Sharing with Friends - April, May, June 2016

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A newsletter for breast cancer survivors

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<ul><li><p>SharingApril, May &amp; June 2016 A NEWSLETTER FOR BREAST CANCER SURVIVORS</p><p>with Friends</p><p>Beaumont Cancer CenterMailing Address: </p><p>3577 W. Thirteen MileRoyal Oak, MI 48073-6710</p><p>248-551-8585email: sharingandcaring@ </p><p>beaumont.org</p><p>How to find the doctor that is right for you.</p><p>You can make a difference</p><p>Sharing &amp; Caring is a non-profit </p><p>organization devoted to the education and support of </p><p>breast cancer survivors. Donations support </p><p>programs for others who follow in the same </p><p>footsteps and can be made by a check payable </p><p>to Sharing &amp; Caring at the above address.</p><p>continued on next page...</p><p>If you or your loved one has been diagnosed with cancer, choosing the best doctor can be one of the most important decisions you will make. Your doctor will be one of the key people who will partner with you as you undergo treatment and make sure you are receiving the best care possible. Its important for you to feel comfortable with the doctor that you choose because you will be working closely with them to make on-going decisions about your cancer treatment.</p><p>Heres a checklist of things to look for when choosing your oncologist, and some thoughts from our Sharing &amp; Caring Breast Cancer survivors: </p><p> Referrals and reputation: Start with a referral list from your primary care doctor. Ask friends, family and other healthcare professionals for recommendations. Determine which doctors are a part of your health care plan or accept your health insurance. Board certification is an important factor to consider. It tells you that your doctor has the necessary training and skills to provide you the best care. </p><p>My oncologist was a friend of my primary care doctor and also my husbands oncologist. There was a relationship already in place. </p><p>Talk with friends, do some research. My primary care doctor was a big help. I have known him for a long time and trust his recommendations. </p><p>When I was diagnosed, I had an intense feeling of immediacy. I felt like I had to take care of it right now, but that is not always the case. We have to take a breath and calm down. I want others to know </p><p>that they are making a really big decision and that they have some freedom to take their time. </p><p> Communication: It is important to feel like your doctor is listening to you and responding to your questions and concerns. Finding a doctor that you are comfortable with and trust will make a big difference in how your treatment will progress.</p><p>Honesty was important to me. I wanted to know that I was being told the truth about all of my options. I also felt it was important to find a doctor that had patience with all of my questions and spent the time to explain what all those new words meant.</p><p>Its important to me to find a doctor who wants to talk about more than just my illness, I like that my doctor asks about my family, my interests and the goals I would like to achieve with my treatment. I am more than just another diagnosis; I want to know that I matter. </p><p> Training and Expertise: Dont be afraid to ask your doctor how much experience they have treating your specific type of cancer. Things to consider: How many cases have they treated over their career? How about in the past year? What about the specific procedures you need? Does this doctor participate in, or have access to clinical trials? Has he/she participated in any research?</p><p>I needed to do my research, I asked around and I wasnt afraid to ask the doctor about her experience treating similar cases. </p></li><li><p>I feel that expertise and knowledge of the latest treatments is important. How well do they keep up to date? Will they discuss clinical trials that I may be eligible for? </p><p> When is a second opinion a good idea? Some patients are reluctant to ask for a second opinion because they are afraid of offending their doctor. By seeking a second opinion, you may become more informed of all the available treatment options or confirm a current treatment approach. A second opinion can also help make you feel more confident that you are choosing the right treatment plan.</p><p> You hear that word cancer, you are so blown away, you are scared and afraid but you have to remember that you are in the drivers seat. If you wanted to get a new roof, wouldnt you get a second estimate on your roof? </p><p>Location to me is a big deal! How far do I have to drive to treatment? Is there a satellite location? Does the doctor honor your appointment time? How easy is it to get in and out? I am a working woman and cannot afford to be held up by an appointment. Additional Questions to ask your doctor Can I participate in a clinical trial? What lifestyle changes (diet, exercise, rest) do you recommend I make to stay as healthy as possible during and after treatment? Should I take or continue using supplements during treatment? What cancer support services are available?</p><p>Keeping some of these important factors in mind should help you narrow down your list and make an informed decision. Finding the right doctor is a big task and it is important to find someone you feel comfortable with. Taking an active role in your healthcare decisions can help you feel more in control and give you hope.</p><p>For more information concerning what to ask your doctor, go to http://www.cancer.gov/about-cancer/coping/questions</p><p>2</p><p>continued from previous page</p><p> We are pleased to present the</p><p>17th Annual Symposium </p><p>Saturday, May 7, 2016</p><p>Surviving a Breast Cancer Diagnosis and Learning to Thrive... When Life Gives You Lemons, Make Pink Lemonade!</p><p>Please join us at the Village Club, 190 East Long Lake Road in Bloomfield Hills for a day of lectures, workshops, luncheon and friendship. Topics on the agenda will include nutrition, managing long term and late effects of treatment, journaling for healing and updates in the treatment of breast cancer. Join </p><p>with other women on their journey to wellness and learn how to thrive following a breast cancer diagnosis. Bring a friend, or come on your own and make a new friend. </p><p>$40 admission includes continental breakfast buffet, sit-down luncheon and educational materials. To register with a credit card, call Physicial Referral at 1-800-633-7377 or online at classes.beaumont.edu. To register by mail, please </p><p>send your check to Sharing &amp; Caring, Beaumont Cancer Center 3577 West Thirteen Mile Road, Royal Oak, MI 48073. Please remember to state your luncheon preference: Vegetarian quiche, chicken picatta or salmon with lemon brown </p><p>butter sauce. Limited scholarships are available. More information will be available after April 1st. </p></li><li><p> E</p><p>xperience Integrative Medicine</p><p>3</p><p>Maria Lyzen, president of MiBCC joined the revolution of advocacy after discovering a lump in her breast in 2001. She wants you to know that you have a voice and can make a difference. Having breast cancer changed my identity...but today I have a whole family...a sisterhood of women who are united because of our disease. </p><p> URGENT CALL TO MICHIGAN BREAST CANCER SURVIVORS The National Breast Cancer Coalition (NBCC) is a grassroots advocacy organization based in Washington, DC, with hundreds of breast cancer groups as members. The Michigan Breast Cancer Coalition (MiBCC) was founded in order to have more presence and influence here in Michigan. MiBCC and NBCC work together to affect the breast cancer agenda....and we need you to help us influence Michigan lawmakers. </p><p>MiBCC is looking for more members or volunteers to help here in Michigan. We already have approximately 80% of our US Representatives in Washington DC supporting our agenda....but we need to have 100%. We need people who would like to make phone calls, write letters, work on environmental issues, meeting coordination, website maintenance and advocacy at both the state and federal level. </p><p> Come to our Expand the Network Meeting on April 7th at 6:30 pm in the Royal Oak Cancer Center, 1st floor classroom to engage in the process of eradicating breast cancer and learning how you can make a difference towards this agenda. Your experiences as a patient are powerful! You can take this one step further and come with us to the Annual Breast Cancer Summit in Washington, DC. April 30 thru May 3, 2016. We have a lot of fun. Get details at the April 7 meeting. See page 5 for more information.</p><p>Becomi</p><p>ng an Advocate for Breast Cancer</p><p>Integrative Medicine (IM) offers patients, survivors, and caregivers support for body, </p><p>mind and spirit. Experience clinical massage, Traditional Chinese Medicine acupuncture, Reiki, Guided Imagery, yoga therapy and </p><p>much more, all performed by highly skilled and specially trained practitioners who </p><p>understand the unique needs of oncology patients and survivors. All services are safe </p><p>and do not interfere with medical treatment.</p></li><li><p>Breast Cancer Support - Theres something just right for you!</p><p>Never Alone - Peer to Peer Support Group Thursdays, April 14, May 26 1:00 pm - Royal Oak </p><p>After the storm of a breast cancer diagnosis and treatment, you may be left with a lot of unanswered questions and feelings. Sometimes its just nice to talk to others who may be dealing with some of the same emotions. Topics of </p><p>discussion will include dealing with fatigue, fear of recurrence, body image concerns, managing anxiety and finding a renewed sense of purpose. Meets in the Royal Oak Cancer Center 1st floor classroom.</p><p>Rack Pack: Unique Issues for Young Women with Breast CancerTuesdays, April 12, May 10 and June 14 6:30 pm </p><p>Are you looking to connect with other young women diagnosed with breast cancer? Our young survivors here at Sharing and Caring have joined forces with the Rack Pack at Gildas Club. This support group will focus exclusively </p><p>on the unique issues and concerns specific to young women. From parenting young children, concerns about future fertility, managing careers, sustaining relationships, dating and intimacy, young women often have different </p><p>experiences and can often feel especially alone and overwhelmed. Finding the right support group can bring strength and friendship as young women struggle to balance their personal and professional lives. Meets at the Gildas </p><p>Clubhouse in Royal Oak. 3517 Rochester Road, Royal Oak, MI</p><p>Breast Cancer Support Group Mondays, April 18, May 16 and June 20 10:30 am - Troy </p><p>Receiving a cancer diagnosis can be a complete derailment to life. The sudden and unexpected upheaval is very stressful. This group, led by Oncology Social </p><p>Worker Laurel Martinez, LMSW, LCSW, OSW-C, provides an opportunity to discuss your diagnosis and treatment with others who are going through the same </p><p>experience. Meets in the Wilson Cancer Resource Center 1st floor conference room, in the Physician Office Building at 44344 Dequindre Road, across the bridge </p><p>from Beaumont Hospital, Troy. </p><p>STAGE 4 - A Group for Women with Metastatic Breast Cancer Tuesdays, April 19, May 17 and June 21 6:30 pm - Royal Oak </p><p>This group provides an opportunity for women who have metastatic breast cancer to discuss the unique challenges and issues they face. Women with stage four breast cancer often feel unable to talk about their cancer. This format provides a safe arena to converse about what is on your mind and in your heart. You are welcome to attend one or all meetings. Please note, this group is intended only for women diagnosed with Stage IV disease. These meetings are facilitated by Psychologist Dr. Sally Smolen of Mercy Works in Farmington Hills. Meets in the Resource Center on </p><p>the first floor of the Rose Cancer Center, Royal Oak.</p><p>ALL Sharing &amp; Caring events REQUIRE RESERVATIONS. Please call 248-551-8585 and let us know you plan to attend. If no one is available to take your call, a message with your name, phone</p><p> number and which program you want to attend will complete your registration. You can also register online at classes.beaumont.edu. Please note that online reservations close 48 hours </p><p>before the program. You may register by phone if online reservations are closed. </p><p> Dont forget to Reg</p><p>ister!</p><p>If you do not reserve your spot, we will be unable to contact you in the event that we must cancel a program.</p><p>4</p></li><li><p>5Additional Programming</p><p>Angel Pillow Project - Giving Back &amp; Enjoying Life: Mondays, April 11, May 9 &amp; June 13 12:00 pm - Gildas Club Gather with us for conversation, encouragement and community as we give back and help those who are in treatment. We will be making heart shaped pillows to help other women recover from the physical and emotional pain after breast surgery. We will provide all tools &amp; materials, but donations of these items are always welcome. Dont sew? Come anyway! We have things you can do. We will meet at Gildas Club, located at 3517 Rochester Road in Royal Oak. Please call 248-551-8585 to let us know youre coming.</p><p>Becoming a Breast Cancer Advocate: How you can make a difference with the Michigan Breast Cancer Coalition: Thursday, April 7 6:30 pm - Royal Oak Come see what is happening in breast cancer research and how the National Breast Cancer Coalition has set a deadline to end breast cancer by the year 2020. You have a voice and you can learn how to make a difference by influencing breast cancer educational campaigns, raising funds, and using your inspiration for better care and research for this disease. We will introduce ways in which you can gain the education needed to become effective advocates, as well as some exciting upcoming events. Meets in the Royal Oak Cancer Center, 1st floor classroom.</p><p>Complementary Therapies for Managing Peripheral Neuropathy: Thursday, April 28 6:30 pm - Royal OakPeripheral neuropathy is a side effect that many women experience after chemotherapy. Symptoms include numbness, tingling and burning in the feet and hands. Beaumonts Integrative Medicine department has highly trained therapists who specialize in a specific massage protocol that may help. The Integrative Medicine department combines the best of Eastern and Western medicine beliefs, while complementing traditional medical practices. Join us for an informative evening as Karen Armstrong, LMT, NCTM, Supervisor of clinical massage, shows us the specific massage protocol and demonstrates the latest techniques. Meets in the Royal Oak Cancer Center, 1st floor classroom.</p><p>YOU MUST REGISTER TO RESERVE YOUR PLACE! Please call 248-551-8585 and let us know you plan to attend. If no one is available to take your call, a message with your nam...</p></li></ul>