“NO DECISION ABOUT ME WITHOUT ME”

Collaborative opportunities to support shared decision-making in the NHS

AGENDA

Health literacy vs health information literacyResearch justification Evidence Based Patient Choice Summary of literature review Survey analysis 7 pillars vs EBP vs health information literacy Proposed model

HEALTH LITERACY VS HEALTH INFORMATION LITERACY

Health literacy = ability to understand medical instructions

Health information literacy = ability to find and appraise information to help make an informed decision

RESEARCH JUSTIFICATION England – 15 million people suffer from at least one

chronic condition (diabetes, epilepsy, asthma) NHS Care Summary records Department of Health - Information Revolution

http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalasset/dh_120598.pdf

‘No decision about me without me’ Shared decision-making Access to data vs information

Evidence-Based Practice= best research + clinical expertise + patient values

EVIDENCE BASED PATIENT CHOICE

CURRENT STATE OF ONLINE CONSUMER HEALTH INFORMATION LITERACY Access to the Internet

UK has highest proportion of households with Internet access (82%)

Searching behaviour More likely to search if they have chronic conditions Disparity due to poverty and lack of Internet access Knowledge of clinical terminology

Quality of online health information Papers found that the majority of sites looked at were

inaccurate or completely wrong Incorrect information leads to poor decisions No requirement to adhere to quality standard

Shared decision-making Involved patients are more likely to be compliant

SURVEY ANALYSIS

Formal survey to identify what people want in terms of information skills support

Quick and dirty review of what public and medical libraries offer to the general public

CURRENT HEALTH INFO PROVISION

Potential sources:

Public libraries

Patient libraries

Medical libraries

Pharmacies

Patient Advisory and Liaison Services (PALS)

7 PILLARS VS EBP VS HEALTH INFO LIT

Column 1: Society of College National and University Libraries (SCONUL), 1999. SCONUL Seven pillars model for information literacy, Available at: http://www.sconul.ac.uk/groups/information_literacy/sp/.Column 2: Sackett, D.L., 1997. Evidence-based medicine. Seminars in Perinatology, 21(1), p.3-5Column 3: Author’s own.

PROPOSED MODEL

Peripetetic Outreach Librarian: Train the trainer – public librarians

Teaching public librarians about health information sources Searching skills – public and health professionals

Teaching searching skills to public and health professionals Current awareness

Newsletters of latest research on relevant chronic conditions Information clinics – general public

Mediated searches with patients present Literature searching and information provision Located in public libraries, GP surgeries, pharmacies, and

hospitals Regular days per week Trust employed and Trust and council funded

BENEFITS – DOING MORE WITH LESS

Sharing resources, knowledge, and expertise Professional development across sectors Improved information literacy skills for public Better informed decisions

“Knowledge is the enemy of disease”

Sir Muir GrayNHS Chief Knowledge Officer

ANY QUESTIONS?

Mrs Caroline De Brún MA DipLIS MCLIPResearch Student and Clinical Support Librarian

debrunc@uni.coventry.ac.uk