Embed Size (px)
DESCRIPTION
The Parkinson Council, an affiliated chapter of the National Parkinson Foundation, is dedicated to improving the quality of life for people with Parkinson's disease, their families and caregivers in the Delaware Valley.
Citation preview
TOUCHING A LIFE EVERYDAY…
PARKINSON’S DISEASE
www.theparkinsoncouncil.org
ABO
UT P
ARKINSO
N’S DISEASE
Parkinson's disease was first described in England in 1817 by Dr. James Parkinson. The disease most often develops after age 50. It is the second most common nervous system disorder of the elderly. Sometimes Parkinson's disease occurs in younger adults, but is rarely seen in children. It affects both men and women. Parkinson’s disease affects 1.6 million people in the U.S. and, according to the National Institutes of Health, about 50,000 new cases are reported annually. This number will rise dramatically with the aging of the “Baby Boomer” generation. Symptoms of Parkinson’s disease range from tremors, slowness of movement, rigidity, difficulty walking and poor balance to difficulty in speech and swallowing, depression and memory loss. It is a chronic neurodegenerative illness with variable progression over time, usually leading to disability and death within 10-15 years of diagnosis. Each person diagnosed with Parkinson's will experience symptoms differently. We do not know what causes Parkinson’s disease and, as yet, there is no known cure.
IMPACT
Parkinson’s Disease affects more people than Leukemia, MS, and ALS combined
Disease # US Patients
Leukemia & Lymphoma 900,000
Multiple Sclerosis 400,000
ALS (Lou Gehrig’s Disease) 30,000
Parkinson’s Disease 1.5 million
NATIO
NAL P
ARKINSO
N ORGAN
IZATION
S
Michael J. Fox
Foundation National Parkinson
Foundation American Parkinson Disease
Association Parkinson
Action Network
NPF Chapters
Davis Phinney, etc.
With several national organizations dedicated to research and quality of life issues for Parkinson’s patients, this often leads to inefficiencies. It is also difficult to determine their impact on local communities.
Parkinson Disease
Foundation
Parkinson Disease
Foundation
National Organizations that Focus on Parkinson’s Research, Services and Education
The Parkinson Council
THE PARKINSON COUNCIL
www.theparkinsoncouncil.org
WHO W
E ARE About The Parkinson Council
The Parkinson Council is the premier local organization dedicated to improving the quality of life for patients, caregivers, and their families impacted by Parkinson’s disease. We invest in research, education and services provided by world renowned institutions, and innovative service organizations in the greater Philadelphia area. We strengthen our role in the Parkinson’s community by increasing the number of lives we touch every year.
Our Mission
The mission of The Parkinson Council is to raise funds to provide financial support and grants to locally based nonprofits dedicated to improving the quality of life for Parkinson’s disease patients, caregivers and families.
The Parkinson Council, an affiliated chapter of the National Parkinson Foundation (NPF), raises funds to provide resources and services to people with Parkinson’s disease living within the Delaware Valley region.
Our Values and Vision
www.theparkinsoncouncil.org [email protected]
OU
R PEO
PLE
Board of Directors
The Council recognizes that an important aspect of our work is cultivation of community advocates and leaders. Our volunteer Board consists of experts in law, healthcare, research, nonprofit management and business development. With our volunteers and staff, The Council is able to grant financial resources to local providers of high quality services and resources to People with Parkinson’s in the region.
Executive Committee
Jeffrey Keefer, President Jo-Ann Zoll, Vice President
Karen Jacobson, Vice President Mark Wilkin, Treasurer Ryan Haaz, Secretary
Erika Aaron
Geraldine Aaron Jan Albert
Vito Cosmo, Jr. Lisa Fiorito
Dan Forman Donald Garfinkel
Judi Guinan Arlene Halpern
Herb Hopkins
Lorraine Iacovitti Carol Leiper
Barry Milberg Marie Molchen William Quinlan
Suzanne Reichwein Ronald S. Robbins
Wendy R. Lewis, Executive Director Geoffrey S. Harden, Development and Communications Director
www.theparkinsoncouncil.org [email protected]
WHERE O
UR DO
LLARS COM
E FROM
*Contributions to The Parkinson Council: 2010 - 2012
2012 $877,202*
2011 $622,867
2010 $565,000
*Includes special events, memorials, honorariums
WALK: For 11 years, walkers of all ages have joined together in raising funds to support our mission as well as recognize April as National Parkinson’s Disease Awareness Month. Stamp Out Parkinson’s has grown from 300 participants to over 1300, and to date, has raised more than $1.4 million. GOLF: Since 1999, The Parkinson Council has presented the Golf Classic tournament at highly renowned golf courses throughout the Philadelphia region such as Saucon Valley, Philadelphia Cricket Club , and Philmont. In the event’s history, the golf outing has raised over $3.6 million to benefit local research and services associated with Parkinson’s disease. PARKINSON’S NIGHT AT CITIZEN’S BANK PARK: 2012 was our 7th year participating in the Phillies Phunraising Program, where a percentage of tickets sold supports the mission of The Council. NO TIME TO SPARE! BOWLING EVENT: Our 2nd annual event in November 2012 sold out. This fundraiser raises awareness and celebrates our team and leaders efforts to raise funds for our partners organizations working on behalf of PD patients and their families. DANNY AWARDS: Presented to an individual whose life exemplifies strength in character through humanitarian efforts. The award was created to honor the true spirit of Dan Aaron, one of the original founders of Comcast, who was diagnosed with Parkinson’s in 1980. In 2012, The DANNY was chaired by Ron and Marcia Rubin and honored former Governor Edward G. Rendell for his dedication, commitment and compassion for the citizens of Pennsylvania.
In 2013, our goal is to increase the visibility of our work, strengthen our partnerships, and diversify our funding base.
Our Events
www.theparkinsoncouncil.org [email protected]
OU
R WO
RK AND P
RIORITIES IN 2013
Funding Priorities: 2013 Grants by Institution: 2010-2013
Invested in: Innovative research projects at Jefferson's Farber Institute and Penn’s Center for Neurodegenerative Disease Research that help partners garner multi-year support from NIH and MJ Fox Foundation. Patient services at Jefferson Hospital to help patients and caregivers navigate and locate local services and resources. Outreach efforts to traditionally underserved communities, patient counseling and healthcare provider programs at the Penn’s Parkinson's Disease & Movement Disorder Center. Dance, yoga and Pilates classes in Philadelphia, Montgomery and Chester counties.
Highlight of Our Work in 2012
Patient Care and Services
47%
Outreach and Education
20%
Scientific Research
18%
Clinical Research
15%
Summary of Our 2013 Priorities
Support for: Improved access to physical therapy, social supports and education for Parkinson’s patients, including traditionally underserved populations, and their families. Mobility equipment to help Parkinson's patients with financial hardships stay mobile and engaged. Research to advance treatment therapies for Parkinson’s patients. Integrated approach to services, including expansion of home visits to patients with transportation and mobility challenges.
Penn, $755,888
CNDR, $108,000
GS/PP, $53,077
Jefferson, $408,500
MAPS, $23,000
MossRehab, $28,282
Arcadia, $15,000
Bryn Mawr, $1,000
The Council is committed to increasing its support for People with Parkinson’s by investing in local institutions and nonprofits.
JOIN U
S Our Priorities: 2013
The Parkinson Council seeks to be the leader in investing funding resources for PD patients, caregivers, researchers and educators in the Delaware Valley Region.
Your support ensures that local Parkinson’s patients, their families and caregivers have the needed resources and tools to promote a high quality of life and exceptional care. Your support makes it possible for local research institutions to continue their efforts to find the cause of and a cure for Parkinson’s disease. Your support is critical in helping us fulfill our vision of “A World Without Parkinson‘s Disease.”
Fundraising
Messaging & Outreach
Programs & Services
Grants & Support
Our Goal
What Your Support Will Do
www.theparkinsoncouncil.org [email protected]
