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Myths & Facts about TBI in Oregon Students
ContentMyths & Facts
Brief overview of supports for students with TBI across Oregon
Q & A
Myth #1
There aren’t that many
children with TBI
Fact
TBI is the leading cause of
disability and death among
children and young adults in
the United States.
Incidence of Brain Injury:National Data
Each year an average of 626,000 TBIs occur among children: 62,000 children are hospitalized 564,000 children are seen in
emergency departments
CDC (2007)
TBI in the United StatesTBI in the United StatesTBI by Age Group*TBI by Age Group** Average annual rates, 2002-2006
CDC Blue Book 2006
0
200
400
600
800
1,000
1,200
1,400
0-4 5-9 10-14 15-19 20-24 25-34 35-44 45-54 55-64 65-74 ≥75
Age Group
Per
100
,000
ED Visits
Hospitalizations
Deaths
Children, older adolescents, and adults ages 65 years and older are more likely to sustain a TBI
TBI in the United StatesTBIs Among Children (0-14 years) by Cause
Average annual percents, 2002-2006; ED visits, hospitalizations, and deaths combined (CDC Blue Book 2006)
Falls 50.2%
Assault 2.9%
Struck by/against
24.8%
Motor Vehicle -
Traffic 6.8%
Unknown /Other 15.3%
Falls 50.2%
Assault 2.9%
Struck by/against
24.8%
Motor Vehicle -
Traffic 6.8%
Unknown /Other 15.3%
Causes of TBI in Oregon
Myth #2
Because children are in school they receive
appropriate services.
Fact
Special education is the ticket to rehabilitation in school.
Facts But:
We don’t currently have an accurate number of how many children with TBI have persisting disability…
…and should be receiving special education
National Issue
National Statistics/100,000
180/100,000 infants, children and adolescents are hospitalized for TBI annually
Krause, 1995
Under-identification for Special Education
Annually: 62,000 children hospitalized for TBI (CDC)
16% need special education supports (Zaloshnja, 2008)
Cumulative total (K-12): 119,040 Very conservative estimate!
Total on federal Sped. census (2005): 23,509 (ideadata.org)
Under-identification for Special Education
TBI in Oregon Special Education
566,067 school children in OregonAt the 180/100,000 hospitalization rate…1,018 Oregon students hospitalized for TBI annually
If 16% of the 1,018 kids hospitalized for TBI (163) need special education…
http://bluebook.state.or.us/education/educationintro.htm (2009)
Epidemiological Estimates:Oregon SPED
Conservative K-12 cumulative estimate…1,955 students in Oregon ½ or 977 aged 16-21
TBI identified on Oregon SPED census (2009): 294
TBI Under-Identification Cycle
Under-identificatio
n
Lack of Awareness
Apparent Low Incidence
Lack of Training
Lack of Research
Money
Lack of right services for Kids
who are ID’d
Insider Perspective
“As educators, we don’t have a handle on this
disability”
What’s Happening to Students with TBI?
SUPPORTS IN OREGON FOR STUDENTS WITH TBI
Model of Service Deliveryfor Oregon Students with TBI
Hospital
Family School Outside Agency
TRI
SchoolTeam(Including
parent)
General Ed IEP
3-yr Re-Eval
504 Plan
SchoolContact
Regional TBILiaison
TBICoach
TBI Coach provides ongoing
support as requested and does not carry
a caseload
TRIO State-wide leadershipO Ongoing capacity buildingO Support evidence-based practices and materialsO Educational opportunities open to educators in OregonO Library servicesO Referral for parents seeking helpO Central point of contact for regional medical centersO Centralized data collectionO Build awareness of needs & services for students with TBI
TBI Team Model: Impact
Data collected from 7 of 9 LiaisonsLiaisons 9
Active Team Members 50
Presentations on TBI 43
Attendees at presentations
734
Mean satisfaction rating 3.65 (4 pt scale)
Students coached 156
Student contacts made 486
Avg. contacts per student
3.1
What is being done in Oregon?
Regional Brochures
TBI Tidbits
Awareness building
Presentations
Intensive team interventions
Website inter-connectivity
TBI Team Members
Give guidance during re-entry to school following TBI
Assist with support ideasOffer assistance with SPED ProcessOffer help with programmingOngoing needs of students as needed
Mostly based within the district
Regional TBI Liaisons
Offer support within region to TBI Team members (who support teachers, who support students)
Work with districts to build capacity
Work with TBI Team to meet the needs of students
TBI Regional LiaisonsRegion Name Email Work Phone
1 Lon [email protected]
541-966-3162
2 Sue [email protected]
541-693-5712
3 Vicki [email protected]
541-776-8551
4 North Betty [email protected]
541-812-2698
4 South Brenda [email protected]
541-266-4015
5 Pam [email protected]
503-385-4598
6 Penny [email protected]
503-260-4958
7 Wendy Friedman
8 Laura [email protected]
503-614-1308
TR-Eugene
Pat Sublette [email protected]
Teaching Research-Eugene
Named PABI National Center in 2008
Researching methods to meet the needs of students with TBI for >20 years
Mentors Regional Liaisons
Facilitates statewide TBI team Approx 90 team members across the stateTraining and technical assistance for schoolsWebsite www.TBIED.orgMonthly newsletter (email delivery)
What is Available Now to Support Districts?
Liaison FTE in Regions
Statewide SeminarsFace to faceWebinars
TBI Team MembersFollow-up coaching for team members who attend statewide training
Available to Support Districts
Website for TBI and SPED in Oregonwww.TBIED.org
OBIRN- EB ResourcesLaura Beck, research librarianPhone: 877.872.7246Email: [email protected]
Online Resources
TBI Educator www.tbied.orgWebsite devoted to serving students with TBI in Oregon
Learnet www.bianys.org/learnet/index.htmlExamples of teaching strategies, tutorials etc
Brain line www.brainline.org
Library Resources• OBIRNOregon Brain Injury Resource Network–Laura Beck, research librarian–Phone: 877.872.7246–Email: [email protected]–http://www.tr.wou.edu/tbi/
Laura Beck is a librarian with 10 years of experience researching issues related to TBI. She is available for personalized information service to parents, educators, and others who work with students with TBI.
