Patient power and voice in the new health and social care world
Health and care as if people matter
Jeremy Taylor, 12 March 2014
What matters to us?
• Access • Information• Communication• Involvement • Family and friends• Privacy, confidentiality and dignity• Support for self-care and independence• Personalised service, coordination and continuity• Practical support• Emotional support
What matters to us?
• I want to see a doctor• I want a service I can trust• I want to know what’s going on• I want to be treated as a person• I want a say• I don’t want to be passed from pillar to post• I don’t want to repeat my story every time• I want to be in control• I want to be looked after • I’m in pain. I’m exhausted• I’m not happy about the care my Mum is getting
Living with .....People as managers
Out-of-Hours Doctors
GPDistrict Nurses
Social Worker
Malcolm &Barbara
ConsultantContinence
Adviser
Speech & Language Adviser
Dietician
CommunityDentist
OccupationalTherapist
Equipment Service
PhysiotherapistAlternating
Mattress technician
Wheelchair Service
Oxygen serviceDirect
PaymentsTeam; Rowan
Org.
Alzheimer’sSoc outreach
worker
Care team2 live-in carers (alternating weekly)Replacement carer[Some night nursing – Health]Emergency carers & Barbara
The Web of Care
(Last 7 yrs)
DementiaAdvisoryNurse?
The house of care
Person centred coordinated care
“I can plan my care with people who work together to understand me and my
carer(s), allow me control, and bring together services
to achieve the outcomes important to me.”
Information
Information
My goals/outcomes
My goals/outcomes
Communication Communication Decision making Decision making
Care planning Care planning
Transitions Transitions
8
Goal setting and action planning
Care and support planning
Year of Care
“More than medicine”• Self-management• Family• Friends• Neighbours• Peer-supporters• Befrienders• Advocates • Community health champions• Patient and lay leaders• Voluntary sector organisations
You can’t do this alone!• The world is too complex*• The duties too onerous• The money insufficient• The health and care workforce too stretched• The needs go beyond narrowly clinical• Statutory agencies can’t do this alone!
* Many to Many: how the relational state will transform public services, Muir and Parker, IPPR, Feb 2014
Changing models of careFrom: To:
Patients as recipients People as partners and managers of their health
Primarily medical Increasingly social
Professionals designing services
Co-design of services
Mobilising doctors, nurses and drugs
Mobilising citizens and communities
Treatment plans Participative care and support planning
Clinical outcomes Quality of life outcomes
Hospital focus Out of hospital focus
How much do you want let go?
A care system in which people matter
• We have rights• We define success• We are partners• We are managers• We are leaders• We are all part of the workforce• No decisions about us without us
• Thanks for listening• www.nationalvoices.org.uk• Follow us on Twitter• @NVTweeting• @JeremyTaylorNV
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