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Taking Organ Donation Beyond 2020 Dr Chris Booth Regional Clinical Lead for Organ Donation @drboothy [email protected]

Taking Organ Donation Beyond 2020 · 2019-06-11 · Taking Organ Donation Beyond 2020 Dr Chris Booth Regional Clinical Lead for Organ Donation @drboothy [email protected]

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Page 1: Taking Organ Donation Beyond 2020 · 2019-06-11 · Taking Organ Donation Beyond 2020 Dr Chris Booth Regional Clinical Lead for Organ Donation @drboothy chris.booth@srft.nhs.uk

Taking Organ Donation Beyond 2020

Dr Chris Booth

Regional Clinical Lead for Organ Donation@drboothy

[email protected]

Page 2: Taking Organ Donation Beyond 2020 · 2019-06-11 · Taking Organ Donation Beyond 2020 Dr Chris Booth Regional Clinical Lead for Organ Donation @drboothy chris.booth@srft.nhs.uk

A rich history of innovation

Page 3: Taking Organ Donation Beyond 2020 · 2019-06-11 · Taking Organ Donation Beyond 2020 Dr Chris Booth Regional Clinical Lead for Organ Donation @drboothy chris.booth@srft.nhs.uk

A rich history of innovation

Specialist Nurse for

Organ Donation

(SNOD) Non-clinical Donation

Committee Chair

(Chair)

Clinical Lead for

Organ Donation

(CLOD)

Page 4: Taking Organ Donation Beyond 2020 · 2019-06-11 · Taking Organ Donation Beyond 2020 Dr Chris Booth Regional Clinical Lead for Organ Donation @drboothy chris.booth@srft.nhs.uk

A rich history of innovation

DCDDonation after

Circulatory Death(formerly termed “non-heart beating”)

Page 5: Taking Organ Donation Beyond 2020 · 2019-06-11 · Taking Organ Donation Beyond 2020 Dr Chris Booth Regional Clinical Lead for Organ Donation @drboothy chris.booth@srft.nhs.uk

0

1500

3000

4500

6000

7500

9000

Transplant waiting list

Transplants fromDeceased and LivingDonors

Transplants fromDeceased Donors

Transplants from LivingDonors

Transplants and the transplant waiting list

2002 - 2018

Transplant waiting list has fallen for 8 consecutive years

Page 6: Taking Organ Donation Beyond 2020 · 2019-06-11 · Taking Organ Donation Beyond 2020 Dr Chris Booth Regional Clinical Lead for Organ Donation @drboothy chris.booth@srft.nhs.uk

Cross party supportInnovation in Technology

Page 7: Taking Organ Donation Beyond 2020 · 2019-06-11 · Taking Organ Donation Beyond 2020 Dr Chris Booth Regional Clinical Lead for Organ Donation @drboothy chris.booth@srft.nhs.uk

Organs transplanted

3.9 organs per donor

2.8 organs per donor

Potential

8-9Per donor

Potential

6Per donor

Donation after Brainstem Death Donation after Circulatory Death

Page 8: Taking Organ Donation Beyond 2020 · 2019-06-11 · Taking Organ Donation Beyond 2020 Dr Chris Booth Regional Clinical Lead for Organ Donation @drboothy chris.booth@srft.nhs.uk

Cross party support

Death is bad for organs

Page 9: Taking Organ Donation Beyond 2020 · 2019-06-11 · Taking Organ Donation Beyond 2020 Dr Chris Booth Regional Clinical Lead for Organ Donation @drboothy chris.booth@srft.nhs.uk

Organ Recovery

in situWarm ischaemia

ex situCold ischaemia

Organ Reconditioning

Page 10: Taking Organ Donation Beyond 2020 · 2019-06-11 · Taking Organ Donation Beyond 2020 Dr Chris Booth Regional Clinical Lead for Organ Donation @drboothy chris.booth@srft.nhs.uk

Innovation in Law

Opt out legislation

Page 11: Taking Organ Donation Beyond 2020 · 2019-06-11 · Taking Organ Donation Beyond 2020 Dr Chris Booth Regional Clinical Lead for Organ Donation @drboothy chris.booth@srft.nhs.uk

Why innovate in Law?

• Change the culture and balance of

presumption

• Consent rates not kept pace with ODR

• Learning from experience in Wales

Country 2015 2018 Change

England 61% 67% +6%

Scotland 54% 63% +9%

N. Ireland 59% 64% +5%

Wales 58% 73% +15%

Page 12: Taking Organ Donation Beyond 2020 · 2019-06-11 · Taking Organ Donation Beyond 2020 Dr Chris Booth Regional Clinical Lead for Organ Donation @drboothy chris.booth@srft.nhs.uk

Number of eligible DBD donors approached

Deemed Consent

Welsh consent rate

greater than English

consent rate

English consent rate

greater than Welsh

consent rate

Sta

nda

rdis

ed test sta

tistic

DBD

Page 13: Taking Organ Donation Beyond 2020 · 2019-06-11 · Taking Organ Donation Beyond 2020 Dr Chris Booth Regional Clinical Lead for Organ Donation @drboothy chris.booth@srft.nhs.uk

Deemed consent

1. Over the age of 18 (from 00.00 on their 18th birthday)

2. Who have lived in England for 12 calendar months

3. Who have not expressed or recorded a decision

4. Who also die in England

Page 14: Taking Organ Donation Beyond 2020 · 2019-06-11 · Taking Organ Donation Beyond 2020 Dr Chris Booth Regional Clinical Lead for Organ Donation @drboothy chris.booth@srft.nhs.uk

YES

Do want to be

a donor

No registration

on the ODR

NHS ODR

Registration

But what did this mean?

BEFOREDeemed consent

Page 15: Taking Organ Donation Beyond 2020 · 2019-06-11 · Taking Organ Donation Beyond 2020 Dr Chris Booth Regional Clinical Lead for Organ Donation @drboothy chris.booth@srft.nhs.uk

NO

Do Not want to

be a donor

YES

Do want to be

a donor

Appointed/

Nominated

Representative

to make

decision

No registration

on the ODR

NHS ODR

Registration

Deemed Consent

Page 16: Taking Organ Donation Beyond 2020 · 2019-06-11 · Taking Organ Donation Beyond 2020 Dr Chris Booth Regional Clinical Lead for Organ Donation @drboothy chris.booth@srft.nhs.uk

“What is now proved was once only imagined”

Innovation has a purpose

Page 17: Taking Organ Donation Beyond 2020 · 2019-06-11 · Taking Organ Donation Beyond 2020 Dr Chris Booth Regional Clinical Lead for Organ Donation @drboothy chris.booth@srft.nhs.uk