Foundation Health Literacy.www.ama-assn.org/ama/pub / category/9913.html Mrs. Cordell Mr. Bell 16. Strategies to Improve Health Literacy</p> <ul><li>Use living room language </li></ul> <ul><li>Limit information (3-5 key points) </li></ul> <ul><li>Use easy-to-read print materials </li></ul> <ul><li>Practice teach-back </li></ul> <ul><li>Use Information Rx </li></ul> <ul><li>Address culture and language needs </li></ul> <p> 17. Living Room Language </p> <ul><li>Name common terms for </li></ul> <ul><li><ul><li><ul><li>Hypertension </li></ul></li></ul></li></ul> <ul><li><ul><li><ul><li>Insomnia </li></ul></li></ul></li></ul> <ul><li><ul><li><ul><li>Benign </li></ul></li></ul></li></ul> <ul><li><ul><li><ul><li>Hazardous</li></ul></li></ul></li></ul> <ul><li><ul><li><ul><li>Disorder</li></ul></li></ul></li></ul> <ul><li><ul><li><ul><li>Option</li></ul></li></ul></li></ul> <ul><li><ul><li><ul><li>Poultry </li></ul></li></ul></li></ul> <ul><li><ul><li><ul><li>Routinely </li></ul></li></ul></li></ul> <p> 18. Ask Me 3 National Patient Safety Foundationwww.npsf.org/askme3 19. Teach-Back Method Source:Help Your Patients Understand . AMA Foundation Health Literacy.www.ama-assn.org/ama/pub/category/9913.html 20. Easy-to-Read Materials </p> <ul><li>Deciphering MedspeakBrochures </li></ul> <ul><li><ul><li>HIV </li></ul></li></ul> <ul><li><ul><li>Cancer </li></ul></li></ul> <ul><li><ul><li>Diabetes </li></ul></li></ul> <ul><li><ul><li>Other </li></ul></li></ul> <p>www.mlanet.org/resources/medspeak/index.html 21. Information Rx 22. www.MedlinePlus.gov 23. Interactive Health Tutorials 24. www.NIHSeniorHealth.gov 25. www.library.tufts.edu/hsl/spiral/ 26. Top 10 Most Useful Consumer Health Websites </p> <ul><li>Cancer.gov * </li></ul> <ul><li>CDC.gov * </li></ul> <ul><li>Familydoctor.org * </li></ul> <ul><li>Healthfinder.gov * </li></ul> <ul><li>HIVInsite.ucsf.edu * </li></ul> <p>* Available in Spanish </p> <ul><li>KidsHealth.org * </li></ul> <ul><li>Mayoclinic.com</li></ul> <ul><li>Medem.com </li></ul> <ul><li>MedlinePlus.gov * </li></ul> <ul><li>Noah-health.org * </li></ul> <p>Source: Medical Library Association.www.mlanet.org 27. How Can Librarians Help?</p> <ul><li>Free access to the Internet</li></ul> <ul><li>Information Rx Program </li></ul> <ul><li>Patient information packets</li></ul> <ul><li>Consumer health collection </li></ul> <ul><li>Native language resources </li></ul> <ul><li>Teaching and training</li></ul> <ul><li>Virtual chat / email assistance </li></ul> <ul><li>Health literacy workgroup</li></ul> <p> 28. Why Now?Why Hospitals? </p> <ul><li> The safety of patients cannot be assured without mitigating the negative effects of low health literacy and ineffective communication on patient care. </li></ul> <ul><li>The Joint Commission </li></ul> <p>Source: What did the Doctor Say?: Improving Health Literacy To Protect Patient Safety. The Joint Commission (2007).www.jointcommission.org/PublicPolicy/health_literacy.htm 29. Take Home Points </p> <ul><li>Accurate and reliable health information is critical to health literacy </li></ul> <ul><li>Use Information Rx to refer patientsto reliable health information and to the library for help </li></ul> <ul><li>Librarians are available to addressthe health literacy needs of patients and providers</li></ul> <p> 30. Thank You! </p> <ul><li>Questions?Comments? </li></ul> <p> 31. References </p> <ul><li>AHRQ Report Literacy and Health Outcomes(2004) www.ahrq.gov/clinic/epcsums/litsum.htm </li></ul> <ul><li>AMA Foundation Health Literacy www.ama-assn.org/ama/pub/about-ama/our-people/affiliated-groups/ama-foundation/our-programs/public-health/health-literacy-program.shtml </li></ul> <ul><li>Fox, S. &amp; Fallows, D. (2003) Internet Health Resources. Washington, DC: Pew Internet &amp; American Life Projectwww.pewinternet.org/Reports/2003/Internet-Health-Resources.aspx </li></ul> <ul><li>Healthy People 2010, Health Communication, Objective 11-2www.healthypeople.gov/Document/HTML/Volume1/11HealthCom.htm </li></ul> <ul><li>IOM Report Health Literacy: A Prescription To End Confusion(2004)www.iom.edu/CMS/3775/3827/19723.aspx </li></ul> <p> 32. References </p> <ul><li>NLM BibliographyUnderstanding Health Literacy and Its Barriers (2004)www.nlm.nih.gov/pubs/cbm/healthliteracybarriers.html </li></ul> <ul><li>The Health Literacy of Americas Adults: Results from the 2003 National Assessment of Adult Literacy (2007) http://nces.ed.gov/pubsearch/pubsinfo.asp?pubid=2006483 </li></ul> <ul><li>The Joint Commission Report: What did the Doctor Say?: Improving Health Literacy To Protect Patient Safety (2007) www.jointcommission.org/PublicPolicy/health_literacy.htm </li></ul> <ul><li>Medical Library Association Top 10 Most Useful Consumer Health Websites www.mlanet.org/resources/medspeak/topten.html </li></ul> <p> 33. </p> <ul><li>Pilot Site Librarians</li></ul> <ul><li><ul><li>Martha Prescott , Berkshire Medical Center HealthSciences Library</li></ul></li></ul> <ul><li><ul><li>Tori KochandKim Hart , Billings Clinic Medical Library</li></ul></li></ul> <ul><li><ul><li>Andrea Harrow , Good Samaritan Hospital HealthSciences Library</li></ul></li></ul> <ul><li><ul><li>Holly Kimborowicz , Lake Hospital System Medical Library</li></ul></li></ul> <ul><li><ul><li>Jeff MasonandMary Chipanshi , Regina General Hospital Health Sciences Library</li></ul></li></ul> <ul><li><ul><li>Julie Smith , St. Joseph Hospital Burlew Library</li></ul></li></ul> <ul><li><ul><li>Denise RumschlagandCarolyn Martin , St. VincentHospital Library</li></ul></li></ul> <ul><li><ul><li>Lenora Kinzie , Stormont-Vail Healthcare Stauffer Health Sciences Library, andScarlett Fisher-Herreman,Topeka &amp; Shawnee County Public Library</li></ul></li></ul> <ul><li><ul><li>Geneva Bush StaggsandBeverly Rossini , University of South Alabama Biomedical Library</li></ul></li></ul> <p>Acknowledgements 34. </p> <ul><li>Project Advisors </li></ul> <ul><li><ul><li>Elliot Siegel, Robert Logan, Angela Ruffin,Lisa Boyd, Susan Barns, Cindy Olney,Kathy Schilling, Marge Kars, Terry Jankowski, Barbara Bibel, and Cathy Boss </li></ul></li></ul> <p>Acknowledgements </p> <ul><li>Health Information Literacy Research Project</li></ul> <ul><li><ul><li>Sabrina Kurtz-Rossi, Project Coordinator </li></ul></li></ul> <ul><li><ul><li>Jean P. Shipman, Co-Principal Investigator </li></ul></li></ul> <ul><li><ul><li>Carla J. Funk, Co-Principal Investigator </li></ul></li></ul>