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The SPLIT Project: Working Together with Disabled Experts to Improve Communication

The SPLIT Project: Working Together with Disabled Experts to Improve Communication

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Page 1: The SPLIT Project: Working Together with Disabled Experts to Improve Communication

The SPLIT Project: Working Together with Disabled

Experts to Improve Communication

Page 2: The SPLIT Project: Working Together with Disabled Experts to Improve Communication

Haringey Disability First Consortium presentsThe SPLIT Project

By Mhairi McGheeDisability Representation Worker

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Haringey Disability First Consortium

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Haringey Disability First Consortium

and a D.P.O

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  D.P.O =

Disabled People’s Organisation

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  D.P.O =

Disabled People’s Organisation

We are run BY disabled peopleFOR disabled people

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Elected Steering Committee

• Local• Disabled people• Want to improve disabled people’s

lives• Represent the broad demography of:

the ‘disabled community’the borough

• Elected by the members

Page 12: The SPLIT Project: Working Together with Disabled Experts to Improve Communication

Elected Steering Committee

• Local• Disabled people• Want to improve disabled people’s

lives• Represent the broad demography of:

the ‘disabled community’the borough

• Elected by the members

Page 13: The SPLIT Project: Working Together with Disabled Experts to Improve Communication

Elected Steering Committee

• Local• Disabled people• Want to improve disabled people’s

lives• Represent the broad demography of:

the ‘disabled community’the borough

• Elected by the members

Page 14: The SPLIT Project: Working Together with Disabled Experts to Improve Communication

Elected Steering Committee

• Local• Disabled people• Want to improve disabled people’s

lives• Represent the broad demography of:

the ‘disabled community’the borough

• Elected by the members

Page 15: The SPLIT Project: Working Together with Disabled Experts to Improve Communication

Elected Steering Committee

• Local• Disabled people• Want to improve disabled people’s

lives• Represent the broad demography of:

the ‘disabled community’the borough

• Elected by the members

Page 16: The SPLIT Project: Working Together with Disabled Experts to Improve Communication

Elected Steering Committee

• Local• Disabled people• Want to improve disabled people’s

lives• Represent the broad demography of:

the ‘disabled community’the borough

• Elected by the members

Page 17: The SPLIT Project: Working Together with Disabled Experts to Improve Communication

Elected Steering Committee

• Local• Disabled people• Want to improve disabled people’s

lives• Represent the broad demography of:

the ‘disabled community’the borough

• Elected by the members

Page 18: The SPLIT Project: Working Together with Disabled Experts to Improve Communication

Elected Steering Committee

• Local• Disabled people• Want to improve disabled people’s

lives• Represent the broad demography of:

the ‘disabled community’the borough

• Elected by the members

Page 19: The SPLIT Project: Working Together with Disabled Experts to Improve Communication

Our members

• Pan-diagnosis

Page 20: The SPLIT Project: Working Together with Disabled Experts to Improve Communication

Our members

• Pan-diagnosis• Financial and social cross section

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Our members

• Pan-diagnosis• Financial and social cross section• Many of our members benefit from

‘plain English’

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Our members

• Pan-diagnosis• Financial and social cross section• Many of our members benefit from

‘plain English’• 60% of our members do not use email

Page 23: The SPLIT Project: Working Together with Disabled Experts to Improve Communication

Our members

• Pan-diagnosis• Financial and social cross section• Many of our members benefit from ‘plain

English’• 60% of our members do not use email

Request reasonable adjustments, lobby for accessible communications, demonstrate best practice......

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......but

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......but

• More and more access is dependent on the internet

• IT literacy as a Human Rights issue• Reduces isolation, connects people,

improve employability

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......but

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......but

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......but

Our secret weapon

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Stroke survivor

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Aphasia

Stroke survivor

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Aphasia

Stroke survivor

parent

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Aphasia

Stroke survivor

parent

Disability campaigner

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Aphasia

Stroke survivor

parent

Disability campaigner

author

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Aphasia

Stroke survivor

parent

Disability campaigner

author

actor

Page 35: The SPLIT Project: Working Together with Disabled Experts to Improve Communication

Aphasia

Stroke survivor

parent HDFC Steering Committee Member

Disability campaigner

author

actor

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Aphasia

Stroke survivor

parent HDFC Steering Committee Member

Disability campaigner

author

actor

cyclist

Page 37: The SPLIT Project: Working Together with Disabled Experts to Improve Communication

Aphasia

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Aphasia

is the name given to a collection of language disorders caused by damage to the brain

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User lead – Disabled Experts

• Effective and efficient• The contacts• The knowledge• The experience• The passion and drive

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One-to-one learning

a Stroke Survivor with Aphasia and a Speech and Language Therapy student

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Drop-ins

practice new skills, bring in equipment, ask questions, learn tricks from others

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Feedback

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Feedback

Because its run by people with aphasia for people with aphasia it avoids a lot of

explanation. They already know where you’re coming from. They’ve been there themselves

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Feedback

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FeedbackTo be part of this programme its exciting for us the support workers...coz you actually see the changes they went through... [from] not knowing where the internet explorer is, to

coming in, logging in independently

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Feedback

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Feedback

It helped me a lot of ways. I learnt email. I learnt facebook, I learnt youtube. I can do very skype (sic)

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Feedback

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FeedbackIts all lead by the students, we’re there to support them but if the student wants to take a separate angle we’re there

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Feedback

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Feedback

The first time my son phoned up... He’s sitting right in front of me. Its absolutely fantastic.

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Feedback

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Feedback

To go on the computer and feel confident. Knowing not putting my bank details online, that was good. Before I was a very technical person. Its made me know that I can do it again.

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Feedback

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Feedback

Course wise or content wise to be able to develop it a lot further. There’s so many different ways we could take this further. .. I think there’s a lot more opportunity for development

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Feedback

From the start to now seeing how far my student has come from the very beginning, its really good to kinda see that progress first-hand (sic)

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Disabled experts design projects that work!

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By Mhairi McGheeDisability Representation Worker

[email protected]

www.hwfonline.org.uk/about/disabled_peoples_organisation/www.youtube.com/watch?v=hYEmYJlgzvI SPLIT film

For HEAR Human Rights and Equalities Network ConferenceWorking Together for Health Equalities