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Stanford Prevention Research Center © Stanford University, 2013 Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter, PhD, MHA Jylana L Sheats, PhD, MPH Dominique Cohen, MA, MFTI June 26, 2013

Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

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Page 1: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research CenterStanford University School of Medicine

Collaborative Data Collection, Analysis, and Dissemination

Sandra J Winter, PhD, MHA

Jylana L Sheats, PhD, MPH

Dominique Cohen, MA, MFTI

June 26, 2013

Page 2: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Overview

• Icebreaker• Introductions

– Us – You

• Background to our project• Learning Objectives - working collaboratively to:

– Collect data – Analyze data– Disseminate project results

• Success: strategies and measures• Interactive section

– Problem solving strategies– Challenges and Benefits– Lessons learned

• Concluding thoughts

Page 3: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

ICEBREAKER

Page 4: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Run around the table if………

• You did some type of physical activity in the past week

• You came here using public transport• You have eaten fruits AND vegetables

today• You had sufficient sleep last night

Page 5: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Introductions

Page 6: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Us

• Sandra J Winter, PhD, MHA• Jylana L Sheats, PhD, MPH• Dominique Cohen, MA, MFTI

Page 7: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

You

• Name• Your Organization• Your CBPR experience• What you hope to accomplish at this

session

Page 8: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Background

Page 9: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

• Build capacity for change through community partnerships

• Train seniors to be advocates for improved neighborhood designs that promote health

• Disseminate findings to policy makers

Neighborhood Eating and Activity Advocacy Team (NEAAT)

Page 10: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Community-Based Participatory Research

SPRC

San Mateo County-health; aging; transportation; housing

Housing coalitions-MidPen Housing Corp

Housing management and residents-Housing Site A (EPA), - Housing Site B (Daly City)

Other community organizations

Funding Agency- Office of Community Health, Stanford University

Page 11: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

NEAAT Process

• Initial Study Period– August 2010 – May 2011

• Formed Community Advocacy Teams (CAT)

• CAT members:– Identified neighborhood features– Prioritized issues to tackle– Adopted a solution-oriented approach

Page 12: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Setting

• Two affordable senior housing sites, San Mateo Co– Housing Site A (74 units) - primarily African American– Housing Site B (77 units) - primarily Filipino

• Managed by MidPen Housing Corporation

Page 13: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

NEAAT CAT Demographics

Housing Site A Housing Site B

N (originally interested) 24 19

N (sustained participation) 12 11Mean age (years) 71.7 72.3

Female (%) 83.3 72.1

Black (%)Asian (%)Other (%)

75-25

27.363.6 9.1

High school or less (%)More than high school (%)

58.341.7

36.463.6

Page 14: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Learning Objectives

Page 15: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Learning Objectives

1. Describe different strategies guiding collaboration in data collection

2. Describe different strategies for collaborative data analysis

3. Describe different approaches to collaborative dissemination of project results

Page 16: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Overview:Collaborative Data Collection

• Types of Data Gathered by CAT members:• Assessment of neighborhood built environment• Assessment of neighborhood food environment• Surveys of residents of housing sites• Pedestrian and vehicle street counts

Page 17: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Collaborative Data Collection (4 total): #1: Assessment of Neighborhood Built Environment

• Used mobile phones, hand held audio recorders and pen and paper notes

• Led to the development of the Stanford Healthy Neighborhood Discovery Tool

Page 18: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Collaborative Data Collection:#2: Assessment of Neighborhood Food Environment

• Perception that local stores did not stock fruits and vegetables

• Conducted a survey of fruits and vegetables available in local stores

• Based on a well validated research tool – the Nutritional Environmental Measures Survey (NEMS)

Page 19: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Collaborative Data Collection:#3: Surveys of Other Residents

• How many times a week do you cross this street?

• At what time of day do you usually cross this street?

• What are the main reasons you cross this street?

Page 20: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Collaborative Data Collection: #4: Street counts

• Partnered with a youth organization

• Counted vehicle and pedestrian traffic

• Different times of the day

Page 21: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Overview:Strategies for Collaborative Data Analysis

• Reviewing the data• Collective problem identification• Prioritizing the issues

Page 22: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Collaborative Data Analysis

• Participants met to review all the data gathered

• Wrote all issues noted on big post-it notes

• Gave people stickers to vote on the issues they thought were most important

Page 23: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Collaborative Data Analysis

• Prioritized issues to address using the feasibility and importance table

Page 24: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Example Issue Identified and Actions Taken

• Unsafe to cross busy streets• Actions taken:

– Surveyed residents about street use– Counted pedestrian and vehicle traffic –

either themselves or in partnership with a local youth group

– Got letter of support from local businesses– Engaged in dialogue with local city

planners

Page 25: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Example Issue Identified and Actions Taken

• Limited access to fresh produce• Actions taken:

– Reinvigorated a neglected backyard garden– Obtained “Fresh Checks” for local Farmers Market– Held cooking classes– Raised awareness of available fresh produce– Held “potluck” dinners to promote healthy eating

Page 26: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Overview:Collaborative Dissemination of

Project Results

• Community meeting• Media coverage of the NEAAT project• Dialogue with policy makers

Page 27: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Community Meeting

• Hosted by the San Mateo County Health System

• Attended by representatives from – Stanford University– various non profit organization– various healthcare systems

• Residents from each housing site presented– 3 collectively identified issues– their solution oriented approach

Page 28: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Media Coverage

• Article about the NEAAT project produced by Spectrum and available on-line and in print in Inside Stanford Medicine

• Video produced by Spectrum available on YouTube

• http://med.stanford.edu/ism/2011/august/runnymede.html

Page 29: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Meetings with Policy Makers

• Initial and ongoing dialogue with various City Planners

Brent Butler, AICP, CFMCity Planner for East Palo AltoMeeting with residents

Page 30: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Success

Page 31: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Strategies for Success

• Enlist a “Champion for Change”• Develop community capacity and skills• Foster community ownership of projects• Build strong relationships• Engage with policy makers• Actively pursue sustainability • Set realistic expectations for all

Page 32: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Measuring Success

Short-Term:• Residents learned

advocacy skills • Partnerships developed• Initial engagement with

policy makers• Allocation of government

$ to tree planting, sidewalk improvements etc

Long-Term:• On-going use of

advocacy skills• Partnerships sustained• Continued dialogue with

policy makers• Allocation of government

$ to update the general plan so that public health is targeted in future planning

Page 33: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Interactive Section

Page 34: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Now it’s your turn ……

In small groups discuss your CBPR projects

• What challenges have you experienced?• What problem solving strategies did you

employ?• What lessons did you learn?• What benefits does a CBPR approach offer?

Page 35: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Conclusions

• Data gathering– Develop partnerships at different levels– Gather data from various sources using mixed methods

• Data analysis– Use simple decision making paradigms – Don’t underestimate community capabilities

• Data dissemination– Harness communication skills of community members – Use multiple methods (on-line, print, social media, etc)

Page 36: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Acknowledgements

• Abby C King, PhD• Matt Buman, PhD• Brent Butler, AICP, CFM• Dominique Cohen, MA, MFTI• Kevin Pieritti• Cathleen Baker, MPP• Rhonda McClinton Brown, MPH• Jill Evans, MPH

Page 37: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Project Funding

• Principal Investigator: Abby C King, PhD• Funded by the National Center for

Research Resources and the National Center for Advancing Translational Sciences, NIH, through UL1 RR025744

• Awarded through the Office of Community Health, Stanford University School of Medicine.

Page 38: Stanford Prevention Research Center Stanford University School of Medicine Collaborative Data Collection, Analysis, and Dissemination Sandra J Winter,

Stanford Prevention Research Center

© Stanford University, 2013

Thank you