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Of OhioSpeaking on behalf of Children and
Youth with Special Health Care Needs
For more information contact:
6555 Busch Blvd. Suite 112, Columbus, OH 43229
(419-946-9431)
Email: [email protected]
www.familyvoicesohio.org
A national grassroots advocacy network of families and friends founded in 1992
Advocating on behalf of CYSHCN for: Family-centered, community-based,
comprehensive, coordinated, culturally competent care
Families as decision makers Essential partnerships between families and
professionals
1
1935 – MCHB authorized as Title V of Social Security Act
1981 – History of family advocacy through the 1980’s Katie Beckett Waiver in 1981; MCHB promotes F/P
partnerships
1992 – National Family Voices foundedVision of MCHB (Title V) and health care reform drives
formation of national family organization to connect family leaders
1993 – Family Voices of Ohio Kathleen Bachmann, Family Consultant for BCMH
1996 – Family Voices receives funding for initial 8 F2FHIC
Funding for family groups at the state level to prepare families to become effective partners and leaders in programs and policies;
Gradual expansion of F2FHIC to all states by various funding streams
2009 – FV of Ohio received federal grant for a F2FHIC
OUR Purpose
To provide information and support regarding health care issues to Ohio families
To raise awareness of the health care industry regarding the health care requirements of children
To assist families in navigating the health service system
To raise awareness in the community of the unique needs of children
A Trusted Resource on Health Care
Through our national network we provide families tools to:
Make informed decisions
Advocate for improved public and private policies
Build partnerships among professionals and families
Children/youth with special health care needs (CYSHCN)
Have or are at risk for a chronic physical, developmental, behavioral, or emotional condition. They usually require health and related services of a type or amount beyond that required by children generally. (1994/1995)
Broad range of chronic conditions such as cerebral palsy, developmental delay, ADHD, depression, autism, asthma
CYSHCN account for 40% or more of medical expenditures for children overall.
Creates and/or shares opportunities for parents and professionals to work together to ensure CYSHCN are active participants in their communities
This is accomplished through our statewide Family to Family Health Information Network
.
of Ohio
Family to Family Health Information Network
“Helping families navigate the health care system”
This project is funded by the US Department of Health and Human Services – Health Resources and Services Administration – Maternal and Child Health Bureau, Division of Child,
Adolescent and Family Health (H84MC12903).
Health InformationSpecialists assist Financing needed servicesfamilies in: Accessing a medical home
Accessing community services
Partner/decision making with professionals
Screenings
Transitioning to adult services
The top 10 areas of 1-1 assistance and trainings:
1. Family Support2. Communicating with child’s providers3. Education/schools/IEP4. Screening for Early Intervention & IEP 5. Public Health Care Funding (Medicaid, BCMH, etc..)
6. Recreation7. Transition: Finding adult health care providers8. Disability awareness9. Providing information to increase skills/knowledge
10. Community services (Housing, etc…)
of Ohio
Impact on the Family
CSHCN whose conditions cause financial problems for the family
Impact on the Family
CSHCN whose conditions may cause family to cut back or stop working
The success of Family Voices of Ohio is based on the fact that staff and board members are all parents of
children and adults who have special health care needs
Contact Us:Northwest Ohio: Cindy Bregel – 419-423-4536
Northeast Ohio: Jennifer Wolford Greathouse – 330-762-9755 ext. 226 [email protected]
Southwest Ohio: Kamesha Anderson – 513-693-0208 [email protected]
Central Ohio: Kelly Morris – 937-738-7171 [email protected]
Southeastern Ohio: Jessica Hawk – 740-851-0901 [email protected]
For more information contact:
6555 Busch Blvd. Suite 112, Columbus, OH 43229
(419-946-9431)
Email: [email protected]
www.familyvoicesohio.org
Carol Keltner - Project Director
937-620-5662
Patty Dovell – Project Coordinator
419-946-9431
