Sharing with Friends - Summer 2012

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A newsletter for breast cancer survivors

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<ul><li><p>Sharing</p><p>Beaumont Cancer Center3577 W. Thirteen Mile</p><p>Royal Oak, MI 48073-6710248-551-8585</p><p>Speakers Schedule248-551-8588</p><p> Our Cover Story: Spring Clean your Body! Ask the Expert: Lindsay Dohany, MS, CGC Calendar of Events</p><p>In This Issue:</p><p>You can make a difference</p><p>Sharing &amp; Caring is a non-profit </p><p>organization devoted to the education and support of </p><p>breast cancer survivors. Your donation will </p><p>support programs for others who follow in your footsteps. Please make your check payable to Sharing &amp; Caring </p><p>at the above address.</p><p>Summer 2012 A NEWSLETTER FOR BREAST CANCER SURVIVORS</p><p>with Friends</p><p>As the weather is warming up, summer is not too far away. During this time, many of us like to do a thorough spring cleaning to get the house back on track. Also, believe it or not, our body will really appreciate a nice cleaning too. Our digestive system is constantly working and some extra wastes start accumulating after all the hard work that it performs. This waste accumulation can be harmful and put our health at risk. To get a cleaner internal environment, we dont need expensive pills or unknown chemicals; many food sources can finish the job naturally and gently. </p><p>1. Liquid: Water is an essential component in our body. It sustains the whole body and allows it to function properly. Drinking enough water throughout the day helps flush the intestines and kidneys; excreting the waste from our body. We all know drinking plain water works great; but if you prefer more flavor, try adding some slices of lemon or cucumber to the water. If you like cozy and warm drinks, you can make ginger tea by adding ginger root to boiling water. Ginger helps stimulate digestion. Herbal tea is another good choice. In some cultures, it is also believed to promote both physical and spiritual health. Herbal teas come in different combinations and flavors. The ones without caffeine are better options since excessive caffeine consumption will cause dehydration. Look through the herbal tea section at grocery store and you find some great choices. </p><p>2. Dietary Fiber: Dietary fibers, especially insoluble fiber, have incredible cleansing power. On one hand, soluble fiber helps lower total and LDL cholesterol and control blood sugar in people with diabetes. On the other hand, insoluble fiber aids in digestion and bowel movements. It makes food move more quickly through the digestive tract, adds bulk to the stool and can be a big help for people suffering from constipation. Accumulation of digestive </p><p>wastes can cause many other diseases; its a good idea to do a clean-up once in a while. Sources of soluble fiber include oatmeal, oat bran, barley, legumes, nuts, seeds, and some fruits and vegetables, such as apples, pears, banana, beets and carrots. Sources of insoluble fiber include whole grains, bran, nuts, seeds, and vegetables (especially the skins), such as cucumber and celery. </p><p>3. Probiotics:Probiotics are the good bacteria that help maintain the natural balance of organisms in the intestines. They help maintain a healthy digestive system by inhibiting the bad bacteria growth. Probiotics are used to treat digestive tract problems such as diarrhea, irritable bowel syndrome and inflammatory bowel disease. Common food sources of probiotics include yogurt with live cultures, as well as Kefir (a fermented dairy product). Adding probiotics to your diet is a good way to promote a balanced internal environment, especially while you are doing a clean-up. </p><p>Liquids, fibers and probiotics are three good options for getting your digestive system back on track. However, if you are planning for a complete detox, its a good idea to consult with your doctor or physician. They will prescribe a customized detoxing plan to achieve your goal. Finally, theres one thing you always need to remember: whole and natural food are always better than processed food. Avoiding processed food will help reduce the stress on your digestive system. Combined with consuming more foods with cleansing power, you will prepare your body for a delightful summer. </p><p>About the author: Xinjuan Baldwin is the Senior Editor of Educational Fitness Solutions Monthly Nutrition Newsletter and is a graduate of the State University of New York with a B.S. in Nutrition and a minor in Personal Training. </p><p>News About Breast Cancer</p><p>SPRING CLEANING FOR YOUR BODY</p></li><li><p>Happy Summer!Warm days and sunshine are upon us and we have a busy summer schedule for all of you! On July 19, S&amp;C will bring you an interactive webinar Cancer &amp; the Law. The program will be brought to us by The Cancer Legal Resource Center, a nonprofit organization that is dedicated to helping cancer </p><p>patients with their legal concerns. Join us to learn about your rights under the law as a cancer patient/survivor. Have your questions ready! July 31st (yes a Tuesday!) we will be hosting Genetics with Jen. Certified genetics counselor Jennifer Fulbright will walk us through some questions many of you have about testing, counseling, and its affect on insurance. She will also give us an update on breast cancer genetics. </p><p>On August 23rd we will tour the beautiful Beaumont Womens Urology Center. Donna Carrico N.P will discuss some of the common urological/gynecological side effects from breast cancer treatment. August 30th brings us to one of my favorite subjects, massage! Clinical Massage Therapy Supervisor, Karen Armstrong will teach us all some techniques to comfort our loved ones during cancer treatment. This is a participatory workshop where we will learn and practice on our hands, feet and back.</p><p>On September 18th Dr. Hallie Armstrong, one of Beaumonts Naturopathic Doctors will talk to us about detoxing our bodies after cancer treatments. Dont miss this important session! Please be sure to register, this will be a full class for sure!</p><p>I would like to give you all a sneak preview of what is ahead this fall. October is always filled with wonderful breast cancer fund-raising events. This October Sharing &amp; Caring will instead be focusing on YOU! I am happy to let you know, we are organizing a Life After Cancer Survivorship Series with topics such as: </p><p>Theres sure to be something for everyone!</p><p>In addition we will be organizing Breast Health Fairs at Royal Oak and Troy and will attend the Womens Health Fair at the Grosse Pointe Yacht Club as well!</p><p>As you can see we have a packed calendar. I hope to see many of you at our programs!Blessings,Lorelei</p><p> Greetings from Lorelei</p><p>Wear very comfortable clothing to your infusion. Wear a jogging suit that is lower cut, or has front zippers so your port can be easily accessed. Dressing this way will make it easier to access your surgery site if you see your doctor on the same day.</p><p>Chew ice chips while chemo is being administered. It cuts down on mouth sores.</p><p> Chemo Tips!</p><p> Nutritional Nuggets </p><p>Nutriceuticals are foods that contain large quantities of one or more molecules of anti-cancer potential. For fighting breast cancer specifically, increase your consumption of green tea, turmeric, and vegetables. Other great choices are bok choy, cooked tomatoes, strawberries, garlic and artichokes. Yum!</p><p> Exercise and Risk Reduction How I Made it Through to Become a Breast Cancer Survivor - Panel Discussion Managing Long Term Medical Side Effects Life After Cancer, Bone Health in Survivorship Hormonal Therapies in Survivorship Nutrition for Survivorship</p></li><li><p>What is genetic counseling? In cancer, genetic counselors help determine if an individuals cancer or their family history of cancer may be hereditary, help families understand their risk for hereditary cancer, educate them about hereditary cancer syndromes, and assess the risk for other family members. Hereditary cancer syndromes can increase ones risk of developing multiple types of cancer and the knowledge about this risk helps individuals and their families make decisions for cancer screening, prevention, and early detection. Genetic counselors provide a thorough evaluation of an individuals family tree to assess for any hereditary cancer genetic predisposition, help coordinate the hereditary cancer genetic testing, provide accurate interpretation of results for an individual or their family members, and provide continued education and support for individuals and their family with a hereditary cancer syndrome.</p><p>How do I know if I should see a genetic counselor? Do I need a referral? Approximately 10% of cancers are hereditary or due to an inherited genetic mutation. Therefore, most individuals diagnosed with cancer would not qualify for testing. Typically individuals who should consider genetic counseling include:</p><p>Cant I go to my surgeon or internist? The BRCA genes are patented which allows only one laboratory in the United States to perform this testing. Due to these patents, there is a marketing campaign to encourage all healthcare providers to test for BRCA mutations in order to increase the number of tests being ordered. BRCA testing is more than just a blood draw. Genetic counselors explain all possible results from BRCA testing, work with individuals and their families, provide opportunities for continued education, support, and research, and provide a thorough genetics evaluation for genes beyond BRCA.</p><p>Does insurance pay for the test and the counseling? The genetic counseling visit is billed just like a doctors office visit and usually individuals would be responsible for their co-pay only. Most insurance companies pay for most of hereditary cancer genetic testing if an individual meets criteria. Individuals are usually responsible for their deductibles and sometimes have a co-pay. Genetic counselors will discuss the cost of any genetic testing during the initial consultation.</p><p>If I am positive for a gene mutation, will it affect my insurance rates and ability to get or keep my coverage? There is a federal law called the Genetic Information Nondiscrimination Act (GINA) which protects against health insurance companies from using this information against an individual to raise their rates, deny them coverage, or cancel their policy. The Health Insurance Portability and Accountability Act (HIPAA) also protects against genetic discrimination, as well as state laws within Michigan. For more information visit: http://www.geneticfairness.org/</p><p> A few years ago, I tested negative for both BRCA 1 &amp; 2. Have there been any new genes discovered associated with breast cancer? Have the tests been improved and refined? Should I consider being re-tested at some time in the future? Once you have tested negative for a hereditary cancer gene, including BRCA, you never have to repeat that same specific test, since what you were born with does not change. However, technology has changed and there are different tests to detect different types of mutations in the BRCA genes. The newest technology is called the BRCA Rearrangement Test (BART) and it detects large deletions, duplications, and rearrangements in the BRCA gene that the standard sequence analysis may miss. Currently, it is recommended that BART be offered to any patient pursuing BRCA testing. Individuals who were tested many years ago may wish to contact their genetic counselor to further discuss the option of BART.</p><p> continued on page 6... </p><p>Ask the ExpertOur Expert:</p><p>Lindsay Dohany, MS, CGCBeaumont Cancer Genetics Program</p><p> Those diagnosed with cancer at a young age (less than age 50). Those with a history of multiple cancers (i.e. breast and ovarian cancer). Those with a family history of multiple relatives with the same or related cancers on the same side of the family, regardless of age. Individuals with bilateral or multiple primaries of breast cancer. Individuals with ovarian cancer diagnosed at any age.</p><p> Nutritional Nuggets </p><p>3</p></li><li><p>July, August &amp; September</p><p>ALL Sharing &amp; Caring events are RESERVATIONS REQUIRED! Please call 248-551-8585 and let us know you plan to attend. If no one is available to take your call, a message with your name, phone </p><p>number and which program you want to attend will complete your registration. </p><p>Prevention and Management of Lymphedema: Thursday, July 12th, 7:00 pm Royal Oak BeaumontPresented by Dr. Justin Riutta, Director of the Beaumont Lymphedema Clinic. Discussion of risk factors, prevention and management of lymphedema. Dr. Riutta will let us know what to look for, and what to do if we think we are experiencing lymphedema. He will take us through some simple arm exercises as well as how to wrap your arm. This class will meet in the Cancer Center 1st floor classroom.</p><p>Cancer and the Law: Thursday, July 19th, 7:00 pm Royal Oak Beaumont The Cancer Legal Resource Center (CLRC) is a national, joint program of the Disability Rights Legal Center and Loyola Law School, Los Angeles. The CLRC provides free information and resources on cancer related legal issues for cancer survivors, caregivers, health professionals, employers and others coping with cancer. Join us for a very informative interactive webinar on Cancer &amp; the Law. We will meet in the auditorium of the Administration Building, just West of Beaumont Royal Oak South Tower entrance.</p><p>Metastatic Breast Cancer Support Group: Tuesday, July 24th, 7:00 pm Royal Oak BeaumontThis session will be led by psychologist Debra Luria, Ph.D., APRN, B.C. and Oncology Nurse Jennifer Martens. This group discusses issues that are unique to those living with metastatic disease. It is a positive, safe environment in which to discuss issues you may be dealing with. We meet in the Royal Oak Cancer Center 1st floor classroom.</p><p>Genetics with Jen: Tuesday, July 31st, 7:00 pm Royal Oak BeaumontHave you ever wondered if you or a family member should consider genetic counseling? What exactly do genetics counselors do, anyway? Have there been any new discoveries in breast cancer genetics? If Ive already been tested, is there any reason to see a counselor again? What about my insurance coverage? Join us, along with Jennifer Fulbright, MS, CGC, who will answer these questions and many more. We will meet in the Royal Oak Cancer Center 1st floor classroom.</p><p>Breast Cancer Support Group: Monday, August 6th, 10:30 am Troy BeaumontThe sudden and unexpected changes that go along with a breast cancer diagnosis can be difficult to manage. These groups provide an opportunity for women to discuss the unique challenges facing them as breast cancer survivors. Feel free to participate and share your story or just listen and perhaps make a new friend. Facilitated by Laurel Martinez, LMSW, LCSW, OSW-C. Meets in the Wilson Cancer Resource Center, in the Professio...</p></li></ul>