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Monthly Bulletin 25
June 2011: Monthly Bulletin 25
This update includesarticles on the followingtopics:
ecdp news
1. Disability Hate Crime inEssex and beyond: areport by ecdp
2. ecdp PIP referencegroup
3. ecdp magazine –Spring 2011
4. Disability EqualityTraining
local news
5. Soccability6. Postural Care
national news
7. User Led Organisation’sProject
8. Volunteer’s Week9. Learning Disability
Awareness Week
June 2011
Dear Member,
Welcome to the ecdp email bulletin for June2011.
This edition of the bulletin includes an update onecdp’s Disability Hate Crime work which hasbeen taking place over the last 12 months.
Our major report, which draws together our work
from the last year, was published this month after the findings of the IPCC (Independent PoliceComplaints Commission) report into the death of Fiona Pilkington and her daughter Francescca,which once again highlighted the need for hatecrime to be addressed.
Much of our work on hate crime has involved thevaluable contribution of ecdp members, throughthe online survey and roundtables. The end resultis a report which is built upon the livedexperience of those living within Essex andconcrete recommendations about what needs tobe done to stop hate crime affecting their everyday lives. You can read about theserecommendations, and find more informationabout the report on page 3 of this bulletin.
We have also been working with members to
ensure their lived experience is heard as we look
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Monthly Bulletin 25 – June 2011
10. Disability in the media11. Hardest Hit March
If you want to get in touch with us aboutanyof the articles included in this update:
Telephone: 01245 392 300Email: [email protected]: Ivan Peck House, 1 Russell Way,
Chelmsford, Essex CM1 3AA
towards the replacement of DLA with PIP. As partof this, we are inviting members to take part in asurvey which asks about your experiences of the
benefit and how it could be improved upon withthe change to PIP. For more information on this,please see page 5. The survey can be found byfollowing this link:http://www.surveymonkey.com/s/ecdppip
Once you have completed the survey, pleaseshare this link with anyone else who you thinkwould be interested in contributing their
experiences of DLA, or their opinions on how PIPshould work – whether or not they live in Essex or are an ecdp member.
As ever, please feel free to get in touch andshare any feedback you might have about theemail bulletin, or any of the issues raised in thearticles. To do this, please use the contact detailsbelow, or use the Members’ Forum on our website.
Best wishes,
Rich WattsDirector of Policy & Development
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ecdp’s Disability Hate Crime report
Many of our members will know that over the last 12 months, ecdphas examined in depth the issues around disability hate crime both inEssex and nationally. Our work – which has included a dedicatedseries of meetings with our members to gather their lived experience,as well as meetings with colleagues across the public and voluntarysectors – has culminated in a report we published this month.
Our report identifies four key areas which need to be examined in
order to address disability hate crime. Together, these make up our USER framework for addressing disability hate crime:
Understanding – there needs to be a greater understanding of disability hate crime
Signposting and Support – services which signpost and supportdisabled people when they are victims of hate crime should bewidely available and well coordinated
Education – to ensure wider change for disabled people, we believeeducation work should be focused on three particular groups of stakeholders: disabled people themselves, professionals and wider society
Reporting – we believe stronger processes for reporting willincrease the number of investigated and prosecuted cases.
It is our primary recommendation that a user-led organisation, workingwith and for disabled people, is best placed to work in partnership withorganisations that have responsibility for hate crime – including localpolice – to address these four areas.
In practice we suggest that thisneeds to be co-ordinated centrallyby a dedicated Disability HateCrime Officer who would workacross Essex.
We will share copies of our reportwith all local stakeholders and
relevant colleagues. We are alsocommitted to working alongside
June 2011: Monthly Bulletin 25
ecdp news
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June 2011: Monthly Update 25
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community partners, the police and the Crown Prosecution Service toensure this vital issue is addressed.
You can download a full and summary version of our report fromecdp’s website: Disability hate crime in Essex and beyond: a reportby ecdp.
Following the publication of the report, we were delighted for it to befeatured in Society Guardian and Community Care. You can read bothof the articles on our website, here: Disability Hate Crime.
ecdp’s Lived Experience Officer, Faye Savage, was also invited tospeak on BBC Essex about the Disability Hate Crime report and therecommendations made. An Audioboo recording of this interview isavailable on our website: Disability Hate Crime – BBC Essex
For more information about ecdp’s work on disability hate crimeplease contact Faye Savage by phone on 01245 392310 or email [email protected].
ecdp news
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ecdp PIP reference group
As part of ecdp’s ongoing contribution to national consultations on thereforms to DLA (Disability Living Allowance) and its replacement withPIP (Personal Independence Payment), we have formed a referencegroup made up of individuals who can offer their perspective on thechanges.
The reference group met for the first time at the end of May to discussthe policy briefing papers published by DWP earlier in themonth. These papers include initial information on how the
proposals will work in practice. You can read about how thatmeeting went, here: ecdp members share their views on DLAreform and PIP.
On the day of the meeting, we recorded two Audioboos –one before, about the purpose of the group and what we wanted toachieve – and the other afterwards, reflecting on how the meetingwent. They are both available on our website here: Views of our members on PIP.
To ensure all of ecdp’s work in this area is underpinned by the livedexperience of members and other disabled people in Essex andbeyond, we have launched an online survey. This link will take you tothe SurveyMonkey website, where the survey is available: ecdpPersonal Independence Payment survey.
The information shared with us through the PIP reference group willbe submitted to DWP by their Monday 6 June deadline for feedback.
Lived experience collected in future meetings, and responses to thesurvey, will also be shared with DWP throughout the summer.
If you would like to speak to ecdp’s Lived Experience Officer aboutPIP, then please email [email protected] or call 01245 392300.
ecdp news
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ecdp magazine – Spring 2011
During May, the Spring 2011 edition of the ecdpmagazine was sent out to our members across Essex,and is also available to read in a number of formats onour website too.
The magazine is produced quarterly and is designed toupdate members on our key work in the previous threemonths, as well as providing a space for us to shareother information which we think may be of interest to
our members.
However, as well as allowing us to communicate withyou, it also enables you to communicate with us, andother ecdp members.
The ‘member’s contribution’ section on the back page is dedicated toincluding your views, articles, poetry, and anything else you wish toshare. If you are interested in submitting something to this back page,
or highlighting something you think we should be covering elsewherein the magazine, please email [email protected] or call 01245392300.
The Spring 2011 edition includes the following articles:
ecdp helps to shape welfare reform ecdp’s work on Disability Hate Crime
Blue Badge Scheme reform
“Stand by me” seeks lived experience
Your experiences of Access to Work
Choice and Control: an ODI project
Personalisation and young disabled people
User-Led Organisations on Social Care TV
Buy with Confidence Scheme in Essex Welcoming ecdp’s latest affiliate members Introducing ecdp connects Free training from ecdp pass
Member’s contributions
ecdp news
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It also includes adverts and articles from affiliate members; Haddocks,Your Local Handyman, Estuary Housing and AQS Homecare. For
more information on advertising in the ecdp magazine and the wider benefits of affiliate membership, please see the ecdp enterprise pages, or contact Karen Bellerby: [email protected] or 01245392303.
All past editions of the magazine are available here:http://www.ecdp.org.uk/magazine/
ecdp news
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Disability Equality Training
The Equality Act is here. Are you taking notice?
What are the rights and entitlements for disabled people?
What is it that disables people in society?
What does the Equality Act (2010) cover?
What is the correct language and terminology to use?
By the end of the training you will be able to answer these questions.
Participants will also get the opportunity to develop and share practicalguidelines for best practice.
All courses take place at our fully accessible Chelmsford trainingcentre and are delivered by trainers with lived experience of disability.
If you want to stay ahead of the curve on equality book now for our next course on Thursday 7 July 2011.
For more information and to book, please contact Karen Bellerby on01245 392303 or email [email protected]
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Soccability
Soccability is the term adopted by football clubs and organisations inEssex to describe football opportunities for disabled people.
The aim of Soccability is to provide coaching and competition tailoredfor disabled children with wide ranging footballing ability. This includesa variety of training drills, coach education courses and specialistequipment.
Soccability is open to all disabled people with all levels of footballingability. Soccability is played in three age groups Under 12, Under 16and Adult, and in three Categories, premiership, championship andfun.
For more information contact John Manning atthe Essex FA on 01245 393 095 or visit
http://www.essexfa.com/Development/Disability/
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local news
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Postural Care
ecdp has been asked to share information about some awarenesssessions being held on postural care.
The training is free to attendees and is accredited.
There are four remaining sessions in Essex, as below, and eachsession starts at 10am and ends at 2pm:
Braintree – Monday 6 June Harlow – Tuesday 7 June
Colchester – Wednesday 8 June
Clacton – Thursday 9 June
For more information see the poster on ecdp’s website: Postural CareFlyer or contact [email protected] 01827 304 938 to booka place.
local news
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User Led Organisation’s Project
Encouraging strong and sustainable disabled people’s user-ledorganisations
The ODI (Office for Disability Issues) have launched a new initiative toencourage strong and sustainable disabled people’s user-ledorganisations (ULOs).
The ODI will be investing £3million over the next four years in a multi-layered approach that aims to support ULOs.
In order to deliver this work, the ODI will be recruiting for several roles:
A National Lead post (someone from a ULO seconded to theOffice for Disability Issues to work with a civil servant) which willprovide a focal point for ULOs and oversee the other layers.
Ambassadors who will be responsible for promoting the cause of ULOs and encouraging ULOs to share learning and worktogether
Experts who will provide skills and training to support ULOs.
If you are interested in any of these roles please [email protected] for more information.Application packs and forms can be downloaded from the ODIwebsite: ODI - User Led Organisations. The deadline for applicationsis 10am on Friday 3 June 2011. Late applications will not beconsidered.
Underpinning all this will be a Facilitation Fund which will be availablefor ULOs to bid for small to moderate amounts of money for specificprojects which will improve their sustainability. More information will beavailable in mid-July.
You can read the full DWP (Department for Work and Pensions) pressrelease here: DWP - Government announces £3m extra for disabledpeople’s organisations
The Guardian covered the ULO project in their Society pages: The
Guardian - Disabled people win small step towards greater independence
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national news
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Volunteers’ Week:Wednesday 1 - Tuesday 7 June
To celebrate this year’s Volunteers’ Week, ecdp will befeaturing the stories of ecdp insight members who have usedtheir lived experience in a variety of ways to achieve their goals through volunteering.
Starting Wednesday 1 June, we will be posting a story on the
ecdp website each day of Volunteers’ Week – so keepchecking back to see the different experiences people havehad and what they have achieved.
ecdp insight supports disabled people to use their lived experience asfar as they want by identifying their goals and aspirations andproviding personal development pathways. Pathways are made up of a number of opportunities to support people as their personaldevelopment progresses.
For more information on ecdp insight, and how you can get involved,please see the ecdp insight webpage. You can also watch thevolunteering at ecdp film, which demonstrates the differencevolunteering has made to people’s everyday lives.
national news
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Learning Disability Awareness Week:Monday 20 - Sunday 26 June 2011
Learning Disability Week is a week of national campaigning and awareness raisingrun by Mencap every year. This year it runsfrom Monday 20 to Sunday 26 June, whenMencap will launch a 3 year campaignagainst hate crime, called Stand by me.
Stand by me will challenge the police, thecriminal justice system and the courts to endhate crime against people with a learningdisability.
You will be able to get involved in a range of activities and events tosupport the campaign. You can download your campaign guide now. For further information, please see the Mencap website or email
If you or someone you know has been a victim of hate crime we wouldlike to hear from you. Please fill in our online form or contactBrenda Shalvey: 020 7696 5568 /[email protected]
If you are holding an event for Learning Disability Week, and wouldlike ecdp to share the details with other disabled people in Essex,please contact Faye Savage on 01245 392300 or email
national news
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Disability in the media
Findings from this survey of adults in Great Britain, conducted by IpsosMORI on behalf of Mencap, reveal that the majority of the public isunable to name a high profile person with a disability. David Blunkettand Stephen Hawking are the most well known and Susan Boyle is theonly public figure named who has a learning disability.
Over half the public (52 per cent) is unable to name a high profileperson they have seen in the media with a disability, increasing to 99
per cent who are unable to correctly name someone with a learningdisability. Labour MP, David Blunkett, who is blind, and theoreticalphysicist, Stephen Hawking, who has motor neurone disease, werethe most frequently mentioned people with a disability in the poll (13per cent each), followed by actor, Stephen Fry, who has bipolar disorder (8 per cent). Less than one per cent of respondents were ableto correctly name a high profile person with a learning disability,namely the former Britain’s Got Talent star, Susan Boyle.
The poll also revealed that a large segment of the public (41 per cent)believes that the number of people with a disability who they haveseen, heard or read about in the media does not reflect that of societyas a whole, versus those who do think it is reflective (21 per cent).
Almost half the public (44 per cent) are keen to see, hear or read moreabout people with disabilities in the media than there are at themoment with only a small minority (12 per cent) who disagreed.
Download the poll topline (PDF) Download the full computer tables (PDF)
national news
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Hardest Hit MarchOn Wednesday 11 May thousands of disabled people, their familiesand supporters from all over the country protested outside the Housesof Parliament to make their feelings known about the impact of spending cuts on disabled people.
Thousands of disabled people marched past Parliament todemonstrate their support for the Hardest Hit Campaign. Speechesthen took place at noon, before the Lobby of Parliament.
During the Lobby disabled people met with their local MPs to ask themto take action on their behalf.
For more information, see The Hardest Hit website, where further details of the day are also available.
In advance of the March ecdp member, Barry O’Connell appeared onBBC Essex radio, speaking about his lived experience, how DLA - and
his assistance dog, Guy - have supported him to live independently,and why he will be attending the march.
An Audioboo recording is available on our website, here: Hardest HitMarch and the full interview is available on iPlayer , and runs from1:07.0 to 1:16.40: BBC iPlayer - Dave Monk Show 6 May 2011.
An excellent film of the day, made by MarkThree Media, is available toview on ecdp’s website: Hardest Hit March Film
If you would like to share you experiences of marching and anyphotographs with ecdp please email [email protected].
national news
