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 Supporting Older Family Carers Project Else Wilson and Ambi Wildman

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Supporting Older Family

Carers Project

Else Wilson and Ambi Wildman

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Shared Lives

In 2009 NAAPS(now Shared LivesPlus) secured 2

year funding fromthe ScottishGovernment for a

project worker tosupport older family

carers 

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Supporting Older Family Carers Project

• The project aims to support the needs ofolder family carers with sons/daughterswho have a learning disability and/or

autistic spectrum disorder by promotingShared Lives (previously known as AdultPlacement) so that this option can be

considered in future care planning

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Background

• As carers get older, what the future holds for their sonsand daughters becomes a real concern

• Various reports over recent years clearly indicate the

needs of older family carers such as emergencyplanning and future care needs for their sons anddaughters

Enable: Living from Day to Day

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Scotland’s Ageing Population 

Demographic study indicates that

• The number of people of pensionable age inScotland is projected to rise by around 31 per

cent from 0.98 million in 2006 to 1.29 million in2031.

• The number of people aged 75 and over isprojected to increase by around 81% from 0.38million in 2006 to 0.69 million in 2031.

• 69% of carers aged 50 or more

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Learning disabilities

• 27,391 adults with learning disabilitieswere known to the 32 local authorities inScotland in 2010.

• Nationally there are now 6.4 people per1,000 population with a known learningdisability.

• There were over 5,845 adults with learningdisabilities aged 50-64 and 2,597 aged 65or older.

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Carers of adults with a learning disability

• 9,259 adults with a learning disabilityknown to local authorities in Scotland livedwith a family carer.

• 1,021 of the adults living with a familycarer were themselves aged 50- 64 and270 are 65 or over.

• The same as you? estimated that 25 percent adults in Scotland could be living witha family carer aged 65 or over

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Supporting Older Family Carers Projectthrough Shared Lives

Meets Scottish Government Outcomes: 

• We live longer, healthier lives

• We have tackled significant inequalities in

Scottish society• We take pride in a strong, fair and inclusive

national identity

• Our public services are high quality, continually

improving, efficient and responsive to localpeople’s needs 

• We have improved the life chances for children,young people and families at risk

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 Self-directed Support (Scotland) Bill

Guiding principles

• Better outcomes - people are healthier andhappier

• Choice - people can choose the support theyneed

• Participation - people can make decisions abouttheir life

• Mutuality - people and social workers worktogether

• Equality - everyone can get good support

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Personalisation

“Personalisation enables the individual alone, or in groups, to find the right 

solutions for them and to participate in the delivery of a service. From being the recipient of a service, citizens can become actively involved in selecting and shaping 

the services they receive”  Scottish Government 2009

http://www.scotland.gov.uk/Publications/2009/04/07112629/0  

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The Same as You Report 2000

• Shared Lives was highlightedin the Same as You report

2000 as an example of goodpractice, being a flexible

community based provision

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Beginning of the Project

• The project has a steering group

• Research – to produce guidance for thedevelopment of Shared Lives services

• Main focus – to establish links with localauthorities, carers groups and otherorganizations, disseminating information andoffering presentations

• September 2010 – e-mail dissemination / pilotparticipation invited / interest indicated

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What the pilot sites offer

• Continuing support from the Shared Livesteam, working alongside LA staff, carers’

groups and other interested parties

• Information about the processes involvedin setting up schemes

• Guidance about good practice

• Involvement in focus groups – research

• Acknowledgement of participation

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Edinburgh Pilot Timeline

January Meeting with older family carers & birth parentsof son with a Shared Lives family

February/March Established a ‘PATH’ 

May Older family carers meet Shared Lives carersfrom different schemes

June 2 local coffee morning events

August Review and planning meeting

September - Review and agreement to work with several olderfamilies to establish initial introductions to SL carers

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What has worked well

• Participation of older family carers

• Collaboration and consultation

• Developing a project DVD

• Having a steering group and

researcher

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Challenges

• Financial Climate

• Organisational and staff changes

• Weather

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What has been learned

• Working together

• Involvement - benefits andchallenges

• Time

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What’s happening now? 

• Completion of the project DVD

• Dissemination of DVD throughout

Scotland and elsewhere

• Beginning of the Perth Pilot

• Possible extension of the projectto March 2012

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Workshops 

• From the perspective of olderfamily carers

• From the perspective of local

authority service providers.

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• Shared Lives is a tried and tested model ofcare which can offer support and choicewhen planning for the future

• THANK YOU AND ANY QUESTIONS

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References

http://www.scie.org.uk/publications/dementia/index.asp SCLD 2011 Statistics Release: Adults with learning 

disabilities - implementation of ‘The same as you?’ Scotland 2010  

Stewart F and Patterson E (2010) Caring in Scotland: Analysis of Existing Data Sources on Unpaid Carers in Scotland  

www.scotland.gov.uk/socialresearch 

Living from Day to Day (2008) A research project on OlderFamily Carers of People with Learning Difficulties

www.enable.org.uk