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The SPLIT Project: Working Together with Disabled
Experts to Improve Communication
Haringey Disability First Consortium presentsThe SPLIT Project
By Mhairi McGheeDisability Representation Worker
Haringey Disability First Consortium
Haringey Disability First Consortium
and a D.P.O
D.P.O =
Disabled People’s Organisation
D.P.O =
Disabled People’s Organisation
We are run BY disabled peopleFOR disabled people
Elected Steering Committee
• Local• Disabled people• Want to improve disabled people’s
lives• Represent the broad demography of:
the ‘disabled community’the borough
• Elected by the members
Elected Steering Committee
• Local• Disabled people• Want to improve disabled people’s
lives• Represent the broad demography of:
the ‘disabled community’the borough
• Elected by the members
Elected Steering Committee
• Local• Disabled people• Want to improve disabled people’s
lives• Represent the broad demography of:
the ‘disabled community’the borough
• Elected by the members
Elected Steering Committee
• Local• Disabled people• Want to improve disabled people’s
lives• Represent the broad demography of:
the ‘disabled community’the borough
• Elected by the members
Elected Steering Committee
• Local• Disabled people• Want to improve disabled people’s
lives• Represent the broad demography of:
the ‘disabled community’the borough
• Elected by the members
Elected Steering Committee
• Local• Disabled people• Want to improve disabled people’s
lives• Represent the broad demography of:
the ‘disabled community’the borough
• Elected by the members
Elected Steering Committee
• Local• Disabled people• Want to improve disabled people’s
lives• Represent the broad demography of:
the ‘disabled community’the borough
• Elected by the members
Elected Steering Committee
• Local• Disabled people• Want to improve disabled people’s
lives• Represent the broad demography of:
the ‘disabled community’the borough
• Elected by the members
Our members
• Pan-diagnosis
Our members
• Pan-diagnosis• Financial and social cross section
Our members
• Pan-diagnosis• Financial and social cross section• Many of our members benefit from
‘plain English’
Our members
• Pan-diagnosis• Financial and social cross section• Many of our members benefit from
‘plain English’• 60% of our members do not use email
Our members
• Pan-diagnosis• Financial and social cross section• Many of our members benefit from ‘plain
English’• 60% of our members do not use email
Request reasonable adjustments, lobby for accessible communications, demonstrate best practice......
......but
......but
• More and more access is dependent on the internet
• IT literacy as a Human Rights issue• Reduces isolation, connects people,
improve employability
......but
......but
......but
Our secret weapon
Stroke survivor
Aphasia
Stroke survivor
Aphasia
Stroke survivor
parent
Aphasia
Stroke survivor
parent
Disability campaigner
Aphasia
Stroke survivor
parent
Disability campaigner
author
Aphasia
Stroke survivor
parent
Disability campaigner
author
actor
Aphasia
Stroke survivor
parent HDFC Steering Committee Member
Disability campaigner
author
actor
Aphasia
Stroke survivor
parent HDFC Steering Committee Member
Disability campaigner
author
actor
cyclist
Aphasia
Aphasia
is the name given to a collection of language disorders caused by damage to the brain
User lead – Disabled Experts
• Effective and efficient• The contacts• The knowledge• The experience• The passion and drive
One-to-one learning
a Stroke Survivor with Aphasia and a Speech and Language Therapy student
Drop-ins
practice new skills, bring in equipment, ask questions, learn tricks from others
Feedback
Feedback
Because its run by people with aphasia for people with aphasia it avoids a lot of
explanation. They already know where you’re coming from. They’ve been there themselves
Feedback
FeedbackTo be part of this programme its exciting for us the support workers...coz you actually see the changes they went through... [from] not knowing where the internet explorer is, to
coming in, logging in independently
Feedback
Feedback
It helped me a lot of ways. I learnt email. I learnt facebook, I learnt youtube. I can do very skype (sic)
Feedback
FeedbackIts all lead by the students, we’re there to support them but if the student wants to take a separate angle we’re there
Feedback
Feedback
The first time my son phoned up... He’s sitting right in front of me. Its absolutely fantastic.
Feedback
Feedback
To go on the computer and feel confident. Knowing not putting my bank details online, that was good. Before I was a very technical person. Its made me know that I can do it again.
Feedback
Feedback
Course wise or content wise to be able to develop it a lot further. There’s so many different ways we could take this further. .. I think there’s a lot more opportunity for development
Feedback
From the start to now seeing how far my student has come from the very beginning, its really good to kinda see that progress first-hand (sic)
Disabled experts design projects that work!
By Mhairi McGheeDisability Representation Worker
www.hwfonline.org.uk/about/disabled_peoples_organisation/www.youtube.com/watch?v=hYEmYJlgzvI SPLIT film
For HEAR Human Rights and Equalities Network ConferenceWorking Together for Health Equalities