“Nothing about me without me” - Shared _without_me... · “Nothing about me without me” Designing…

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  • Nothing about me without meNothing about me without me Designing Collaborative Interventions to Reduce Rapid Psychiatric

    Readmissions: A patient-centered approach to mental health service planning and

    evaluation.

    Adrienne Shulman, Patient Support Specialist, Mount Sinai Hospital

    Rosalie Steinberg, MD, MSc, Psychiatry Resident, U. of Toronto

    Nadiya Sunderji, MD, FRCPC, Psychiatrist, St. Michael's Hospital

  • Disclosures/Conflict of InterestDisclosures/Conflict of Interest

    None

  • ObjectivesObjectives

    Understand the challenge of rapid psychiatric readmissions and factors associated with readmission causality

    Review evidence for collaborative, patient centered approaches that may reduce rapid psychiatric readmissions

    Highlight systemic challenges to implementing patient centred mental health care and research

    Gain insight, from a patients lived experience, into strategies that promote engagement, treatment, acceptance and, ultimately recovery

  • TerminologyTerminology

    The term patient

    is used interchangeably with

    end-user, service user, consumer/survivor, client, or co-researcher

    depending on study

    or reference being cited.

    Patient experience=lived experience

  • The Challenge: Rapid ReadmissionsThe Challenge: Rapid Readmissions

    Rapid Readmissions = readmissions w/in 30 days of d/c

    Likely relapse of single episode vs. recurrence of new episode partially preventable

    Negatively impacts on QOL and Recovery

    live independently, sense of hope, autonomy, positive self-

    identity

    Failure of mental health system to provide cost effective, seamless, efficient and compassionate care for our patients

    Perpetuate health inequities, disproportionately affecting marginalized populations who experience greater barriers in navigating and accessing mental health care and other supports after discharge.

    Problem Solving Rapid Psychiatric Readmission at St. Josephs Health Centre, Dr. Nadiya Sunderji

  • Risk Factors for ReadmissionRisk Factors for Readmission

    SES (unemployment, disability)*

    Dx Schizophrenia* (BAD, Concurrent, Personality Disorder)

    High # of previous admissions or admissions within past yr*

    Impairment of Self Care*

    Medical Comorbidity*

    Decreasing LOS (?Controversial

    LOS also cited)*

    Delayed or absent outpatient care*

    Inpatient Psychiatrist caseload (high turnover rate = discharges

    per bed/per year)*

    Involuntary admission*

    (controversial)

    Low satisfaction with inpatient treatment

    Medication non-adherence

    * RF Rapid Readmission

  • Case: Hospital XCase: Hospital X

    Hospital X has highest psychiatric readmission rate among all Ontario Hospitals

    15%

    of

    inpatients readmitted to any

    hospital within 30

    days, 23%

    within 90 days

    Highest rate of MH&A ED visits of all TCLHIN hospitals

    Highest rate of police drop-offs (possible proxy for illness severity)

    Economic Burden (approx. $2million/yr) direct care cost

    Excludes indirect costs: ED visits, physician compensation, police, ambulance, medical services, readmissions to other hospitals

    (ICES) http://publications.cpa-apc.org/browse/documents/602

  • How to solve the problem: Designing Multimodal How to solve the problem: Designing Multimodal Interventions to Address Underlying CausesInterventions to Address Underlying Causes

    Facilitate transitions in care (case managers, aftercare plans)

    Increase access to and navigation of outpatient and community-

    based resources

    Improved QOL and function after discharge from hospital (Increased self care)

    Focus on modifiable RFs (medication adherence)

    Enhance our understanding of re-admission causalityKaprow 2007, Dixon 2009, Reynolds, 2004 Forchuck, 2005

    Vigod S, Kurdyak P et.al Transitional interventions to reduce early psychiatric readmissions in adults: systematic review, The British Journal of Psychiatry (2013) 202: 187-194

  • Discordance and Admission causality

    > 25% patients explain symptoms other than biologic cause

    Side by side comparison of service users and clinicians

    Patients: External Stressors

    acute crisis, lack of supportive housing, stigma, financial, pressure from family

    Clinicians: Individual Deficits

    non-adherence with medication

    Poor impulse control, non-engagement with services.

    Attributional differences may explain poor treatment efficacy or why interventions may be more acceptable and effective than others

    Mgutshini, T., (2010) Risk factors for psychiatric re-hospitalization: An exploration International Journal of Mental Health Nursing

    (19), 257267

  • PatientPatient--Provider Discordance Provider Discordance A Matter of PerspectiveA Matter of Perspective

  • Patients' perspectives on readmission causality have Patients' perspectives on readmission causality have been overlooked: Gap in the Literature been overlooked: Gap in the Literature

    Critical oversight in the re-hospitalization research

    Medically driven studies

    Few Qualitative studies

    Attribution Theory (Emic vs Etic)

    Patient Perspectives on Readmission Causality and Readmission Prevention

    Perception that admission is unjust

    coercive

    Patients

    perceived needs differs from clinicians

    Discordance attribution errors

    care plan/treatment

    goals are narrowly focused decreased engagement adherence

    Sayre, J., The patient's diagnosis: Explanatory models of mental

    illness. (2000). Qualitative Health Research, 10(1), 71-83Priebe, et.al. (2009). Patients' views of readmissions 1 year after involuntary hospitalisation. The British Journal of Psychiatry, 194(1), 49-54.

    Katsakou, et. Al (2012). Psychiatric patients' views on why their involuntary hospitalisation was right or wrong: a qualitative study. Social Psychiatry and Psychiatric Epidemiology, 47(7), 1169-1179

    Brems, C. et. al. (2004) Consumer Perspectives on services needed to prevent psychiatric hospitalization Administration and Policy in Mental Health, 32(1)

  • You can only design interventions if youYou can only design interventions if you understand the problem. Whatunderstand the problem. Whats missing?s missing?

    Lack of emphasis on patient centeredness in psychiatry

    one explanation for high rates of treatment non-adherence and dropout among individuals with schizophrenia

    Application of patient-centered care principles within the mental health system has been shown to improve the understanding of provider-intervention-patient interaction,

    a missing piece to

    designing interventions that are congruent with patients

    beliefs

    and preferences about treatment initiation, treatment adherence,

    and treatment maintenance.

    Kreyenbuhl, et. al (Jul 2009). Disengagement from mental health treatment among individuals with schizophrenia and strategies for facilitating connections to care: A review of the literature.

    Schizophrenia Bulletin, 35(4), 696-703. Barg, et.al. (2010). When late-life depression improves: What do older patients say about their

    treatment?.

    American Journal of Geriatric Psychiatry, 18(7), 596-605

  • Definition of Patient and Family Centred CareDefinition of Patient and Family Centred Care

    Anapproachtoplanning,deliveryandevaluation ofhealthcarethatisgroundedinmutually

    beneficialpartnerships

    amongpatients,families andhealthcareproviders.

    InstituteforPatientandFamilyCenteredCare

    Providingcarethatisrespectfulofandresponsive toindividualpatientpreferences,needs,and

    values,andensuringthatpatientvaluesguideall clinicaldecisions.

    InstituteofMedicine,

    CommitteeonQualityof

    HealthCareinAmerica.CrossingtheQualityChasm:ANewHealth

    Systemforthe21stCentury.

  • PFCC is guided by four principles:PFCC is guided by four principles:

  • Three Driving Forces in HealthcareThree Driving Forces in Healthcare

    System centred

    Patient/Family Focused

    Patient/Family Centred

  • Patient and Family Patient and Family CentredCentred

    Driving ForcesDriving Forces

    The priorities and choices of patients and families in partnership

    with the healthcare team drive the planning,

    delivery and evaluation of

    healthcare

    http://www.google.com/url?sa=i&rct=j&q=mental+health+consumers+and+staff&source=images&cd=&cad=rja&docid=cAFzRNR3PwPpMM&tbnid=PpMXyufJdVe6xM:&ved=0CAUQjRw&url=http://www.mhccnet.org/&ei=oZBEUe30JamXiAeV94FI&bvm=bv.43828540,d.bmk&psig=AFQjCNGTSL2l1Y3HBX-CaqHnXZzlJ2d7eQ&ust=1363534300568434

  • Patient Family Centred Care involves a new Patient Family Centred Care involves a new way of thinking and workingway of thinking and working

    PFCC is a shift from the traditional

    From: What health professionals do to

    and for

    clients

    To: What health professionals do with clients

  • Implementation of PFCC: WhatImplementation of PFCC: Whats Required? s Required? A Fundamental Philosophical ShiftA Fundamental Philosophical Shift

    Strengths Collaboration Partnership model Information sharing(+) Support Flexibility Empowerment

    DeficitsControlExpert ModelKnowledge (gate-keeping)(-) SupportRigidityDependence

  • Knowledge is Power. Who is the Expert?Knowledge is Power. Who is the Expert?

  • What Research shows about Outcomes of PFCCWhat Research shows about Outcomes of PFCC

    Improved patient and family outcomes Patients who are active participants in their care experience

    better outcomes than those who are not similarly engaged*

    Increased patient and family satisfaction

    Decreased healthcare costs

    More effective use of healthcare resources

    Increased professional satisfaction*

    Hope and optimism for the future (Shulman)

    *2001, Agency for Healthcare Research and Quality (AHRQ) highlighted research supporting active inclusion of patients)

  • Increased Professional SatisfactionIncreased Professional Satisfaction

    Improved Inter-Professional Collaboration

    Process of communication and decision-making that enables the separate and shared knowledge of health care providers to synergistically influence the patient care provided

    (Way, Jones, Busing 2000)

    Improved work satisfaction/quality of work life

    Less burnout

    Less staff turnover

    Patient adherence to treatment plans

    New learning for residents and students

    Better team functioning and communication

    ? Functioning Team Patient and Family Centred Care Team Functioning?

  • Implementing PFCCImplementing PFCC Medical College of Georgia Neuroscience CentreMedical College of Georgia Neuroscience Centre

    Patient Satisfaction 10th 90th

    percentile

    Length of stay

    50% in Neurosurgery

    Staff vacancy rate 7.5% 0% (now a waiting list to work there)

    Medication errors

    by 62%

    Patient complaints

    by 67%

    Improved perceptions of PFCC

    Staff own and protect the new culture

  • Benefits of Consumer Involvement in Benefits of Consumer Involvement in MH Planning and Service DeliveryMH Planning and Service Delivery

    Improved clinical outcomes

    hospitalization, relapse rates and criminal involvement

    Reduction in patient-rated unmet social needs

    Promotion of recovery, self-help and fostering of hope

    Consumer involvement predicted improved subjective QOL and functional outcomes

    Treatment choice increased adherence to psychiatric treatment

    Challenge traditional power differentials

    consumer empowerment leads to better outcomes

    Conceptualize service users beyond illness identity

  • Consumer Involvement Improves Quality, Practice and Consumer Involvement Improves Quality, Practice and Validity of Validity of Mental Health ResearchMental Health Research

    Development of congruent research priorities

    Recruitment and retention of study participants

    Selection appropriate and acceptable outcome measures

    Credibility of the research

    Individual benefits for consumers/co-researchers

    Skill building/empowerment: training in research methodology (demystifying research)

    Changing treatment endpoints based on patient preferences

    Improved quality of research (data acquisition, interpretation and application of findings etc.)

    Carey, Callander, Eisen, Fleming, Fossey, Moltu, Ochocka, Oakley, Thornicraft

  • Words from our patientsWords from our patients

    I want you to see me as a human being, not as a diagnosis.

    I hear what you are all saying out in the hallway. Why dont you come into my room and tell me what is going on.

    I see you writing things down in my chart. How come I cant see it?

    My doctor doesnt hear me.

    Why do I have to wear this hospital gown? Who makes up these rules?

    Last time I saw Dr. X. Now

    its Dr. Y. Why cant I have the

    same doctor?.

    Ive already told my story 3 times. Dont you people talk to each other?

  • Barriers to Meaningful Inclusion of Patients Barriers to Meaningful Inclusion of Patients and Familiesand Families

    Structural and Attitudinal Barriers:

    Financial and human resources

    Inadequate training and education (staff and patients)

    Lack of incentives (reward or recognition in research)

    Hidden curriculum

    Primarily Clinician Attitudes

    Stigma

    Tokenism

    Service Culture Culture eats strategy for lunch

    Not Valuing Consumer Participation as Credible

    Resistance to Change

    Greenall, P. (2006) The barriers to patient-driven treatment in mental health: Why patients may choose to follow their own path, Leadership in Health Services 19

    (1). Hall, P. (2005) Interprofessional

    teamwork: Professional cultures as barriers. Journal of Interprofessional

    Care. 1: 199-196

  • Role of Patient AdvisorsRole of Patient Advisors--The Lived ExperienceThe Lived Experience

    Implementing Advisory role in Mental Health settings

    First Do No Harm

    Avoid Tokenism

    Accountability with no authority undermining, detrimental

    Role Clarity

    Just having a MH diagnosis doesnt mean youre qualified

    Can be therapeutic, but do not use as therapy

    Lived Experience: How it can influence future readmissions?

    Discharge Planning

    Family Meetings

    Groups

    Other creative ways to include patients as partners

    Getting Started

    Send a team to IPFCC

    Bottom up and top down approachRose, D., (2003b). Having a diagnosis is a qualification for the

    job. British Medical Journal, 326, 1331.

  • Drivers of SuccessDrivers of Success

    Engagement of Patients, Families and Communities

    Senior Leadership Commitment, Support and Accountability

    PFCC Champions

    Create a Workplace that Supports Adoption of PFCC

    Physician Leads

    Education and Training of Healthcare Providers and Students

    Integrate PFCC Concepts into Every Policy, Initiative, Program and Research Project

  • Summary and Take Home Points Summary and Take Home Points

    Rapid psychiatric readmissions represent a failure of mental health care coordination and continuity.

    Patients' perspectives on readmission causality have been overlooked.

    Treatment decisions should be guided by service users

    lived experience.

    Patient-centered approaches can address key quality issue and improve inter-professional team functioning.

  • Summary and Take Home PointsSummary and Take Home Points

    Patients' involvement in their own treatment planning decisions are highly correlated with positive mental health outcomes.

    Organizational culture and clinician attitudes must be supportive and empowering and avoid tokenism and re-stigmatization.

    Eliciting patient perceptions in MH service delivery and research can inform and transform design and evaluation of interventions that are appropriate and effective in reducing rapid psychiatric readmissions.

  • PFCC is a Journey. PFCC is a Journey. Where do we go from here? Where do we go from here?

    What we call the beginning is often the end. And to make an end is to make a beginning. The end is where we start from.

    T.S. Eliot

  • Questions and Comments?Questions and Comments?

  • References1.

    AgencyforHealthcareResearchandQuality(AHRQ)highlightedresearchsupportingactiveinclusionofpatients,20012.

    Barg,et.al.(2010).Whenlatelifedepressionimproves:Whatdoolderpatientssayabouttheir

    treatment?.

    AmericanJournalofGeriatricPsychiatry,18(7),5966053.

    Bennetts,W.,Cross,W.,&Bloomer,M.(2011).Understandingconsumerparticipationinmentalhealth:Issuesofpowerandchange.InternationalJournalofMentalHealthNursing,

    20(3),1551644.

    Brems,C.et.al.(2004)ConsumerPerspectivesonservicesneededtopreventpsychiatrichospitalizationAdministrationandPolicyinMentalHealth,32(1)5.

    Fetter,M.,Lowery,B.,PsychiatricRehospitalization

    oftheseverelymentallyill:patientandstaffperspectives,Nusring

    Research41(5),301305.6.

    Fossey,E.,Epstein,M.,Findlay,R.,Plant,G.,&Harvey,C.(2002).Creatingapositiveexperienceofresearchforpeoplewithpsychiatricdisabilitiesbysharingfeedback.Psychiatr

    Rehabil

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    25(4),369378.7.

    Geller,J.,(2012),

    PatientCentered,RecoveryOrientedPsychiatricCareandTreatmentAreNotAlwaysVoluntary,PsychiatricServices,

    63(5),493495.8.

    Hodges,JohnQ.(2005).Inclusionofmentalhealthconsumersonresearchteams.PsychiatricServices,56(9),11581159.9.

    Greenall,P.(2006)Thebarrierstopatientdriventreatmentinmentalhealth:Whypatientsmaychoosetofollowtheirownpath,LeadershipinHealthServices19

    (1)10.

    Hall,P.(2005)Interprofessional

    teamwork:Professionalculturesasbarriers.JournalofInterprofessional

    Care.1:19919611.

    Horsfall,Jan,Cleary,Michelle,Walter,Garry,&Malins,Gillian.(2007).Challengingconventionalpractice:placingconsumersatthecentreoftheresearchenterprise.IssuesinMental

    HealthNursing,28(11),12011213.12.

    Hutchinson,A.,&Lovell,A.(2012).Participatoryactionresearch:movingbeyondthementalhealth'serviceuser'identity.JPsychiatr

    Ment

    HealthNursing13.

    ICEShttp://publications.cpaapc.org/browse/documents/60214.

    InstituteofMedicine,

    CommitteeonQualityofHealthCareinAmerica.CrossingtheQualityChasm:ANewHealthSystemforthe21stCentury.15.

    Katsakou,Christina,Rose,Diana,Amos,Tim,Bowers,Len,McCabe,Rosemarie,Oliver,Danielle,...Priebe,Stefan.(2012).Psychiatricpatients'viewsonwhytheirinvoluntary

    hospitalisation

    wasrightorwrong:aqualitativestudy.SocialPsychiatryandPsychiatricEpidemiology,47(7),1169117916.

    Kaprow

    2007,Dixon2009,Reynolds,2004Forchuck,200517.

    Kreyenbuhl,et.al(Jul2009).Disengagementfrommentalhealthtreatmentamongindividualswithschizophreniaandstrategiesforfacilitatingconnectionstocare:Areviewofthe

    literature.

    SchizophreniaBulletin,35(4),696703.18.

    MentalHealthCommissionofCanada.(2009).Towardrecoveryandwellbeing:AframeworkforamentalhealthstrategyforCanada.19.

    Mgutshini,T.,(2010)Riskfactorsforpsychiatricrehospitalization:AnexplorationInternationalJournalofMentalHealthNursing

    (19),25726720.

    Moltu,C.,Stefansen,J.,Svisdahl,M.,&Veseth,M.(2012).Negotiatingthecoresearchermandate

    serviceusers'experiencesofdoingcollaborativeresearchonmentalhealth.Disability

    &Rehabilitation,34(19),16081616.21.

    Oakley,Karen,Malins,Gillian,Riste,Louisa,&Allan,John.(2011).Consumerparticipationinserviceevaluationandqualityimprovement:keyingredientsforasystemtodelivernational

    indicators.AustralasianPsychiatry,19(6),49349722.

    Ochocka,J.,Janzen,R.,&Nelson,G.(2002).Sharingpowerandknowledge:professionalandmentalhealthconsumer/survivorresearchers

    workingtogetherinaparticipatoryaction

    researchproject.Psychiatr

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    Priebe,Stefan,Katsakou,Christina,Amos,Tim,Leese,Morven,Morriss,Richard,Rose,Diana,...Yeeles,Ksenija.(2009).Patients'viewsofreadmissions1yearafterinvoluntary

    hospitalisation.TheBritishJournalofPsychiatry,194(1),4954.24.

    ProblemSolvingRapidPsychiatricReadmissionatSt.JosephsHealthCentre,Dr.Nadiya

    Sunderji25.

    Roick,C.,Grtner,A.,Heider,D.,Dietrich,S.,&Angermeyer,M.C.(2006).Heavyuseofpsychiatricinpatientcarefromthe

    perspectiveofthepatientsaffected.InternationalJournalof

    SocialPsychiatry,52(5),432446.26.

    Rose,D.,(2003b).Havingadiagnosisisaqualificationforthe

    job.BritishMedicalJournal,326,1331.27.

    Sayre,J.,Thepatient'sdiagnosis:Explanatorymodelsofmental

    illness.(2000).QualitativeHealthResearch,10(1),718328.

    Sunkel,C.(2012).Empowermentandpartnershipinmentalhealth.Lancet,379(9812),201202.29.

    Thornicroft

    G.,RoseD.,HuxleyP.,DaleG.&Wykes

    T.(2002).Editorial:Whataretheresearchprioritiesofmentalhealthserviceusers?JournalofMentalHealth11(1),15.30.

    Vigod

    S,Kurdyak

    Pet.al

    Transitionalinterventionstoreduceearlypsychiatricreadmissionsinadults:systematicreview,TheBritishJournalofPsychiatry(2013)202:187194

    http://publications.cpa-apc.org/browse/documents/602http://publications.cpa-apc.org/browse/documents/602

    Slide Number 1Disclosures/Conflict of InterestObjectivesTerminologyThe Challenge: Rapid ReadmissionsRisk Factors for ReadmissionCase: Hospital XHow to solve the problem: Designing Multimodal Interventions to Address Underlying CausesDiscordance and Admission causalityPatient-Provider Discordance A Matter of PerspectivePatients' perspectives on readmission causality have been overlooked: Gap in the Literature You can only design interventions if youunderstand the problem. Whats missing?Definition of Patient and Family Centred CarePFCC is guided by four principles:Three Driving Forces in HealthcarePatient and Family Centred Driving ForcesPatient Family Centred Care involves a new way of thinking and workingImplementation of PFCC: Whats Required? A Fundamental Philosophical ShiftKnowledge is Power. Who is the Expert?What Research shows about Outcomes of PFCCIncreased Professional SatisfactionImplementing PFCCMedical College of Georgia Neuroscience CentreSlide Number 23Benefits of Consumer Involvement in MH Planning and Service DeliveryConsumer Involvement Improves Quality, Practice and Validity of Mental Health ResearchWords from our patientsSlide Number 27Barriers to Meaningful Inclusion of Patients and FamiliesRole of Patient Advisors-The Lived ExperienceDrivers of SuccessSummary and Take Home Points Summary and Take Home PointsPFCC is a Journey. Where do we go from here? Questions and Comments?References

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