Upload
roy-g
View
224
Download
0
Embed Size (px)
Citation preview
Legal and Forensic Medicine in Geriatrics 7Beverley Ferres
Abstract
The legal issues that intersect with medical practice in geriatric medicine are
many. Areas such as the assessment of capacity, the treatment and care of
patients who are unable to consent or refuse, dealing with possible elder abuse
and interfacing with courts or tribunals when required to provide medicolegal
reports or to give evidence are just a few.
This chapter illustrates the complex issues faced in the everyday practice of
geriatric medicine. A human rights framework and its importance in providing
assistance in resolving issues for clinicians, and new challenges to consider, are
highlighted. Common legal issues confronting clinicians such as capacity,
end-of-life care, and advance care directives are discussed.
Introduction
Issues which affect many areas in medicine also affect these areas in geriatric
medicine, although there are some particular issues which occur with greater
frequency.
Issues, such as capacity to make decisions, the assessment of capacity, consent to
medical treatment, and vulnerability, can affect people of all ages. From the very
young, to the very old, there are similarities but also differences. Young people
have life ahead of them; choices to make for themselves and capacity in making
decisions will hopefully be gained as maturity increases.
For the very old, life is nearing its end. Choices already made have shaped who
they are and what values they have adopted. Life’s experiences have generally
been many and varied and have also contributed toward shaping these value
B. Ferres
Bendigo Health, Bendigo, VIC, Australia
e-mail: [email protected]
R.G. Beran (ed.), Legal and Forensic Medicine,DOI 10.1007/978-3-642-32338-6_145, # Springer-Verlag Berlin Heidelberg 2013
91
systems. It is this that doctors aim to rely on in geriatric medicine, particularly for
those who have lost, or are in the process of losing, the capacity to make decisions
for themselves.
It is the differences from those legal issues in medicine that affect all ages, on
which this chapter focuses. This chapter provides an overview of the challenges
which face those who care for the older patient at the beginning of the twenty-first
century. It also challenges health professionals to be mindful of local and interna-
tional developments.
Human Rights Framework
When a medical practitioner is responsible for the health care of older people, he or
she may be called upon not only to assess capacity of a patient to make decisions for
themselves about health care but also to assess capacity of a patient to make
decisions about financial affairs or lifestyle. The importance of balancing one’s
duty of care as a doctor, against the need to respect patients’ rights to make choices
for themselves, has received increasing attention, particularly in Victoria, in view
of the Charter of Human Rights and Responsibilities Act (Charter of Human Rightsand Responsibilities Act 2006 (Vic)). The human rights embodied in the Victorian
Law, particularly in relation to freedom of movement and the right to choose where
a person lives and the right to privacy as contained in Sections 12 and 13 of the Act,
respectively, must be respected and promoted.
The ACT Human Rights Act (Human Rights Act 2004 (ACT)) was the first of itskind in Australia, but as yet there is no specific human rights charter in other
Australian states, other than Victoria, or in the Northern Territory. There is no
Commonwealth Charter at this time. The principles embodied in these acts are
relevant in general.
The issue of human rights is one of the challenges in geriatric medicine with
which doctors, and the community, must come to terms.
For a long time, the common law duty of care has given health professionals, and
in particular the medical profession, a defense for caring for patients with reduced
capacity within a secure environment. The potential of being sued in negligence for
breaching the duty of care, owed to the patient, should the patient suffer harm, has
reinforced this practice.
Consider the following hypothetical scenario which is not uncommon in an
inpatient setting in geriatric medicine.
Isabelle is an 89-year-old lady who has experienced a decline in her cognitive
function over the past 5 years. She is supported by family members who assist her
with shopping, transport, and provide some meals. The family has been concerned
that her poor memory may lead to her placing herself at risk by leaving the gas stove
on. On one occasion, she wandered to a nearby lake and the police were called. She
has also experienced three falls in the past 2 months, the last one leading to her lying
on the floor for several hours overnight before being found by her daughter. She is
admitted to hospital.
92 B. Ferres
The family members are concerned about her discharge home and tell the
hospital doctors in charge of her care that they will hold the doctors personally
responsible if their mother falls and breaks her hip, dies in a house fire, or drowns in
the lake.
This threat can generate disquiet in the minds of both inexperienced and
experienced doctors. Is this a justified stance for a family to take? What should
be the medical practitioner’s response?
The legal issues to be considered are does the health care of people in a secure
environment, for their safety, breach their human rights? Does the discharge of
a person to his or her own home, allowing him or her dignity to make decisions,
including “bad” decisions, possibly breach the health professional’s duty of care?
The consideration of these legal aspects, while helpful, will not necessarily give the
answer but will provide a framework with which to approach such problems. Once
issues are considered in light of this framework, along with ethical considerations
of respect for autonomy, beneficence, and non-maleficence, the medical practi-
tioner can provide justification for a recommendation according to this framework.
The United Nations’ Principles for Older Persons (http://www2.ohchr.org/
english/law/pdf/olderpersons.pdf) are helpful, outlining the principles of indepen-
dence, participation, care, self-fulfillment, and dignity. It is in the light of these that
the following case can be considered.
A patient with dementia who is confused, and likely to wander, is admitted to
a secure residential care facility. Under a human rights framework, this could be
considered to be a breach of human rights because the person’s freedom of
movement has been limited.
Has there been respect for independence? Has the person’s dignity been
respected? If the right to freedom of movement has been limited, can this be
justified or does there need to be legal protection for the practitioner who treats
this patient, and for the patient? Is the consent of the family, and the assent of the
person, enough justification? The United Nations Principles also outline rights in
relation to access to appropriate care with security, that is, in a safe environment.
Could this justify the doctor’s, and the facility’s, position?
In circumstances where a person needs treatment, against their will, for a mental
disorder, mental health laws in each jurisdiction in Australia allow for this as long
as certain criteria are met. They apply regardless of age. Mental health laws are not
generally applied for residents in secure residential aged care facilities. The resi-
dential care of older people, in secure facilities in Australia, generally still applies
the common law doctrine of best interests.
The Bournewood Case
In the UK, the view is that secure residential care is possible deprivation of liberty,
due largely to the finding in the Bournewood case, by the European Court of Human
Rights (HL v UK 45508/99 (2004) ECHR 471). The Department of Health in
the UK developed a procedure requiring application under the “Deprivation of
7 Legal and Forensic Medicine in Geriatrics 93
Liberty Safeguards” guidance (http://www.communitycare.co.uk/Articles/17/08/
2011/112480/the-deprivation-of-liberty-safeguards.htm), following amendments
to the Mental Capacity Act (Mental Capacity Act 2005 (UK) c.9, s4A). These
apply for residents of care homes in the UK who were previously cared for in
a secure environment under the common law doctrines of duty of care and
necessity.
There is now the requirement of an “authorization” from the local authority (if in
a care home) or the primary care trust (if in hospital) to keep someone in a secure
facility for “care.” These processes are to provide lawful authority for what is
otherwise considered, in that context, to be deprivation of liberty. In the
Bournewood case, appealed to the European Court of Human Rights, the court
held that the gentleman had his rights breached by being held, in a psychiatric
hospital in the UK, under the “best interests” common law doctrine. As he was not
an involuntary patient, he had no recourse under mental health law to challenge his
admission and detention.
In Australia, a guardianship application to the relevant court or tribunal will
often only be made when there is disagreement about the best interests of the person
concerned. The case in the UK could be seen as persuasive for the Australian
situation, but, as it currently stands, the common law doctrine of best interests still
applies in the absence of another legislative framework, such as mental health law.
It may be time to consider what the approach to similar situations in Australia
should be, given the appropriately increasing focus on human rights internationally.
The challenge for those practicing geriatric medicine is to continue to promote the
human rights of patients to achieve the right balance and the best outcome for them.
A possible “charter,” for the practitioner in geriatric medicine, is to work toward
assisting older patients to make decisions for themselves as long as possible, even
when capacity reduces, and to encourage and educate the medical profession in
general to do the same to reduce the paternalistic attitudes toward older people and
to promote freedom of choice for as long as possible, maintaining the often
precarious balance between human rights, the medical practitioner’s common law
duty of care, and the best interests of the person.
Listening to Patients
As people age, they may have difficulty with hearing and vision and may process
information slowly, even when there is no dementia evident. Older patients some-
times express concern that doctors, on ward rounds in hospitals, talk above them, not
to them, that they do not understand what has been said and they do not have the
opportunity to ask questions. It is crucial for doctors to listen to their patients, to take
the time to explain illnesses and treatment options, and to allow time for questions.
It is well established, in common law, that the doctor’s duty is to his or her
patient. Sometimes it is easy to be influenced by family members, and their
opinions, and it also becomes easy for the focus to shift away from the patient.
Taking the time to talk to older patients and to listen to their concerns will assist in
94 B. Ferres
the patient’s ability to give informed consent to treatment. Patients should not be
pressured to make decisions about medical treatment before they have had the
opportunity to understand and reflect on the information. This is good medical
practice. It is disappointing when patients make comments, after an adverse out-
come, indicating that if they had been told of the possibility of complications, they
would never have agreed to the treatment. With the pressures of modern medicine,
and the time constraints with which doctors are confronted, it is not easy to give the
time, but it is rewarding and necessary.
Assessment of Capacity
There are publications available to assist the medical practitioner in the assessment
of capacity [1], (Attorney General’s Department of NSW. Capacity Toolkit.
New South Wales Government; 2008). Medical practitioners may be asked to
assess capacity or to provide a legal report on a patient’s capacity to make particular
decisions. The law assumes that a person is competent to make decisions, unless
there is evidence to the contrary.
The request to a doctor, for an assessment of capacity, comes more frequently for
the older patient, where the imperative is greater for that patient to have his or her
affairs in order. A request can be made for a patient of any age. The request might
be for assessment of current capacity from the patient’s legal representative prior to,
for example, making a will or an enduring power of attorney or a request for a report
after the patient has died.
In the case of such a request for an opinion after the patient has died, medical
practitioners are reminded of the importance of keeping good documentation. If
there is no documentation, regarding the specific capacity in question, because no
assessment of such capacity was undertaken at the relevant time, then giving
a specific opinion is difficult. It may be obvious, from contemporaneous notes,
that a patient who is perhaps unable to recognize family anymore due to dementia
would by inference not have capacity to make a will, but often it is not as clear. If
asked for an opinion after the fact, one might not always be sure as to the patient’s
capacity, in relation to a specific matter, unless it was assessed at the time. It is
usually better to state this rather than to speculate on the capacity that the patient
might have had.
It is common for a geriatrician to be approached by a solicitor asking for
a retrospective opinion regarding capacity. This may occur in the context of
a will being contested, and the request may come some months or even years
after having seen the patient.
The legal issue, for a medical practitioner asked to assess capacity, apart from
the possibility of giving evidence to a court or tribunal regarding a patient’s
capacity, is that of balancing one’s duty of care to the patient against basic
human rights regarding privacy, freedom of choice about health, where to live,
and with whom to associate, where those wishes of the person might be in conflict
with others around them. The assessment of capacity might not be required,
7 Legal and Forensic Medicine in Geriatrics 95
or might not even be appropriate, as it could be seen as interference into that
person’s affairs and privacy. There is helpful clarification of capacity in the UK
case of Re T (Re T [1992] 3 WLR 782). The court outlines the requirements for
capacity in relation to medical treatment – that the person can understand the
medical information, can consider it; can arrive at a decision without coercion; is
not influenced by psychotic phenomena; and can understand the gravity of the
consequences if refusing treatment offered. The reasons for consenting, or refus-
ing, do not necessarily have to be given. These principles, although stated in
reference to medical treatment, can be applied as a useful framework to assess
capacity in other scenarios, such as making decisions about living circumstances,
or in the case of a patient who wants to self-discharge from hospital against
medical advice.
In some jurisdictions, laws define capacity in certain circumstances. In Victoria,
capacity in relation to consenting to medical treatment, or making financial powers
of attorney (Guardianship and Administration Act 1986 (Vic) s36(2)) (InstrumentsAct 1958 (Vic) s118), is contained in the relevant acts. These can provide some
guidance for doctors.
When assessing capacity, it is important to know in which area of decision
making that capacity is questioned. Capacity is situation specific. It is also impor-
tant to ask the patient open-ended questions about understanding rather than
questions requiring a “yes” or “no” response.
A patient’s capacity might fluctuate due to a medical condition, and
reassessment might be required to allow the most accurate assessment.
The medical practitioner’s common law duty of care, toward those without
capacity to make decisions about medical care for themselves, is to always act
in the best interests of those patients (Re F (Mental Patient: Sterilization) [1990]2 AC 1, 78).
Geriatricians find themselves confronting issues, such as these, for their patients
on a daily basis. It is important to be familiar not only with the assessment of
capacity but also with the laws which allow for alternate decision makers and with
advance care directives.
Alternate Decision Makers
Often older patients have not designated enduring powers prior to the loss of
capacity. This situation is slowly changing with good information and community
education.
Guardianship laws, in the states and territories of Australia, allow for legal
mechanisms for alternative decision makers to be appointed, in instances where
a disability exists which leads to incapacity in decision making and where a need
for such an alternative decision maker can be established. In all circumstances, the
least restrictive option, for the person, should be considered first and will also be the
consideration of a tribunal, prior to the legal appointment of an alternative decision
maker.
96 B. Ferres
In some instances, these laws allow for people to appoint their own decision
makers, should they lose capacity. In Victoria, the Guardianship and Administra-
tion Act of 1986 has, since amendments in 1999, allowed for a person, by way of
instrument, to appoint his or her own guardian and to specify the areas in which the
guardian is empowered to make decisions (Guardianship and Administration Act1986 (Vic) s35A). The Victorian Medical Treatment Act of 1988, by way of its
subsequent amendments in 1990, allows for the appointment of an agent to refuse
medical treatment, on behalf of the donor, should the donor lose capacity to make
such a decision (Medical Treatment Act 1988 (Vic) s5B).
Other states and the territories in Australia have similar laws. It is important for
a medical practitioner, working in the area of geriatric medicine in Australia, to be
familiar with the provisions of the relevant Acts. Questions can arise frequently in
medical practice concerning the appropriate alternative decision maker for an older
person who has temporarily, or permanently, lost capacity to make health-care
decisions.
Sometimes attorneys, appointed under such provisions, are not clear about the
authority the instruments give. If it is not immediately clear, it is prudent to suggest
that the attorney or agent might want to seek his or her own legal advice for
clarification. The instrument should provide reference to the Act of Parliament,
under which the instrument is made, and it may be wise to request a copy for filing
in the medical record.
Living Together in the Residential Care Setting
One of the situations which can confront the older person is the necessity, by reason
of failing health, to seek accommodation in a residential aged care facility. This
brings with it, apart from the complex financial decisions involved, the need to live
with people with whom the older person would ordinarily not have chosen to live. It
also raises the question, when an older person is failing to thrive in his or her home,
of the role of the doctor and the legal implications and mechanisms available to
either assist the person to remain at home and thrive or to assist them to move to an
appropriate care situation in a residential facility. The United Nations Principles
outline the need to balance freedom of movement and the right to choose where one
lives, with the right to access residential care which provides protection and
security.
Challenging scenarios can arise in communal living settings within residential
aged care facilities. Behaviors of concern, in those suffering from dementia, can be
triggered by the living situation and can result in requests for medication to help
manage the behavioral and psychological symptoms of dementia. Where these
cannot be managed with environmental modifications, following identification of
any possible triggers for the behavior, then consideration should be given to
whether the behaviors arise from psychotic symptoms which might justify the use
of antipsychotic medication. Consideration also needs to be given to the safety and
dignity of all. There are no easy answers.
7 Legal and Forensic Medicine in Geriatrics 97
Elder Abuse
The principles, in approaching the problem of possible elder abuse, are the same as
in any approach to the older patient: respect for the person; assisting them to make
decisions for themselves as far as possible; allowing the “dignity of risk”; and
balancing this “dignity” against the best interests of the person, particularly as they
lose capacity. Bearing in mind human rights legislation were enacted, and the need
to respect privacy and the right to freedom of movement and association, often
there will not be any need nor any right to interfere. Sometimes the vulnerability of
the older person who is losing capacity needs to be considered, within the context of
these laws, and it may be appropriate to make application to a guardianship tribunal
to hear a matter, following thorough assessment of capacity and consideration of
the need for protection against the need to respect privacy. If the assessment
outcome is that the person has capacity to make decisions for themselves, and
chooses not to receive assistance although vulnerable, then supporting the person
through this decision and regularly reassessing his or her needs might be all that is
possible. If there is no evidence of incapacity, then the guardianship tribunal will
have no role. In some instances, referring a person to a legal service or an advocacy
service for advice, with consent, may be appropriate.
In Australia, there is currently no statutory obligation to report elder abuse in the
community to any authority. If a reportable assault has occurred in a residential
aged care facility, the provider must report this to the police and also to the
secretary of the Department of Health and Ageing within 24 h. (Aged Care Act1997 (Cth) s63-1AA) (http://www.health.gov.au/internet/main/publishing.nsf/
Content/ageing-quality-guidelines-cr-ap.htm) The definition of reportable assault
is contained in Section 9 of the Act and “means unlawful sexual contact, unreason-able use of force, or assault specified in the Accountability Principles and constitut-ing an offence against any law of the Commonwealth or a State or Territory.”
Advance Care Directives
An advance care directive, for future health care in the form of a plan, can be written
by a patient while he or she has capacity. In some states in Australia, these have legal
status through either guardianship or powers of attorney legislation. Other states
allow for the appointment of an agent to act on behalf of the donor. The agent can
only make decisions for the person once capacity is lost, and it may be restricted to
decisions at the end of life when the treatment is considered burdensome.
In South Australia, a person can make an anticipatory direction under the
Consent to Medical Treatment and Palliative Care Act (Consent to Medical Treat-ment and Palliative Care Act 1995 (SA) s7), but the directive for refusal or consentto medical treatment only applies in the circumstance of the person suffering from
a terminal condition.
In Victoria, a person can refuse treatment under the Medical Treatment Act
1988, in relation to a current condition, but cannot as yet make a legally binding
98 B. Ferres
advance directive for any future condition. In discussion with the doctor, a person
can give an indication as to what his or her wishes might be, if a certain medical
condition develops in the future, and ethically the doctor may feel an obligation to
respect that patient’s wishes; however, there would be no legal obligation to do so
in Victoria. Once a patient develops a current condition for which they refuse
treatment, a doctor is legally obliged to comply with a Refusal of Treatment
Certificate, correctly made by the patient or in the case of incapacity, by a legally
appointed agent under the Medical Treatment Act (Medical Treatment Act 1988(Vic) s6).
One of the difficulties, for the medical practitioner in Australia, is the different
nomenclature used, different instruments, and lack of uniform legislation. A doctor,
who is unsure as to what applies, would be encouraged to seek advice from his or
her medical defense organization, the medical administration if working in
a hospital setting, or from a colleague with expertise in the area.
The Australian Health Ministers’ Advisory Council has produced a document
which addresses the complexities of advance care planning across the jurisdictions
in Australia which is a useful resource for those interested in this area (http://www.
ahmac.gov.au/cms_documents/AdvanceCareDirectives2011.pdf).
End-of-Life Care
End-of-life decision making is an area which regularly intersects with the practice
of geriatric medicine.
Those who practice medicine in the area of geriatrics need to be familiar with the
laws around alternative decision makers, particularly at the end of life, but also be
skilled in good palliative care in order to bring comfort to those who are dying. It is
important for the doctor to be clear about, not only the legal but also the ethical,
principles which underpin medical practice in this area and that the provision of
adequate pain relief, at the end of life, does not equate to physician-assisted suicide.
Respect for patients’ autonomy means that as far as is medically and legally
possible, their wishes should be respected. It is helpful if these can be expressed or
have been expressed in the past in discussions with their general practitioner,
physician, or surgeon. Sometimes patients will have expressed these wishes to
members of the family. When communicating with families, if the patient is no
longer able to express their wishes, and these are not already known through
previous communication or through a document, such as an advance care directive
or a legally appointed alternative decision maker, the doctor has to make a decision
about the most appropriate treatment or care that is in the patient’s best interests.
The doctor can take into consideration information communicated by the family,
about wishes the patient might have indicated to them in the past, but is not bound
by the wishes of the family members themselves.
The law does not require doctors to provide medically futile treatment to patients
and also has recognized that a patient has no legal right to demand such treatment.
This is relevant when making orders in respect of “not for resuscitation” or “do not
7 Legal and Forensic Medicine in Geriatrics 99
resuscitate.” The doctor needs to decide what is medically appropriate and then to
take into account the wishes of the patient, if these are known. If it is considered not
medically appropriate to offer cardiopulmonary resuscitation, then this should be
explained to the competent patient in a sensitive manner. The medical decision,
regarding resuscitation, can also be communicated to family in accordance with
good medical practice, if the patient no longer has capacity, or with the consent of
the patient if capacity is retained. Hospitals and health-care organizations will
usually have policies and offer guidance in this area.
Although there have been attempts, in Australia, to legalize euthanasia, specif-
ically in the Northern Territory (Rights of the Terminally Ill Act 1995 (NT)
(repealed)), euthanasia remains illegal in Australia.
This will not stop requests to end someone’s life, especially for those doctors
who look after patients faced with impending death. These requests can come from
patients themselves or from their relatives. Although it is understandable that these
requests will often be made out of distress, whether physical or psychological, it is
important to be aware of the legal position to be vigilant of the patient’s care and not
to be afraid to report a death to the coroner if there is suspicion around the
circumstances of that death.
Ready Reckoner
• It is important to take time to listen to older patients who might have sensory
impairment or may take longer to process information.
• Human rights issues, in relation to care of older people, involve careful consid-
eration of the balance between the right to freedom of movement, privacy, and
choice of living circumstances against the importance of the doctor’s duty of
care to the patient in a safe and secure environment for patients without capacity.
• Capacity is situation specific and can fluctuate. Assessment involves asking
open-ended questions, assessment of the understanding of information, and the
ability to demonstrate an appreciation of consequences.
• Dealing with elder abuse involves respect for the victim’s autonomy, assessment
of capacity, and supporting the victim to seek assistance advocacy or legal
advice. If the victim does not have capacity to make choices, application for
guardianship may need to be considered to promote safety.
• Doctors should be familiar with the roles of alternate decision makers for patients
without capacity and the relevant legislation in the jurisdiction of practice.
• Euthanasia remains illegal in Australia.
Cross-References
▶Advance Directives for Medical Decisions
▶Article 9 of the Convention on Human Rights and Biomedicine
▶Clinical Bioethics and Its Interface with Legal Medicine
100 B. Ferres
▶Clinical Neuropsychology and the Assessment of Capacity
▶European Convention of Human Rights and Biomedicine
▶ Informed Consent and Medical Law
▶Mental Capacity Considerations in Powers of Attorney and Enduring
Guardianship
▶ Patient Consent Conversation
▶Wills and Estates: Succession Law and Testamentary Capacity
References
1. Darzins P, Molloy DW, Strang D editors. Who can decide? The six step capacity assessment
process. Glenside SA 5065 Australia: Memory Australia Press; 2000.
Further Reading
Beauchamp TL, Childress JF. Principles of biomedical ethics. 6th ed. New York/Oxford: Oxford
University Press; 2009.
Skene L. Law and medical practice: rights, duties, claims and defences. Sydney: Butterworths;
1998. Reprinted 1999.
http://www.health.vic.gov.au/acp/. Accessed 12 Feb 2012.
http://www.un.org/en/events/olderpersonsday/index.shtml. Accessed 5 Feb 2012.
7 Legal and Forensic Medicine in Geriatrics 101