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Focusing on the person with dementiaNiamh Hennelly
PhD Candidate
Centre for Economic and Social Research on Dementia
NUI Galway
“the conceptual view we have of the person will affect the care we are prone to give to people”
(Hughes, 2001, p.86)
Personhood
PhysicalismPersonalism
(Fleischer, 1999)
“It is a standing or status that is bestowed upon one human being, by others, in the context of relationship and social being”
(Kitwood, 1997, p.8)
Personhood moving from focus on the individual
the relational/social
Personhood
Relationships
Role
Connection
Self-identity
Autonomy
Respect
Dignity
Person-centred
care
Personhood
Psychological needs
Social needs
The person’s perspective
See Brooker (2007) and McCormack & McCance (2006) for examples of person-centred care models.
ComfortOutpacing or relaxed paceIdentityInfantilisation or respectAttachmentInvalidation or validationOccupationDisempowerment or empowermentInclusionStigmatisation or recognition
(Kitwood, 1997)
Current Research: What are the key elements of
personhood within formal care in dementia?
• People with dementia• Family members• Formal caregivers• Policy Makers
Interviews with
References• Brooker, D. (2007). Person-centred dementia care: making services better. London, UK, Jessica Kingsley
Publishers.
• Fleischer, T. E. (1999). The Personhood Wars. Theoretical Medicine and Bioethics, 20, 309-318.
• Hughes, J. C. (2001). Views of the person with dementia. Journal of Medical Ethics, 27(2), 86-91.
• Kitwood, T. (1997). Dementia Reconsidered: The person comes first, Buckingham, U.K., Open University Press.
• McCormack, B. and T. V. McCance (2006). Development of a framework for person-centred nursing. Journal of Advanced Nursing 56(5): 472-479.
Other useful references and websites
• Brooker, D. (2009). Enriched Care Planning for PEOPLE with dementia. London, UK, Jessica Kingsley Publishers.
• Dewing, J. 2008. Personhood and dementia: revisiting Tom Kitwood's ideas. International Journal of Older People Nursing, 3, 3-13.
• Kitwood, T., & Bredin, K. (1992). Towards a theory of dementia care: personhood and well-being. Ageing and Society; 12 , pp. 269-287.
• http://www.scie.org.uk/person-centred-care
• https://www.genio.ie/multimedia/publications/person-centred-care-in-the-community
• http://www.alzheimer-europe.org/Ethics/Definitions-and-approaches/Other-ethical-principles/Personhood
• http://dementiaelevator.ie/training-programmes/
• http://butterflyscheme.org.uk/
• http://www.dementiacarematters.com/index.html
• http://www.bradford.ac.uk/health/dementia/dementia-care-mapping/
• https://hellomynameis.org.uk/Images in this presentation taken from https://stocksnap.io. Some authors’ own.
