Beaumont Cancer Center3577 W. Thirteen Mile
Royal Oak, MI 48073-6710248-551-8585
Our Cover Story: Spring Clean your Body! Ask the Expert: Lindsay Dohany, MS, CGC Calendar of Events
In This Issue:
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Summer 2012 A NEWSLETTER FOR BREAST CANCER SURVIVORS
As the weather is warming up, summer is not too far away. During this time, many of us like to do a thorough spring cleaning to get the house back on track. Also, believe it or not, our body will really appreciate a nice cleaning too. Our digestive system is constantly working and some extra wastes start accumulating after all the hard work that it performs. This waste accumulation can be harmful and put our health at risk. To get a cleaner internal environment, we dont need expensive pills or unknown chemicals; many food sources can finish the job naturally and gently.
1. Liquid: Water is an essential component in our body. It sustains the whole body and allows it to function properly. Drinking enough water throughout the day helps flush the intestines and kidneys; excreting the waste from our body. We all know drinking plain water works great; but if you prefer more flavor, try adding some slices of lemon or cucumber to the water. If you like cozy and warm drinks, you can make ginger tea by adding ginger root to boiling water. Ginger helps stimulate digestion. Herbal tea is another good choice. In some cultures, it is also believed to promote both physical and spiritual health. Herbal teas come in different combinations and flavors. The ones without caffeine are better options since excessive caffeine consumption will cause dehydration. Look through the herbal tea section at grocery store and you find some great choices.
2. Dietary Fiber: Dietary fibers, especially insoluble fiber, have incredible cleansing power. On one hand, soluble fiber helps lower total and LDL cholesterol and control blood sugar in people with diabetes. On the other hand, insoluble fiber aids in digestion and bowel movements. It makes food move more quickly through the digestive tract, adds bulk to the stool and can be a big help for people suffering from constipation. Accumulation of digestive
wastes can cause many other diseases; its a good idea to do a clean-up once in a while. Sources of soluble fiber include oatmeal, oat bran, barley, legumes, nuts, seeds, and some fruits and vegetables, such as apples, pears, banana, beets and carrots. Sources of insoluble fiber include whole grains, bran, nuts, seeds, and vegetables (especially the skins), such as cucumber and celery.
3. Probiotics:Probiotics are the good bacteria that help maintain the natural balance of organisms in the intestines. They help maintain a healthy digestive system by inhibiting the bad bacteria growth. Probiotics are used to treat digestive tract problems such as diarrhea, irritable bowel syndrome and inflammatory bowel disease. Common food sources of probiotics include yogurt with live cultures, as well as Kefir (a fermented dairy product). Adding probiotics to your diet is a good way to promote a balanced internal environment, especially while you are doing a clean-up.
Liquids, fibers and probiotics are three good options for getting your digestive system back on track. However, if you are planning for a complete detox, its a good idea to consult with your doctor or physician. They will prescribe a customized detoxing plan to achieve your goal. Finally, theres one thing you always need to remember: whole and natural food are always better than processed food. Avoiding processed food will help reduce the stress on your digestive system. Combined with consuming more foods with cleansing power, you will prepare your body for a delightful summer.
About the author: Xinjuan Baldwin is the Senior Editor of Educational Fitness Solutions Monthly Nutrition Newsletter and is a graduate of the State University of New York with a B.S. in Nutrition and a minor in Personal Training.
News About Breast Cancer
SPRING CLEANING FOR YOUR BODY
Happy Summer!Warm days and sunshine are upon us and we have a busy summer schedule for all of you! On July 19, S&C will bring you an interactive webinar Cancer & the Law. The program will be brought to us by The Cancer Legal Resource Center, a nonprofit organization that is dedicated to helping cancer
patients with their legal concerns. Join us to learn about your rights under the law as a cancer patient/survivor. Have your questions ready! July 31st (yes a Tuesday!) we will be hosting Genetics with Jen. Certified genetics counselor Jennifer Fulbright will walk us through some questions many of you have about testing, counseling, and its affect on insurance. She will also give us an update on breast cancer genetics.
On August 23rd we will tour the beautiful Beaumont Womens Urology Center. Donna Carrico N.P will discuss some of the common urological/gynecological side effects from breast cancer treatment. August 30th brings us to one of my favorite subjects, massage! Clinical Massage Therapy Supervisor, Karen Armstrong will teach us all some techniques to comfort our loved ones during cancer treatment. This is a participatory workshop where we will learn and practice on our hands, feet and back.
On September 18th Dr. Hallie Armstrong, one of Beaumonts Naturopathic Doctors will talk to us about detoxing our bodies after cancer treatments. Dont miss this important session! Please be sure to register, this will be a full class for sure!
I would like to give you all a sneak preview of what is ahead this fall. October is always filled with wonderful breast cancer fund-raising events. This October Sharing & Caring will instead be focusing on YOU! I am happy to let you know, we are organizing a Life After Cancer Survivorship Series with topics such as:
Theres sure to be something for everyone!
In addition we will be organizing Breast Health Fairs at Royal Oak and Troy and will attend the Womens Health Fair at the Grosse Pointe Yacht Club as well!
As you can see we have a packed calendar. I hope to see many of you at our programs!Blessings,Lorelei
Greetings from Lorelei
Wear very comfortable clothing to your infusion. Wear a jogging suit that is lower cut, or has front zippers so your port can be easily accessed. Dressing this way will make it easier to access your surgery site if you see your doctor on the same day.
Chew ice chips while chemo is being administered. It cuts down on mouth sores.
Nutriceuticals are foods that contain large quantities of one or more molecules of anti-cancer potential. For fighting breast cancer specifically, increase your consumption of green tea, turmeric, and vegetables. Other great choices are bok choy, cooked tomatoes, strawberries, garlic and artichokes. Yum!
Exercise and Risk Reduction How I Made it Through to Become a Breast Cancer Survivor - Panel Discussion Managing Long Term Medical Side Effects Life After Cancer, Bone Health in Survivorship Hormonal Therapies in Survivorship Nutrition for Survivorship
What is genetic counseling? In cancer, genetic counselors help determine if an individuals cancer or their family history of cancer may be hereditary, help families understand their risk for hereditary cancer, educate them about hereditary cancer syndromes, and assess the risk for other family members. Hereditary cancer syndromes can increase ones risk of developing multiple types of cancer and the knowledge about this risk helps individuals and their families make decisions for cancer screening, prevention, and early detection. Genetic counselors provide a thorough evaluation of an individuals family tree to assess for any hereditary cancer genetic predisposition, help coordinate the hereditary cancer genetic testing, provide accurate interpretation of results for an individual or their family members, and provide continued education and support for individuals and their family with a hereditary cancer syndrome.
How do I know if I should see a genetic counselor? Do I need a referral? Approximately 10% of cancers are hereditary or due to an inherited genetic mutation. Therefore, most individuals diagnosed with cancer would not qualify for testing. Typically individuals who should consider genetic counseling include:
Cant I go to my surgeon or internist? The BRCA genes are patented which allows only one laboratory in the United States to perform this testing. Due to these patents, there is a marketing campaign to encourage all healthcare providers to test for BRCA mutations in order to increase the number of tests being ordered. BRCA testing is more than just a blood draw. Genetic counselors explain all possible results from BRCA testing, work with individuals and their families, provide opportunities for continued education, support, and research, and provide a thorough genetics evaluation for genes beyond BRCA.
Does insurance pay for the test and the counseling? The genetic counseling visit is billed just like a doctors office visit and usually individuals would be responsible for their co-pay only. Most insurance companies pay for most of hereditary cancer genetic testing if an individual meets criteria. Individuals are usually responsible for their deductibles and sometimes have a co-pay. Genetic counselors will discuss the cost of any genetic testing during the initial consultation.
If I am positive for a gene mutation, will it affect my insurance rates and ability to get or keep my coverage? There is a federal law called the Genetic Information Nondiscrimination Act (GINA) which protects against health insurance companies from using this information against an individual to raise their rates, deny them coverage, or cancel their policy. The Health Insurance Portability and Accountability Act (HIPAA) also protects against genetic discrimination, as well as state laws within Michigan. For more information visit: http://www.geneticfairness.org/
A few years ago, I tested negative for both BRCA 1 & 2. Have there been any new genes discovered associated with breast cancer? Have the tests been improved and refined? Should I consider being re-tested at some time in the future? Once you have tested negative for a hereditary cancer gene, including BRCA, you never have to repeat that same specific test, since what you were born with does not change. However, technology has changed and there are different tests to detect different types of mutations in the BRCA genes. The newest technology is called the BRCA Rearrangement Test (BART) and it detects large deletions, duplications, and rearrangements in the BRCA gene that the standard sequence analysis may miss. Currently, it is recommended that BART be offered to any patient pursuing BRCA testing. Individuals who were tested many years ago may wish to contact their genetic counselor to further discuss the option of BART.
continued on page 6...
Ask the ExpertOur Expert:
Lindsay Dohany, MS, CGCBeaumont Cancer Genetics Program
Those diagnosed with cancer at a young age (less than age 50). Those with a history of multiple cancers (i.e. breast and ovarian cancer). Those with a family history of multiple relatives with the same or related cancers on the same side of the family, regardless of age. Individuals with bilateral or multiple primaries of breast cancer. Individuals with ovarian cancer diagnosed at any age.
July, August & September
ALL Sharing & Caring events are RESERVATIONS REQUIRED! Please call 248-551-8585 and let us know you plan to attend. If no one is available to take your call, a message with your name, phone
number and which program you want to attend will complete your registration.
Prevention and Management of Lymphedema: Thursday, July 12th, 7:00 pm Royal Oak BeaumontPresented by Dr. Justin Riutta, Director of the Beaumont Lymphedema Clinic. Discussion of risk factors, prevention and management of lymphedema. Dr. Riutta will let us know what to look for, and what to do if we think we are experiencing lymphedema. He will take us through some simple arm exercises as well as how to wrap your arm. This class will meet in the Cancer Center 1st floor classroom.
Cancer and the Law: Thursday, July 19th, 7:00 pm Royal Oak Beaumont The Cancer Legal Resource Center (CLRC) is a national, joint program of the Disability Rights Legal Center and Loyola Law School, Los Angeles. The CLRC provides free information and resources on cancer related legal issues for cancer survivors, caregivers, health professionals, employers and others coping with cancer. Join us for a very informative interactive webinar on Cancer & the Law. We will meet in the auditorium of the Administration Building, just West of Beaumont Royal Oak South Tower entrance.
Metastatic Breast Cancer Support Group: Tuesday, July 24th, 7:00 pm Royal Oak BeaumontThis session will be led by psychologist Debra Luria, Ph.D., APRN, B.C. and Oncology Nurse Jennifer Martens. This group discusses issues that are unique to those living with metastatic disease. It is a positive, safe environment in which to discuss issues you may be dealing with. We meet in the Royal Oak Cancer Center 1st floor classroom.
Genetics with Jen: Tuesday, July 31st, 7:00 pm Royal Oak BeaumontHave you ever wondered if you or a family member should consider genetic counseling? What exactly do genetics counselors do, anyway? Have there been any new discoveries in breast cancer genetics? If Ive already been tested, is there any reason to see a counselor again? What about my insurance coverage? Join us, along with Jennifer Fulbright, MS, CGC, who will answer these questions and many more. We will meet in the Royal Oak Cancer Center 1st floor classroom.
Breast Cancer Support Group: Monday, August 6th, 10:30 am Troy BeaumontThe sudden and unexpected changes that go along with a breast cancer diagnosis can be difficult to manage. These groups provide an opportunity for women to discuss the unique challenges facing them as breast cancer survivors. Feel free to participate and share your story or just listen and perhaps make a new friend. Facilitated by Laurel Martinez, LMSW, LCSW, OSW-C. Meets in the Wilson Cancer Resource Center, in the Professional Building at 44344 Dequindre Road across the bridge from the Troy hospital.
Breast Cancer Support Group: Thursday, August 9th, 7:00 pm Royal Oak Beaumont Please join us in fellowship with other women who have traveled/are traveling the same road with a breast cancer diagnosis. This group will be facilitated by Psychologist Sally Smolen, MSN, PhD. Dr. Smolen specializes in psychotherapy, and is a transformative grief specialist at Mercy Works in Farmington Hills. We will meet in the Royal Oak Cancer Center 1st floor classroom.
FIELD TRIP! The Womens Urology Center Tour: Thursday, August 23rd, 6:00 pm Royal Oak BeaumontThe Womens Urology Center offers medical evaluation and treatment for women with bladder problems, pelvic pain, pelvic floor dysfunction and sexual stumbling blocks. We will discuss some of the more common gynecological side effects brought on by breast cancer treatment and aging. Meet Womens Health Practitioner, Donna Carrico, NP, and take a tour of the center. We will meet in the Urology Center (248-898-0898), which is located on the second floor of the South Tower of Royal Oak Beaumont.
WORKSHOP! Massage Techniques for the Caregiver: Thursday, August 30th, 7:00 pm Troy BeaumontThis is a hands-on workshop for you and your partner. We will be learning about safe and gentle massage techniques that we can use on our loved one who is dealing with a cancer diagnosis. Karen Armstrong, certified in Oncology Massage, Supervisor and Instructor of Beaumonts Medical Massage School will demonstrate some simple, yet effective techniques. We will then be able to practice on our partner. Please bring a towel and small pillow to lean upon. The workshop meets in the classrooms adjacent to the Atrium (Sterling Cafe area) in the Troy Beaumont Professional Building at 44344 Dequindre Rd., across from Troy Beaumont Hospital.
Im Too Young to Have Breast Cancer Support Group: Thursday, September 6th, 7:00 pm Royal Oak BeaumontThis discussion group focuses on younger women and their specific needs, such as talking to your children about your cancer, intimacy and body image, and working during treatment. Psychologist Annette Spencer, PhD, and Heather Lowry, Womens Health Nurse Practitioner will facilitate this group. We will meet in the 1st Floor Cancer Center Classroom. PLEASE NOTE TIME CHANGE THIS MONTH!
Metastatic Breast Cancer Support Group: Tuesday, September 11th, 7:00 pm Royal Oak BeaumontThis session will be led by psychologist Debra Luria, Ph.D., APRN, B.C. and Oncology Nurse Jennifer Martens. This group discusses issues that are unique to those living with metastatic disease. It is a positive, safe environment in which to discuss ssues you may be dealing with. We meet in the Royal Oak Cancer Center 1st floor classroom.
Breast Cancer Support Group: Monday, September 17th, 10:30 am Troy BeaumontThe sudden and unexpected changes that go along with a breast cancer diagnosis can be difficult to manage. These groups provide an opportunity for women to discuss the unique challenges facing them as breast cancer survivors. Feel free to participate and share your story or just listen and perhaps make a new friend. Facilitated by Laurel Martinez, LMSW, LCSW, OSW-C. Meets in the Wilson Cancer Resource Center, in the Professional Building at 44344 Dequindre Road across the bridge from the Troy hospital.
Detox for Cancer Survivors: Tuesday, September 18th, 7:00 pm Royal Oak Beaumont Dr. Hallie Armstrong, one of our Naturopathic Physicians from Beaumonts Integrative Medicine Department will teach us about detox after cancer treatment. Detox programs are wonderful for cancer survivors after treatment is finished in order to help restore and replenish your body. It is NOT SUITABLE for patients who are currently undergoing chemotherapy or radiation therapy. If you have finished your active cancer treatment, please join us to learn more about Integrative Medicines comprehensive program and simple ways to detox. We meet in the Royal Oak Cancer Center 1st floor classroom.
LIFE AFTER CANCER SURVIVORSHIP SERIES BEGINS: See page 6 for more information on this great new series.
LIFE AFTER CANCER: Bone Health for the Breast Cancer Survivor: Thursday, September 27th, 7:00 pm Royal Oak Beaumont Medical Oncologists Dr. Adil Akhtar and/or Dr. George Howard, will be teaching us about what to expect in survivorship with our bone health. Topics will include how bones may have been affected by hormonal manipulations, bisphosphonates (oral or IV), which scans to have, and how often you should have them. Meets in the Royal Oak Cancer Center 1st floor classroom.
Please remember, that while most of our programs are free of charge, we DO need you to register for
each of them. Just call us at 248-551-8585. You can leave a message with your name, phone number and
the program that you plan to attend.
URVIVORSHIP SERIES: LIFE AFTER CANC
Sharing & Caring Profile
...Ask the Expert, continued from page 3
BRCA mutations are the most common cause of hereditary breast cancer, but there are other hereditary breast cancer genes in addition to BRCA. A genetic counseling evaluation includes assessment for all possible hereditary cancer conditions. It is important to note that an individuals personal and family history are constantly evolving; recommendations for the type of cancer genetic testing may change if there are new cancer diagnoses within a family. If you were tested many years ago and your personal or family history have changed, you may wish to contact your genetic counselor to determine if you now meet criteria for any additional testing. Also, genetics information is evolving and new genes linked to breast cancer are being discovered. So even individuals being testing for hereditary cancer genes today may have other testing optionas available for them in the future.
How do I contact you? For additional information or to schedule an appointment please call 248-551-3388. You may also visit the Beaumont Cancer Genetics Program website at: http://cancer.beaumont.edu/genetics
Breast Cancer Awareness Month will be here before you know it! Sharing & Caring is kicking it off with a new series, just for you, the SURVIVOR!
Being a cancer survivor can be both exciting and stressful. You will be relieved to finish treatment, yet it may be hard not to worry about cancer coming back.
This is very common among people who have had cancer. For years after treatment ends, you will need to see your doctor for follow-up. These visits may include physical exams and blood tests, which can help to determine if cancer has come back. Other tests, like chest x-rays, CT
scans, or MRIs may also be needed. Almost any cancer treatment can have side effects. Some may last for a few weeks to months, but others can last longer. In the next month, we will be
delving into issues related specifically to cancer survivorship.
October Highlights Include:
Did you know? There were 2.6 million breast cancer survivors in the United States in 2011!
Exercise and Risk Reduction - October 4th
Panel Discussion: How I Made it Through Breast Cancer - October 11th
Hormonal Therapies in Survivorship - October 25th
Managing Long Term Medical Side Effects - date to be announced
Nutrition for Survivorship - date to be announced
Wed like to apologize for letting a miss-spelling slip through on last quarters newsletter. Our field trip to the MINISTRELLI Womens Heart Center was wonderful. We are fortunate to
have such a wonderful Womens Heart Center, and no, the Center has NOT been re-named! Thanks to those of you brought this to our attention.
Sharing & Caring Profile
In early December 2011, I got the usual telephone call. More views were needed for an accurate reading of my mammogram. Certain that it was routine, as I have got-ten this kind of call before, I grabbed my calendar and wrote on it the ungodly hour they wanted me to show up. Dressed in Beaumont Hospitals fashion-forward garb, I disrobed for several additional views, and then took my seat back in the waiting room. Every year I get the same response: Go have a seat; the radiologist will speak with you in a few minutes. Then the usual, The radiologist doesnt need to speak with you. Go home, and come back in a year.
I was complacently munching on a graham cracker when the volunteer called my name, and told me that the radiologist did want to talk to me. I was caught so off-guard, that I honestly wondered if maybe she recognized my name from somewhere, and wanted to say hello. No, it was a business meeting, not a social visit. The business was about the micro calcifications she saw, and she wanted me to schedule a sterotactic biopsyright then and there. So this was her tactic? There was no stereo prize offered, at all. I was told to lie on my stomach, and my left breast was dropped through a hole in the table. I heard the words no sedative because shes here by herself, incision, needle about the width of a pencil, and then the technician rolled up on a little wheeled dolly underneath the table to lube and grease my breast with lidocaine and compress my breast tight enough for the computer to guide the radiologist to collect the samples she needed for the pathologist. It was quick and painless, but I forgot to ask for the old parts back, and I didnt have a coupon for this service, so I could only imagine the magnitude of the bill at the end of the month!
Two days later, my doctor called. Eight of ten core tissue samples proved to be malignant. I needed to find a breast surgeon, pronto. I found that the medical community virtually shuts down over the December holidays, and I was the proverbial deer in the headlights. Frightened and bewildered, I called my friend in Canada, who was the only other person I knew whod had breast cancer, and told her that I was such a loyal friend, I even contracted the disease! I tested negative for the BRCA 1 and BRCA 2 gene mutations. My cancer was diagnosed as DCIS, grade 2, and estrogen and progesterone receptor negative.
I had lumpectomy surgery on January 17, and radiation from February 15 through March 30. At the simulation, I asked the techs if they could expand the tattoo to read, Made in the U.S.A., as I figured it would save me time at the border, since I visit Canada so often. Each day at radiation, I was asked to verify my name, birth date, and the part of the body being treated. Each day, I took on a different persona, dressing up as a different character. The first day I wore a tiara to treatment. I was Catherine, Duchess of Cambridge, otherwise known as Kate Middleton. Another day, coming straight from the ophthalmologists office, I was Ray Charles. This helped me to remember that anyone can be diagnosed with cancer, and calmed me in knowing that it is a condition shared with much of humanity, and I wasnt alone.
I even brought a tip jar with me to my radiation treatments. I figured that since the technicians get a free topless floor show, including jokes, songs, and dancing, the least they can do is help me to defray my medical expenses!
The day came for my final radiation treatment. I posted my Facebook status as, Crispy on the outside; tender on the inside. Im DONE!
Skin changes, fatigue, a scar, a seroma which required antibiotics, and the resultant stomach issues from said medication were the downsides. Also, the crushing disappointment to discover that the American Cancer Society, whose slogan is The Official Sponsor of Birthdays, did nothing for me on my May 5 birthday. Not a party, not a balloonnada. At least the Mexican restaurants in town went all out for me, with mariachi bands, and everything! I dont know why they thought I was so special on that day, but I appreciate it!
I have decided to start a one-person clinical trial. Since none of my doctors know what caused my cancer, I am going to research whether housework causes recurrence, or if ingesting massive quantities of chocolate pre-vents it. This could take months to years. Ill keep you posted. Now, if anyone knows where I might obtain a marshmallow to go with that first graham cracker and my current chocolate, Id be most obliged!
Fighting Cancer with Humor
vLook Good Feel Better: This program is presented in conjunction with the American Cancer Society to help women who are currently undergoing cancer treatment to improve their appearance and self image by teaching them hands-on beauty techniques to overcome the appearance-related side effects of cancer treatments. We will also learn how to tie head scarves, get tips on choosing the right wig, and even bring home a beautiful kit filled with new makeup. Please call 248-964-3430 for reservations at Troy, or 248-551-8585 for reservations at Royal Oak. Program meets at 10:00 am at the Troy Beaumont Wilson Cancer Resource Center and at 6:00 pm at the Royal Oak Beaumont 1st Floor Cancer Center Classroom. Meeting dates are Mondays: July 9th, August 13th and September 10th.
New Survivorship Series-Life After Breast Cancer!See page 6 for more information!
7th Annual Beaumont Breast Health Fairs: Royal Oak: Thursday, October 4th, Suite 100 Hallway, 1st floor, South Hospital. Troy: Tuesday, October 11th, 2nd Floor Atrium, Main Hospital. Great information on breast cancer treatment, cancer genetics, lymphedema, diet and more!
Girls Night Out: BE - Dazzled!: Thursday, October 18th, 6:00 pm - 9:00 pmGather your friends for a Roaring 20s evening, complete with flappers and music from the time! Well have a wonderful evening and learn the latest in breast health. Held in conjunction with Grosse Pointe Beaumont, at the Grosse Pointe Yacht Club, 788 Lake Shore Road, Grosse Pointe Shores. Call 800-633-7377 for more information or to register.
Volunteer Appreciation Night!: Thursday, December 8th 6:00 pm Calling all Sharing & Caring volunteers! Those of you who have already helped, and those of you wanting to help in the future. We would love to have you join us for the evening. Its a great opportunity to greet old friends and meete new ones over a light dinner and dessert. We will talk aboiut volunteer opportunities for the coming year and find out how you might like to help. Please be sure to call us at 248-551-8585 to let us know you will be there. THANK YOU for another great year! We will meet in the Royal Oak Cancer Center 1st floor classroom.
Silver Linings: Silver Linings teaches meditation (Mindfulness Based Stress Reduction), gentle yoga, mindful eating and mindful communication skills to women who have completed treatment for any type of cancer. Research shows that the program improves quality of life and post-cancer symptoms. Facilitated by Dr. Ruth Lerman. Mandatory information/registration for Autumn workshops is August 7th at 6:30 pm. Please contact Pam at firstname.lastname@example.org or call her at 248-551-4645 for more detailed information.
You gain strength, courage and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself I have lived through this horror. I can take the next thing that comes
along. You must do the thing you think you cannot do. ~ Eleanor Roosevelt
l Programs and Events of Interest...
The information in this newsletter is not intended as a replacement for medical care. The advice of your physician should take precedence in your health care matters.