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From uneasiness to integration Raffaele D’Errico Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Italian Association of ADHD Families Families

From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

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Page 1: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

From uneasiness to integration

From uneasiness to integration

Raffaele D’ErricoRaffaele D’Errico

AIFA Onlus National PresidentAIFA Onlus National President

Italian Association of ADHD FamiliesItalian Association of ADHD Families

Page 2: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

AIFA onlus

goals goals

To give “voice” to ourselves, parents of ADHD children, to tell our experiences in order to help people understand what it really means to live with an ADHD child in the family.

Page 3: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

IItalian Association of talian Association of AADHD FamiliesDHD Families OnlusOnlus

AIFA onlus

who is AIFA? who is AIFA?www.aifa.it/associazione.htm

A no profit Organization that aims only to social solidarity, information and scientific diffusion regarding the field of Attention Deficit and Hyperactivity Disorder, which expresses itself in a project called………...

Page 4: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

AIFA onlus

Project “Parents for Parents”Project “Parents for Parents”www.aifa.it/storia.htm

Page 5: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

october 20th 2001…october 20th 2001…

…"Parents for Parents" project is introduced to the Holy Pope for the first time on October 20th 2001, at Saint Peter Square, Rome and broadcasted by the main Italian TV Channel “RAI 1”.…

AIFA onlus

www.aifa.it/storia.htm

Page 6: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

AIFA onlus

Project “Parents for Parents”Project “Parents for Parents”

To create a net of parents willing to listen and help those who find themselves in trouble.

To coordinate and encourage contacts between families with the ADHD problem.

www.aifa.it/scopi.htm

Page 7: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

AIFA onlus

Project “Parents for Parents”Project “Parents for Parents”

To inform and update on latest scientific findings using mainly the informatics means.

www.aifa.it/scopi.htm

Page 8: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

AIFA onlus

Project “Parents for Parents”Project “Parents for Parents”

To supply knowledge diffusion on scientific matters regarding ADHD and its relative therapies, in order to help capillarity of those resources aimed to achieve a right and fast diagnosis as well as its multimodal treatment.

www.aifa.it/scopi.htm

Page 9: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

AIFA onlus

Project “Parents for Parents”Project “Parents for Parents”

To create a link among social, scholastic and sanitary structures and their relative operators involved daily with an ADHD child.

www.aifa.it/scopi.htm

Page 10: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

AIFA onlus

Project “Parents for Parents”Project “Parents for Parents”

To make a map of all Italian Centres and Professionals skilled in diagnosis and multimodal treatment.

www.aifa.it/scopi.htm

Page 11: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

AIFA onlus

Project “Parents for Parents”Project “Parents for Parents”

To cooperate with local and National Institutions such as: Ministries, Social Services, Health Departments, Hospitals, Universities, Private Institutions, Scientific-Cultural and “No-profit” Associations.

www.aifa.it/scopi.htm

Page 12: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

AIFA onlus

Project “Parents for Parents”Project “Parents for Parents”

To defend childrens’ rights and their families’, in order to improve their quality of life and favour the social acceptability of the disorder.

www.aifa.it/scopi.htm

Page 13: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

ADHD status in ItalyADHD status in Italy

AIFA onlus

THE ADHD IN ITALY … Is ignored and mistrusted

Rarely diagnosed and properly treated

Adults with ADHD are not treated

The Families are often forced to travel all around the Country to obtain the right diagnosis and treatment

The right therapies are not well known and often the families are charged for it

www.aifa.it/storie.htm

Page 14: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

AIFA complaints….AIFA complaints….

AIFA onlus

…serious happenings

Penal and civil reports

Expulsions from schools, sport and church activities Scholastic outcasting

Scholastic failures

Separation of parents

www.aifa.it/storie.htm

Page 15: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

AIFA complaints….AIFA complaints….

AIFA onlus

Physical and Psychic mistreatment

social isolation of families

Psychic disorder reported in brothers and sisters

Wrong and useless counselling and therapies, often expensive and long lasting

Adopted children with ADHD are often abandoned or sent back to Institutes

www.aifa.it/storie.htm

Page 16: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

serious problems during adolescence

serious problems during adolescence

AIFA onlus

Low self-esteem Inattention Impulsivity/Hyperactivity

Depression, anxiety

Loneliness and instability in relationships

Early and major use of tobacco

Early pregnancies

Scholastic desertion

Poor working profit

Frequnt car accidents

Early pregnancies

Few friends

Law Troubles (rare)

Frequent car accidents

Early pregnancies

Page 17: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

…To describe what it means living with an

ADHD child is hard to explain: it’s just a relation made of

hatred-love, a new kind of feeling, all to be discovered….Only who lives all this can

understand it!

AIFA onlus

www.aifa.it/storie.htm

Page 18: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

But what do they know how my life is, of the

stress of going around all day long following a child

who keeps running around all the time, who cannot be brushed passed by another

child without smacking or insulting him?

AIFA onlus

www.aifa.it/storie.htm

Page 19: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

AIFA onlus

One of my son’s classroom mates’

mother has told me that me and my

husband are not good parents, otherwise it couldn’t be possible that my child keeps

disturbing her child all the time……I feel like

running away in a desert and scream…..

www.aifa.it/storie.htm

Page 20: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

what has AIFA done?what has AIFA done?

AIFA onlus

Promoted self-help

To set up a net of reference parents Nationwide

Replying to letters and phone calles

Gathering “true stories”

Promoting groups of self-help among parents

Promoting parent-trainings sessions

Promoting a census of allNational “Centres and Resources”

Promoting National Meetings for reference parents

Promoting a meeting forum (Agorà)

Promoting the ’AIFA-ICG group for international contacts

www.aifa.it/tappe.htm

Page 21: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

what has AIFA done?what has AIFA done?

AIFA onlus

Publishing the Internet site www.aifa.it

Promoting the NewsletterAifa

Promoting the information newspaper AIFANews

Publishing articols, books, audio-visual material

Replying to “culturally and scientifically uncorrect” articols

Taking part of TV programs and congresses

Organizing local and National Courses and Conventions

Information

www.aifa.it/tappe.htm

Page 22: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

what has AIFA done?what has AIFA done?

AIFA onlus

Contacts with Mass media and Associations

Contacts and cooperation with Health Ministry, National Health Institute, Scientific Societies, and Universities

Contacts with Schools and Ministry of Education

Taking part as member in the International Group of Coordination

Taking part as member in the Family Association Forum

Taking part at the National Consensus

Promoting the diffusion of the Italian Guide Lines (2002)

Promoting the diffusion of the European Council Parliament Recommendation (2002)

Promoting the outset of National Referring Centres (NHI)

Diffusion

www.aifa.it/tappe.htm

Page 23: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

Thanks for this place that you have dedicated to us parents, to make us feel less lonely in our path…….

Thanks for your words of affection and hope that you always manage to find for us……..

Thanks for your strength in fighting for ADHD…

Thanks for being there because it reassures us!

Page 24: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

“AIFA is making a very importan job, not only within its own field, that of supporting the families, but also in that more complex of diffusion of knowledge, being in the meantime the link between School and all the other Institutions, including families, involved with ADHD”.

Honourable Minister Olimpia TarziaPresident of Permanent Observatory of FamiliesRome 2003

Page 25: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

Thanks for what you

are doing…

Page 26: From uneasiness to integration Raffaele D’Errico AIFA Onlus National President AIFA Onlus National President Italian Association of ADHD Families

their smile tomorrow…their smile tomorrow…

Italian Association of ADHD Families

[email protected]

… will also depend on you!